Imajin se yu de laf wit yu padi dɛn ɛn wantɛm wantɛm yu jaw drɔp opin, ɔ yu nɛk bɛn fɔdɔm wantɛm wantɛm. Ɔ we yu de tɔk wit wamat to pɔsin, yu ni dɛn kin giv ɔp wantɛm wantɛm ɛn yu fɔ sidɔm na grɔn. Yu dɔn ɛva gɛt dis ɛkspiriɛns? Nɔ fred. A de ya tide fɔ tɔk bɔt dis kɔndishɔn. Insay mɛrɛsin, wi kin kɔl dis katapleksi.
Wetin rili na katapleksi?
Fɔ tɔk am simpul wan, katapleksi na we yu gɛt wan kayn we we yu nɔ de wok fɔ yu mɔsul dɛn wantɛm wantɛm ɛn fɔ shɔt tɛm we yu de wek, we yu gɛt strɔng filin lɛk fɔ laf, gladi, ɔ vɛks. Dis na rili wan impɔtant sayn fɔ wan sik wae de kam pan pɔrsin wae de slip wae dɛn kɔl narkolepsi. Narkolepsi na wan sik wae de te (layf) wae de mek yu nɔr ebul fɔ kɔntrol yu slip na de.
Katapleksi kin mek di mɔsul dɛn wik we kin kɔmɔt frɔm smɔl to siriɔs. Fɔ ɛgzampul, yu kin jɔs lɛf fɔ kɔntrol yu fes mɔsul dɛn, ɛn dis kin mek yu jaw drɔp, ɔ yu nɛk kin bɛn fɔ go bifo smɔl. If tin tranga, yu nɔ go ebul fɔ kɔntrol yu bɔdi ɛn fɔdɔm na grɔn.
Bɔt di tin we impɔtant pas ɔl na ya na fɔ no ɔltin we dis apin . Yu nɔr de lɔs kɔnshɛns lɛk aw yu kin lɔs wae yu gɛt sinkɔp ɔr yu gɛt sik.
Dis sik kin te fɔ sɔm sɛkɔn to sɔm minit nɔmɔ. Dɔn i kin bɛtɛ fɔ insɛf. Sɔm pipul dɛn kin gɛt am bɔku tɛm insay di de, ɛn ɔda wan dɛn kin gɛt am wan ɔ tu tɛm insay di ia.
Wetin na di difrɛns bitwin katapleksi ɛn narkɔlepsi?
Bɔku pipul dɛn kin kɔnfyus dɛn tu tin ya. Katapleksi na jɔs wan sayn we de sho se pɔsin gɛt narkolepsi. Tu men kayn sik de we dɛn kin gɛt na kɔlepsi. di tu tin dεm de difrεnt bay if katapleksi de כ nכ de.
| Tayp fɔ sik we dɛn kɔl narkolepsi | Yu tink se katapleksi de? | Tɔk bɔt |
|---|---|---|
| Narkolepsi tayp 1 | Yɛs, i de. | Dɛn pipul ya gɛt katapleksi. dεn gεt lכw lεvεl dεm fכ di nyurotransmit כrεksin (haypokrεtin) na dεn bren. Dis sik kin kam wit wae pɔrsin kin slip pasmak na de. |
| Narkolepsi tayp 2 | Nɔ. | Dɛn pipul ya nɔ kin gɛt katapleksi. di lεvεl dεm fכ כreksin na dεn bren kin de na di rayt lεvεl. |
Aw pikin dɛn kin bia we dis kin apin?
Katapleksi na pikin dɛn difrɛn smɔl. I kin afɛkt di mɔsul dɛn na di fes, di jaw, ɛn di yaylid dɛn mɔ. I kin tan lɛk se dɛn de fil pen ɔ dɛn de kray bikɔs dɛn nɔ lɛk dɛn. Sɔm pikin dɛn go ivin stik dɛn tɔng insay dis tɛm.
Bɔku tɛm we dis kin apin to yɔŋ pikin, in mama ɛn papa ɔ ɔda pipul dɛn kin tink se na sayn fɔ se dɛn nɔ pe atɛnshɔn to dɛn, dɛn kin gɛt sik, dɛn kin vɛks, ɔ jɔs na we fɔ mek dɛn pe atɛnshɔn to dɛn . So, if yu notis dis kayn chenj we yu nɔ go no bɔt na yu pikin in bihayvya, i rili impɔtant fɔ kɛr am go to dɔktɔ wantɛm wantɛm .
Wetin mek dis de apin? Wetin na di rizin?
Di men tin we kin mek pɔsin gɛt katapleksi na narkɔlepsi tayp 1. I kin kam bikɔs wan kemikal (nyurotransmitta ) nɔ de na di bren we dɛn kɔl ɔrɛksin . Dis orexin de ɛp fɔ mek wi wek ɛn kɔntrol REM slip (di dip slip usay wi de drim) we wi de slip.
naw, i nכmal fכ sכm pan wi mכsul dεm fכ go insay wan stet fכ paralayz we wi de na REM slip. Dis na fɔ mek wi nɔ rili du di tin dɛn we wi kin drim bɔt ɛn mek bad tin apin to wisɛf. Bɔt we Orexin smɔl, ivin we wi wek, we wi gɛt strɔng filin lɛk fɔ laf, wi bren kin tink se wi de na REM slip. Dɔn di paralayz we kin apin we wi de slip da tɛm de kin apin we wi stil wek. Dɛn kɔl dat katapleksi.
Aw dɛn kin trit am?
Dɛn kin trit dis sik mɔ wit mɛrɛsin. Di sem mɛrɛsin dɛm wae dɛn kin yuse fɔ ɛp yu fɔ de wek ɛn kɔntrol di katapleksi simptom dɛm na dɛn kin yuse fɔ trit narkolepsi. Yu dɔktɔ go chɛk yu ɛn tɛl yu di tritmɛnt we go fayn fɔ yu.
Bɔku kayn mɛrɛsin dɛn de we dɛn dɔn gri fɔ fɔ mek pɔsin gɛt katapleksi:
- Sɔdiɔm ɔksijɛt
- Ɔksijɛt we gɛt smɔl sɔdiɔm
- Pitolisant we de na di wɔl
Apat frɔm dat, dɔktɔ dɛn kin gi ɔda mɛrɛsin fɔ dis. Dis min se ivin if dɛn rili mek di mɛrɛsin fɔ ɔda sik, i kin wok fayn bak fɔ katapleksi. Fɔ ɛgzampul, dɛn kin yuz sɔm antidipreshan (SSRI, SNRI, TCA) fɔ dis.
Di tin we impɔtant pas ɔl na dat, we yu dɔn bigin fɔ tek tritmɛnt, i rili impɔtant fɔ tek yu mɛrɛsin jɔs lɛk aw yu dɔktɔ tɛl yu . If yu stɔp fɔ tek yu mɛrɛsin wantɛm wantɛm, yu katapleksi kin rili bad. So if yu gɛt ɛni kwɛstyɔn bɔt yu mɛrɛsin, tɔk to yu dɔktɔ bɔt am.
Aw a go tek kia ɔf misɛf we a de liv wit dis sik?
Nɔr kin ebul fɔ avɔyd katapleksi ɔltɛm, bɔt bɔrku pipul dɛn kin ripɔt se i kin apun bɔrku tɛm pan de dɛm wae dɛn kin taya pasmak. So we yu slip fayn na nɛt, dat kin ɛp yu fɔ kɔntrol am.
Na sɔm simpul tin dɛn we yu go du we go ɛp yu:
- Go slip di sem tɛm ɛvride ɛn wek di sem tɛm.
- Kip yu bedrum kwayɛt, dak, ɛn na fayn tɛmpracha.
- Rimov ilɛktronik tin dɛn lɛk TV, kɔmpyuta, ɛn fon na di say we yu de slip.
- Nɔ it ebi ebi it, kɔfi, ɛn rɔm fɔ lɛk tu awa so bifo yu go slip.
- Gɛt sɔm ɛksesaiz insay di de. I go ɛp yu fɔ slip fayn na nɛt.
Apat frɔm dat, ɔda tin dɛn de we yu kin du:
- Tink bɔt sef: If yu nɔ no natin wantɛm wantɛm, i kin denja, mɔ if yu de drayv ɔ wok na say dɛn we ay. Tɔk to yu dɔktɔ bɔt dis ɛn lan bɔt aw fɔ protɛkt yusɛf.
- Tɛl ɔda pipul dɛn bɔt dis: Tɛl yu fambul, padi dɛn, ɛn pipul dɛn na yu wokples bɔt dis. So dat if sɔntin apin to yu wantɛm wantɛm, dɛn go no wetin de apin ɛn nɔ fred.
- Gɛt sɔpɔt: Fɔ liv wit dis sik kin tranga pan aw pɔrsin de fil. Join sɔpɔt grup dɛm usay dɛn kin fɛn ɔda pipul dɛm wae gɛt dis sik. Dɔn bak, if dis de mek yu strɛs ɔr de wɔri pasmak, nɔr frayd fɔ tɔk to yu dɔktɔ ɔr pɔrsin wae sabi bɔt yu maynd , lɛk dɔktɔ wae de mɛn yu maynd .
If yu ɔ yu pikin gɛt ɛni wan pan dɛn sik ya, go to dɔktɔ ɛn nɔ de te. Dis na kɔndishɔn wae dɛn kin kɔntrol fayn fayn wan wit tritmɛnt.
Mɛsej we dɛn kin kɛr go na os
- Katapleksi na we di mɔsul dɛn nɔ de wok fayn we pɔsin de fil strɔng. Dis nɔto kɔnvulshɔn ɔr sik, as yu stil de no.
- Dis na wan impɔtant sayn fɔ Narkolepsi Tayp 1, we kin kam bikɔs di kemikal we de na di bren we dɛn kɔl ɔrɛksin dɔn go dɔŋ.
- pan pikin dεm, dis kin sho difrεn we dεm, lεk fכ sכt fכs כ tכng we de kכmכt. If yu notis dɛn sayn ya, go to dɔktɔ wantɛm wantɛm.
- Dɛn kin kɔntrol dis sik fayn fayn wan wit mɛrɛsin. I rili impɔtant fɔ fala wetin di dɔktɔ tɛl yu fɔ du.
- I rili impɔtant fɔ mek yu slip fayn, fɔ mek di wan dɛn we de nia yu no bɔt yu sik, ɛn fɔ de sef.
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