Yu tink se dis taya we pɔsin nɔ ebul fɔ bia, na jɔs tin we pɔsin kin tink bɔt? Lɛ wi tɔk bɔt Myalgic Encephalomyelitis/Kronik Fatigue Syndrome (ME/CFS)!

Yu kin fil so taya ɛn taya dat yu nɔ ebul fɔ du yu wok dɛn we yu de du ɛvride, ɔ ivin grap na bed? Yu tink se fɔ shaw ɛn pripia tin fɔ it kin tan lɛk se na big wok? We yu tɛl pɔsin bɔt dis, dɛn nɔ de pe atɛnshɔn to yu, ɛn se, "Na jɔs yu les," "Gɛt sɔm slip," ɔ "Na jɔs wan mental prɔblɛm?" Dɔn yu fɔ rili rid dis atikul. Bikɔs tide wi de tɔk bɔt wan sik we kin mek pɔsin gɛt sɔm kayn sik lɛk dis, bɔt bɔku pipul dɛn, na di sosayti ɛn na di mɛdikal fild, nɔ kin rili no bɔt am.

Wetin rili na Myalgic Encephalomyelitis/Kronik Fatigue Syndrome (ME/CFS)?

Fɔ tɔk am simpul wan, ME/CFS na wan sik wae kin teik lɔng tɛm, kɔmpleks, ɛn wae kin rili ambɔg yu ɛvride woke. De men sayn na wae yu taya bad bad wan wae yu nɔr kin ebul fɔ bia ɛn yu nɔr kin ebul fɔ ɛksplen am bikɔs ɔf ɛnitin. Dis nɔ tan lɛk nɔmal taya. Dis taya nɔ kin go ivin afta we pɔsin dɔn slip fɔ lɔng lɔng tɛm.

Imajin se yu de kam bak frɔm shɔt trip, ɔ yu de du sɔm wok dɛn na os. Dɔn, fɔ sɔm dez, yu kin fil taya so dat yu nɔ kin ebul fɔ grap na bed. Wi kin kɔl dis "Post-Exertional Malaise." E min se di sik kin wɔs afta yu dɔn tray smɔl na yu bɔdi ɔr yu maynd.

Bɔrku pipul wae de liv wit dis sik kin gɛt bɔrku ɔda prɔblɛm.

• Slip we nɔ de mek pɔsin fil fayn
• Bɔdi pen
• Nɔ ebul fɔ kɔnsɛntret, fɔgɛt ɔltin, wan stet lɛk bren fɔg
• Diziz we yu tinap ɔ sidɔm

Dɛn sik ya kin mek i bi drim fɔ mek dɛn wok, tek pat pan sɔshal tin dɛn, ɛn ivin du tin dɛn we dɛn kin du ɛvride.

Yu tink se dis na rial sik? Ɔ yu de ignore wi?

Dis na di big big chalenj wae pipul dɛm wae gɛt ME/CFS kin gɛt. Nɔto dɛn famili, padi, ɛn bɔs dɛn nɔmɔ, bɔt sɔntɛnde ivin dɔktɔ dɛn nɔ kin tek dɛn sik ya siriɔs wan. Wan sɔv we dɛn jɔs du we di CDC ɛn WebMD na Amɛrika dɔn sho se pipul dɛn nɔ no bɔt dis sik rili smɔl.

Imajin aw i rili sɔri. Yu de sɔfa wit sik, bɔt nɔbɔdi nɔ de fɔ tɛl am, ɛn ivin if yu de sɔfa, nɔbɔdi nɔ biliv yu. Wan stɔdi we dɛn bin du sho se 6 pan ɛvri 10 pipul dɛn we dɔn go to dɔktɔ kin fil se dɛn nɔ tek dɛn siriɔs wan.

• 64% na dεn dכkta dεn tεl dεm fכ "gεt rεst."
• 62% se "Dis na mental prɔblɛm."

Dis kin mek dɛn delay fɔ no if pɔsin gɛt di sik fɔ lɔng lɔng tɛm. Sɔm pipul dɛn kin tek pas 5 ia fɔ gɛt kɔrɛkt diagnosis.

Wetin mek i nɔ izi fɔ no if pɔsin gɛt di sik?

Bɔku men rizin dɛn de we mek fɔ no bɔt ME/CFS kin tranga.

1. Nɔ patikyula tɛst nɔ de: Jɔs lɛk aw yu de chɛk blɔd shuga fɔ no if yu gɛt dayabitis, nɔto patikyula blɔd tɛst ɔ skan stil de we go ebul fɔ kɔnfɔm ME/CFS.

2. Di sayn dɛm kin difrɛn: Di we aw di sayn dɛm kin sho kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. Apat frɔm dat, dɛn kin si dɛn sayn ya pan bɔku ɔda sik dɛn.

3. Nɔto fɔ no bɔt dɔktɔ dɛn: Bɔku mɛdikal skul dɛn ɔlsay na di wɔl nɔ de put ME/CFS insay dɛn kɔrikulu, we de mek sɔm dɔktɔ dɛn tink se na saykilɔjik prɔblɛm.

So fɔ no dis sik, yu nid dɔktɔ we sabi du di wok ɛn we de peshɛnt fɔ lisin to di pɔsin ɛn tek tɛm luk di sayn dɛn we i gɛt . Di dɔktɔ go rich dis kɔnklushɔn afta i dɔn lisin gud gud wan to di sayn dɛm we yu gɛt ɛn nɔ gri wit ɔda mɛrɛsin sik dɛm.

Wetin na Bren Fɔg?

Dis na sayn we de mek pɔsin vɛks bad bad wan. Di sik pipul dɛn se sɔntɛnde dɛn kin tayp ɛn sɛn imel na wokples, bɔt di nɛks tɛm dɛn nɔ kin mɛmba if dɛn sɛn di imel ɔ wetin bin de insay. I kin tek lɔng tɛm fɔ tink bɔt simpul tin dɛn ɛn disayd fɔ du sɔntin. Dis kin rili afɛkt dɛn wok ɛn dɛn yon layf.

De chalenj dɛm fɔ liv wit dis kɔndishɔn

Dɛn pipul ya kin sɔfa wit mental strɛs we wɔs pas di pen na dɛn bɔdi we ME/CFS kin kam wit. Di sɔri-at ɛn de wangren we dɛn kin fil we dɛn yon famili kin tink se, "Yu de akt," ɛn we dɛn padi dɛn kin aks dɛn se, "Yu de avɔyd wi naw," na tin we rili at fɔ bia.

So, i rili impɔtant fɔ mek wi ɔl no bɔt dis sik. If yu gɛt dɛn kayn sik ya, ɔr if pɔrsin wae yu sabi de sɔfa wit dis sik, de big ɛp wae yu kin du na fɔ sɔpɔt dɛm ɛn ɔndastand am.