Yu no bɔt dis kayn tin we nɔ kin apin so ɔltɛm na yu pikin in at? (Dɔbul Ɔutlet Rayt Vɛntrikl)

Yu nyu bɔn pikin in skin ɛn in lip dɛn kin luk blu smɔl? I tan lɛk se i gɛt smɔl prɔblɛm fɔ blo? Ɔ i kin swet bɔku we i de drink sɔm milk? Nɔ jɔs dismis dɛn tin ya as coincidences. Sɔmtɛm dɛn tin ya kin bi sayn fɔ wan at sik we dɛn bɔn yu pikin wit. Tide wi de tɔk bɔt wan rare at kɔndishɔn we yu, as mama ɔ papa, fɔ rili no bɔt. Dat na Double Outlet Right Ventricle, ɔ DORV fɔ shɔt.

Fɔ tɔk am simpul wan, wetin na Dabl Ɔutlet Rayt Vɛntrikl (DORV)?

Fɔ ɔndastand dis, lɛ wi tink fɔs bɔt aw wɛlbɔdi at kin wok. Wi at tan lɛk smɔl os we gɛt 4 rum dɛn. Tu rum dɛn we de ɔp ɛn tu rum dɛn we de dɔŋ. di tu big, strכng rum dεm we de dכn dεn kכl dεm vεntrikl. wan de na di rayt say (Right Ventricle), ɛn di ɔda wan de na di lɛft say (Left Ventricle).

Dis na wetin kin apin:

• di men bכdi we de kכri bכdi we nכ gεt כksijεn, "dכti" bכdi to di lכng dεm, di pulmonari at, de bigin na di rayt vεntrikl .
• di big bכdi vεsεl, di aorta, de bigin frכm di lεft vεntrikl, we de kכri "klin" bכdi we dεn bin gεt כksijεn frכm di lכng dεm כlsay na di bכdi.

I rili nit, nɔto so? Wan big tiub na ɛni rum.

Naw, insay di kes fɔ DORV, dɛn dɔn ambɔg dis ɔda. pan pikin we gεt DORV, di tu men bכdi vεsul dεm we wi bin mεnshכn, di Pulmonary Artery εn di Aorta, de kכnekt כl כ pat pan di Right Ventricle. afta dat, di Lεft Vεntrikl nכ de kכnekt to eni men bכdi vεsεl, כ na wan rili sכm pat nכmכ de.

Dis de mek wi aks tu kwɛstyɔn dɛn:

1. Di blɔd we gɛt ɔksijɛn ɛn klin we nid fɔ travul go ɔda pat dɛn na di bɔdi, de miks wit di blɔd we nɔ gɛt ɔksijɛn ɛn we nɔ klin.

2. Dɛn de pɔmp mɔ blɔd tru di lɔng dɛn pas aw dɛn nid am. Dis kin put bɔku strɛs pan ɔl tu di at ɛn di lɔng dɛn. As tɛm de go, dɛn ɔgan dɛn ya kin pwɛl.

Us ɔda prɔblɛm dɛn kin si wit DORV?

Sɔntɛnde, pikin dɛn we gɛt DORV kin gɛt ɔda prɔblɛm dɛn we dɛn kin bɔn we dɛn bɔn dɛn. Sɔm pan dɛn tin ya na:

• di ciliary dysfunction: prכblεm wit di fכnshכn fכ di vεri dilik, lεk ia pat dεm na di pikin in rεspiretכri trakt.
• Hɛtɛrotaksi: .di pikin in כgan dεm na di chεst εn bεlε de posishכn na כda ples dεm pas usay dεn nכmal fכ de.
• Intestinal malrotation: Na abnɔmal twistin na di pikin in intestinal.
• di pulmonary stenosis: di valv we de bitwin di rayt vεntrikl εn di pulmonari at de sכmtεm כ sכm.
• Vεntrikul haypoplasia: wan כ tu chεmba dεm na di at sכm sכm pas nכmal.

Difrɛn kayn DORV dɛn de? Aw dɛn go ebul fɔ no difrɛns?

Yes, difrɛn kayn DORV dɛn de. Dis klasification na wan tin we rili impɔtant de disayd. dat min se, kכlכsכl εvri pikin we gεt DORV gεt ol bak na di wכl bitwin di tu chεmba dεm na di at (Ventricular Septal Defect - VSD). Dis ol de mek blɔd nɔ de flɔd bak ɛn go bifo bitwin di tu chɛmba dɛn.

Dɔktɔ dɛn kin klas DORV bay usay di VSD ɔ ol de.

Fɔ no gud gud wan us kayn dis na impɔtant tin fɔ plan tritmɛnt.

Mama ɛn Papa, una fɔ no bɔt dɛn sik ya!

Di sayn dɛm fɔ DORV kin apin insay di fɔs de ɔ wik afta dɛn bɔn am. Yu fɔ rili tek tɛm wit dɛn tin ya.

Wetin kin mek pɔsin gɛt dis sik? Us prɔblɛm dɛn kin apin?

Infakt, di wan dɛn we de stɔdi bɔt dis nɔ dɔn fɛn ɛni patikyula kɔz fɔ DORV yet. כltu, dεn fכnshכn se lεk 50% pan di pikin dεm we gεt dis kכndyushכn gεt sכm kayn chenj na dεn kromozom dεm, di pat dεm na wi jεnεtik infכmeshכn (DNA).

If dɛn nɔ trit DORV fayn, kɔmplikeshɔn kin kam as tɛm de go.

• Di at bit we nɔ de bit ɔltɛm (Arrhythmias) .
• Di prɔblɛm dɛn we kin apin na di at valv
• At we nɔ de wok fayn
• Pulmonari haypatɛyshɔn
• Infεkshכn na di insay layn na di at (Endocarditis) .

Aw dɔktɔ dɛn kin no if pɔsin gɛt DORV?

Sɔntɛnde, dɛn kin no dis kayn at sik ivin bifo dɛn bɔn di pikin, we dɛn de skan di pikin we yu gɛt bɛlɛ. di spεshal skan we dεn yuz fכ dis dεn kכl am ``Fetal Echocardiogram''.

If dat nɔ pɔsibul, di dɔktɔ dɛn go sɔprayz dis nɔmɔ we di sayn dɛn we wi bin dɔn tɔk bɔt fɔs apin afta dɛn bɔn di pikin. Dɔn dɛn go chɛk di pikin.

• Chek fɔ si if di pikin in skin de tɔn blu.
• dεn de lisin to di at wit stεtoskop fכ chεk fכ eni abnכmal sawnd dεm (murmurs).
• Pulse Oximetry na tεst we de mכsu di כksijεn we de na di pikin in bכdi bay we dεn de put sכmכl tin we lεk klip pan di pikin in finga כ in yes. Dis na simpul tɛst we nɔ de du di pikin bad.

Afta dɛn fɔs tɛst ya, dɛn kin du sɔm ɔda tɛst dɛn fɔ kɔnfirm di sik.

• Noninvasive imaging tests: CT skan, MRI skan, ɛn X-ray we dɛn kin du na do na di pikin in bɔdi.
• Ilɛktrokardiogram (ECG ɔ EKG): Na tɛst we nɔ de mek pɔsin fil pen we de sho aw di at de wok wit ilɛktrik.
• Echocardiogram (echo): Dis tan lɛk we dɛn de skan di at. I de yuz sawnd wev fɔ si ɔltin bɔt di at klia wan, ivin aw i shep, aw i de wok, ɛn aw in blɔd vesel dɛn gɛt kɔnekshɔn.
• di kadyak kateshכn: insay dis, dεn kin put wan tכn tכn tכb (kateta) insay di at tru wan bכdi we de na di pikin in groin כ an fכ gεt rili kכrekt infכmeshכn bכt di at in prεshכn, di כksijεn lεvεl, εn di strכkchכ.

Nɔ wɔri, tritmɛnt de fɔ dis! - Lɛ wi lan bɔt ɔpreshɔn

Klose to ɔl pikin we gɛt DORV go nid ɔpreshɔn fɔ opin at insay di fɔs ia we i de liv. Dis kin tan lɛk se i de mek yu fred. Dat na nɔmal tin. Bɔt mɛmba se, wit di mɛrɛsin we dɛn de yuz tide, dɛn kin ebul fɔ du dɛn ɔpreshɔn dɛn ya fayn fayn wan.

Yu dɔktɔ ɛn di dɔktɔ we de mɛn yu at go tink bɔt bɔku tin dɛn we dɛn de disayd fɔ du di ɔpreshɔn.

• Wetin na di pikin in DORV tayp?
• If ɛni ɔda prɔblɛm de wit di pikin in at ɔ ɔda pat dɛn.
• Di pikin in ɔl wɛlbɔdi.

Bɔku kayn ɔpreshɔn dɛn de we dɛn kin du bɔku tɛm.

• Intraventricular repair: Insay dis prosidur, di sajin de mek wan tanɛl tru di VSD, ɔ ol na di at, we i de yuz wan spɛshal pat. dis tכnel de mek wan rod fכ bכdi fכ fכm frכm di lεft vεntrikl to di aorta.
• Biventrikul ripa ɔ arterial switch: If di pikin in ɔl tu di ventricle dɛn de fayn ɛn di DORV na sabpulmonary VSD (Taussig-Bing) tayp, di ɔspitul kin du ɔpreshɔn fɔ pul di aorta ɛn kɔnɛkt am to di lɛft ventricle.
• Univentricular repair (Fontan operation): If di DORV rili kɔmpleks, di dɔktɔ we de du di ɔpreshɔn kin tɛl yu fɔ du dis ɔpreshɔn. Dis involv fɔ dayrɛkt blɔd we nɔ gɛt ɔksijɛn frɔm di ɔda pat na di bɔdi dairekt to di lɔng dɛn. Dis na kɔmpleks ɔpreshɔn we kin gɛt bɔku stej dɛn.

Risk de fɔ ɛni ɔpreshɔn pan di at. Dɛn tin ya na fɔ blɔd, blɔd we de klɔt, infekshɔn, ɛn prɔblɛm wit anestezi. Bɔt dɔktɔ dɛn kin du ɔl wetin dɛn ebul fɔ mek dɛn prɔblɛm dɛn ya nɔ bɔku.

Aw layf go tan lɛk afta dɛn dɔn du di ɔpreshɔn?

Afta di ɔpreshɔn, di pikin go nid fɔ de na ɔspitul fɔ wan wik ɔ mɔ. di tεm we di pikin go tek go difrεn dipכnt pan di kayn כpεrayshכn we dεn du εn di pikin in kכndishכn.

Bɔt wan tin we wi fɔ mɛmba na dat, pɔsin we dɛn dɔn du ɔpreshɔn pan DORV fɔ de ɔnda di wan we de mɛn di at fɔ di res ɔf in layf. I impɔtant fɔ go chɛk-ap di tɛm we dɛn dɔn sɛtul ɛn du di tɛst dɛn we yu nid.

Sɔm pipul dɛn kin gɛt at bit ɔltɛm ɔ dɛn at kin gɛt prɔblɛm ivin sɔm ia afta dɛn dɔn du dɛn ɔpreshɔn, so i impɔtant fɔ tek kia ɔf yu wɛlbɔdi ɔltɛm.

Ustɛm fɔ si di dɔktɔ ɛn ustɛm fɔ go na di ETU

Ivin afta dɛn dɔn du di ɔpreshɔn, na fɔ wach yu pikin gud gud wan. If dɛn sayn ya de sho, tɛl yu dɔktɔ wantɛm wantɛm.

• If yu fil se yu at de bit nɔrmal, kwik kwik wan, ɔr de bit.
• If yu gɛt pen na yu chɛst ɔ yu nɔ kin ebul fɔ blo (dɛn tin ya kin bi sayn fɔ hat atak).

Insay dɛn kayn tin ya, kɛr di pikin go na di ɔspitul we de nia yu Imejɛnsi Tritmɛnt Yunit (ETU) ɛn nɔ de te.

Impɔtant kwɛstyɔn dɛn fɔ aks yu dɔktɔ

I nɔmal fɔ gɛt bɔku kwɛstyɔn we yu kam fɔ no se yu pikin gɛt DORV. Nɔ kip ɛnitin fɔ yusɛf. Aks yu dɔktɔ ɔltin ɛn mek dɛn ɛksplen am. Na sɔm kwɛstyɔn dɛn we yu kin aks.

1. Us ​​kayn DORV mi pikin gɛt?

2. Us kayn ɔpreshɔn yu want fɔ du?

3. Ustɛm dɛn fɔ du di ɔpreshɔn?

4. Wetin na di bad tin dɛn we kin apin we pɔsin du ɔpreshɔn?

5. Wetin na di prɔblɛm dɛn we kin apin we pɔsin nɔ du ɔpreshɔn?

6. Mi pikin go nid mɔ ɔpreshɔn afta dis ɔpreshɔn?

7. Yu tink se mi pikin go nid fɔ tek mɛrɛsin fɔ di res ɔf in layf?

We yu no ɔltin fayn fayn wan bay we yu aks kwɛstyɔn dɛn lɛk dis, yu go ebul fɔ disayd fɔ du sɔntin we yu no bɔt ɛn yu nɔ go fred.