Wi no se fɔ liv wit Ankylosing Spondylitis, ɔ AS as wi ɔl no, nɔr izi. I nɔ jɔs bi bak prɔblɛm. Na wan sik wae de teik lɔng tɛm wae kin afɛkt yu ɔl yu layf, yu woke, yu os woke, yu tɛm wit yu padi dɛm, ɔl dɛn tin ya. Bɔt yu nɔ nid fɔ gɛt dis prɔblɛm yu wan. I go bi big trɛnk fɔ tɛl di wan dɛn we lɛk yu ɛn we de nia yu bɔt dis ɛn gɛt dɛn sɔpɔt.
Udat yu want fɔ tɛl bɔt dis?
Fɔ tɔk to pɔrsin bɔt wan layflɔng kɔndishɔn lɛk AS na tin fɔ yusɛf. So, udat yu go tɛl ɛn ɔmɔs ditil yu de sheb na yu yon ɔl. Na yu disayd.
Tink bɔt am, sɔntɛnde yu kin gɛt fɔ chenj di trip we yu dɔn plan, ɔ aks fɔ ɛp fɔ mek yu du sɔntin. Di pipul dɛm wae yu kin spɛn mɔr tɛm wit ɛvride, lɛk yu fambul, yu man ɔr wɛf, ɔr yu bɛst padi, na dɛn dis kayn tin kin afɛkt dɛn mɔ.
Sɔntɛnde, yu kin fil bad ɔr pwɛl hat bɔt yu sik. Ɔ yu kin fil lɛk se yu de mek yu padi dɛn at pwɛl we yu nɔ ebul fɔ jɔyn dɛn fɔ du sɔntin. Bɔt di mɔ we yu de tɔk bɔt am opin wan ɛn ɔnɛs wan wit di wan dɛn we yu lɛk, na di mɔ i go izi fɔ mek dɛn de fɔ yu tru di gud ɛn bad tɛm dɛn na yu layf .
Wetin yu want fɔ tɔk? Aw yu want fɔ tɔk am?
Yu kin de tink se, "Okay, a go tɛl yu. Bɔt wetin a fɔ se? Aw a go bigin?" Sɔntɛnde, i kin tranga fɔ tɔk bɔt dis, ivin wit pɔsin we yu rili de nia. Di bɛst tin fɔ du na fɔ bi simpul ɛn dairekt as yu ebul.
If yu nid fɔ ɛksplen AS to dɛn, stik to di bɛsis tin dɛn pas dɛn aks fɔ mɔ ditil. If yu de tɔk bɔt aw yu de fil, tray fɔ tɔk klia wan. Fɔ ɛgzampul, instead fɔ jɔs se, "A de strɛs," yu kin tɔk bɔt di sayn dɛm wae de mɔna yu pas ɔl.
Imajin se yu nɔ go ebul fɔ du wan patikyula wok ɔ go na trip. Ɛksplen di rizin to di pɔsin we yu lɛk. Yu kin se sɔntin lɛk, "Bikɔs mi bak stiff, fɔ sidɔm fɔ lɔng tɛm kin rili pen. Na dat mek a nɔ ebul fɔ mek dis trip." Da we de, dɛn go ɔndastand di tin we de apin to yu izi wan.
Lɛ wi ɛksplen to dɛn bɔt yu mɛrɛsin.
Yu fambul ɛn padi dɛn nɔ go no bɔku tin bɔt AS. Dɛn kin tink se na jɔs "prɔblɛm wit brith." So ɛp dɛn fɔ ɔndastand wetin na AS ɛn aw i de afɛkt yu ɛvride layf.
Fɔ tɔk am simpul wan, AS na wan kɔndishɔn usay wi imyun sistɛm de atak di jɔyn dɛn na wi spayna bikɔs ɔf wan malfunction. Dis kin mek i fil pen, i kin stif, ɛn i nɔ kin izi fɔ muv.
If yu want, i go fayn fɔ mek yu kam wit yu patna, yu padi, ɔ yu fambul wit yu na yu apɔntinmɛnt . Dis go gi dɛn di chans fɔ lan mɔ bɔt di we aw dɛn fɔ du am dairekt frɔm di dɔktɔ ɛn aks ɛni kwɛstyɔn we dɛn gɛt.
We yu gɛt prɔblɛm wit yu bɔdi bikɔs ɔf AS, yu kin nid ɛkstra ɛp wit yu os wok ɔ wok. Pan ɔl we fɔ aks fɔ ɛp kin fil bad, na fayn we fɔ sheb yu ɛkspiriɛns wit ɔda pɔsin ɛn gi am chans fɔ kɔnɛkt wit yu.
| Tɔpik fɔ tɔk bɔt | Aw fɔ ɛksplen ɛn ɛgzampul dɛn |
|---|---|
| Sayn dɛn | "No mata se a no de si plenti difrens fo autsaida, di pen and stiffness we a de fil insaid de rili intens. Na im de hardest wen a get op fo moning." |
| Di sayn dɛn we pɔsin nɔ kin si | "Di big tin we kin kam wit dis sik na taya . We a se taya smɔl, nɔto jɔs nɔmal taya, na filin lɛk se yu ɔl bɔdi de lɔs in ɛnaji." |
| Di tin dɛn we pɔsin nɔ ebul fɔ du na in bɔdi | "A get had taim fo lif hevi tins, bend ova plenti, o sidon fo long taim. Na im mek a de avoid som wok." |
| Flare-up dɛn we dɛn kin mek | "Sɔm dez, dis pen ɛn ɔda simptom dɛn kin wɔs wantɛm wantɛm. Wi kin kɔl am 'flare-up.' Na dɛn de dɛn de, a nid smɔl mɔ ɛp frɔm yu." |
Tɔk bɔt aw yu de fil bak.
Bikɔs AS simptom kin afɛkt yu ɛvride layf, i impɔtant fɔ mek ɔda pipul dɛn no se tin lɛk pen, stiffness, ɛn taya kin chenj yu ɛvride rutin. Dis kin min se yu nɔ go ebul fɔ du sɔm tin dɛn, ɔ di we aw yu de du dɛn kin chenj.
We pipul dεn כndastand dat, dεn kin כndastand bak aw de strεs wae yu de fil bikɔs ɔf AS kin afɛkt yu mכd. We yu tɔk to pɔsin we de nia yu bɔt aw yu de tink ɛn fil, dat kin mek yu fil fayn bak.
Mɛmba se, AS simptom na tin wae yu kin fil bɔt ɔda pipul nɔr kin si. Fɔ ɛgzampul, taya na wan sayn wae yu nɔr kin notis to ɔda pipul dɛm, ilɛksɛf yu de sɔfa wit am.
Tel wi aw yu de manej dis situeshɔn.
De pipul dɛm na yu layf nɔr kin no aw yu de dil wit AS ɛvride. I fayn fɔ tɛl dɛn bɔt yu tritmɛnt plan so dat dɛn go gɛt aidia bɔt wetin fɔ ɛkspɛkt.
Dis kin inklud tin dɛm lɛk di fyzikal ɛksɛsayz dɛm wae yu nid fɔ du, di tritmɛnt dɛm wae yu fɔ gɛt wit yu bɔdi, di tin dɛm wae yu nid fɔ it fɔ ɛp fɔ mɛn yu AS kɔndishɔn, ɛn di mɛrɛsin dɛm wae yu de tek. We dɛn no bɔt dɛn tin ya, i kin izi fɔ dɛn fɔ ɔndastand wetin mek yu nid fɔ du ɛksɛsayz ɛvride ɛn wetin mek yu nɔ fɔ it sɔm it dɛn.
If yu ɛn yu famili want fɔ no mɔ bɔt dis, infɔmeshɔn de we yu kin rili abop pan na di wɛbsayt dɛn fɔ intanashɔnal ɔganayzeshɔn dɛn lɛk di Spondylitis Association of America (SAA). Yu kin rid da infɔmeshɔn de ɛn tɔk to yu dɔktɔ bɔt am mɔ.
Mɛsej we dɛn kin kɛr go na os
- Ankylosing Spondylitis (AS) nɔto jɔs bak prɔblɛm, i kin afɛkt yu ɔl layf. Nɔ go tru dis waka yu wan.
- Na yu fɔ disayd udat yu go tɛl bɔt dis ɛn ɔmɔs. Bɔt we yu tɔk to di wan dɛn we de nia yu, dat kin mek yu gɛt bɔku trɛnk.
- We yu de tɔk, tɔk simpul ɛn ɔnɛs bɔt aw yu de fil, mɔ fɔ ɛksplen ɛni sayn we yu nɔ go si, lɛk we yu taya.
- Fɔ aks fɔ ɛp nɔto sayn fɔ se yu wik. I de gi di wan dɛn we yu lɛk chans fɔ sɔpɔt yu.
- Tɛl dɛm bɔt yu tritmɛnt plan (ɛksɛsayz, mɛrɛsin) so dat dɛn go ɔndastand wetin yu nid ɛvride.
- If yu de dawt bɔt ɛnitin, tɔk to yu dɔktɔ fɔ gɛt di bɛst advays we yu go abop pan.
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