Sɔntɛnde, yu kin fil taya we nɔ kɔmɔn fɔ natin? Yu jɔyn dɛn, mɔ yu ni ɛn fut finga dɛn, kin at, ɛn yu skin kin tan lɛk grey smɔl ɔ brɔnz? Bɔku tɛm wi kin dismis dɛn tin ya as "jɔs di we aw wi kin ol." Bɔt dɛn tin ya kin bi sayn dɛn fɔ wan kɔndishɔn we di ayɛn lɛvɛl na wi bɔdi kin go ɔp bad bad wan. Dɛn kɔl dis sik we dɛn kɔl Hemochromatosis . Dis na wetin wi de tɔk bɔt tide.
Fɔ tɔk am simpul wan, wetin na Ɛmokromatosis?
Ɛmokromatosis na wan sik we yu bɔdi kin gɛda bɔku bɔku ayɛn . Sɔm pipul dɛn kin kɔl am bak “ ayɛn ɔvalod .”
Nɔmal wan, wi bɔdi kin tek di ayɔn nɔmɔ we wi nid frɔm di it we wi de it. Bɔt pan pipul dɛn we gɛt ɛmokromatosis, di bɔdi kin tek mɔ ayɔn pas aw i nid. Di prɔblɛm na dat, no we nɔ de fɔ pul dis ayɛn we pasmak na di bɔdi.
So usay di bɔdi de kip dis ayɛn we pasmak? I kin de na yu jɔyn dɛn, ɛn bak na impɔtant pat dɛn lɛk yu liva , at , skin, pituitary gland, ɛn pankrias . As tɛm de go, dis ayɛn we dɔn gɛda kin bigin fɔ pwɛl dɛn ɔgan dɛn de. If dɛn nɔ trit dɛn ɔgan ya, dɛn kin ivin stɔp fɔ wok.
Tu men kayn dis sik de.
Dis sityueshɔn kin bi mɔ to tu kayn.
1. Praymari Ɛmokromatosis: Dis na di kayn we we dɛn kin gɛt mɔ. Na tin we pɔsin kin gɛt frɔm in mama ɛn papa. Fɔ tɔk am simpul wan, fɔ mek yu gɛt dis sik, yu fɔ gɛt di jin we nɔ fayn frɔm yu mama ɛn papa. If na wan mama ɔ papa nɔmɔ yu gɛt am, yu nɔ go gɛt di sik, bɔt yu kin gɛt di jin.
2. Sεkכndεri εmokromatosis: Dis kin apin biכs כda rizin dεm. Fɔ ɛgzampul, dis sik kin apin to pɔsin we nid fɔ gɛt blɔd bɔku tɛm bikɔs ɔf wan sik lɛk siriɔs anemia.
Wetin kin mek dis kayn tin apin?
Lɛ wi si wetin na di rizin dɛn fɔ dis.
Di tin dɛn we kin mek pɔsin gɛt frɔm in mama ɛn papa (Primary Hemochromatosis) .
wi bכdi gεt wan jin we dεn kכl `HFE`. Dis na wetin de kɔntrol ɔmɔs ayɛn wi de tek frɔm di it we wi de it. tu mכtayshכn dεm na dis `HFE` jin, we dεn kכl `C282Y` εn `H63D`, na dεn de kכz fכ mכst hεmokromatosis pasεnshכn dεm we dεn gεt hεridita.
pan tap dat, di mכtεshכn dεm na כda jin dεm lεk `HJV` εn `HAMP` kin mek dis sik bak pan sכm pipul dεm (bכt 10%-15%). Pipul dɛm wae dɛn jin ya afɛkt kin gɛt dis sik wae dɛn yɔŋ.
Na ɔda mɛrɛsin dɛn kin kam wit am (Secondary Hemochromatosis) .
Dis kayn we kin kam bikɔs dɛn kin gi pɔsin blɔd bɔku tɛm bikɔs ɔf tin dɛn lɛk we i nɔ gɛt bɛtɛ blɔd (lɛk sikɛl sɛl we nɔ gɛt bɛtɛ blɔd) ɔ we di bon mɛro nɔ wok fayn. Di rɛd blɔd sɛl dɛn we dɛn kin gi we yu gi blɔd gɛt bɔku ayɔn. Bikɔs di bɔdi nɔ gɛt we fɔ pul dis ayɛn, dɛn kin bigin fɔ gɛda.
Dɔn bak, di liva we de pwɛl, fɔ ɛgzampul, bikɔs ɔf fat liva sik ( cirrhosis ) ɔ kronik epataytis B ɔ C, kin mek ayɔn gɛda na di bɔdi.
Udat dɛn kin gɛt dis sik?
Pan ɔl we ɛnibɔdi kin gɛt ɛmokromatosis, sɔm pipul dɛn kin gɛt mɔ risk.
Di tin we impɔtant pas ɔl na dat, ilɛksɛf yu gɛt dɛn tin ya we kin mek yu gɛt dis sik ɔ yu nɔ gɛt am, if yu gɛt sɔm sayn dɛn, yu fɔ rili go to dɔktɔ.
| Risk factor | Tɔk bɔt |
|---|---|
| Fɔ gɛt tu HFE jin dɛn we nɔ fayn | If yu dɔn gɛt di jin we nɔ fayn frɔm yu mama ɛn papa ɔl tu. |
| Famili istri | If wan pan yu mama ɛn papa ɔ brɔda ɛn sista gɛt dis sik. |
| Fɔ bi man | Man dɛn kin gɛt dis sik lɛk fayv tɛm pas uman dɛn. |
| Uman dɛn we dɔn gɛt mɛnɔpauz | We di mɔnt de stɔp di bɔdi fɔ pul ayɔn, di risk fɔ mek ayɔn gɛda de bɔku. Dis risk kin apin bak to uman dɛn we dɛn dɔn pul dɛn bɛlɛ. |
Yu gɛt dɛn sik ya bak?
Na lɛk af pan pipul dɛm wae gɛt ɛmokromatosis nɔr kin gɛt ɛni sayn. Man dεm kin gεt di sik bitwin 30 εn 50 ia, we uman dεn kin gεt di sik afta dεn ol 50 ia כ afta dεn mεnopos.
| Di kɔmɔn sayn dɛm | |
|---|---|
| Jɔyn pen (espɛshali na di jɔyn ɛn ni) . | Taya ɛn taya ɔltɛm |
| We yu de lɔs yu wet fɔ natin | Skin kala de tɔn brɔnz ɔ grey |
| Bɛlɛ de pen | Di want fɔ du mami ɛn dadi biznɛs we de go dɔŋ |
| Bɔdi ia we de lɔs | Blɔr mɛmori, i nɔ izi fɔ kɔnsɛntret |
| Prɔblɛm dɛn we kin kam we di sik de wɔs | |
| Liva prɔblɛm (e.g., sirosis) . | Shuga |
| Di at bit we nɔ de bit ɔltɛm (Aritmia) . | Erectile dysfunction na man dɛn |
Impɔtant: Dis sik kin mek yu wɔs if yu tek vaytamɛn C pil ɔ it bɔku it dɛn we gɛt vaytamɛn C, bikɔs vaytamɛn C de mek di ayɔn we de kɔmɔt na it bɔku.
Aw yu go fɛn dis, Dɔktɔ?
Bikɔs dɛn kin si dɛn sayn ya pan ɔda sik dɛn, sɔntɛnde i kin at fɔ no bɔt am. Yu dɔktɔ go aks yu bɔt yu famili mɛdikal istri ɛn i go du yu bɔdi ɛgzam bak.
Apat frɔm dat, dɛn kin du dɛn tɛst ya:
- Blɔd tɛst: Dɛn kin du tu men tɛst dɛn ya.
- Transferrin Saturation: dis de mכsu aw mכch ayron de tay pan wan protin (transferrin) we de transpכt ayron insay di bכdi.
- Sεrum Fεritin: Dis de mכsu di כmכnt fכ wan protin (fεritin) we de stכr ayron na di bכdi.
If dɛn tɛst ya sho se yu ayron lɛvɛl bɔku, yu dɔktɔ kin du wan jenɛtik tɛst bak fɔ si if yu gɛt di jin we de mek yu gɛt ɛmokromatosis.
- Liva Bayopsi: Di dɔktɔ kin tek wan smɔl pat pan di liva ɛn chɛk am ɔnda maykroskɔp fɔ si if ɛnitin dɔn pwɛl di liva.
- MRI skan: Dis kin tek klia pikchɔ dɛn fɔ yu ɔgan dɛn ɛn si if dɛn gɛt ayɛn.
Wetin na di tritmɛnt dɛn?
If yu gɛt Praymari Ɛmokromatosis, di tritmɛnt rili simpul. I min se yu fɔ pul blɔd na yu bɔdi pan wan patikyula tɛm. Dɛn kɔl dis Phlebotomy.
Plɛbotomi we dɛn kin du
Dis tan lɛk we pɔsin de gi blɔd. Dɔktɔ ɔ nɔs we tren kin put nidul insay wan vein na yu an ɛn pul blɔd insay blɔd bag.
- Fɔs tritmɛnt: Fɔs, yu go nid fɔ go ɔspitul wan ɔ tu tɛm insay di wik fɔ mek dɛn pul yu blɔd te yu ayɛn lɛvɛl kam bak to nɔmal. Dis kin tek sɔm mɔnt ɔ wan ia.
- Mentɛnans tɛrapi: We di ayɛn dɔn kam bak to nɔmal, di frɛkuɛns we dɛn kin transfyuz blɔd kin ridyus, ɛn bɔku tɛm i kin rich tu to 4 tɛm insay di ia.
Tritmɛnt wit drɔgs (Chelation Therapy) .
If yu gɛt sɛkɔndari ɛmokromatosis, ɔ if yu vein dɛn nɔ strɔng fɔ tek blɔd, yu dɔktɔ kin gi yu wan tritmɛnt we dɛn kɔl `Chelation Therapy.` Insay dis, dɛn kin gi yu wan mɛrɛsin we de ɛp yu bɔdi fɔ pul di aynɔ we pasmak tru yu urine ɛn stɔl.
Dɛn kin ebul fɔ kɔntrol dis sik na os?
Pɔsin we de du tritmɛnt fɔ pul blɔd nɔ kin nid fɔ mek ɛni big chenj na in it, bikɔs di tritmɛnt insɛf kin kɔntrol di ayɔn lɛvɛl we i gɛt. Bɔt yu kin du dɛn tin ya fɔ ridyus yu risk fɔ gɛt prɔblɛm dɛn:
- Nɔ drink rɔm kpatakpata. Alkol kin pwɛl di liva, ɛn dis kin mek i rili denja wit dis sik.
- Nɔ it raw fish ɔ shel fish. Di baktri dɛm we de insay dɛn tin ya kin mek dɛn gɛt siriɔs infɛkshɔn pan pipul dɛm we gɛt ay ayɛn lɛvɛl.
- Nɔ tek vaytamɛn C sɔpɔtmɛnt dɛn. Bɔt no prɔblɛm nɔ de fɔ it frut ɛn vɛjitebul dɛn we gɛt vaytamɛn C.
- Nɔ tek ayɔn pils ɔ multivitamin we gɛt ayɔn.
- Nɔ it brɛkfas siriɔs tin dɛn we gɛt ayɛn.
Mɛsej we dɛn kin kɛr go na os
- Ɛmokromatosis na wan sik we tumɔs ayɔn kin gɛda na di bɔdi. If dɛn nɔ trit am, i kin pwɛl di ɔgan dɛn lɛk di liva ɛn di at.
- Nɔ ignore sɔm sayn dɛm lɛk wae yu de taya ɔltɛm, yu gɛt pen na yu jɔyn, ɛn yu skin de chenj. Tɔk to yu dɔktɔ.
- Bɔrku tɛm dis kin kɔmɔt frɔm ɔda pipul dɛm, bɔt ɔda mɛrɛsin kin kam bak.
- Di men tritmɛnt na fɔ pul blɔd ɔltɛm (flebotomy), we na tritmɛnt we rili wok ɛn we nɔ bad.
- Apat frɔm mɛrɛsin, dɛn kin ebul fɔ kɔntrol di sik fayn fayn wan bay we dɛn chenj dɛn layf, lɛk fɔ avɔyd fɔ drink rɔm.
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