Sɔntɛnde, yu kin sɔprayz fɔ si yu yɔŋ pikin de slip fɔ sɔm dez. Sɔntɛm yu go de wɔnda, ‘Wetin na ɔl dis slip?’ Infakt, dis kin bi sayn fɔ wan sik we nɔ kin apin so ɔltɛm we dɛn kɔl Kleine-Levin Syndrome. Lɛ wi tɔk mɔ bɔt dis tide, bikɔs i impɔtant fɔ no bɔt sɔntin lɛk dis.
Wetin na di sik we dɛn kɔl Kleine-Levin Syndrome?
Fɔ tɔk am simpul wan, Kleine-Levin Syndrome na wan sik we nɔ kin bɔku, we min se i nɔ kin apin so ɔltɛm. Sɔm pipul kin kɔl am "sleeping beauty syndrome", bɔt pan ɔl we na fayn nem, dis kɔndishɔn nɔr so fayn. Wetin kin apin pan dis na dat yu nɔ kin ebul fɔ wek fɔ bɔku pan di de, ɛn yu kin slip pasmak. Dɔktɔ dɛn kin kɔl dis bak fɔ slip pasmak (`hypersomnia`) . Pɔsin wae gɛt dis sik kin slip fɔ lɛk 16 to 20 awa ɛvride insay dis kayn slip episod. Imajin, bɔku pan di de na slip! Dat min se yu kin wek na mɔnin, dɔn yu kin slip bak afta sɔm tɛm. Fɔ tɔk di kɔrɛkt tin, i nɔ kin izi fɔ dɛn fɔ wek. Apat frɔm dis slip pasmak, yu kin si sɔm chenj dɛn na yu bihayvya.
Udat dis tin kin afɛkt mɔ?
Ɛnibɔdi kin gɛt dis sik, we dɛn kɔl Kleine-Levin Syndrome (KLS). Bɔt, risach dɔn sho se bɔy pikin ɛn yɔŋ man dɛn kin gɛt dis sik. Di sayn dɛm kin bigin na di fɔs yɔŋ pipul dɛm , arawnd di ej fɔ 12-15 ia. Di gud nyus na dat as tɛm de go, as di ia dɛn de go, di frɛkuɛns ɛn di kayn we aw dɛn kin gɛt dis slip kin go dɔŋ smɔl smɔl. pan avrej, dis kכndyushכn kin sכbכt bכku bכku wan we i ol 14 ia.
Aw kɔmɔn sik na Kleine-Levin syndrome (KLS)?
Dis na rili wan sik we nɔ kin apin so ɔltɛm . Tink bɔt am, dɛn se na wan ɔ tu pipul dɛn nɔmɔ pan wan milyɔn kin gɛt dis. Na dat mek dɛn nɔ de tɔk bɔku bɔt am.
Wetin na di sayn dɛm wae de sho se yu gɛt Kleine-Levin Syndrome (KLS)?
Dɛn sayn ya kin bigin we dɛn yɔŋ. Dɛn kayn tɛm ya we pɔsin kin slip kin apin pas wan tɛm insay di ia. Dɛn se dis sik kin las fɔ lɛk 14 ia so. Di men sayn dɛm wae de sho se yu gɛt dis sik na:
- Fɔ slip pasmak ɛn nɔr kin ebul fɔ bia: Dis na di men sayn. I tan lɛk se yu de slip fɔ sɔm dez. I nɔ mata aw yu slip, i kin tan lɛk se i nɔ go du fɔ yu.
- Fɔ it pasmak (`hyperphagia`): Sɔm pipul dɛn kin gɛt sɔprayz inkris pan apɛtit insay dis tɛm. Dɛn kin it bɔku it wan tɛm. Sɔntɛnde, dɛn kin it di we dɛn we nɔ kɔmɔn.
- Di want fɔ du mami ɛn dadi biznɛs we de go ɔp (`hypersexuality`): Dis na sayn bak we sɔm pipul dɛn kin gɛt. Di want fɔ du mami ɛn dadi biznɛs kin bi abnɔmal wan ɛn i nɔ kin ebul fɔ kɔntrol am.
- Di tin dɛn we yu kin tink bɔt:Yu kin si, yɛri, ɛn fil tin dɛn we nɔ de. Dis kin mek yu frayd smɔl, bɔt na pat pan de sik.
- Fɔ vɛks ɔ chenj yu bihayvya: Yu kin notis se yu kin vɛks pan smɔl smɔl tin dɛn, yu kin vɛks, ɔ yu kin biev difrɛn we pas aw yu kin biev.
- Wae yu de wɔri ɔr pwɛl hat: Yu kin fil frayd, wɔri, sɔri, ɔr nɔr kin bisin bɔt ɛnitin.
- Kɔnfyushɔn ɔr amnesia: Yu kin gɛt prɔblɛm fɔ mɛmba wetin apin, ɔr kin fil kɔnfyus. Sɔntɛnde, yu kin ivin fɔgɛt usay yu de ɔ ustɛm i de.
If dɛn sik ya kin te fɔ at le tu dez, wi kin kɔl am "episode," ɔr tɛm wae de sik de. Dis episod kin las fɔ sɔm dez, bɔrku tɛm na lɛk 10 dez, ɔr ivin sɔm wik. Wan stɔdi dɔn sho se pɔsin we gɛt KLS kin gɛt lɛk 20 tɛm so insay in layf.
Bɔku tɛm, dɛn nɔ kin mɛmba wetin bin apin insay dis ɛpisod. Dɛn kin wek fɔ it ɔ go na di bafa, bɔt dɛn kin du bɔku tin bikɔs dɛn kin slip pasmak.
Afta dis episod dɔn, dɛn kin bigin fɔ biev nɔmal wan bak. Apat frɔm we pɔsin nɔ de mɛmba fayn wan wan tɛm, ɔl di ɔda sayn dɛn kin dɔn.
Wetin kin mek pɔsin gɛt wan sik we dɛn kɔl Kleine-Levin Syndrome (KLS)?
Sɔm tin dɛm kin mek dɛn KLS simptom ya bigin, dat na di biginin fɔ wan ɛpisod. Dɛn na:
- Wan sik ɔ infekshɔn, lɛk fiva ɔ kol.
- Fɔ yuz drɔgs ɛn fɔ drink rɔm.
- Hɛd trauma (injuri na di ed).
- Fɔ tray tranga wan pasmak.
- Strɛs.
We sɔntin lɛk dis apin, pɔsin we gɛt KLS kin bigin da tɛm de fɔ slip.
Wetin na di rial tin we kin mek pɔsin gɛt Kleine-Levin Syndrome (KLS)?
Wi nɔ no yet di rayt tin we kin mek pɔsin gɛt KLS , bɔt sayɛnsman dɛn gɛt difrɛn tin dɛn we dɛn kin tink bɔt. Sɔm stɔdi dɛn dɔn sho se dis sik kin kam bikɔs di pat pan di bren we de kɔntrol slip, we na di haypothalamus , dɔn pwɛl bikɔs ɔf sik ɔ injuri.
We dɛn luk di histri bɔt bɔku pipul dɛn we gɛt KLS, dɛn kin bigin dis sik afta dɛn gɛt sik lɛk kol ɔ flu. fכ dat, sכm risechכr dεm biliv se KLS kin bi ``autoimmune response.'' Fɔ tɔk am simpul wan, wi bכdi in difεns sistεm de mistek atak in yon hεlty sεl dεm. If na so i bi, di bɔdi kin tink se pat pan insɛf na fɔrina patɔjɛns ɛn i kin du tin agens am.
כda risach sho se dis kin bi jεnεtik link, spεshal wan insay sכm jin dεm we dεn kכl LMOD3 εn TRANK1.Dɛn dɔn si se di muteshon dɛn kin involv pan dis. Dis min se i kin bi we pɔsin gɛt frɔm in mama ɛn papa.
Aw dɛn kin no se pɔsin gɛt Kleine-Levin Syndrome (KLS)?
Fɔ no bɔt KLS kin bi smɔl prɔblɛm . No wan definitiv test de we kin tel yu "dis na KLS." Dɔktɔ dɛn kin no bɔt am bay we dɛn kin pul ɔda sik dɛn we gɛt di sem sayn dɛn. Dat min se dɛn kin aks fɔs bɔt yu sik dɛn (aw lɔng dɛn dɔn de, aw dɛn bad, ɛn ɔda tin dɛn). Dɔn, dɛn kin du tɛst dɛn lɛk:
- Slip test: Dis kin mek yu no aw di ilɛktrik de wok na di bren.
- Mɛmori tɛst: Chɛk fɔ mɛmori prɔblɛm.
- Blɔd tɛst: Chɛk fɔ ɔda mɛrɛsin dɛn.
- Imej tɛst lɛk MRI: Chɛk fɔ ɛni chenj na di bren.
Na afta dɛn dɔn du ɔl dis ɛn pul ɔl di ɔda tin dɛn we pɔsin kin du, na in dɔktɔ dɛn kin kam fɔ no se na KLS.
Aw dɛn kin trit di sik we dɛn kɔl Kleine-Levin Syndrome (KLS)?
I sɔri fɔ no se, no difinitiv, kɔmplit mɛrɛsin nɔ de fɔ KLS. Bɔrku tɛm, pipul dɛm wae gɛt KLS nɔr kin ivin nid mɛrɛsin. Insay wan ɛpisod, yu dɔktɔ go ɛp yu fɔ gɛt di rɛst we yu nid – lɛk fɔ tek tɛm ɔf frɔm skul ɔ wok. Dis go gi yu bɔdi di slip we i nid.
Ɔda tritmɛnt opshɔn dɛn de fɔ ɛp fɔ mɛn di sayn dɛm fɔ KLS. Pan ɔl we sɔm tritmɛnt dɛn kin ɛp fɔ mek yu wek, nɔto wan tritmɛnt nɔ go ebul fɔ kɔntrol ɔl di sik dɛn, mɔ di wan dɛn we de afɛkt di we aw yu de biev ɛn aw yu de tink. Di mɛrɛsin dɛn kin bi:
- Lithium: Dis kin mek di episod nɔ bɔku.
- IV stɛroyd: Dɛn kin gi dɛn tin ya fɔ shɔt di episɔd dɛn we kin las pas 30 dez.
- Stimulants ɔr wek-promoting agents: Dɛn kin ridyus yu slip ɛn ɛp yu fɔ wek.
Apat frɔm dat, yu dɔktɔ kin sɛn yu to sɔpɔtiv tritmɛnt , we na fɔ tɔk to pɔsin we de gi yu advays fɔ ɛp yu fɔ bia wit tin dɛn lɛk we yu de chenj yu abit, we yu want fɔ du mami ɛn dadi biznɛs, we yu de wɔri, ɛn pwɛl at.
Ɛni bad tin de we di tritmɛnt kin du?
Bikɔs no wan patikyula mɛrɛsin nɔ de fɔ Kleine-Levin syndrome (KLS), yu dɔktɔ go tek tɛm wach yu sik dɛn ɛn aw yu bɔdi de du difrɛn tritmɛnt dɛn. Dis impɔtant mɔ we yu de yuz mɛrɛsin lɛk amfɛtamin, we kin mek yu gɛt adikshɔn.
Yu tink se dɛn kin ebul fɔ avɔyd di sik we dɛn kɔl Kleine-Levin Syndrome (KLS)?
Bikɔs wi nɔ no di rayt tin we mek i apin, no we nɔ de fɔ mek dɛn nɔ gɛt KLS.Bikɔs dis sik kin gɛt fɔ du wit di chenj dɛn we yu gɛt na yu jɛnɛtiks, if yu de plan fɔ bɔn pikin, i go fayn fɔ mek yu tɔk to yu dɔktɔ bɔt aw fɔ tɛst yu jɛnɛtiks . Dis go ɛp yu fɔ ɔndastand yu risk fɔ pas wan jenɛtik kɔndishɔn to yu pikin.
If a gɛt KLS, wetin a fɔ ɛkspɛkt?
Pipul dɛn we dɛn no se gɛt KLS kin gɛt gud prɔgnosis . As tɛm de go, di kayn we aw di episɔd dɛn kin tranga ɛn aw kin apin kin go dɔŋ. Bɔrku tɛm, dis sik kin te bitwin 10 ɛn 20 ia, ɛn na lɛk 14 ia so. If no episod nɔ de fɔ siks ia , dɔktɔ dɛn kin tek di sik dɔn wɛl.
Aw a go tek kia ɔf misɛf? / Aw famili go ɛp?
Wae yu dɔn no se yu gɛt Kleine-Levin Syndrome (KLS), tɔk to yu dɔktɔ bɔt di bɛst tritmɛnt fɔ yu. Tek di mɛrɛsin jɔs lɛk aw dɛn tɛl yu fɔ tek am. Stay na os ɛn na say we sef we wan ɛpisod de. Put di wok dɛn lɛk skul ɛn wok bifo tɛm. Nɔ drayv ɔ yuz ebi ebi mashin dɛn. Yu kin slip ɛn put yusɛf ɛn ɔda pipul dɛn pan denja.
I impɔtant fɔ gɛt strɔng grup fɔ yu fambul ɛn padi dɛn we ɔndastand yu sityueshɔn ɛn we go ebul fɔ sɔpɔt yu. Dɛn kin ɛp yu di tɛm we wan ɛpisod de, ɔ afta i dɔn.
If yu gɛt ɛpisod we yu de yu wan, i fayn fɔ wɛr mɛdikal ID tag so dat ɔda pipul dɛn go no, ɛn fɔ kip imejensi ID kad na yu pɔs.
Ustɛm a fɔ go to dɔktɔ?
Dis sik wae dɛn kɔl KLS kin afɛkt yu maynd wɛl bɔdi bak . If yu gɛt sayn dɛn lɛk fɔ wɔri, pwɛl at, fil se yu nɔ ebul fɔ du ɛnitin, ɔ yu de tink bɔt fɔ kil yusɛf, go mɔs go to yu dɔktɔ . Nɔ kip dɛn kayn tin ya to yusɛf.
Us kwɛstyɔn dɛn a fɔ aks mi dɔktɔ?
We yu go to yu dɔktɔ, yu kin aks kwɛstyɔn dɛn lɛk dɛn wan ya:
- Ɛni sayd ɛfɛkt de fɔ di mɛrɛsin we yu gi yu?
- Ustɛm ɛn aw ɔltɛm a fɔ tek mɛrɛsin fɔ trit mi sik dɛn?
- Yu go se a fɔ tɔk to pɔsin we de gi advays bɔt aw a de wɔri ɛn aw a de fil bad?
- Aw a go protɛkt misɛf di tɛm we wan episɔd de?
Fɔ dɔn, tin dɛn fɔ mɛmba (Take-Home Message) .
Kleine-Levin Syndrome (KLS) na wan sik wae nɔr kin bɔrku, bɔt e kin mek pɔrsin gɛt bɔrku prɔblɛm wit in bɔdi ɛn maynd. Wae yu dɔn no se yu gɛt dis sik, de kɔntakt yu dɔktɔ ɔltɛm.. I go ɛp yu fɔ si if di tritmɛnt de wok fayn ɛn if ɛni sayd ɛfɛkt de. Dɔn bak, mek yu famili ɛn padi dɛn kam togɛda ɛn mek dɛn sɔpɔt yu. I go gi yu bɔku trɛnk fɔ pe am sef wan ɛvride. Nɔ wɔri, nɔto yu wan de. Yu kin liv fayn fayn wan wit dis kɔndishɔn.
` Kleine-Levin Syndrome, KLS, slip pasmak, slip prɔblɛm, juvenile sik, nyurolɔjik sik, mental wɛlbɔdi
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