Yu smɔl pikin kin chok we i de it? Dis kin bi bikɔs ɔf ‘laryngeal cleft’? Lɛ wi tɔk bɔt dis!

Bɔku tɛm yu pikin kin chok we i de drink ɔ it? Ɔ i kin mek wan strenj nɔys we i de blo, ɔ i nɔ kin izi fɔ blo bɔku tɛm? Sɔntɛnde, as mama ɔ papa, i rili nɔmal fɔ mek yu fil bad bad wan ɛn wɔri we yu si dɛn tin ya. Tide wi go tɔk bɔt wan sik we dɛn bɔn wit we kin sho di sem kayn sik, bɔt nɔr kin bɔrku pan bɔrku pipul dɛm. Dɛn kɔl dis kɔndishɔn laryngeal cleft . Pan ɔl we di nem kin tan lɛk se i kɔmplikt smɔl, lɛ wi ɔndastand am simpul wan.

Wetin na Laryngeal Cleft?

Fɔ tɔk am simpul wan, laryngeal cleft na smɔl gap ɔ slit na di tisu we fɔ de bitwin wi pikin dɛn trot, dat na di vɔys bɔks (larynx) ɛn di it paip (ɛsophagus). Tink bɔt am, wi vɔys bɔks de ɔp di briz paip (trachea). Di it paip de biɛn dis vɔys bɔks. So, if abnכmal gap de bitwin dεn tu, di tin dεm we di pikin de it, dat na milk, wata, εn it kin pas da gap de insay di winda insted fכ go insay di bεlε. Na da tɛm de di prɔblɛm dɛn kin bigin. Dis na wan sik we nɔ kin apin we pɔsin bɔn wit . Dis kכndyushכn kin apin pan lεk wan pan 10,000 to 20,000 pikin dεm we dεn bכn layf layf wan. I kin apin smɔl mɔ pan bɔy pikin dɛn.

I impɔtant fɔ no ɛn trit pikin we gɛt dis sik kwik kwik wan, bikɔs if it ɔ drink go na di rɔng ples, i kin kam wit difrɛn prɔblɛm dɛn. כltu, aw dis laryngeal cleft de tranga dipכnt pan di sayz fכ di cleft εn usay i de.

Wetin na di men kayn laryngeal clefts?

Dɔktɔ dɛn kin sheb di laryngeal clefts to 4 men kayn, i kin dipen pan aw dɛn siriɔs. Lɛ wi tek wan luk pan wetin dɛn bi:

• Tayp I: Dis na di kayn we we nɔ at pas ɔl . di cleft de כnli insay di pikin in vokal kכd dεm. Bɔrku tɛm dis kayn tin nɔr kin kɔz big big sayn dɛm. So, i kin bi se dɛn nɔ go no am wantɛm wantɛm.
• Tayp II: Na ya di cleft de go dכn di pikin in vokal kכd dεm.
• Tayp III: Di cleft big smɔl. i kin go pas di pikin in vɔys bɔks (larynx) ɛn go insay di briz paip (trachea).
• Tayp IV: Dis na di kayn we we kin rili bad . Na ya, di skel de go fa fawe dɔŋ di pikin in briz paip. Sɔntɛnde, di skel kin go along di wan ol briz paip.

Naw yu ɔndastand aw fa di gap dɔn afɛkt dis klasification.

Wetin na di sayn dɛm we de sho se yu laryngeal cleft?

We yu pikin gɛt laryngeal cleft, i kin mek i nɔ izi fɔ mek i it ɛn blo. Di kɔmɔn sayn dɛm na:

• Kɔf ɛn chok we yu de gi yu pikin in bɛlɛ ɔ we yu de gi pikin in bɛlɛ: Bɔku tɛm dis na di fɔs sayn we yu kin si. I tan lɛk we dɛn gi smɔl pikin sɔm milk ɛn bigin fɔ chok, gag, ɛn sɔntɛnde di milk kin kɔmɔt na dɛn nos.
• Trɔbul fɔ swɛla: Di pikin nɔ gri fɔ it, ɔ i tan lɛk se i nɔ kin izi fɔ swɛla.
• Blu skin (Cyanosis): Dis blu skin we de chenj (cyanosis) kin izi fɔ si na di gɔm, lip, finga nel, ɛn rawnd di yay, mɔ pan pikin dɛn we gɛt dak skin. Dis kin apin we di bɔdi nɔ de gɛt inof ɔksijɛn.
• Sawnd we de ala, wet, we at we yu de blo: I kin mek yu yɛri lɛk se di mכkus dɔn stɔp na di trot.
• Kray ɔltɛm bikɔs ɔf angri, nɔr de rɛst, ɛn nɔr de slip fayn: Bebi kin fil angri ɔltɛm bikɔs it nɔ de go insay di bɛlɛ fayn fayn wan.
• If di pikin nɔ gɛt wet, i de te fɔ gro: If di pikin nɔ de gɛt wet ɔ i nɔ de gro di sem rit lɛk ɔda pikin dɛn we gɛt di sem ej, ilɛksɛf dɛn gi am bɔku milk ɔ it, dɛn fɔ tek dis as sɔntin we dɛn nɔ biliv.
• Aspirashכn fכ it כ drink insay di windpaip: Dis kin mek yu gεt infεkshכn na di lכng bכku tεm.
• Nyumonia kin apin ɔltɛm: Dis kin apin bikɔs ɔf di aspireshɔn kɔndishɔn we wi bin dɔn tɔk bɔt.

If yu pikin gɛt wan ɔ mɔ pan dɛn sik ya, i rili impɔtant fɔ go to dɔktɔ wantɛm wantɛm.

Wetin kin mek di laryngeal cleft?

Di wan dɛn we de stɔdi bɔt dis stil nɔ no di rayt tin we kin mek i apin. Bɔt dɛn kin tink se na sɔntin we kin apin insay di fɔs mɔnt dɛn we di pikin de gro na di bɛlɛ. I kin apin fɔ insɛf, ɔr kin gɛt fɔ du wit sɔm kayn jenɛtik sindrom. Fɔ ɛgzampul:

• Opitz-Frias Sindrom we gɛt di sik
• VACTERL Asosieshɔn
• Di sik we dɛn kɔl Pallister-Hall Syndrome
• CHARGE Sindrom we pɔsin kin gɛt

pas af pan di pikin dεm we gεt laryngeal cleft kin gεt כda dεfεkt dεm bak we dεn bכn. Sɔm pan dɛn tin ya na:

• Tracheobronchomalacia - we di briz de wik
• Klɛft lip ɛn/ɔ palata
• Di at ɛn blɔd vesel dɛn we nɔ fayn
• pulmonary agenesis - we wan lכng de fεil fכ divεlכp
• εsophageal atresia - di fכmeshכn we nכ kכmplit fכ di εsophagus
• tracheoesophageal fistula - na abnכmal kכnεkshכn bitwin di winda paip εn di εsophagus

Bikɔs yu kin si dis laryngeal cleft wit ɔda kɔndishɔn lɛk dis, dɔktɔ dɛn de pe atɛnshɔn to dis bak.

Aw dɛn kin no if pɔsin gɛt laryngeal cleft?

Di kayn we aw di laryngeal clefts we nɔ at, we na di kayn I ɛn II, kin go sɔm tɛm we dɛn nɔ kin no fɔ lɔng tɛm bikɔs di sik dɛn nɔ kin rili bad. Bɔt di sayn dɛm fɔ di kayn III ɛn IV kin so bad dat dɛn kin no bɔt dɛn insay di fɔs sɔm dez afta dɛn bɔn am.

If yu pikin gɛt di sayn dɛm we wi bin dɔn tɔk bɔt, bɔku tɛm, wan dɔktɔ we de mɛn yu pikin (ENT spɛshal) go tɛl yu fɔ du ɛndoskopik evalueshɔn. insay dis, di men tεst fכ no if laryngeal cleft de na maykrolaryngoscopy εn bronchoscopy . Nɔ wɔri, dɛn kin du dis afta dɛn dɔn gi di pikin anestezi ɛn i dɔn slip ɔl. Dɔn di spɛshal pɔsin kin put wan tiub wit smɔl kamɛra insay di pikin in winda ɛn tek tɛm luk if skel de.

Apat frɔm dat, dɛn kin sɛn yu pikin to Speech-Language Pathologist (SLP). Dis spɛshal dɔktɔ go luk aw de sik de afɛkt yu pikin in ebul fɔ tɔk ɛn swɛla.

Aw dɛn kin trit wan laryngeal cleft?

Bɔku tɛm, if di laryngeal cleft, i nid fɔ ɔpreshɔn . Dɛn kɔl dis laryngeal cleft repair. Ɔpreshɔn impɔtant mɔ fɔ di kayn II, III, ɛn IV. Bɔt sɔm bebi dɛn we gɛt smɔl tayp I cleft kin lɔk dɛnsɛf as dɛn de ol. Dɛn kayn pikin ya kin jɔs nid mɛrɛsin fɔ mek it ɛn drink nɔ kam bak ɔp na di trot (riflɔks) ɛn sɔm tin dɛn fɔ mek it nɔ go insay di briz (aspiration).

di tεm εn di we aw dεn de du di כpεrayshכn kin difrεn dipכnt pan di kayn laryngeal cleft. Di dɔktɔ dɛn we de du ɔpreshɔn kin yuz dɛn we ya fɔ mek di say we di say we dɛn de klɔt fayn:

• Minimally invasive injection placement: Na ya, di dɔktɔ we de du di ɔpreshɔn kin injekt wan tɛmporari fila na di say we di ska de. Dis kin ɛp fɔ pul di sayn dɛm (bɔku tɛm fɔ lɛk tri mɔnt). Dis kin mek di pikin fil fayn te di pikin rɛdi fɔ ɔpreshɔn. Sɔntɛnde, dis nɔmɔ kin du fɔ am.
• Minimally invasive endoscopic surgery: Na ya, di sajin kin yuz laser fɔ pul di abnɔmal tisu na di say we dɛn kɔt, dɔn i kin lɔk di say we dɛn kɔt wit suture.
• Opin ɔpreshɔn: Na ya, di dɔktɔ we de du di ɔpreshɔn kin mek smɔl say na di pikin in nɛk ɛn mek di say we i dɔn rɔtin. dis mכt dεn kin yus fכ bebi dεm we gεt tayp IV laryngeal clefts.

Di tin we impɔtant pas ɔl na dat bifo dɛn du ɔpreshɔn pan yu pikin, di mɛdikal tim go gi di pikin anestezi. So di pikin nɔ go fil ɛni pen . Nɔ wɔri bɔt am.

Ɛni kɔmplikeshɔn ɔ sayd ɛfɛkt de we pɔsin kin gɛt we i trit di laryngeal cleft?

Jɔs lɛk ɛni ɔpreshɔn, ɔpreshɔn we dɛn kin du na di laryngeal cleft kin gɛt sɔm prɔblɛm dɛn. Sɔm pan dɛn na:

• di pikin in εsophagus we nכ de tayt.
• Di stich dɛn kin brok ɔ opin.
• Nɔys we yu de blo ɔ laryngomalacia.
• di damej pan di nεv dεm we kכnekt to di pikin in vכys bכks (larynx).
• di εria we de bitwin di lכng dεm na di chεst de swεla (Mediastinitis).
• di ay akyumyuleshכn כnda di skin afta dεn כpεrayshכn (Surgical emphysema).
• di briz paip kin kכnstrikt we yu de blo (Tracheomalacia).

di chans fכ dis komplikashכn de dipכnt pan bכku tin dεm, lεk di kayn כpεrayshכn we dεn du, di kayn skata, εn di pikin in כl hεlth. Yu pikin in dɔktɔ go tɔk bɔt dis wit yu ditayli bifo di ɔpreshɔn.

Aw lɔŋ i go tek fɔ mek mi pikin wɛl afta dɛn dɔn trit mi laryngeal cleft?

Afta di ɔpreshɔn, yu pikin go nid fɔ de na ɔspitul fɔ at le wan ɔ tu dez. Bikɔs dɛn kin yuz stich fɔ lɔk di say we dɛn kɔt, i kin tek sɔm wik ɔ mɔnt fɔ mek di pikin wɛl ɔl . I rili impɔtant fɔ tek tɛm fala yu dɔktɔ in instrɔkshɔn dɛn insay dis tɛm.

Wetin na di lukin-grɔn fɔ dis sityueshɔn?

If dɛn no di sik ɛn trit am kwik , di luk fɔ bebi dɛn we gɛt laryngeal cleft kin rili fayn . Wan stɔdi we dɛn jɔs du sho se 9 pan ɛvri 10 bebi dɛn we dɛn du ɔpreshɔn fɔ mek dɛn laryngeal cleft kin si se dɛn sik kin bɛtɛ insay siks wik. Bɔt bɔku tin kin dipen pan aw di cleft rili bad. Bebi dɛn we gɛt tayp IV cleft kin gɛt pas wan ɔpreshɔn ɛn dɛn kin de na ɔspitul fɔ lɔng tɛm.

Yu pikin in dɔktɔ go tɔk to yu bɔt aw yu pikin in kɔndishɔn ɛn aw fɔ kia fɔ am tumara bambay.

Yu tink se we yu laryngeal cleft de mek yu layf shɔt?

fכ bכku pikin dεm, we dεn gεt laryngeal cleft nכ de afekt dεn layf. Bɔt sɔm pikin dɛn we gɛt wan rili siriɔs tayp IV laryngeal cleft, wit ɔda siriɔs prɔblɛm dɛn we dɛn bɔn, kin mek dɛn layf de pan denja. כltu, day frכm wan laryngeal cleft – ivin if i siriכs kes dεm – n כ kin rili rεs .

If dɛn trit am fayn ɛn fala di advays we di dɔktɔ gi, di laryngeal cleft nɔ fɔ shɔt di pikin in layf span ɔ ridyus dɛn kwaliti layf.

Ustɛm a fɔ go to mi pikin in dɔktɔ?

Afta dɛn dɔn du di ɔpreshɔn, yu pikin in dɔktɔ go mɔs aks yu fɔ kam insay fɔ fala-ap apɔntinmɛnt ɛvri siks mɔnt, te to wan ia. Di nɔmba fɔ di visit dɛn insay da tɛm de go dipen pan aw yu pikin de go bifo.

We dɛn de du dɛn tɛst ya, di dɔktɔ kin du imej tɛst ɛn aks yu bɔt di sik dɛn we yu pikin gɛt. Rɛdi fɔ tɔk fɔ yu pikin. Tɔk to di dɔktɔ bɔt ɛni chenj we yu notis pan yu pikin in sik ɛn ɔl in wɛlbɔdi.

Us kwɛstyɔn dɛn a fɔ aks mi pikin in dɔktɔ?

Na sɔm impɔtant kwɛstyɔn dɛn ya fɔ aks yu pikin in dɔktɔ:

• Wetin mek yu kin se dɛn fɔ du dis tritmɛnt ɔ ɔpreshɔn?
• Wetin a go du fɔ ɛp mi pikin fɔ fil fayn bifo ɛn afta dɛn du am ɔpreshɔn?
• Wetin na di prɔblɛm dɛn we kin apin we dɛn du ɔpreshɔn pan mi pikin?
• Aw lɔng i go tek fɔ mek mi pikin wɛl?
• Wetin a go ɛkspɛkt bɔt mi pikin in wɛlbɔdi fɔ lɔng tɛm?

Aks kwɛstyɔn dɛn lɛk dɛn wan ya ɛn ɛksplen ɔl wetin yu gɛt.

Fɔ dɔn, wetin fɔ mɛmba (Take-Home Message) .

If dɛn bɔn yu pikin wit laryngeal cleft, yu go nid fɔ go to difrɛn spɛshal pipul dɛn. Dɛn ɔl go wok togɛda fɔ kia fɔ yu pikin di bɛst we. Mɛmba se sɔntɛnde, di skel kin wɛl fɔ insɛf. If na so i bi, fɔ jɔs wach yu pikin gud gud wan kin du fɔ yu. If di cleft rili bad, yu pikin kin nid fɔ du ɔpreshɔn. Di impɔtant tin na fɔ mɛmba se tritmɛnt dɛn de we go ɛp yu. Insay da tɛm de, aks yu pikin in dɔktɔ bɔt tin dɛn we yu kin du fɔ ɛp yu pikin fɔ bia wit dis sik. Nɔto yu wan de, ɛn di mɛdikal tim de ɔltɛm fɔ ɛp yu ɛn yu pikin.

` Laryngeal cleft, cleft palate, pikin it de chok, i nɔ izi fɔ blo, we dɛn bɔn pikin, di nos we de rɔn, pikin in wɛlbɔdi