Dɛn nɔ tu te yet we dɛn dɔn no se yu gɛt ankylosing spondylitis? Ɔ yu dɔn de liv wit am fɔ lɔng tɛm? Bɔt, yu go mɔs no gud gud wan bɔt de prɔblɛm, pen, ɛn nɔr kin fil fayn fɔ liv wit dis sik. Yu kin fil se na mi wangren na di wɔl we gɛt am. Bikɔs na wan sik wae nɔr kin kɔmɔn ɛn nɔr kin no bɔt, na smɔl pipul dɛm kin rili ɔndastand wetin yu de go tru.
Wetin rili na Ankylosing Spondylitis?
Fɔ tɔk am simpul wan, dis na inflamɛns we kin de fɔ lɔng tɛm na di jɔyn dɛn we kin afɛkt di spayna mɔ. Fɔ tɔk di kɔrɛkt tin, dis na wan kayn at at sik. Fo wi langwej, wi de kol am "joint pain." pan dis kכndyushכn, di sכmכl jכint dεm na di spayna kin swεla, i kin fil pen, εn as tεm de go, dεn kin fכs tכgeda, we kin mek di spayna nכ kin ebul fכ fכm. Dis na di rizin we mek yu kin stat di de wit stiffness na di bak na mɔnin. Dis nɔ kin jɔs apin to di spayna, bɔt sɔntɛnde i kin afɛkt ɔda jɔyn dɛn lɛk di hip, di sholda, ɛn di ni.
Wan pan de big prɔblɛm wae kin kam wit dis sik na de pen wae de fil na yu bɔdi ɛn bak de fil wae yu de fil fɔ de yu wan. Di filin fɔ "na mi nɔmɔ dɔn pas dis" kin rili bɔku.
De chalenj dɛm fɔ liv wit dis kɔndishɔn
If yu tɛl yu padi ɔ fambul mɛmba se, "A gɛt bak-ak," dɛn kin tink se na nɔmal tin, na simpul pen we kin kam wit smɔl tray. Bɔt i nɔ kin izi fɔ dɛn fɔ ɔndastand di pen ɔltɛm , di stiffness fɔ ɔl di de , ɛn taya pasmak we kin kam wit ankylosing spondylitis.
- Di wokples ɛn di wok dɛn we yu fɔ du ɛvride: Sɔntɛnde, fɔ ivin grap na bed kin tranga. Fɔ wok nɔmal wan na ɔfis chia, fɔ drayv motoka, ɔ ivin fɔ du ɛvride os wok kin tranga.
- Sɔshial rileshɔnship: We yu de fil pen ɔltɛm ɛn fil taya, yu nɔ kin lɛk fɔ go wit yu padi dɛn ɔ fɔ go na di program dɛn. Dis kin mek yu kɔmɔt na di sosayti smɔl smɔl.
- Saikɔlɔjik impak: Ɔl dis kin mek yu strɛs, wɔri, ɛn sɔmtɛm dɛn kin gɛt pwɛl hat.
Bɔt di tin we impɔtant pas ɔl we a go tɛl yu na dat nɔto yu wan de . Bɔrku bɔrku pipul dɛn de ɔlsay na di wɔl wae de sɔfa wit dis sik jɔs lɛk yu, wae kin ɔndastand yu ɛkspiriɛns. Ɛn bɔku tin dɛn de we go ɛp yu, gi yu infɔmeshɔn, ɛn sɔpɔt yu.
Usay yu kin gɛt sɔpɔt ɛn infɔmeshɔn
Pan ɔl we bɔku pan dɛn ɔganayzeshɔn ya na fɔrina ɔganayzeshɔn, yu kin gɛt infɔmeshɔn ɛn sɔpɔt grup dɛn na di Intanɛt, we kin ɛp yu fɔ no aw yu sik.
| Ɔganayzeshɔn / Risous | Wetin yu kin gɛt |
|---|---|
| Atraytis Fɔdayshɔn | Dis na ɔganayzeshɔn we nɔ de du biznɛs ɛn we de advatayz fɔ mek pipul dɛn no bɔt at at ɛn du risach. Dɛn wɛbsayt gɛt ditayla infɔmeshɔn bɔt ankylosing spondylitis. |
| Layf Yes! Atraytis Nɛtwɔk | Dis na di Atraytis Fɔdayshɔn in yon onlayn fɔm. Na fayn ples fɔ kɔnɛkt wit ɔda pipul dɛm wae de liv wit kɔndishɔn lɛk yu, sheb ɛkspiriɛns, ɛn chenj aydia bɔt tritmɛnt. |
| Spɔndylitis Asosieshɔn fɔ Amɛrika (SAA) . | Dis ɔganayzeshɔn de gi bɔku infɔmeshɔn, mɔ bɔt ankylosing spondylitis ɛn ɔda tin dɛn we gɛt fɔ du wit am. Yu kin lan bɔku tin bɔt aw fɔ kɔntrol di sik, ɛksesaiz, ɛn it. |
| Nashɔnal Instityut fɔ Atraytis ɛn Mɔskul skel ɛn Skin Diziz (NIAMS) . | Dis wɛbsayt na pat pan di US Nashɔnal Instityut fɔ Wɛlbɔdi biznɛs, ɛn i gɛt wan sɛpret pat we de tɔk bɔt tin dɛn we kɔrɛkt ɛn we pɔsin kin abop pan pan mɛrɛsin bɔt ankylosing spondylitis. |
| Di Kanada Spɔndylaytis Asɛmbli: Yu Stori dɛn | Dis na kɔmyuniti we de na di Intanɛt. Na ya yu kin sheb yu stori, ɛn rid bak de ɛkspiriɛns wae ɔda pipul dɛm wae gɛt dis sik kin gɛt. Sɔntɛnde, ivin we yu rid ɔda pɔsin in ɛkspiriɛns kin mek yu gɛt bɔku trɛnk. |
Aw fɔ yuz dɛn tin ya?
Pan ɔl we dɛn wɛbsayt dɛn ya de insay Inglish, yu kin yuz wan tin lɛk Google Translate fɔ translet di tin dɛn we de insay Sinhala ɛn rid am. Di tin we impɔtant pas ɔl na fɔ jɔyn di onlayn kɔmyuniti/fɔm dɛn we de na dɛn wɛbsayt ya.
- Rid ɔda pipul dɛn stori: We yu rid bɔt aw pipul dɛn lɛk yu de gɛt dis prɔblɛm, dat go ɛp yu fɔ lɛ yu nɔ fil se yu wangren de.
- Aks kwɛstyɔn: Dis na fayn ples fɔ aks kwɛstyɔn dɛn we de na yu maynd ɛn gɛt advays frɔm ɔda pipul dɛn.
- Lan nyu tin: Dis kin ɛp yu fɔ no bɔt nyu tritmɛnt, risach, ɛn nyu we fɔ mɛn di sik.
I rili impɔtant: Pan ɔl we dɛn tin ya kin rili ɛp yu fɔ no ɛn sɔpɔt yu, yu fɔ go to yu dɔktɔ ɔltɛm bifo yu go to dɔktɔ ɔ mek ɛni chenj to yu mɛrɛsin . Dɛn wɛbsayt dɛn ya nɔto tin fɔ tek ples fɔ advays we dɔktɔ dɛn kin gi.
Yu nɔ nid fɔ go tru dis waka yu wan. If yu gɛt di rayt infɔmeshɔn ɛn sɔpɔt, yusɛf kin ebul fɔ manej yu ankylosing spondylitis kɔndishɔn, ridyus pen, ɛn liv aktif layf.
Mɛsej we dɛn kin kɛr go na os
- Ankylosing spondylitis na wan at at sik wae kin teik lɔng tɛm wae kin afɛkt di spayna. Apat frɔm di pen we pɔsin kin gɛt na in bɔdi, fɔ fil se na in wangren de na big pat pan am.
- Nɔto yu wangren de gɛt dis prɔblɛm. Na big big kɔmyuniti ɛn tin dɛn de ɔlsay na di wɔl we go ebul fɔ sɔpɔt yu.
- Yu kin fɛn infɔmeshɔn we yu kin abop pan ɛn sɔpɔt grup dɛn na di intanɛt tru di wɛbsayt dɛn fɔ ɔganayzeshɔn dɛn lɛk di Atraytis Fɔdayshɔn ɛn di Spɔndylitis Asɛmbli fɔ Amɛrika.
- We yu rid ɔda pipul dɛn ɛkspiriɛns ɛn tɛl yu yone, dat kin mek yu gɛt bɔku trɛnk na yu maynd.
- Dɛn tin ya na fɔ infɔmeshɔn nɔmɔ. Duya, mek ɔl yu tritmɛnt dɛn, mɛrɛsin dɛn, ɛn di tin dɛn we yu fɔ disayd fɔ du fɔ yu mɛrɛsin jɔs ɔnda yu dɔktɔ in gayd.
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