Yu dɔn ɛva fil lɛk se yu an ɛn finga dɛn de lɔs trɛnk smɔl smɔl? Sɔntɛm ivin simpul wok dɛn lɛk fɔ ol kɔp ɔ fɔ bɔtin bɔtin dɔn kam tranga? Yu kin gɛt mɔsul dɛn bak we de shek shek ɛn we de shek shek? Dis nɔto jɔs nɔmal tin, dɛn kin bi sayn fɔ wan spɛshal nerve condition we dɛn kɔl ‘multifocal motor neuropathy ’ we wi go tɔk bɔt tide. Nɔ wɔri, wi go tɔk bɔt ɔltin insay simpul wɔd dɛn.
Wetin na di mכltifokal mכtal nyuropathy (MMN)?
Fɔ tɔk am simpul wan, Multifocal Motor Neuropathy (MMN) na wan sik we nɔ kin apin so ɔltɛm. I kin apin we di nεv dεm we de kכntro di mכsul dεm fכ wok na wi bכdi (mכtal nεv dεm) dεn dכn pwεl. Dis kin mek di mɔsul dɛn wik smɔl smɔl as tɛm de go. Dis wikɛd tin kin afɛkt di an, finga, ɛn leg mɔ.
Tink bɔt dis we: di mɔsul dɛn na wi bɔdi tan lɛk ilɛktrik tin dɛn. Di nɛv dɛn na di waya dɛn we de gi dɛn ilɛktrishɔn. insay MMN, wi yon imyun sistεm de atak dεn ‘ways’ dεm ya. Dɔn, di mɔsul dɛn nɔ kin gɛt di ilɛktrik signal dɛn we dɛn nid, so dɛn kin wik smɔl smɔl.
Pan ɔl we dis na sik we nɔ de mɛn, we nɔ go ebul fɔ mɛn, di bɛst tin na dat, tritmɛnt dɛn de we rili fayn fɔ am . Bɔku tɛm, di tritmɛnt kin kɔntrol aw di sik de go bifo ɛn mek di mɔsul dɛn gɛt trɛnk bak.
Dis sik kin kam pan pipul dɛm wae ol bitwin 40 ɛn 50. Bɔt i kin kam pan ɛnibɔdi wae ol bitwin 20 ɛn 80. Dis sik kin kam smɔl pan man dɛm pas uman dɛm.
Wetin na di rial tin we mek MMN de?
Dɛn nɔ dɔn fɛn di rayt tin we mek dis apin yet. Bɔt wi no se dis nɔto sɔntin we pɔsin kin gɛt frɔm wi gret gret granpa dɛn. Dat min se i nɔto sik we pɔsin kin gɛt frɔm in mama ɛn papa .
Dɛn kɔl dis sik we pɔsin kin gɛt we i de fɛt insɛf . Dis min se di imyun sistɛm , we dɛn se de protɛkt wi bɔdi, kin mistek bigin fɔ atak wi yon wɛlbɔdi nɛv sɛl dɛn lɛk se dɛn na ɛnimi. Risach pipul dɛn stil de tray fɔ no wetin mek dis kin apin.
Wetin na di sayn dɛm fɔ dis sik?
Yu kin bigin fɔ fil di sayn dɛm fɔs na yu an ɛn finga dɛm.
- di mכsul dεm we wik: di trεnk de dכn, spεshal wan na di finga dεm εn di an dεm. Tin dɛn lɛk fɔ tayp, fɔ rayt wit pen, ɛn fɔ bɔtin shirt kin at fɔ du.
- Mɔsul we de rɔl ɛn pul (TwIt ɛn Kramp): Yu kin fil se yu nɔ ebul fɔ kɔntrol yu mɔsul dɛn de shek shek ɛn kramp.
- Hevi na wan say: Bɔku tɛm dɛn kin fil dɛn sayn ya bad bad wan na wan say na di bɔdi (e.g., di rayt an).
- As tɛm de go, dis wikɛd tin kin afɛkt di leg dɛn bak.
De tin wae impɔtant pas ɔl na wae pɔrsin nɔr de fil pen ɔr nɔr de fil fayn na dis sik. Yu fil se ɔltin fayn pafɛkt wan. dis na biכs dis sik de כnli afekt di mכtalman nεv dεm we de kכntro di muvmεnt. Di sɛns nerv dɛn nɔ de pwɛl.
Aw fɔ no dis sik kɔrɛkt wan?
Di sayn dɛm fɔ dis sik rili fiba di wan dɛm fɔ ALS (Amyotrophic Lateral Sclerosis) , we na wan siriɔs nyurolɔjik sik we nɔ go mɛn. So, sɔntɛnde ivin dɔktɔ dɛn kin kɔnfyus di tu sik dɛn. Bɔt bikɔs MMN na sik we pɔsin kin trit ɛn we pɔsin kin kɔntrol , i rili impɔtant fɔ no di sik kɔrɛkt wan .
If yu gɛt dɛn sik ya, yu fɔ rili go to dɔktɔ we de mɛn yu nyuro. I go chɛk yu ɛn aks yu sɔm kwɛstyɔn dɛn bɔt yu sik dɛn. Dɔn, dɛn go ɔda sɔm tɛst fɔ rul ɔut ɔda kɔndishɔn ɛn kɔnfɔm MMN.
| Tɛst | Fɔ tɔk am simpul wan... |
|---|---|
| Nεv Kכndukshכn Stɔdi (NCS) . | Dis de mɛzhɔ di spid we ilɛktrik signal dɛn de travul tru yu nɛv dɛn. I tan lɛk fɔ mɛzhɔ di spid we kɔrɛnt de flɔ tru waya. insay MMN, dis spid de slo na sכm nεv dεm. |
| Nidul Ilɛktromayografi (EMG) . | insay dis, dεn de put sכm sכm εlektrod dεm wit pin insay di mכsul dεm εn dεn de mכsu di ilektrikal aktiviti fכ di mכsul dεm. dis kin yus fכ si if di mכsul dεm de ansa fayn fayn wan to di signal dεm we de kכmכt frכm di nεv dεm. |
| Blɔd Tɛst (Blɔd Tɛst fɔ GM1 antibodi dɛn) . | Sɔm MMN pasɛnt dɛn gɛt ɛlevɛt lɛvɛl fɔ antibodi dɛn we dɛn kɔl GM1 na dɛn blɔd. Dis tɛst kin kɔnfɔm dis. כltu, i pכsibul fכ gεt MMN ivin if dεn antibodi lεvεl dεm ya nכmal. |
Aw dɛn kin trit am?
If yu sik nɔr kin rili so, yu nɔr kin nid tritmɛnt. Bɔt if yu wik bad bad wan, i go mɔs bi se yu dɔktɔ go tɛl yu fɔ gi yu di men tritmɛnt.
Men tritmɛnt: IVIG
Di men ɛn di bɛst tritmɛnt fɔ dis na Intravenous Immunoglobulin (IVIG) . Dis na mɛrɛsin we dɛn kin gi insay di bɛlɛ. I de wok bay we i de kɔntrol di wok we di antibodi dɛn we de ambɔg di bɔdi de du ɛn stɔp di damej we di nerv dɛn de du.
- Yu go fil se yu mɔsul trɛnk de kam bak insay 3-6 wik afta yu dɔn gɛt IVIG tritmɛnt.
- Bikɔs di tin dɛn we dis tritmɛnt kin du kin stɔp as tɛm de go, dɛn kin nid fɔ trit am bɔku tɛm, lɛk wan tɛm insay di mɔnt.
- IVIG nɔ gɛt bɔku bad bad sayd ɛfɛkt dɛn, bɔt na tritmɛnt we rili dia.
Ɔda tritmɛnt dɛn
If IVIG tritmɛnt nɔ wok ɔ dɛn nɔ ebul fɔ gi am, dɔktɔ dɛn kin tink bɔt ɔda mɛrɛsin dɛn lɛk Cyclophosphamide , bɔt dɛn kin gɛt mɔ sayd ɛfɛkt dɛn.
Apat frɔm dɛn tin ya, fizik tritmɛnt , ɛksesaiz, ɛn ɔt tritmɛnt kin ɛp fɔ mek di mɔsul dɛn kɔntinyu fɔ gɛt trɛnk ɛn fɔ wok fayn. Tɔk to yu dɔktɔ bɔt dis ɛn pik di rayt wan.
Wetin a kin du we a de liv wit MMN?
MMN nɔto rizin fɔ stɔp yu layf. If yu de manej yu fayn fayn wan, yu go ebul fɔ liv gud layf.
- Mental hεlth: Strεs kin kam wit εni krεse sik. So, kɔntrol yu strɛs ɛn aks fɔ ɛp frɔm pɔsin we sabi bɔt mental wɛlbɔdi biznɛs if nid de.
- Wɛlbɔdi layf: It fayn it ɛn slip fayn.
- Ɛksesaiz: Aks yu dɔktɔ ɔ pɔsin we de mɛn yu bɔdi fɔ ɛksesaiz saful saful we go fayn fɔ yu.
- Aks fɔ ɛp: If yu gɛt prɔblɛm wit di wok dɛn we yu de du ɛvride, nɔ shem fɔ aks fɔ ɛp.
- Sɔpɔt Grup dɛm: Fɔ tɔk to ɛn sheb ɛkspiriɛns wit pipul dɛm wae dɛnsɛf de gɛt dis kayn sik kin bi big tin fɔ yu.
Dis sik nɔ go mek yu layf shɔt. If dɛn no di sik kwik kwik wan ɛn dɛn trit am di rayt we, .Yu kin bi aktif, wok, ɛn liv nɔmal layf fɔ lɔng lɔng tɛm.
Mɛsej we dɛn kin kɛr go na os
- Multifocal Motor Neuropathy (MMN) na wan ɔtoimyun nyuropathy we nɔ kin bɔku, bɔt we dɛn kin trit.
- Di men sayn na we di mɔsul dɛn kin wik smɔl smɔl na di an ɛn leg. Nɔ pen ɔ swɛ nɔ de.
- I impɔtant fɔ no difrɛns pan dis frɔm ɔda siriɔs sik dɛn lɛk ALS. Fɔ dis, dɛn fɔ go to dɔktɔ we de mɛn nyuro.
- IVIG na wan tritmɛnt we rili wok we kin mek di mɔsul dɛn gɛt trɛnk bak.
- Dis sik nɔr de mek yu layf shɔt, ɛn if yu de mɛn yu fayn fayn wan, yu kin liv aktif layf.
- If yu gɛt dɛn sik ya, nɔ west tɛm ɛn go to yu dɔktɔ (dɔktɔ) fɔ advays.
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