Yu pikin gɛt skɔliosis? Lɛ wi lan bɔt nyuromɔskular skɔliosis!

Yu dɔn ɛva fil lɛk se yu smɔl pikin in bak dɔn bɛn smɔl, ɔ i ebi na wan say? I tan lɛk se i nɔ kin izi fɔ sidɔm ɔ tinap stret? Sɔntɛnde, wi kin tink se di pikin de du am bikɔs i dɔn bost. Bɔt biɛn dɛn tin ya, wan sik kin de we dɛn kɔl Nyumɔskul Skɔliosis . No wori, tide wi go tok abaut evritin fo simpul wod.

Wetin na Nyuromɔskul Skɔliosis?

Fɔ tɔk am simpul wan, dis na we dɛn kin pul wi pikin in spayna na wan say. Nɔmal wan, di spayna fɔ stret na di midul. bכt insay dis kכndishכn, di vεrbra dεm (wi kכl dεm ``Vertebrae'') na di spayna de rota sכmtεm to di sayd, we de mek di spayna kכv to "C" כ "S" shep . dis nכto jכs bεnd bak, bכt i kin apin bak wit כda כndalayn kכndyushכn dεm we de afekt di pikin in nεv sεstem (dat na di bren, spεnal kכd, εn nεv dεm) εn mכsul dεm.

Naw tink bɔt am, wi kin tɛl wi pikin dɛn fɔ "kip dɛn bak stret" na di dina tebul, nɔto so? Ɔ wi kin wɔn dɛn fɔ "nɔ sidɔm da we de na bed." Bɔt fɔ pikin we gɛt dis sik, fɔ sidɔm stret na big prɔblɛm. Ivin if dɛn tray, i kin tranga, ɛn sɔntɛnde i kin ivin fil pen. So i nɔ min se di pikin nɔ de obe yu, na jɔs bikɔs i rili at fɔ du am.

Dis skɔliosis nɔ kin jɔs afɛkt di we aw yu pikin de tinap. Yu go notis se yu pikin in klos nɔ fit fayn. Wan an kin luk lɔng pas di ɔda wan, ɔ di bɔtin dɛn na di shit nɔ kin fit togɛda fayn fayn wan. Dis nɔto bikɔs di klos dɛn bin shrink we dɛn de was ɔ bikɔs di pɔsin we de mek di klos bin mek mistek. dis na di rizulεt fכ wan kכndyushכn we dεn kכl ``Nyuromuskular Skoliosis''.

Bɔku tɛm, di sayn dɛm fɔ skɔliosis kin apin we di pikin de bɔn, we di pikin kin ayt wantɛm wantɛm. Bɔt if dis kayn tin apin, di sayn dɛn kin apin ivin bifo tɛm .

As tɛm de go, dis kɔba we di spayna de kɔba kin bɔku. If dis apin, pen ɛn ɔda prɔblɛm dɛn kin apin. Bɔt dɛn kin kɔntrol dɛn tin ya if dɛn trit dɛn fayn, ɛn sɔntɛnde dɛn kin du ɔpreshɔn pan dɛn.

Dis bak pen de go ɔp smɔl smɔl?

Yes, `(Neuromuscular Scoliosis)` na wan sik we de go bifo . Dat min se di kɔba we di spayna de kɔba kin wɔs as tɛm de go. biכs dis kכva de apin na pikin, i kin inkrεs kwik kwik wan we di pikin de gro wan wan (we wi kכl `(growth spurt)`). i posibul se dis kכva kin kכntinyu fכ inkrεs te i big.

Aw dis tin de apin ɔlsay?

Nyuromɔskular skɔliosis na kɔmɔn tin wit ɔda kɔndishɔn dɛm we de afɛkt di nervɔs sistɛm ɛn di mɔsul dɛm. fכ egzampl, dεn kin si am wit kכndyushכn dεm lεk mכskul dεstrofi, spεnal mכsul atrofi (SMA), εn sεribra palsi (CP) .

stεdi, lεk 90% pan di pipul dεm we gεt Duchenne Muscular Dystrophy εn lεk 80% pan di pipul dεm we gεt Spinal Muscular Atrophy kin gεt skכliosis. Bitwin 20% ɛn 70% pan di pipul dɛm wae gɛt Sɛribra Palsi kin gɛt skɔliosis.

Wetin na di sayn ɛn sayn dɛm fɔ dis?

Insay dis kayn tin, sayn dɛn de we de na do we yu kin si frɔm yu pikin, ɛn bak sɔm sayn dɛn we di pikin kin fil.

Di tin dɛn we pɔsin kin si na do we pɔsin kin si:

• Sholda nɔ de na di sem lɛvɛl. I kin tan lɛk se wan sholda dɔn go ɔp ɛn di ɔda wan dɔn go dɔŋ.
• Rib dɛn we de kɔmɔt bifo na wan say.
• Hip ɛn wɛst kin tilt.

If yu gɛt pikin we de yuz wilchia, yu go si tin dɛn lɛk:

• Sidɔm hunched ova, lean to wan sayd.
• Tilt di pelvis to wan sayd.
• I nɔ izi fɔ sidɔm (sidɔm wit sɔpɔt pan an ɔ ɛlb).
• Prεshכn sכs (dεmεj to di skin we de kכz we i de na di sem posishכn fכ tu lכng).

apat frכm we dεn de pul di spayna na wan say, dεn kin si כda kכba dεm na di pikin in spayna dεm bak, fכ egzampl , fכwכd bεnd (kyphosis) (lεk hunchback) כ bakכd bεnd (lordosis) (na kכndyushכn we di bεlε de kכmכt fכ go bifo εn di spayna de le bak) .

Di sayn dɛm we di pikin kin fil:

as di kכva we di spayna de kכba, di pikin kin gεt dεn diskomfכt dεm ya:

• Bak pen.
• Fɔ fil se yu nɔ go fil fayn we yu sidɔm.
• Di mɔsul dɛn we wik.
• Di an ɛn fut kin swɛla.
• Limitɛd rɛnj fɔ muv.
• I nɔ kin izi fɔ mek di ed, di trɔnk, ɛn di nɛk balans ɛn kɔntrol di we aw dɛn de muv.

Wetin mek dis de apin? Wetin na di rizin dɛn?

di men kכz fכ ``Nyuromuskul Skoliosis`` na wan כndalayn mεdikal kכndyushכn we de afekt di pikin in nεv sεstem εn/כ mכsul dεm . We pikin gɛt dis kayn nyuromɔskul sik, dɛn nɔ kin ebul fɔ kɔntrol ɛn muv sɔm pan di mɔsul dɛn na in bɔdi fayn fayn wan. dis kin mek di mכsul dεm we de rawnd di spayna wik εn di spayna bigin fכ kכba.

Sɔm pan de men mɛrɛsin wae kin gɛt fɔ du wit dis kayn bak strɛs na:

• Sɛribra Palsi we de na di bɔdi
• Duchenne Muskul Dystrofi we gɛt di sik
• Paralayz we pɔsin kin gɛt
• Spina Bifida (na wan kכndyushכn na di spεnal kכd we kin apin we dεn bכn am) .
• Spinal Mɔskul Atrofi

Wetin na di tin dɛn we kin mek pɔsin gɛt dis sik?

If yu pikin gɛt nyuromɔskular disɔda ɛn/ɔ yuz wilchia fɔ go rawnd, chans de fɔ mek i gɛt Nyuromɔskular Skɔliosis.

Us prɔblɛm dɛn dis kin mek?

if di kכva fכ di spayna de bi siriכs bikoz fכ Nyuromoskul Skoliosis, komplikashכn dεm lεk:

• Di prɔblɛm we pɔsin kin gɛt we i de blo:di kכndishכn dεm lεk ``Thorac Insufficiency Syndrome'', we de mek i at fכ brith εn nכ de na di chεst.
• I nɔ izi fɔ wok fɔ yusɛf: Fɔ ɛgzampul, i nɔ kin izi fɔ drɛs ɔ it yu wan.
• Di prɔblɛm dɛn we kin mek pɔsin ebul fɔ muv: I nɔ kin izi fɔ waka.
• Nɛv dɛn we dɔn pwɛl.
• Prɔblɛm dɛn we de wit di at ɛn di blɔd sistɛm.

apat frכm dεn fכshal difεlεns dεm ya, di kכndyushכn `(Neuromuscular Scoliosis)` εn di כndalayn mεdikal kכndyushכn we de kכz am kin mek bak di pikin in sεlf εstimat . Fɔ liv wit sɔm mɛrɛsin dɛn di sem tɛm nɔ kin izi. Dis kin mek di pikin gɛt pwɛl hat, sɔfa wit tin dɛm lɛk `(Diprɛshɔn)` ɔ `(Ansiety) . So, i rili impɔtant fɔ tek kia ɔf di pikin in maynd ɛn if nid de, go to pɔsin we sabi bɔt mental wɛlbɔdi biznɛs advays.

Aw yu kin no bɔt dis?

Fɔ no di sik we dɛn kɔl ``Neuromuscular Scoliosis``, dɔktɔ go fɔs du wan fyzikal ɛgzam ɛn aks bɔt di sayn dɛm. Dɛn go luk bak pan di pikin in mɛdikal istri ɛn if ɛnibɔdi na di famili dɔn gɛt dis kayn sik.

We dɛn de du di ɛgzamin, di dɔktɔ go tek tɛm wach di pikin in spayna, aw i tinap, ɛn aw i balans. Dɛn go chɛk di skin bak fɔ si if i gɛt prɛshɔn sɔl. Dɛn kin yuz wan tin we dɛn kɔl skɔliomita fɔ no aw di spayna kɔba. pan tap dat, dεn kin du imej tεst lεk X-ray כ MRI skan fכ si klia wan di kכndishכn fכ di spayna.

Wetin na di tritmɛnt dɛn?

Dɔktɔ go tray fɔs fɔ kɔntrol dis sik wit tritmɛnt dɛn we nɔto ɔpreshɔn.

Tritmɛnt dɛn we nɔto ɔpreshɔn

• Di chenj dɛn we yu fɔ chenj di wilchia: If yu pikin de yuz wilchia, dɔktɔ go tɛl yu fɔ ad kɔstɔm sit bak ɔ lateral sɔpɔt to di wilchia sit fɔ ɛp am fɔ balans izi wan.
• Fizik tritmɛnt: Wan dɔktɔ we de mɛn yu pikin go tich yu pikin ɛksesaiz fɔ mek di mɔsul grup dɛn we di sik afɛkt strɔng. Dis kin ɛp fɔ adrɛs di prɔblɛm dɛn we gɛt fɔ du wit balans ɛn mek di pikin ebul fɔ wok fɔ insɛf.
• Bak bres: Dɛn kin advays fɔ du dis ɔ nɔ kin fayn fɔ am dipen pan di pikin in kɔndishɔn. Fɔ ɛgzampul, bres we dɛn kin wɛr rawnd pikin we de yuz wilchia in trɔnk kin ɛp dɛn fɔ balans we dɛn sidɔm. Bɔt i nɔ go stɔp di kɔba we di spayna de kɔba fɔ go ɔp. Bɔku tɛm, bres nɔ kin sef fɔ pikin dɛn we de waka. I kin mek dɛn fɔdɔm ɛn lɔs dɛn balans.

Impɔtant:di tritmεnt dεm we nכ de du כpεrayshכn kin slo כ ivin stכp di prכgreshכn fכ di spεnal kכva, bכt dεn nכ kin strεt di kכv fכ di spayna kכmplit wan.

Ɔpreshɔn

כpεrayshכn fכ ``Neuromuscular Scoliosis`` kin stכp di kכv fכ wכs εn stεbyul di spayna. Dɔktɔ kin tink bɔt fɔ du ɔpreshɔn pan dɛn kayn tin ya:

• if di kכva fכ di spayna pas 40 digri εn i de kכntinyu fכ wכs.
• If di pikin de fil pen ɔ i nɔ de fil fayn.
• If kɔmplikeshɔn dɛn de we de afɛkt di lɔng ɔ at wok.

Bifo dɔktɔ disayd fɔ du ɔpreshɔn, i go tek tɛm tink bɔt di pikin in ɔl wɛlbɔdi, di kayn nyuromɔskular sik we de ɔnda am, ɛn aw di bak spasm bad. Dɛn go pik di tritmɛnt we sef fɔ di pikin in kɔndishɔn.

Di kayn ɔpreshɔn dɛn we dɛn kin du fɔ nyuromɔskular distrofi:

Tu men kayn ɔpreshɔn dɛn de:

1. Spinal Fyushכn: Insay dis כpεrayshכn, di כpεrayshכn de rialayn di pikin in spayna εn fכs di spεnal jכint dεm we afekt. Dis kin min fɔ yuz bon graft, mɛtal stik, ɛn skru . Dɛn kin yuz dɛn tin ya fɔ ol di bon dɛn togɛda te di tu bon dɛn wɛl as wan. כltu, afta dis spεnal fכs כpεrayshכn, di fכs bon fכ gro de stכp. Dis kin mek di pikin shɔt.

2. Growing Rods: Dis ɔpreshɔn na di bɛst fɔ pikin dɛn we stil de gro. Di dɔktɔ we de du di ɔpreshɔn kin put wan stik along di pikin in spayna. Dis rod de mek di spayna stebul ɛn kɔrɛkt di kɔv. as di pikin de gro, dεn kin lεng di stik εvri 6-8 mכnt, i kin bi tru sכm כpεrayshכn כ tru wan in-כfis magnεtik lεngthεning prosidכs. We di pikin rich di skel machɔ, we min se dɛn dɔn stɔp fɔ gro, di dɔktɔ we de du di ɔpreshɔn kin pul di stik ɛn du wan spɛshal fushɔn.

Pikin we gɛt ``Neuromuscular Scoliosis`` de pan ay risk fɔ gɛt kɔmplikeshɔn we dɛn de du ɔpreshɔn, lɛk infɛkshɔn ɔ nerve damej, bikɔs dɛn de manej ɔda ɔndalayn mɛdikal kɔndishɔn. Dɔn bak, di dɔktɔ we de du di ɔpreshɔn gɛt fɔ trit bɔku say dɛn na di spayna di sem tɛm, ɛn dis kin mek i gɛt prɔblɛm dɛn mɔ ɛn mɔ .

Yu pikin in mɛdikal tim go tek tɛm luk if di ɔpreshɔn nɔ bad ɛn dɛn go tich yu bɔt di sayd ɛfɛkt dɛn we pɔsin kin gɛt bifo di ɔpreshɔn, so dat yu go disayd fɔ kia fɔ yu pikin fayn fayn wan.

Wetin na de lukin-grɔn fɔ dis sik? (Prɔgnosis) .

Di we aw di pikin de si tin kin dipen pan bɔku tin dɛn:

• Di pikin in ɔl wɛlbɔdi biznɛs.
• Di kayn ɔndalayn mɛdikal kɔndishɔn we bin de mek di bak pen.
• di siriכs we di spayna kכva εn di rεt we i de inkrεs.
• Di we aw dɛn kin trit di pikin we fit di pikin in kɔndishɔn.

Pan ɔl we ɔpreshɔn kin kɔrɛkt wan skɔliosis, prɔblɛm dɛn de we kin apin. Yu pikin in mɛdikal tim go tray ɔltɛm fɔ gi yu pikin di tritmɛnt we sef fɔ mek i gɛt wɛlbɔdi ɛn in maynd. If yu gɛt ɛni kwɛstyɔn bɔt aw yu pikin de si tin, tɔk to yu dɔktɔ.

Wetin wi go se bɔt di layf we pɔsin de liv?

Nyuromɔskul Skɔliosis kin afɛkt yu pikin in layf ɔ i nɔ kin afɛkt am. Bɔt if i siriɔs, prɔblɛm kin apin we kin afɛkt di at ɛn di lɔng dɛn. Dɛn tin ya kin mek pɔsin in layf de pan denja. If yu pikin de pan denja fɔ gɛt siriɔs prɔblɛm, yu pikin in mɛdikal tim go advays yu bɔt wetin fɔ ɛkspɛkt.

Yu tink se dɛn go ebul fɔ stɔp dis?

כnכfכs, nכ we nכ de fכ mek di divεlכpmεnt fכ ``Nyuromuskular Skoliosis''. Bɔt if dɛn no di sik kwik kwik wan ɛn bigin fɔ trit am kwik , dɔktɔ dɛn kin ebul fɔ slo di kɔv ɔ ivin kɔrɛkt am wit ɔpreshɔn.

Ustɛm a fɔ go to dɔktɔ?

If yu notis sayn dɛn we de sho se yu pikin gɛt skɔliosis, lɛk we i nɔ izi fɔ sidɔm, in sholda nɔ de stebul, ɔ we i gɛt prɛshɔn sɔl , go to dɔktɔ wantɛm wantɛm .

If dɛn dɔn ɔlrɛdi no se yu pikin gɛt Nyuromɔskul Skɔliosis, tɔk to dɔktɔ if i gɛt sɔm sayn dɛn lɛk pen, nɔ fil fayn, i nɔ izi fɔ blo, ɔ ɔda prɔblɛm dɛn.

Us kwɛstyɔn dɛn yu fɔ aks di dɔktɔ?

Yu kin aks yu pikin in dɔktɔ kwɛstyɔn dɛn lɛk dɛn wan ya:

• Us kayn tritmɛnt yu kin advays?
• Yu tink se dɛn nid fɔ du ɔpreshɔn pan mi pikin?
• Wetin na di sayd ɛfɛkt dɛm we di tritmɛnt kin gɛt?
• Aw a go mek mi pikin sef ɛn fil fayn?

Wan impɔtant mɛsej fɔ yu (Take-Home Message)

As mama ɔ papa, i nɔmal fɔ fil bad ɛn wɔri we yu kam fɔ no se yu pikin nɔ gɛt wan, bɔt tu kɔndishɔn (we de ɔnda di nyuromɔskular sik ɛn nyuromɔskular skɔliosis). Yu kin tink bɔku tin bɔt tumara bambay ɛn aw fɔ mek yu pikin fil fayn. Dis kin mek yu rili strɛs. Bɔt mɛmba se yu nɔ nid fɔ dil wit dɛn tin ya yu wan.

Bikɔs nyuromɔskular skɔliosis na wan sik we de go bifo, yu go nid fɔ go to yu pikin in mɛdikal tim ɔltɛm. We yu go du dɛn visit ya, dɔktɔ go mɛzhɔ aw yu pikin in spayna kɔba. If di kɔba bad bad wan, dɔktɔ we de du ɔpreshɔn kin tink bɔt fɔ du ɔpreshɔn if di prɔblɛm dɛn we kin apin we dɛn du di ɔpreshɔn pas di bɛnifit dɛn we yu pikin go gɛt.

If yu gɛt ɛni kwɛstyɔn bɔt aw yu pikin de si tin ɔ aw yu go ɛp am na os, nɔ fred fɔ tɔk to yu dɔktɔ. Dɛn go gi yu di gayd we yu nid. Lɛ wi ɔl wok togɛda fɔ mek yu pikin gɛt di bɛst tin fɔ du.

`Nyuromɔskul Skɔliosis, Bak pen, Skɔliosis, Pikin wɛlbɔdi, Nyurolɔjik sik, Mɔskul skel sik, Spin