a no se i at foh put in wohd wetin yu fil we yu dokta tehl yu se yu geht metastas breast cancer. Dis na waka we nɔ izi fɔ waka. Bɔt nɔto yu wan de pan dis waka. Tide wi de tɔk bɔt wan spɛshal kayn mɛrɛsin we go gi yu ɛn di wan dɛn we yu lɛk pawa. Dɛn kɔl am " palliative care."
Wetin rili na Palliative Care?
Bɔrku pipul dɛn kin tink se palliative care na tin wae dɛn kin jɔs gi wae pɔrsin dɔn day. Bɔt dat na mistek atɔl. Fɔ tɔk am simpul wan, palliative care na spɛshal kayn kia wae de ɛp yu fɔ liv yu layf fayn fayn wan bay wae yu de kɔntrol de pen, diskɔmfɔt, ɛn strɛs wae de kam wit siriɔs sik.
Imajin se yu de du kansa tritmɛnt, i tan lɛk big fɛt. Dis Palliative Care tim na sɔpɔt grup wae kin kam to yu fɔ ɛp yu fɔ bia wit de pen, taya, nɔs, nɔr kin want fɔ it, ɛn strɛs wae yu kin gɛt wae yu de fɛt dis fɛt, ɛn fɔ mek yu kɔntinyu fɔ gɛt strɔng.
Di impɔtant tin na dat yu kin gɛt dis palliative care alongsay yu curative tritmɛnt dɛm. We dɛn tu ya go togɛda, yu go gɛt bɔku trɛnk fɔ fes yu tritmɛnt.
Wetin na di bɛnifit dɛn we pɔsin kin gɛt we i gɛt palliativ kia?
If yu bigin fɔ kia fɔ yu kansa kwik kwik wan, dat kin gɛt bɔku bɛnifit.
- Yu wɛl bɔdi de go ɔp: Dis tim nɔr de pe atɛnshɔn pan yu bɔdi pen nɔmɔ, bɔt dɛn de pe atɛnshɔn bak pan yu filin strɛs, sɔshal tin dɛm, ɛn di tin dɛm we yu nid fɔ gɛt pan Gɔd biznɛs. Dis go ɛp yu fɔ bia wit kansa tritmɛnt fayn fayn wan.
- Stress management: Fɔ fil strɛs, wɔri, ɛn frayd kin kɔmɔn wae yu de liv wit siriɔs sik. Di palliativ kia tim kin kia bak bɔt yu maynd wɛl bɔdi ɛn dɛn kin gi yu di advays ɛn sɔpɔt we yu nid.
- Na big trɛnk fɔ yu famili bak: Insay dis tranga tɛm, yu famili ɛn di wan dɛn we de kia fɔ yu kin gɛt bɔku strɛs. Palliative care de ɛp bak fɔ mek dɛn nɔ gɛt bɔku lod. I de lisin to dɛn prɔblɛm dɛn. We yu famili fil fayn, dat kin mek yusɛf fil fayn, nɔto so?
- Dɛn kin ebul fɔ lɔng tɛm fɔ liv:Wan stɔdi sho se pipul dɛm wae gɛt palliativ kia kin liv lɔng pas di wan dɛm wae gɛt standad kia nɔmɔ. Dis na bikɔs we dɛn kɔntrol di pen ɛn di sayd ɛfɛkt dɛm, di bɔdi kin gɛt mɔ ɛnaji fɔ fɛt di sik. Yu dɔktɔ kin ɛp yu fɔ liv lɔng bay we i de gi yu palliative care wit ɔda tritmɛnt dɛn, lɛk ɔmon tɛrapi, kemotɛrapi, ɛn targeted therapy.
Ɛni kayn kia de fɔ mek pɔsin nɔ fil bad?
Yɛs, tu men we dɛn de fɔ gi dis kia, i go dipen pan wetin yu nid.
| Di we aw dɛn de kia fɔ dɛn | Fɔ tɔk am simpul wan... |
|---|---|
| Di we aw dɛn de du am bay we dɛn de yuz ɔnkɔlɔjis | Yu dɔktɔ we de mɛn yu kansa, we de trit yu kansa, de gi yu bak fɔ kia fɔ yu kansa. Di rileshɔnship bitwin yu ɛn yu dɔktɔ rili strɔng ya. |
| Konkɔrɛnt mɔdel | Yu ɔnkɔlɔjis ɛn palliativ kia spɛshal pɔsin go trit yu lɛk wan tim. Dɛn go wok togɛda fɔ kia fɔ yu di bɛst we. |
Aw dɔktɔ dɛn kin gi dis kia?
Dis nɔto wok we pɔsin kin du, na fɔ wok togɛda . Yu hosting tim kin inklud:
- Wan dɔktɔ we de mɛn kansa
- Spɛshal pɔsin we de kia fɔ di sik we dɛn kɔl Palliative Care
- Yu famili dɔktɔ (Praymari Keya Dɔkta) .
- Nɔs dɛn
- Soshal Wokman dɛn
- Wan bigman pan rilijɔn if yu lɛk.
Bifo dɛn bigin fɔ kia fɔ yu, dis tim go du gud asɛsmɛnt fɔ yu ɛn yu famili.
1. Asɛsmɛnt fɔ di pɔsin we sik
Di tim go tɔk to yu ɛn gɛt yu trɔst. Dɛn go ɔndastand gud gud wan bɔt yu sik, di sayn dɛm, aw yu bɔdi de wok (ebul fɔ waka, tɔk, du woke ɛvride), di tritmɛnt dɛm wae yu de gi yu naw, ɛn di prɔblɛm dɛm wae yu kin gɛt tumara bambay.
2. Famili Asɛsmɛnt
Wi de luk aw yu famili ebul fɔ kia fɔ yu ɛn aw dɛn rɛdi fɔ kia fɔ yu. Wi kin luk bak pan dɛn wɛlbɔdi prɔblɛm ɛn mental wɛlbɔdi prɔblɛm. Bikɔs fɔ mek dɛn go ebul fɔ kia fɔ yu, dɛnsɛf nid fɔ wɛl.
I rili impɔtant fɔ mek yu, yu famili, ɛn di mɛdikal tim kam togɛda ɛn gɛt famili mitin fɔ tɔk bɔt ɔl dis.
I impɔtant fɔ tɔk opin wan wit yu tim ɛn famili bɔt yu gol, wetin yu de fred, ɛn wetin yu nid. Yu kin disayd bak us infɔmeshɔn yu want fɔ tɛl ɔda pipul dɛn ɛn wetin yu want fɔ kip prayvet.
As tɛm de go, as yu sik de chenj, yu plan fɔ kia fɔ yu kin chenj. Fɔs, yu gol kin bi fɔ liv lɔng. Bɔt as yu sik de go bifo, di tin we yu fɔ put fɔs na fɔ mek yu fil fayn ɛn nɔ gɛt pen. Ɛni chenj, di tim go tɔk to yu ɛn mek nyu plan dɛn.
Wetin na di difrɛns bitwin Palliative Care ɛn Hospice Care?
Bɔku pipul dɛn kin kɔnfyus dɛn tu pipul ya. Bɔt klia difrɛns de bitwin dɛn tu. Luk dis tebul.
| Tayp fɔ kia fɔ am | Men difrɛns |
|---|---|
| Palliative Care we dɛn kin gi pɔsin | Tritmɛnt kin bigin ɛni tɛm afta dɛn dɔn no di sik , wit tritmɛnt dɛn we de mɛn am. Di men gol na fɔ kɔntrol di sayn dɛm ɛn fɔ mek yu gɛt bɛtɛ layf. |
| Hospice Keya fɔ di wan dɛn we de wok | Dɛn kin gi am na di ɛnd ɔf layf (e.g. we di chans fɔ liv nɔr rich 6 mɔnt) ɛn we dɛn dɔn stɔp fɔ mɛn di tritmɛnt. Di tin we dɛn de pe atɛnshɔn pan ya na fɔ mek di pɔsin fil fayn ɛn nɔ gɛt pen. |
Usay a kin gɛt palliativ kia savis?
Dɛn savis ya de na sɔm ɔspitul dɛn, klinik dɛn, ɛn prayvet institiushɔn dɛn na Sri Lanka.
Di bɛst tin fɔ du, if yu intres pan dis, na fɔ tɔk to yu ɔnkɔlɔjis ɔ yu famili dɔktɔ fɔs. Dɛn kin rifer yu to di bɛst ples fɔ yu sityueshɔn. Nɔ fred fɔ tɔk opin wan bɔt wetin yu nid to yu dɔktɔ. Na yu rayt.
Mɛsej we dɛn kin kɛr go na os
- Palliative care nɔto jɔs sɔntin we dɛn kin gi we pɔsin dɔn day. Na kia wae dɛn kin gi fɔ mek yu layf fayn ɛn fɔ mek yu layf bɛtɛ we yu de gɛt kansa tritmɛnt.
- Dis kia go briŋ big saykilɔjik rilif nɔr to yu nɔmɔ, bɔt to yu famili wae de kia fɔ yu.
- Dɛn kin gi dis kia nia tritmɛnt fɔ mɛn kansa (lɛk kemotɛrapi).
- Dis na tim kia we dɔktɔ, nɔs, ɛn soshal woka dɛn de gi.
- If yu want fɔ no mɔ bɔt palliativ kia, nɔ fred fɔ aks yu dɔktɔ bɔt am.
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