I tan lɛk se yu pikin de kɔnfyus we yu de tɔk? Lɛ wi tɔk bɔt Ɔditɔri Nyuropati Spɛktrum Disɔda (ANSD)!

Yu smɔl pikin nɔ de lisin fayn we yu de tɔk? Ɔ yu kin fil lɛk se i de kɔnfyus bikɔs ɔf wetin yu de tɔk? Sɔntɛnde, sɔm difrɛns kin de pan di we aw smɔl pikin dɛn kin yɛri sawnd. Insay dɛn kayn tin ya, wan sik we dɛn kɔl Auditory Neuropathy Spectrum Disorder, ɔ (ANSD) fɔ shɔt tɛm, kin bi di kɔz. Nɔ wɔri, lɛ wi tɔk bɔt dis simpul wan.

Wetin na dis (Auditory Nyuropathy Spectrum Disorder - ANSD)?

Fɔ tɔk am simpul wan, na wi yes dɛn de mek wi yɛri di sawnd dɛn we de rawnd wi. Dɔn, dɛn kin chenj dɛn sawnd dɛn de to mɛsej dɛn we di bren kin ɔndastand ɛn sɛn dɛn to di bren. Bɔt sɔmtɛm dɛn mɛsej ya kin miks we dɛn rich na di bren, ɔ dɛn nɔ kin rich de atɔl. Na dat wi kin kɔl Ɔditory Nyuropathy Spectrum Disorder, ɔ (ANSD).

Na sɔm tin dɛm wae kin apun to pikin dɛm wae gɛt dis sik (ANSD):

• I kin at fɔ no difrɛns bitwin wan sawnd frɔm ɔda wan.
• Sɔntɛm yu nɔ go ebul fɔ ɔndastand klia wan wetin pɔsin de tɔk.
• I kin tan lɛk se yu yɛri sawnd ɛn afta dat yu lɔs am wantɛm wantɛm .
• I kin tan lɛk se wetin yu yɛri wan de nɔto wetin yu yɛri di nɛks de, we min se wetin yu yɛri kin chenj .

Bɔt gud nyus de. Ivin pikin dɛm wae gɛt dis sik (ANSD) kin ebul fɔ impɔtant dɛn langwej skil dɛm ɛn tɔk fayn fayn wan wit ɔda pipul dɛm tru di yus ɔf di rayt mɛdikal ikwipmɛnt, tritmɛnt, ɛn vishɔnal kɔmyunikeshɔn tɛknik dɛm (i.e., di we aw dɛn kin tɔk to dɛnsɛf bay we dɛn de yuz di tin dɛm we dɛn kin si).

Wetin mek dis (ANSD) kin apin? Wetin na di tin dɛn we kin mek i apin?

di men tin we de mek dis (ANSD) kכndyushכn na di damej sכmsay na di כditory nerve , di pat pan wi insay yes we dεn kכl di kכklia (we de kכlekt sawnd εn mek mεsej) εn di bren.

Pikin dεm lεk dis kin gεt sכmtεm (ANSD):

• Fɔ pikin dɛn we dɛn bɔn bifo dɛn bɔn (preterm bebies).
• If ɛnibɔdi na di famili dɔn gɛt dis (ANSD) kɔndishɔn bifo.
• If siriɔs janda de kam we dɛn bɔn am.
• if nכ כksijεn nכ de bifo כ afta dεn bכn ((lכw כksijεn)) .
• Sɔm mɛrɛsin dɛn de we kin pwɛl di sɛnsitiv pat dɛn we de insay di yes ɔ di ɔditory nerve. If di pikin dɔn gɛt dɛn kayn mɛrɛsin dɛn de .
• If yu gɛt sɔm kayn jenɛtik kɔndishɔn ɔr nyurolɔjik kɔndishɔn , lɛk Charcot Marie Tooth disease.
• If yu gɛt siriɔs injuri na yu ed .

Aw yu go no if yu gɛt (ANSD)? Wetin na di sayn dɛm we de sho se yu gɛt dis sik?

Dɛn sayn ya kin bigin pan ɛni ej. Bɔt bɔku pikin dɛn kin bɔn wit dis sik (ANSD). Prɔblɛm fɔ yɛriI kin kɔmɔt frɔm we i nɔ at to we i kin rili bad. I sɔprayz fɔ no se sɔm pikin dɛn kin yɛri sawnd dɛn nɔmal wan bɔt i nɔ kin izi fɔ ɔndastand wetin dɛn de tɔk klia wan.

Dɛn pikin ya kin pas di tɛst we dɛn kin du fɔ chɛk fɔ yɛri we dɛn jɔs bɔn, bɔt na as tɛm de go dɛn kin no smɔl smɔl se dɛn gɛt prɔblɛm wit dɛn yɛri.

Tek kia ɔf dɛn tin ya na yu pikin in fɔs ia.

Si if yu pikin de ansa fayn to dɛn maylston ya we i de yɛri insay di fɔs ia na in layf. If nɔto dat, i go fayn fɔ mek yu tɔk to dɔktɔ.

• Nyu bɔn pikin : I kin jomp ɔ "throw up" we i yɛri lawd nɔys wantɛm wantɛm?
• bay lεk 3 mכnt : yu pikin de no in mama כ papa in vכys? Dɛn kin tɔn dɛn ed da say de?
• bay lεk 6 mכnt : Yu pikin de tכn in yay כ ed na da say de we i yεri nyu sawnd? dem de ripit saon lek "uh" en "ah"?
• bay lεk 12 mכnt (wan ia) : Yu pikin de mek sכm sכm sawnd dεm we nכ gεt minin (babbling sounds)? Yu pikin kin ansa we yu se in nem? Yu pikin de tray fɔ falamakata wɔd dɛn? yu pikin de se sכm wכd dεm, lεk "mama" εn "bye-bye"?

We yu pikin dɔn ol smɔl, si if dɛn gɛt ɛni wan pan dɛn sayn ya.

As yu pikin de ol, i kin sho sɔm kayn sik dɛn lɛk dis if i gɛt prɔblɛm wit aw i de yɛri:

• Di tɔk nɔ kin bɔku, i nɔ kin klia, ɔ i nɔ kin tɔk atɔl .
• Yu fil se dɛn nɔ de lisin to yu ɔ yu nɔ de fala di instrɔkshɔn dɛn ?
• Yu nɔ de ansa we dɛn tɔk to yu nɔmal wan, ɔ yu de gi ansa dɛn we nɔ impɔtant ?
• I kin izi fɔ mek yu nɔ pe atɛnshɔn we bɔku nɔys de rawnd yu?
• Yu want fɔ mek di vɔlyum na di TV bɔku ?
• Yu gɛt disabiliti fɔ lan ?

If yu gɛt ɛni dawt bɔt yu pikin bɔt sɔntin lɛk dis, yu fɔ rili tɔk to dɔktɔ. Dat na di bɛst tin fɔ du.

Aw yu go no gud gud wan if yu gɛt (ANSD) stetɔs?

Ɔdiɔlɔjis na di wangren pɔsin we ebul fɔ no di ANSD kɔrɛkt wan. Na in de du spɛshal tɛst ɛn ɛp pipul dɛn we gɛt prɔblɛm wit dɛn yɛri. Bɔku men tɛst dɛn de we kin ɛp fɔ no if yu gɛt ANSD:

Wetin na dɛn tɛst ya?

• Otoacoustic emission (OAE) test : Dis de tεst aw di pat pan di insay yes we dεn kכl di kכklia de wok fayn fayn wan. Dɛn kin du dis we di pikin de slip ɔ sidɔm. Dɛn kin put smɔl iafon dɛn na di yes ɛn wan sawnd we saful lɛk we pɔsin de klik, kin kɔmɔt. afta dat, dεn kin mכsu di rispכns frכm di insay yes wit sכm sכm stika dεm we dεn kכl εlektrod.
• Ɔditɔri bren stem rispɔns (ABR) tɛst: dis de tεst aw di sawnd we de kכmכt insay di yes de travul fayn fayn wan εn klia wan along di כditory nεv to di bren stεm we de na di bכs pat na di bren. If di infɔmeshɔn nɔ de go na di bren klia wan, dis tɛst go sho am. כltu, if di (OAE) tεst nכmal, εn di (ABR) tεst nכ gεt bכku כ nכ rεspכns, den dεn kin tink se hכy chans de fכ (ANSD).
• Midul ia mכsul rεflεks (MEMR) tεst : Sכmכl mכsul de insay wi yes we de tayt כtomatik we wi yεri lawd sawnd. Na dat mek dɛn kɔl am (MEMR). Insay dis tɛst, dɛn kin put wan smɔl rɔba tip insay di yes ɛn sɛn wan lawd sawnd. Dɛn kin yuz mashin fɔ si aw dis mɔsul de ansa di sawnd. Insay di kes fɔ pikin we gɛt (ANSD), dis riakshɔn nɔ kin apin to lawd sawnd, ɔ i kin tek bɔku lawd sawnd pas nɔmal pɔsin fɔ gɛt di riakshɔn.

Nyu bכn pikin dεm we de sho aw dεn de yεri kin yuz simpul fכm dεm fכ dεn (OAE) εn (ABR) tεst dεm. Bɔt fɔ no di sik kɔrɛkt wan (ANSD), dɛn nid fɔ du dɛn tɛst ya ful wan.

Us ɔda tɛst dɛn we dɛn go nid fɔ du?

Afta dɛn dɔn no se di pikin gɛt (ANSD), i kin nid fɔ du sɔm ɔda tɛst dɛn:

• (MRI) test : Fɔ si if ɛni prɔblɛm de insay di yes ɛn if ɔditɔri nɛv dɛn de na di tu yes dɛn.
• Jεnεtik tεst : Fכ si if dis (ANSD) kכndyushכn na pat pan jεnεtik dizכrd.
• Nyurolɔjik tɛst : Chɛk fɔ ɔda nyurolɔjik prɔblɛm dɛn.
• Vision testing : Prɔblɛm fɔ yɛri ɛn prɔblɛm fɔ si kin go togɛda bɔku tɛm. So, i rili impɔtant fɔ go to dɔktɔ we de mɛn yu yay if dɛn no se pikin gɛt ANSD.

Aw dɛn kin trit di sik (ANSD)?

Pikin dɛn we gɛt ANSD na wan tim we gɛt spɛshal pipul dɛn kin trit dɛn . Dis min se wan spɛshal pɔsin we de mɛn pipul dɛn we de yɛri (ɔdiɔlɔjis), wan spɛshal pɔsin we sabi bɔt yes, nos ɛn trot (ENT dɔktɔ), pɔsin we de mɛn pipul dɛn we de tɔk ɛn tɔk (speech-language therapist), ɛn wan spɛshal pɔsin we sabi bɔt ɛdyukeshɔn kin wok togɛda fɔ mek di bɛst tritmɛnt plan.

Di tritmɛnt kin dipen pan bɔku tin, lɛk di pikin in ej, us pat pan di ɔditory nerve nɔ de wok fayn, ɛn aw di prɔblɛm fɔ yɛri bad bad wan.

Bɔku tɛm, dɛn pikin ya kin bɛnifit bɔku we dɛn de yuz tin dɛn we go ɛp dɛn fɔ lisin. Apat frɔm dɛn tin ya, fɔ kɔntinyu fɔ yuz di tritmɛnt we dɛn de yuz fɔ tɔk ɛn tɔk fɔ mek di pikin ebul fɔ tɔk ɛn lisin fayn fayn wan na di bɛst we fɔ mek i gɛt rizɔlt .

Wetin na dɛn tin ya we go ɛp wi?

• Frikyuɛnsi mɔdyuleshɔn (FM) sistem dɛn: Dis (FM) sistem de ridyus di nɔys we yu nɔ want rawnd yu ɛn mek di spika in vɔys (fɔ ɛgzampul, ticha in vɔys) yɛri klia wan ɛn lawd wan. Di spika wɛr smɔl maykrofon ɛn (transmita). dis (transmita) de sεnd ilektronik signal to wan (risiva) we di pikin de wɛr na in yes כ we dεn tay am dairekt to wan (hearing aid). Dis kin rili yusful na klasrum ɛn ɔda say dɛn we nɔys bikɔs dɛn kin kɛr am go rawnd.
• Ɛp fɔ yɛri : Dɛn kin yuz dis fɔ mek di sawnd we de rich na di yes big. Sɔm pikin dɛn we gɛt ANSD kin bɛnifit frɔm di tin dɛn we dɛn kin yuz fɔ yɛri, mɔ we dɛn yuz dɛn togɛda wit di FM sistɛm we wi bin dɔn tɔk bɔt. Bɔt di tin dɛn we dɛn kin yuz fɔ yɛri nɔmɔ nɔ kin rili ɛp pikin dɛn we gɛt ANSD , bikɔs dɛn kin jɔs mek di sawnd we dɛn dɔn ɔlrɛdi muf, big.
• Kɔklia implant : Fɔ sɔm pikin dɛn we gɛt ANSD, mɔ di wan dɛn we nɔ de gɛt inɔf ɛp frɔm ɛp fɔ yɛri, kɔklia implant na fayn opshɔn. Dis na tin we dɛn kin du ɔpreshɔn fɔ put insay di yes . i de baypas di pat dεm na di yes we nכ de wok fayn εn i de mek di כditory nerve wok dεm dεn wan dεm. If dɛn tren dɛn gud gud wan ɛn dɛn de kɔntinyu fɔ trit pikin dɛn we gɛt kɔklia implant, dɛn kin lan fɔ yɛri fayn ɛn tɔk klia wan.

Wetin bak yu want fɔ no?

Apat frɔm we dɛn de yuz ɛp fɔ yɛri, pikin dɛn we gɛt ANSD kin lan bak di we aw dɛn de tɔk to dɛnsɛf we dɛn de si, we na we fɔ tɔk to dɛnsɛf bay we dɛn de yuz wetin dɛn de si wit dɛn yay.

Wetin na dɛn we ya we pɔsin kin si fɔ tɔk to pipul dɛn?

• Sayn Langwej : Dis na difrɛn langwej. I gɛt in yon grama, wɔd dɛn, ɛn sɛntɛns patɛn. Dɛn mek am fɔ mek dɛn yuz am instead fɔ yuz di langwej we dɛn de tɔk.
• Cued Speech : Dis kin min se di pɔsin we de tɔk de mek in an rawnd in mɔt. Dɛn an we ya de ɛp di pɔsin we de lisin fɔ no difrɛns bitwin lɛta dɛn we fiba (fɔ ɛgzampul, ‘ব’ ɛn ‘প’, ɔ ‘ম’ ɛn ‘ব’). Yu kin yuz Cued Speech insay ɛni langwej, ɛn i rili yusful fɔ famili dɛn we de tɔk tu langwej.
• Sayn Ɛksaktɔ Inglish (SEE) : Dis na sayn langwej sistɛm we de yuz di ɛksaktɔl sem Inglish we dɛn de tɔk di sem we, wɔd fɔ wɔd. I gɛt tin dɛn bak fɔ sayn langwej, bɔt dɛn tek di sɛntɛns strɔkchɔ ɛn grama frɔm Inglish.

Cued Speech ɛn SEE ɔl tu de translet wetin dɛn tɔk dairekt wan. Dɛn mek dɛn ɔl tu fɔ yuz dɛn togɛda wit langwej we dɛn de tɔk fɔ ɛp yu fɔ ɔndastand klia wan tin dɛn we lip ridin nɔmɔ nɔ go ebul fɔ ɔndastand.

Mama ɛn papa dɛn gɛt rili impɔtant wok fɔ tich dɛn pikin dɛn we gɛt ANSD fɔ tɔk ɛn tɔk to ɔda pipul dɛn. Di bɛst tin kin apin if yu wok togɛda wit di mɛdikal tim.

Yu kin fɛn mɔ infɔmeshɔn ɛn sɔpɔt na wɛbsayt dɛn lɛk dɛn wan ya:

• CDC: Yu Pikin we Nɔ De Yɛri ɛn Yu Pikin (US Centers for Disease Control website)
• Han ɛn Voys (na nɛtwɔk fɔ mama ɛn papa ɛn pipul dɛn we sabi du dɛn wok) .

Di impɔtant tin dɛn we yu nid fɔ mɛmba (Take-Home Message) .

Okay, so lɛ wi mɛmba yu bɔt sɔm pan di tin dɛn we wi dɔn tɔk bɔt we yu nid fɔ mɛmba.

• Auditory Neuropathy Spectrum Disorder (ANSD) na wan sik wae de mek di sawnd mɛsej frɔm di yes to di bren de ambɔg ɔr nɔr de travul fayn fayn wan.
• I impɔtant fɔ no dis kwik kwik wan . If yu tink se yu pikin gɛt ɛni chenj ɔ delay fɔ yɛri, go to dɔktɔ wantɛm wantɛm.
• Dis kכndyushכn kin כnli kכrekt wan tru spεshal tεst lεk (OAE) εn (ABR).
• Nɔ wɔri, divays dɛn lɛk (FM) sistem, (ɛp fɔ yɛri), (kɔklia implant), tɔk tɛrapi, ɛn we fɔ tɔk to pipul dɛn wit yay kin mek yu pikin ebul fɔ tɔk fayn .
• As mama ɛn papa, yu intres, dedikeshɔn, ɛn wok togɛda wit di mɛdikal tim na di big trɛnk fɔ yu pikin .

Mɛmba se ɔl pikin difrɛn, so i impɔtant fɔ fɛn di tritmɛnt ɛn sɔpɔt we go fayn fɔ yu pikin.

Ɔditɔri Nyurolɔjik Dizayd, ANSD, Prɔblɛm fɔ yɛri, Pikin in wɛlbɔdi, Tɛst fɔ yɛri, Kɔklia Implant, Spich Tɛrapi