Yu pikin kin tɛl yu wantɛm wantɛm bɔt aw i nɔ de si fayn, we i nɔ de balans we i de waka, ɔ we in an ɛn fut dɛn de swɛt? Sɔntɛnde wi kin tink se dɛn tin ya na nɔmal tin, bɔt dɛn tin ya kin bi sayn bak fɔ wan sik we dɛn kɔl MS , ɔ Multiple Sclerosis . Nɔ fred we yu yɛri dis nem. Di tin we impɔtant pas ɔl na fɔ no ɔltin bɔt am. Tide, wi go tɔk bɔt MS na pikin dɛn insay wan simpul we, insay wan we we yu go ɔndastand.
Wetin na MS simpul wan?
Fɔ tɔk am simpul wan, MS pan pikin dɛn na wan sik we dɛn kin gɛt we dɛn yon imyun sistɛm kin atak dɛn yon bɔdi . i kin mεntal afekt di pikin in sεntri nεv sεstem we na di bren εn spεnal kכd.
Tink bɔt wi bɔdi in imyun sistɛm lɛk ami we de fɛt fɔ wan kɔntri. Di wok we dis ami de du na fɔ protɛkt wi bay we dɛn de fɛt ɛnimi dɛn lɛk jem ɛn vayrɔs dɛn we de kam insay di bɔdi. Bɔt na pikin we gɛt MS in bɔdi, dis ami kin mek smɔl mistek. Dɛn kin tink se pat pan di bɔdi sɛf, we na di tin we de protɛkt di bɔdi we de rawnd di nerv dɛn, na ɛnimi ɛn dɛn kin bigin fɔ atak am.
Dɛn kɔl dis kɔva we de protɛkt am maylin . Lɛk di plastic swɛt we de rawnd ilɛktrik waya, dis maylin swɛt de ɛp mɛsej dɛn fɔ travul tru di nɛv dɛn kwik ɛn fayn fayn wan. So, we di imyun sistεm de damej dis maylin sεt, di mεsej dεm frכm di bren to di rεst כf di bכdi nכ de pas fayn fayn wan. I tan lɛk shɔt sɔrkwit we dɛn pul di plastic sheath pan waya. Dis na de tin wae kin mek yu gɛt sayn dɛm lɛk wae yu mɔsul dɛn wik , yu taya, yu nɔr de mɛmba fayn fayn wan, yu nɔr kin ebul fɔ waka, ɛn yu nɔr kin si fayn.
Di impɔtant tin na dat, pan ɔl we naw nɔ gɛt kɔmplit mɛrɛsin fɔ MS, tritmɛnt dɛn de we rili ebul fɔ kɔntrol di sik dɛn ɛn ɛp di pikin fɔ liv fayn.
Men kayn MS de pan pikin dɛm?
Yɛs, wan men kayn de we dɛn kin si pan pikin dɛn.
Na lɛk 98% pan di pikin dɛn gɛt wan kayn we we dɛn kɔl relapsing-remitting MS . Dis kin bi bay di tεm dεm we di sayn dεm kin flay, dεn kin fala di tεm dεm we dεn kin rεmishכn.
Tink bɔt am dis we. Sɔm wik, di pikin kin gɛt prɔblɛm fɔ waka ɛn i kin taya. Bɔt wit tritmɛnt, di sik go bɛtɛ smɔl. Insay sɔm mɔnt, prɔblɛm kin kam bak wit di we aw pɔsin de si tin. Dis na aw de sik kin go bifo, wit de sayn dɛm wae de sho ɛn nɔr de igen.
Praymari prɔgrɛsiv MS na wan kayn MS we nɔ kin bɔku pan pikin dɛn. E kin bi wae de sik kin go smɔl smɔl as tɛm de go.
Wetin na di fɔs sayn dɛm wae yu fɔ no?
We dɔktɔ tink se i gɛt MS, sɔm tin dɛn de we kin apin kwik kwik wan we dɛn kin pe atɛnshɔn mɔ to. I impɔtant bak fɔ mek yu, as mama ɔ papa, no bɔt dɛn tin ya.
| Di simptom we kin apin kwik kwik wan | Fɔ ɛksplen am simpul wan |
|---|---|
| Optik nyuraytis | Yu nɔ kin si fayn, sɔntɛnde yu kin lɔs, wit pen na wan ɔ ɔl tu yay. I kin bi bak se di pikin nɔ kin si di kɔlɔ dɛn klia wan. |
| Transvas maylaytis we gɛt di sik | Infεkshכn na di spεnal kכd (di nεv trכnk we de insay di spayna) kin mek di limb dεm wik, sכmtεm sכmtεm, כ i kin mek di limb dεm nכ de fil fayn. |
Ɔda sayn dɛn we kin apin
Apat frɔm dɛn fɔs sayn ya, yu kin si bɔku ɔda sayn dɛm.
- yu de fil sכmtεm כ yu de fil sכmtεm na di limb dεm כ di bכdi (Paresthesia) .
- Diziz we pɔsin kin gɛt
- Fɔ lɔs balans we yu de waka ɛn fɔdɔm.
- Taya
- Di mɔsul dɛn we wik
- Di we aw pɔsin kin shek shek
- I nɔ kin izi fɔ pe atɛnshɔn ɛn mɛmba tin dɛn
- Dabl vishɔn ɔ blurred vishɔn
Mɛmba se nɔto ɔl dɛn sayn ya go de pan ɔl pikin. Dɛn sayn ya kin difrɛn frɔm wan pikin to ɔda pikin. Sɔmtɛm, wan sayn wae de de wan de kin nɔr de di nɛks de.
Wetin mek pikin dɛn kin gɛt MS? Wetin na di kɔz?
As wi bin dɔn tɔk, di men tin we kin mek dis apin na di demyelination . dis na we di imyun sistεm mistek fכ damej di protεktiv maylin sεt we de rawnd di nεv dεm. dis damej de mek sכm sכm ‘ska’ dεm de fכm pan di nεv dεm. Dɔktɔ dɛn kin kɔl dɛn lɛsin ya ɔ plek . Yu kin si dɛn tin ya pan MRI skan.
Risach pipul dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin mek di imyun sistɛm de mek dis mistek, bɔt dɛn dɔn no bɔku tin dɛn we kin mek dis mistek apin.
- Vitamin D we nɔ de: di vaytamɛn D we de na di mama in bɔdi de go dɔŋ we i gɛt bɛlɛ.
- Vayral infεkshכn: εspεshali infεkshכn wit di Epstein-Barr vayrus .
- Fɔ smok: We di mama de smok we i gɛt bɛlɛ.
- Fat
Dis na jɔs tin dɛn we kin mek pɔsin gɛt prɔblɛm. Nɔto ɔlman we gɛt dɛn go gɛt MS.
Aw dɔktɔ dɛn kin no dis sik kɔrɛkt wan?
Fɔ no MS kin bi kɔmplikɛt prɔses bikɔs di sayn dɛm kin tan lɛk bɔrku ɔda sik dɛm. So, dɔktɔ go fala sɔm tin dɛn fɔ no if i gɛt di sik.
Fɔs, dɛn go chɛk di pikin gud gud wan, ɛn dɛn go aks yu ɛn yu pikin bɔt di sik dɛn we dɛn gɛt. Dɔn, dɛn go du bɔku tɛst dɛn fɔ no ɔda sik dɛn ɛn fɔ no if pɔsin gɛt MS.
| Tɛst | Fɔ ɛksplen am simpul wan |
|---|---|
| Blɔd ɛn urine tɛst | Chek fɔ ɔda infɛkshɔn ɔ kɔndishɔn dɛn we de mek yu gɛt sayn dɛn we fiba MS. |
| MRI skan we dɛn kin du | Dis na di tɛst we impɔtant pas ɔl. i kin si klia wan if eni ‘lεsin’ de כ damej pan di maylin na di bren εn spεnal kכd. |
| Lumbar pankshכn | insay dis, di spεnal εria de nכm εn dεn de tek sכm sכm sכm sεribrospεnal fכluid wit wan rili fayn nidul εn egzamin am. insay MS, yu kin si spεshal protin dεm na dis fכluid. |
| Evoked pɔtɛnɛshɔn (EP) tɛst dɛn | Test we de sho di spid we ilɛktrik mɛsej dɛn de travul tru di nɛv dɛn. dis spid de rεdכks if di maylin dεn dכn pwεl. |
Dis prɔses kin tek sɔm tɛm. I kin mek yu strɛs smɔl na yu maynd. Bɔt i impɔtant fɔ mek yu no di rayt we fɔ no if yu pikin gɛt di sik ɛn bigin di tritmɛnt we fit yu pikin.
Wetin na di tritmɛnt dɛm fɔ MS?
No mɛrɛsin nɔ de fɔ MS yet. Bɔt bɔku fayn tritmɛnt dɛn de we go ɛp fɔ kɔntrol di sik, fɔ mek di pikin nɔ gɛt di sik, ɛn ɛp di pikin fɔ liv in layf we nɔmal.
- Disease-Modifying Therapy (DMT): Dɛn mɛrɛsin ya de wok bay we dɛn de ridyus di imyun sistɛm we de pwɛl di maylin ɛn kɔntrol aw di sik de go bifo. Fingolimod , we na wan pil we di FDA dɔn gri fɔ fɔ pikin dɛn we dɔn pas 10 ia, na in dɛn kin yuz fɔ dis.
- Ɔda tritmɛnt dɛm fɔ mɛn pipul dɛm: Dɛn tritmɛnt ya kin rili ɛp fɔ mɛn di sik dɛm.
- Occupational therapy: I de ɛp yu fɔ du di wok dɛn we yu de du ɛvride izi wan.
- Fizik tritmɛnt: I de ɛp fɔ mek di mɔsul dɛn strɔng ɛn fɔ mek i nɔ izi fɔ waka.
- Spich therapy: If prɔblɛm de fɔ tɔk ɔr swɛla, dɛn kin trit dɛn.
- Nyurosaykɔlɔji tɛst ɛn tritmɛnt: I kin ɛp wit prɔblɛm dɛn lɛk mɛmori ɛn atɛnshɔn.
Yu tink se MS go afɛkt mi pikin in skul wok?
Sɔm pikin dɛm wae gɛt MS kin gɛt prɔblɛm wit mɛmori, lan, ɛn atɛnshɔn. So, i impɔtant fɔ tɔk to yu pikin in ticha dɛn bɔt dis ɔltɛm. Nyurosaykolojik tɛst fɔ no wetin yu pikin ebul fɔ du ɛn wetin i nɔ ebul fɔ duI rili fayn bak fɔ du dat. Tru dis, yu kin gi di pikin di spɛshal sɔpɔt we i nid na skul.
Bɔt di tin we impɔtant pas ɔl na fɔ mek bɔku pikin dɛn we gɛt MS kin ple wit dɛn padi dɛn, lan, ɛn biev nɔmal wan. Dɛn kin du ɔl di tin dɛn we ɔda pikin dɛn kin du. So nid nɔ de fɔ fred tumɔs.
Ustɛm a fɔ go to dɔktɔ?
If yu pikin de gɛt ɛni sayn we kin gɛt fɔ du wit MS, lɛk fɔ mek in an ɛn fut nɔ de fil fayn ɔ fɔ chenj in yay, nɔ tek am as smɔl tin. I rili impɔtant fɔ go to yu pikin in dɔktɔ kwik kwik wan ɛn tɔk bɔt dis wit dɛn.
Di kwik we dɛn no di sik, na di kwik tritmɛnt kin bigin ɛn di chans fɔ mek dɛn nɔ gɛt prɔblɛm dɛn we go de fɔ lɔng tɛm.
Ivin afta dɛn dɔn no se i gɛt di sik, if yu pikin gɛt nyu sik dɛn ɔ dɛn sik dɛn de wɔs, yu fɔ tɛl yu dɔktɔ wantɛm wantɛm.
Mɛsej we dɛn kin kɛr go na os
- MS na prɔblɛm wit di imyun sistɛm, nɔto sik we pɔsin kin gɛt. So, i nɔ go ebul fɔ pas frɔm wan pikin to ɔda pikin.
- Di kayn MS we kin bɔku pan pikin dɛn na MS we kin kam bak ɛn we kin kam bak, we di sayn dɛn kin kam ɛn go.
- If yu pikin ripɔt sɔm sayn dɛm lɛk we i de si chenj, i nɔ izi fɔ waka, ɔ i nɔ de fil fayn, nɔ ignore am ɛn go to dɔktɔ wantɛm wantɛm.
- Pan ɔl we dɛn nɔ go ebul fɔ mɛn MS ɔltogɛda, di tritmɛnt dɛn we rili fayn kin kɔntrol di sik ɛn ɛp di pikin fɔ liv aktif, gladi layf lɛk ɔda pikin dɛn.
- Di rayt sɔpɔt ɛn ɔndastandin frɔm di mama ɛn papa, ticha, ɛn dɔktɔ dɛn go rili mek di pikin ebul fɔ waka na dis waka.
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