Yu dɔn yɛri bɔt kansa we de na wan smɔl gland na yu bren? (Pineoblastoma) Lɛ wi tɔk bɔt dis!

Yu dɔn ɛva gɛt ed we de at, i nɔ kin izi fɔ yu fɔ muv yu yay, ɔ yu nɔ kin fil fayn we yu de waka? Sɔntɛm yu dɔn si yu pikin gɛt dɛn sik ya. Pan ɔl we sɔntɛnde wi nɔ kin pe atɛnshɔn to dɛn, i nɔ kin apin so ɔltɛm, dɛn tin ya kin bi sayn fɔ se wi gɛt siriɔs sik. Tide wi go tɔk bɔt wan kayn bren kansa we nɔ kin bɔku ɛn we rili impɔtant fɔ no bɔt. Dɛn kɔl dis `(Pineoblastoma)`.

Wetin na dis `(Pineoblastoma)`? Fɔ tɔk am simpul wan...

fכ simpul wan, `(Pineoblastoma)` na kεnsar (wi kכl am `(malignant)`) tכmכro we de divεlכp na di `(pineal gland)` na wi bren. Dis kayn kansa kin gro kwik kwik wan ɛn i kin skata to di tisu dɛn we de rawnd am ɛn di wata we de rawnd di bren. Dis na wan sik we rili siriɔs.

Wet wan minit, wetin na dis pineal gland?

Okay, lɛ wi fɔs lan smɔl bɔt dis `(Pineal Gland)`. Dis na wan rili smɔl gland we tan lɛk kɔn, we fiba di shep we kash nat gɛt. I de na di midul pat na wi bren. dis gland de mek wan כmon we dεn kכl `(Melatonin)` . Yu go mɔs dɔn yɛri bɔt `(Melatonin)`. dis na wetin de εp fכ kכntrכl wi bכdi in εvride aktiviti patεn, dat na, `(circadian rhythm)`. Fɔ tɔk am simpul wan, dis tan lɛk di natura klok we wi bɔdi gɛt we de ɛp wi fɔ wek insay de ɛn slip na nɛt.

Us kayn kansa na `(Pineoblastoma)`?

dis `(Pineoblastoma)` na wan tכmכro we de gro fast fast na di bren . dכkta dεn kin kכl am bak `(grεd 4 intrakranial bren tכmכro)`. כlso, dis na `(malignant tumor)`, we min se na kεnsar tכmכro. Dis min se i de ambɔg wi bɔdi ɛn i kin skata.

Aw kɔmɔn dis sik we dɛn kɔl ``Pineoblastoma''?

Pineoblastoma na rili wan sik we nɔ kin apin so ɔltɛm . na Amɛrika, dεn kin no se lεs dan 0.2% pan di bren tכmכro dεm na pineal gland tכmכro. Dis kayn kansa kin de pan yɔŋ pikin dɛm ɔr pipul dɛm wae nɔr rich 20. Bɔt i impɔtant fɔ mɛmba se i kin kam pan ɛnibɔdi we ol ɛni ej.

Wetin na di sayn dɛm fɔ dis sik `(Pineoblastoma)`?

Okay, naw lɛ wi si us kayn simptom wi de si we dis `(Pineoblastoma)` de divɛlɔp.

• Yu kin gɛt bad bad ed pen . Dis nɔto jɔs nɔmal ed pen, bɔt na wan we kin at smɔl.
• Fɔ fil taya ɔltɛm (`( Fatigue )`) . Yu go fil so taya dat yu nɔ go ebul fɔ du natin.
• I nɔ izi fɔ muv yu yay . I kin ivin at fɔ luk wan ples.
• Prɔblɛm dɛn wit balans ɛn kɔdineshɔnI tan lɛk se yu nɔ ebul fɔ balans we yu de waka, ɔ i nɔ izi fɔ ol tin.
• Di chenj dɛn we de apin na di we aw pipul dɛn de biev . Tin dɛn lɛk fɔ vɛks, fɔ vɛks, ɔ fɔ kwayɛt pas aw i bin de bifo.
• Nɔs ɛn vɔmit .

Dɛn simptom ya kin kam pan wan sik we dɛn kɔl `(hydrocephalus)`. dat min se di prεshכn we de insay di `(sεribrospεnal fכluid)` (wi kכl am di sεribrospεnal fכluid) we de rawnd di bren de inkrεs. dis kεnsar kin spre tru di `(sεribrospεnal fכluid)` to כda pat dεm na di bren εn sεntri nεv sεstem (CNS). כltu, `(pineoblastoma)` kεnsar nכ kin sכmtεm pas di `(CNS)`.

Imajin se yu gɛt smɔl pikin we de kɔmplen ɔltɛm se in ed de at, i nɔ de ple lɛk aw i bin de ple, ɛn i tan lɛk se i de vɛks smɔl. Mama ɛn papa dɛn kin tink se dis na nɔmal tin. Bɔt if dɛn sayn ya kɔntinyu, i rili impɔtant fɔ go to dɔktɔ.

Wetin na di tin dɛm wae kin mek dis `(Pineoblastoma)`?

di men rizin fכ dis na dat wan kayn sεl we dεn kכl ``pinealocyte cells'' na di pineal gland na wi bren de gro we wi nכ de kכntro εn i de gro pasmak . risכch sho se dεn sεl dεm ya kin bigin fכ wok abnכmal bikoz fכ chenj na wi jin dεm (``jεnεtik mכtεshכn''). tu tכp dεm de fכ dεn jεnεtik mכtεshכn dεm: 1. dεn wan dεm we dεn gεt frכm di mama εn papa (``jεmlayn mכtεshכn'') : dis kin apin we dεn bכn, dat na we di mama εn papa in sεl dεm de kam togεda. 2. dεn wan dεm we de apin randomly afta dεn bכn (``sporadic mutation'') : insay dis kes, nכ wan pan di famili kin nכ gεt dis jεnεtik mכtεshכn bifo.

Udat de pan ay risk fɔ gɛt `(Pineoblastoma)`?

Sɔm pipul dɛn kin gɛt smɔl smɔl risk fɔ gɛt dis ``Pineoblastoma''.

• If yu gɛt retinoblastoma, we na wan kayn kansa we kin kam na di retina na yu yay, yu kin gɛt mɔ risk fɔ gɛt pineoblastoma.
• כlso, pipul dεm we gεt sכm mכtεshכn dεm na di jin dεm `(RB1)` εn `(DICER1)` kin gεt dis kεnsar bak . As wi bin dɔn tɔk, dis jɛnɛtik mutation kin kɔmɔt frɔm mama ɛn papa, ɔ i kin apin randomly.

If yu de plan fɔ mek yu gɛt famili, i go fayn fɔ mek yu tɔk to dɔktɔ bɔt aw fɔ tɛst yu jɛnɛtiks fɔ no if yu gɛt ɛni wan pan dɛn tin ya we kin mek yu gɛt prɔblɛm.

Aw dɛn kin no se pɔsin gɛt Pineoblastoma?

Dɔktɔ kin no dis sik (Pineoblastoma) bay we i de chɛk yu ɛn du difrɛn tɛst dɛn.

• Fɔ ɛgzamin yu bɔdi : Fɔs, di dɔktɔ go aks yu bɔt yu sik, if ɛnibɔdi na yu famili dɔn gɛt di sem kayn sik, ɛn i go chɛk bak aw yu yay de muv.
• Speshal tɛst dɛn : .
• Wan bren skan (Magnetic Resonance Imaging - MRI ).
• Wan `(Kɔmpyut Tomografi - CT)` skan.
• Sɔntɛm na `(Positron Emission Tomography - PET)` skan.
• Bayɔpsi na we dɛn kin pul wan smɔl pat pan di tisu frɔm di tɔŋ ɛn chɛk am. Dis na wetin de sho if na kansa ɛn us kayn i bi.
• dεn kin du bכdi tεst εn/כ sεribrospεnal fכluid (di wata we de rawnd di bren) fכ luk fכ eni sayn dεm fכ tכmכro.

Yu tink se `(Pineoblastoma)` kin wɛl ɔltogɛda?

Dis na di kwɛstyɔn we bɔku pipul dɛn gɛt. Fɔ tɔk tru, naw no mɛrɛsin nɔ de fɔ `(Pineoblastoma)`. Bɔt, nɔ wɔri, sɔm tritmɛnt opshɔn dɛn de. If di tumbu nɔ skata, dɔktɔ kin pul am wit ɔpreshɔn. Bɔt, `(Pineoblastoma)` na wan kayn kansa we nɔ izi fɔ trit. So, di risk fɔ gɛt kɔmplikeshɔn frɔm dis kansa kin bɔku. Di sik kin wɔs as tɛm de go ɛn di layf we pɔsin kin liv kin shɔt. Dɔn bak, i pɔsibul fɔ mek di kansa kam bak afta dɛn dɔn trit am.

Wetin na di tritmɛnt dɛm fɔ `(Pineoblastoma)`?

Dɛn kin du dɛn tin ya as tritmɛnt fɔ `(Pineoblastoma)`:

• Ɔpreshɔn : Dɛn kin du ɔpreshɔn fɔ pul wan pat ɔ ɔl di tumbu. Yu dɔktɔ go ɛksplen to yu wetin di ɔpreshɔn kin du ɛn di prɔblɛm dɛn we kin apin.
• כpεrayshכn fכ Hydrocephalus : dεn kin put shunt (sכm sכm tכb) fכ ridyus di sεribrospεnal fכluid we de bכku rawnd di bren. Dis kin pul di wata we pasmak ɛn ridyus di prɛshɔn.
• Radiation therapy : Dis na kɔmɔn tritmɛnt afta dɛn dɔn du ɔpreshɔn. Redyushɔn tɛrapi kin mek di tumbu dɛn smɔl ɔ kil di kansa sɛl dɛn.
• Kimotɛrapi : Na tritmɛnt we dɛn kin gi apat frɔm redyushɔn tɛrapi ɛn ɔpreshɔn. Kimotɛrapi kin mek di tumbu smɔl bifo dɛn du di ɔpreshɔn ɛn kil ɛni kansa sɛl we lɛf afta dɛn du di ɔpreshɔn.
• hεy dכz kεmothεrapi εn כtכlכg stεm sεl transplant : Insay dis, dεn kin kכlekt yu כwn stεm sεl dεm bifo hεy dכz kεmothεrapi. Dɔn, afta dɛn dɔn tek di kemotɛrapi, dɛn kin put dɛn stem sɛl dɛn de bak insay yu bɔdi.

As nyu drɔgs ɛn tritmɛnt dɛn de kam, yu kin gɛt di chans bak fɔ tek pat pan ``klinik trial.`` Dis kin inklud fɔ tɛst nyu drɔgs lɛk ``targeted therapy`` ɔ ``immunotherapy.``

Udat dɛn kin gɛt fɔ du wit dɛn tritmɛnt ya?

If yu gɛt pineoblastoma, yu mɛdikal tim kin gɛt:

• Wan dɔktɔ we de mɛn nyurolɔjis (nyurolɔjis) .
• Ɔnkɔlɔjis (spɛshal pɔsin we sabi bɔt kansa) .
• Wan dɔktɔ we de mɛn kansa we gɛt redyushɔn
• Nyurosɔjɔn

Ɛni bad tin de we di tritmɛnt kin du?

Yɛs, sɔm tritmɛnt dɛn, mɔ we dɛn kin yuz redyushɔn, kin mek dɛn gɛt bad bad tin dɛn. Dɛn tin ya kin afɛkt yu ɛndokrin wok. Dis min se:

• Fɔ gro (`(Grɔw)`)
• Enaji lɛvɛl dɛn (`(Enerji lɛvɛl dɛn)`) .
• Fɛtiliti (`(Fɛtiliti)`) .

Bifo yu bigin fɔ trit yu, tɔk to yu dɔktɔ bɔt di bad tin dɛn we kin apin to yu . Dɛn go de wach yu ɔltɛm ɛn trit ɛni sayd ɛfɛkt we go apin.

Yu kin sev `(Pineoblastoma)`?

Yɛs, sɔm pipul dɛn kin sev frɔm Pineoblastoma. di fayv ia rεt fכ Pineoblastoma na 60% to 69.5% . Dis min se bitwin 60% ɛn 70% pan di pipul dɛm wae gɛt dis sik stil de alayv afta fayv ia. Pan ɔl we Pineoblastoma kin mek yu layf shɔt, tritmɛnt dɛn de we kin ɛp yu fɔ gɛt wɛlbɔdi ɛn liv lɔng.

Wetin na di prɔgnosis fɔ `(Pineoblastoma)`?

Afta yu dɔn no se yu gɛt `(Pineoblastoma)`, yu dɔktɔ go tɛl yu bɔt di prɔgnosis. As wi bin dɔn tɔk, no mɛrɛsin nɔ de fɔ `(Pineoblastoma)`, bɔt tritmɛnt dɛn de. Aw pɔrsin kin liv lɔng kin dipen pan bɔrku tin lɛk yu ɔl yu wɛl bɔdi, aw yu kin du tritmɛnt, ɛn aw di tumbu de gro kwik kwik wan . Afta yu dɔn no se yu gɛt `(Pineoblastoma)`, yu go nid fɔ go to dɔktɔ ɔltɛm. Dis na bikɔs dɛn go de wach yu fɔ ɛni sayd ɛfɛkt ɛn du wetin nid fɔ apin.

Yu tink se dɛn kin ebul fɔ mek dɛn nɔ gɛt Pineoblastoma?

Bɔt i sɔri fɔ no se naw, dɛn nɔ no we fɔ mek dɛn nɔ gɛt Pineoblastoma.

Ustɛm a fɔ go to dɔktɔ?

Di sayn dɛm fɔ `(Pineoblastoma)` fɔ yu ɔ yu pikin, we inklud:

• Ed de at
• Di chenj dɛn we de apin na di we aw pɔsin de biev
• I nɔ izi fɔ muv di yay dɛn

If yu gɛt ɛni wan pan dɛn tin ya, go to dɔktɔ wantɛm wantɛm . If dɛn dɔn no se yu gɛt `(Pineoblastoma)` ɛn yu de du tritmɛnt, tɛl yu dɔktɔ if yu gɛt ɛni sayd ɛfɛkt. If yu pikin yɔŋ, di tritmɛnt kin afɛkt in divɛlɔpmɛnt. If yu fil se yu pikin de tek lɔng tɛm fɔ divɛlɔp di rit we fit in ej, tɔk to yu dɔktɔ bɔt dat bak.

Us kwɛstyɔn dɛn a fɔ aks mi dɔktɔ?

We yu go to dɔktɔ, i go fayn fɔ aks kwɛstyɔn dɛn lɛk dɛn wan ya:

• Us kayn tritmɛnt yu kin advays?
• Yu tink se di kansa dɔn skata?
• Yu tink se a nid ɔpreshɔn?
• Wetin na di sayd ɛfɛkt dɛm we di tritmɛnt kin gɛt?
• Wetin na mi layf ɛkspɛkteshɔn ɔ prognosis?

Na nɔmal tin fɔ fil shɔk, sɔri, ɛn fred we yu yɛri di wɔd dɛm "yu gɛt kansa." Wantɛm wantɛm, yu kin gɛt bɔku kwɛstyɔn dɛn bɔt wetin fɔ du nɛks, wetin fɔ ɛkspɛkt, ɛn wetin fɔ ɛkspɛkt. Nɔ wɔri . Yu dɔktɔ ɛn di mɛdikal tim go ɛp yu fɔ dil wit dis diagnosis ɛn pik di tritmɛnt we go fayn fɔ yu. Insay dis tɛm, mek shɔ se yu de rawnd yu fambul ɛn padi dɛn we de sɔpɔt yu. Risach fɔ nyu tritmɛnt fɔ pineoblastoma de kɔntinyu, so kɔntinyu fɔ gɛt op.

Mɛsej we dɛn kin kɛr go na os

• Pineoblastoma na kansa we nɔ kin bɔku bɔt we kin gro fast ɛn we kin kam na di pineal gland na di bren.
• Sɔm kayn sik lɛk ed we de at, yay prɔblɛm, we yu nɔ de balans, ɛn we yu de chenj di we aw yu de biev kin apin. Dɛn tin ya kin bi bikɔs ɔf haydrosɛfalɔs (we wata kin gɛda na di bren) .
• Bɔku tɛm, di tin we kin mek pɔsin gɛt dis sik na bikɔs ɔf in jɛnɛtiks. Pipul dεm we gεt `(Retinoblastoma)` εn dεn wan dεm we gεt `(RB1)` εn `(DICER1)` jin mכtεshכn de pan hכy risk.
• Dɛn kin du tɛst dɛn lɛk MRI, CT skan, ɛn bayɔpsi fɔ no if pɔsin gɛt di sik.
• Pan ɔl we dɛn nɔ ebul fɔ mɛn am ɔl, tritmɛnt dɛn de lɛk ɔpreshɔn, redyushɔn tɛrapi, ɛn kemotɛrapi.
• If yu gɛt sɔm sayn dɛn , go to dɔktɔ wantɛm wantɛm . Nɔ fred fɔ aks kwɛstyɔn.
• Pan ɔl we dis na prɔblɛm, fes tritmɛnt wit op ɛn trɛnk . Nɔto yu wan de.

A op se dis infɔmeshɔn go ɛp yu. If yu de dawt bɔt ɛni sayn, duya go to dɔktɔ.

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