Yu dɔn ɛva gɛt ed we de at ɔltɛm, i nɔ kin izi fɔ yu fɔ muv yu yay, ɔ yu nɔ ebul fɔ balans wantɛm wantɛm we yu de waka? Sɔntɛm yu dɔn notis dɛn sayn ya pan yu pikin. Pan ɔl we bɔku tɛm wi kin fɔgɛt bɔt dɛn kayn tin ya, wan wan tɛm dɛn kin bi sayn fɔ se pɔsin gɛt siriɔs wɛlbɔdi prɔblɛm. Tide, na Nirogi Lanka , wi de tɔk bɔt wan tumbu we nɔ bɔku bɔt we impɔtant fɔ ɔndastand na di bren we dɛn kɔl Pineoblastoma .
Wetin rili na Pineoblastoma? Simply put am...
fכ simpul tεm, Pineoblastoma na wan malignant (kansa) tכmכro we de kכmכt na di pineal gland na yu bren. Dis kayn tכmכro kin rili agresiv ; i de gro kwik kwik wan εn i kin spre to di bren tisu we de rawnd yu εn di wata we de sכkכt rawnd yu bren, we kin mek i bi siriכs mεdikal kכnsεn.
Wait, wetin na di Pineal Gland?
Lɛ wi bigin wit di men tin dɛn. Di pineal gland na wan smɔl ɔgan we tan lɛk kɔn, we di sayz lɛk pain nat, we de dip dip wan na di sɛntrɔm pan yu bren. Dis gland de mek wan ɔmon we dɛn kɔl mɛlatonin . Sɔntɛm yu dɔn yɛri bɔt melatonin—i impɔtant fɔ mek yu ebul fɔ kɔntrol di ritm we yu de yuz fɔ mek yu ritm . Tink bɔt am as yu bɔdi in natura intanɛnt klok we de ɛp yu fɔ de wach de ɛn mek yu slip na nɛt.
Us kayn tumbu na Pineoblastoma?
Pineoblastoma na wan tumbu we de gro fast fast na di bren . Bɔku tɛm di dɔktɔ dɛn kin kɔl am Gret 4 intrakranial bren tumor . Bikɔs na bad bad tumbu , i kin ambɔg di bɔdi ɛn i kin ebul fɔ skata.
Aw kɔmɔn tin na Pineoblastoma?
Pineoblastoma na tin we nɔ kin apin so ɔltɛm . Akɔdin to ripɔt dɛn na Amɛrika, less dan 0.2% pan ɔl di bren tumor dɛn we dɛn kin no se na pineal gland tumor. Pan ɔl we dɛn kin si dis kayn kansa pan yɔŋ pikin dɛn ɔ yɔŋ pipul dɛn we nɔ rich 20 ia yet , i impɔtant fɔ mɛmba se i kin apin ɛni ej.
Wetin na di sayn dɛm fɔ Pineoblastoma?
Lɛ wi luk di sayn dɛm wae kin sho wit dis sik:
- Siriv ed pen : Dis nɔto yu tipik ed pen; bɔku tɛm dɛn kin tranga ɛn dɛn kin kɔntinyu fɔ de.
- Kɔnstant fatigue : Na filin fɔ taya so dip dat di tin dɛn we yu de du ɛvride kin at ( Fatigue ).
- I nɔ kin izi fɔ mek yu yay muv : Yu kin si se i nɔ kin izi fɔ yu yay ɔ luk na sɔm say dɛn.
- Prɔblɛm wit balans ɛn kɔdineshɔn : Fɔ fil se yu nɔ de stedi we yu de waka ɔ yu gɛt prɔblɛm fɔ ol tin.
- Di chenj na di bihayvya : Dɛn kin notis se yu de chenj yu maynd, lɛk fɔ vɛks pasmak, fɔ vɛks, ɔ fɔ lɛf fɔ smok wantɛm wantɛm.
- Nɔs ɛn vɔmit .
Bɔku tɛm, dɛn sik ya kin kam bikɔs ɔf wan sik we dɛn kɔl haydrosɛfalɔs , usay wata we de na di sɛribrospaynal kin gɛda ɛn mek di prɛshɔn we de insay di bren bɔku. pan tap we di tכmכro kin spre tru dis wata to כda pat dεm na di Sεntri Nεv Sistem (CNS), i nכ kin spre ausayd di CNS.
Imajin wan pikin we de kɔmplen se in ed de at ɔltɛm, i nɔ want fɔ ple, ɛn i tan lɛk se i de vɛks pasmak. Mama ɛn papa dɛn kin dismis dis as nɔmal bihayvya. Bɔt if di sayn dɛn stil de, i rili impɔtant fɔ go to dɔktɔ wantɛm wantɛm.
Wetin kin mek pɔsin gɛt Pineoblastoma?
di praymar kכz na di spεshal sεl dεm we de gro kwik kwik wan na di pineal gland we dεn kכl pinealocytes . Risach dɔn sho se di chenj we di jɛnɛtiks kin chenj kin mek dɛn sɛl dɛn ya nɔ de wok fayn ɛn dɛn nɔ kin gro fayn.
Dɛn chenj ya we kin apin na di jɛnɛtiks kin apin tu we dɛn:
1. Inherited (germline mutations) : I de pas dכn frכm di mama εn papa to di pikin di tεm we i bכn.
2. Sporadik mכtεshכn : rεndכm chenj dεm we de apin afta dεn bכn, usay nכ famili histri de bifo fכ di kכndyushכn.
Udat de pan ay risk fɔ gɛt Pineoblastoma?
Sɔm pipul dɛn kin gɛt ay risk fɔ gɛt Pineoblastoma :
- If yu gɛt Retinoblastoma , we na kansa na di yay in retina, yu go gɛt mɔ prɔblɛm.
- di wan dεm we gεt mכtεshכn na di RB1 כ DICER1 jin dεm dεn tu de pan hכy risk fכ gεt dis kεnsar . Dɛn muteshon ya kin bi frɔm inhɛrit ɔ wan wan tɛm.
If yu de plan fɔ gɛt famili ɛn yu de wɔri bɔt dɛn tin ya we kin mek yu gɛt prɔblɛm, i fayn fɔ tɔk to pɔsin we de kia fɔ yu wɛlbɔdi biznɛs bɔt aw fɔ tɛst yu jɛnɛtiks .
Aw dɛn kin no se pɔsin gɛt Pineoblastoma?
Dɔktɔ dɛn kin no if pɔsin gɛt Pineoblastoma tru wan kɔmbayn klinik asɛsmɛnt ɛn tɛst fɔ no if i gɛt sik:
- Fɔ chɛk yu bɔdi : Yu dɔktɔ go chɛk yu sik, yu famili histri, ɛn du nyurolɔjik tɛst, inklud fɔ chɛk yu yay kɔdineshɔn.
- Advans diagnostik dɛn : .
- Bren Magnɛtik Rɛsɔnans Imej ( MRI ) skan .
- Kɔmpyuta Tomografi (CT) skan dɛn.
- Wan wan tɛm, dɛn kin du wan Positron Emission Tomography (PET) skan.
- bayopsi , usay dεn tek wan sכm tisu sεmpl fכ analisis fכ kכnfכm di tכmכro tכp.
- bכdi tεst εn /כ tεst fכ di sεribrospεnal fכluid fכ spεsifi k tכmכro mak dεm.
Yu tink se dɛn kin mɛn Pineoblastoma?
Dis na tin we pipul dɛn kin wɔri bɔt. Fɔ tɔk tru, naw, nɔbɔdi nɔ de fɔ mɛn Pineoblastoma . Bɔt, duya nɔ lɔs op; difrɛn tritmɛnt opshɔn dɛn de. If di tumbu nɔ dɔn skata, bɔku tɛm na di fɔs tin we dɛn kin du fɔ pul di tumbu.
Bikɔs Pineoblastoma na wan kayn kansa we kin agresiv, i nɔ kin izi fɔ trit am. Kɔmplikɛshɔn kin apin, ɛn di prɔgnosis we kin apin fɔ lɔng tɛm kin afɛkt. Dɔn bak, i kin izi ɔltɛm fɔ mek di kansa kam bak afta dɛn dɔn trit am.
Wetin na di tritmɛnt dɛm fɔ Pineoblastoma?
Di tritmɛnt fɔ Pineoblastoma kin inklud dɛn tin ya:
- Ɔpreshɔn : Bɔku tɛm dɛn kin du ɔpreshɔn fɔ pul wan pat ɔ ɔl di tumbu. Yu dɔktɔ go ɛksplen di we aw dɛn fɔ du am ɛn di bad tin dɛn we kin apin to yu.
- Ɔpreshɔn fɔ Haydrosɛfalɔs : Fɔ mek di wata we de bɔku (cerebrospinal fluid) nɔ bɔku rawnd di bren, dɛn kin put shunt—smɔl tiub—fɔ pul di wata we pasmak ɛn mek di prɛshɔn nɔ bɔku.
- Radiation Therapy : Dis na kɔmɔn fɔl-ɔp tritmɛnt afta dɛn dɔn ɔpreshɔn. Radieshɔn tɛrapi kin ɛp fɔ mek di tɔŋ tisu we lɛf ɔ fɔ pwɛl di kansa sɛl dɛn.
- Kimotɛrapi : Dɛn kin yuz am nia ɔpreshɔn ɛn redyushɔn, kemotɛrapi kin ɛp fɔ mek di tumbu smɔl bifo dɛn du di ɔpreshɔn ɔ fɔ pul di kansa sɛl dɛn we lɛf afta di ɔpreshɔn.
- High-Dose Chemotherapy and Autologous Stem Cell Transplant : Insay dis prosidur, dɛn kin gɛda yu yon stem sɛl dɛn bifo yu gɛt ay doz kemotɛrapi. Dɔn dɛn kin put dɛn sɛl ya bak insay yu bɔdi fɔ ɛp yu sistɛm fɔ wɛl afta di tritmɛnt.
As di mɛdikal risach de go bifo, yu kin gɛt di chans fɔ tek pat pan klinik trial dɛm. Dɛn tin ya kin gɛt fɔ du wit fɔ tɛst nyu tritmɛnt dɛn we dɛn dɔn tɔk bɔt ɔ di imyunotɛrapi dɛn.
Udat de na di tim we de kia fɔ yu?
If dɛn no se yu gɛt Pineoblastoma, di tim we de kia fɔ yu na Nirogi Lanka kin gɛt:
- Wan Nyurolɔjis
- Wan dɔktɔ we de mɛn pipul dɛn we gɛt kansa
- Wan dɔktɔ we de mɛn pipul dɛn we gɛt Rɛdieshɔn ɔnkɔlɔji
- Wan Nyurosɔjɔn
Yu tink se bad tin dɛn de we kin apin to dɛn tritmɛnt ya?
Yɛs, sɔm tritmɛnt dɛn, mɔ di raytin, kin mek pɔsin gɛt bad bad tin dɛn. Dɛn tin ya kin ambɔg yu ɛndokrin wok, lɛk:
- Gro
- Di lɛvɛl dɛn we dɛn kin gɛt ɛnaji
- Fɔ bɔn pikin
Bifo yu bigin fɔ trit yu, tɔk to yu dɔktɔ bɔt di bad tin dɛn we kin apin to yu . Dɛn go de wach yu ɔltɛm ɛn tek di step dɛn we nid fɔ manej ɛni prɔblɛm we go kam.
Yu kin sev frɔm Pineoblastoma?
Yɛs, bɔku pasɛnt dɛn kin sev frɔm Pineoblastoma. di fayv ia sכvayv rεt fכ Pineoblastoma de frכm 60% to 69.5% . Pan ɔl we dis sik kin chenj yu layf, fayn tritmɛnt dɛn de we dɛn mek fɔ ɛp yu fɔ liv fayn ɛn fɔ mek yu liv lɔng.
Wetin na di prɔgnosis fɔ Pineoblastoma?
Fɔ fala yu diagnosis, yu dɔktɔ go tɔk bɔt yu prognosis. Wae no wan "cure" nɔr de, bɔrku tritmɛnt opshɔn de. Di tin dɛn lɛk aw yu bɔdi de wɛl, aw yu bɔdi de du tritmɛnt, ɛn aw di tumbu de gro .
Afta dɛn dɔn no se yu gɛt di sik, yu go gɛt fɔl-ap apɔntinmɛnt ɔltɛm so dat yu mɛdikal tim go ebul fɔ wach fɔ di sayd ɛfɛkt dɛn ɛn gi di sɔpɔt we yu nid.
Yu tink se dɛn kin ebul fɔ mek dɛn nɔ gɛt Pineoblastoma?
Bɔt i sɔri fɔ no se naw, dɛn nɔ no we fɔ mek dɛn nɔ gɛt Pineoblastoma .
Ustɛm yu fɔ go to dɔktɔ?
If yu ɔ yu pikin gɛt sɔm sayn dɛn fɔ Pineoblastoma, lɛk:
- Ed we de at we nɔ de chenj
- Di we aw pipul dɛn de biev kin chenj
- I nɔ izi fɔ mek yu yay muv
Duya, go to dɔktɔ wantɛm wantɛm.
If yu de du tritmɛnt naw ɛn yu gɛt nyu sayd ɛfɛkt, tɛl yu kia tim. If yu de wɔri bɔt aw yu pikin de gro ɔ aw i de gro we dɛn de trit yu, tɔk bɔt dɛn tin ya we yu dɔn si wit yu dɔktɔ we de mɛn pikin dɛn ɔ dɔktɔ we de mɛn kansa.
Us kwɛstyɔn dɛn a fɔ aks mi dɔktɔ?
We yu mit wit yu dɔktɔ, i go fayn fɔ aks:
- Us tritmɛnt yu kin advays?
- Yu tink se di kansa dɔn skata?
- Yu tink se a nid ɔpreshɔn?
- Wetin na di sayd ɛfɛkt dɛm we dis tritmɛnt kin gɛt?
- Wetin na mi prɔgnosis?
We yu yɛri di wɔd "kansa" kin mek yu fil bad ɛn yu kin mek yu fred. Na nɔmal tin fɔ lɛ yu fil shɔk ɔ wɔri bɔt tumara bambay. Nɔ fil se na yu wangren de. Yu mɛdikal tim na Nirogi Lanka de ya fɔ ɛp yu fɔ no bɔt dis sik ɛn pik di tritmɛnt plan we go fayn fɔ yu. Le pan yu padi ɛn fambul dɛn fɔ sɔpɔt yu. Risach we de go bifo pan nyu tritmɛnt fɔ Pineoblastoma de kɔntinyu fɔ gi op.
Mɛsej we dɛn kin kɛr go na os
- Pineoblastoma na wan tכmכro we nכ kin gro fast fast we de divεlכp na di pineal gland na di bren.
- Simptom dεm lεk ed we de at, we yu de si fayn, we yu de lכs bεlε, εn di chenj dεm we i de biev kin apin, bכku tεm na di haydrosefalus (fכlכd we de bכku na di bren).
- Bɔku tɛm, di tin we kin mek pɔsin gɛt dis sik na bikɔs ɔf in jɛnɛtiks; di wan dεm we gεt Retinoblastoma כ RB1/DICER1 jin mכtεshכn de pan hכy risk.
- Fɔ no if pɔsin gɛt di sik, dɛn kin tek MRI, CT skan, ɛn bayɔpsi.
- Pan ɔl we i nɔ izi, dɛn gɛt fayn tritmɛnt dɛn lɛk ɔpreshɔn, raytin, ɛn kemotɛrapi.
- If yu notis sɔm sayn dɛn, go to dɔktɔ wantɛm wantɛm . Nɔ shem fɔ aks kwɛstyɔn.
- Stay wit op ɛn strɔng; nɔto yu wan de pan dis waka.
Wi op se dis infɔmeshɔn go ɛp wi. If yu gɛt ɛnitin fɔ wɔri bɔt yu wɛlbɔdi biznɛs, duya mek tɛm fɔ go to pɔsin we sabi bɔt wɛlbɔdi biznɛs.
