Imajin se sɔntin dɔn blok wata paip na yu os. Dɔn di wata nɔ de flɔ fayn ɛn i kin stɔp na wan ples, ɛn dis kin mek big prɔblɛm. na dat de apin insay wi bכdi dεm we "Sickle Cell Crisis" de. Dis na tin we kin rili mek a fil pen. So lɛ wi tɔk bɔt dis klia wan tide.
Wetin na dis siklɛt sik ( SCD ) ɛn di ‘kraysis’?
Fɔ tɔk am simpul wan, wi blɔd gɛt wan kayn sɛl we dɛn kɔl
rɛd blɔd sɛl . Insay pɔsin we gɛt wɛlbɔdi, dɛn sɛl ya kin rawnd ɛn dɛn kin ebul fɔ chenj. Dɛn tan lɛk smɔl bɔl dɛn. Dis kin mek dɛn ebul fɔ muv tru di smɔl smɔl blɔd vesel dɛn na di bɔdi we nɔ gɛt ɛnitin fɔ ambɔg dɛn ɛn kɛr ɔksijɛn go ɔl di pat dɛn na di bɔdi. Bɔt pan pɔsin we gɛt
Siklɔs Sɛl Disease (SCD) , sɔm pan di rɛd blɔd sɛl dɛn kin shep difrɛn we. Dɛn nɔ kin rawnd, bɔt dɛn kin
kɔba fɔ mek dɛn tan lɛk C . Dɔn bak, dɛn sɛl dɛn ya kin rili stif ɛn dɛn kin stika. So, we dɛn sɛl dɛn ya we tan lɛk sikl de muf tru dɛn smɔl smɔl blɔd vesel dɛn de, i kin izi fɔ mek dɛn stɔp na wan ples.
Jɔs lɛk aw di wata we de na di paip we wi bin dɔn tɔk bɔt kin stɔp, na so dɛn sɛl ya kin jɔyn togɛda ɛn stɔp di blɔd we de pas na di blɔd vesel dɛn kpatakpata.
We di blɔd flɔ stɔp dis we, di pat dɛn na di bɔdi we da chanɛl de gi it nɔ kin gɛt di ɔksijɛn we dɛn nid. Dɛn kɔl dis
(Hypoxia) insay mɛdikal sayɛns. Dis ɔksijɛn we nɔ de kin mek pɔsin fil pen we pɔsin nɔ ebul fɔ bia, ɛn i kin rili fil pen. Na dat wi kin kɔl
"Sickle Cell Crisis" . Dis pen kin te fɔ sɔm awa to sɔm wiks. Ɛspɛshali bikɔs di smɔl smɔl blɔd vesel dɛn na di chɛst kin blok, wan siriɔs tin we dɛn kɔl
(Acute Chest Syndrome) kin apin. dis kin afekt mכr dan 50% pan di sik pipul dεm we de sik na sik.
Wetin na di sayn dɛm fɔ ‘sikl sɛl kraysis’?
Insay dis kayn tin, ɛnibɔdi kin sho difrɛn sayn dɛm. Bɔt sɔm tin dɛn de we kin apin we pipul dɛn kin gɛt dis sik. Lɛ wi luk dɛn na wan tebul.
| Di sayn we de sho se di sik de | Wan diskripshɔn bɔt am |
|---|
| Pen we pɔsin nɔ go ebul fɔ bia | Dis na di men ɛn kɔmɔn sayn. Di pen kin kam wantɛm wantɛm ɛn i kin bi dɔl, chuk, swɛt, ɔ shap. Dɛn kin fil am mɔ na di an ɛn leg, bɛlɛ, chɛst, ɛn dɔŋ bak. pan yכŋ pikin dεm, di pen kin bכku na di an dεm εn di fut dεm. |
| I nɔ kin izi fɔ yu fɔ blo | Sɔm shɔt briz, we kin kam wit pen na in chɛst, kin apin. Dis na wan sik we de sho se i rili siriɔs. |
| Taya/taya pasmak | Yu kin fil se yu nɔ gɛt layf ɛn yu taya pasmak. |
| Di skin we de yɔlɔ (Jaundice) . | Di wayt tin dɛn na di yay ɛn di skin kin tɔn yɔlɔ. |
| Ɔda tin dɛn we de apin | Diziz, ed we de at, i nɔ kin izi fɔ muv sɔm pat dɛn na di bɔdi, ɛn di erection we de mek man fil pen kin apin. |
Ɛni patikyula rizin de fɔ dis ‘kraysis’?
Bɔku tɛm i nɔ kin izi fɔ no di rayt tin we kin mek dis sik kam, bɔt dɛn dɔn no sɔm kɔmɔn ‘trig’ dɛn we kin mek i apin.
- Dihaydreshɔn : Nɔ fɔ drink inof wata.
- Tempracha chenj: Fɔ go na say we di tɛmpracha chenj wantɛm wantɛm . Fɔ ɛgzampul, fɔ kɔmɔt na rum we gɛt ay kɔndishɔn ɛn fɔ go na do wantɛm wantɛm insay di wam san.
- Infεkshכn: Ivin sכm sכm infεkshכn lεk kol kin bi wan tin wae de mek dis sik.
- Stress: Fɔ strɛs pasmak na di men tin bak we kin mek pɔsin strɛs.
- Ay ay ples: Fɔ go na say dɛn we rili ay, lɛk mawnten dɛn we de ɔp, usay ɔksijɛn nɔ bɔku.
Wetin yu fɔ du we ‘kraysis’ apin? Wetin na di tritmɛnt dɛn?
If yu gɛt dis sik, .
Di tin we impɔtant pas ɔl na fɔ tɔk to yu dɔktɔ ɛn kam wit tritmɛnt plan fɔ manej ‘kraysis’ if i apin. Tin dɛn we yu kin du na os
As di pen bigin so, sɔm tin dɛn de we yu kin du na os.- Drink bɔku wata: I rili impɔtant fɔ mek yu bɔdi gɛt wata.
- Di mɛrɛsin dɛn we de mek pɔsin fil pen: Yu kin tek wan kɔmɔn mɛrɛsin fɔ mɛn pen lɛk Paracetamol ɔ Ibuprofen . Bɔt aks yu dɔktɔ us mɛrɛsin bɛtɛ fɔ yu. Fɔ ɛgzampul, if yu gɛt prɔblɛm wit yu kidni, Paracetamol kin fayn fɔ yu.
- Ɔda we dɛn: If yu put ɔt wata bɔtul, was ɔt wata, ɛn masaj am saful wan, dat kin ɛp fɔ mek yu nɔ fil pen.
- Mental hεlth: Kכl yu maynd tru mεtכd dεm lεk mεditashכn. Aks fɔ sɔpɔt frɔm yu fambul ɛn padi dɛn.
Mɛdikal tritmɛnt
Bɔku patikyula mɛrɛsin dɛn de we dɔktɔ dɛn kin advays fɔ mek dɛn nɔ gɛt ɛn mɛn dis ‘kraysis’.- Hydroxyurea : Dis mεdikeshכn de ridyus di fכmeshכn fכ sik lεk rεd bכdi sεl dεm, we de ridyus di frεkuεns fכ ‘krayz’ we de mek yu fil pen.
- L-glutamine oral powder (Endari): Dis kin ɛp bak fɔ mek yu nɔ gɛt ‘kraysis’ ɛn fɔ mek yu nɔ nid fɔ go na ɔspitul.
- Crizanlizumab-tmca (Adakveo): Dis drɔg de stɔp di blɔd sɛl dɛn fɔ stik togɛda ɛn blok di blɔd vesel dɛn.
- Impɔtant infɔmeshɔn: Dɛn bin de yuz wan mɛrɛsin we dɛn kɔl Voxelotor (Oxbryta) fɔ dis fɔs. Bɔt bikɔs ɔf sef, dɛn bin pul am na di makit insay Sɛptɛmba 2024. If yu de tek dis mɛrɛsin naw, i impɔtant fɔ tɔk bɔt am wit yu dɔktɔ wantɛm wantɛm ɛn chenj to ɔda tritmɛnt we fit.
If di tritmɛnt dɛn we dɛn kin gi na os nɔ kin kɔntrol di pen, go na di imejensi rum (ETU) na ɔspitul ɛn nɔ de te. Na de dɛn go gi yu mɛrɛsin dɛn we strɔng pas am fɔ mɛn yu pen. Yu kin nid fɔ de na ɔspitul fɔ sɔm dez te dɛn kɔntrol di pen.
Yu tink se dɛn go ebul fɔ stɔp ‘kraysis’?
Wae e nɔr pɔsibul fɔ stɔp am ɔltogɛda, bɔrku tin de wae yu kin du fɔ ridyus de risk fɔ ‘kraysis’ . Di chenj dɛn we yu fɔ chenj di we aw yu de liv yu layf:
- Protekt yusɛf frɔm di kol:Nɔ was ɔ swim na kol wata. Wear wam klos pan kol de ɛn we yu de go na ples dɛn we gɛt AC.
- Drink plɛnti wata: Drink bɔku wata ɔl di de.
- Limit alcohol: Ridyus di drink we yu de drink as yu ebul.
- Travul na plen: If yu de travul, na fɔ kɔmɛshɔn plen nɔmɔ we gɛt prɛshɔn kabin.
- Manej di strɛs: Fɛn we fɔ mek yu maynd rilaks.
Fɔ mek yu gɛt wɛlbɔdi in jɔnaral, .
- Yu fɔ de fa frɔm sik: Nɔ de fa frɔm pipul dɛn we sik as yu ebul. Wash yu an ɔltɛm.
- Nɔ smok.
- Ɛksesaiz: Layt ɛksesaiz fayn, bɔt nɔ du ɛksɛsayz we de mek yu strɛs tumɔs (lɛk fɔ tren yu wet bad bad wan). Drink bɔku wata we yu de du ɛksɛsayz.
- Kɔntrol ɔda sik dɛn: If yu gɛt ɔda sik dɛn lɛk dayabitis, kɔntrol dɛn fayn fayn wan akɔdin to wetin yu dɔktɔ tɛl yu fɔ du.
- Gɛt di vaysin: Gɛt ɔl di vaysin dɛn we yu nid di rayt tɛm.
- Bɛlɛ: If yu gɛt bɛlɛ ɔ yu de plan fɔ gɛt bɛlɛ, go to dɔktɔ wantɛm wantɛm.
Mɛsej we dɛn kin kɛr go na os
- Siklɔs kraysis na wan sik we de mek pɔsin fil pen bad bad wan we di rɛd blɔd sɛl dɛn we tan lɛk sik de blok smɔl smɔl blɔd vesel dɛn, we kin mek i nɔ gɛt ɔksijɛn.
- De men tin wae de sho se yu de fil bad na wae yu de fil bad bad wan, yu nɔr kin ebul fɔ blo fayn, ɛn yu kin taya pasmak.
- Dis sik kin kam bikɔs ɔf tin dɛm lɛk wae yu nɔr gɛt wata na yu bɔdi, yu gɛt infɛkshɔn, yu strɛs, ɛn wae yu de chenj wae yu wam de wam.
- Ɔltɛm fala yu dɔktɔ in tritmɛnt plan. If yu nɔ ebul fɔ kɔntrol di pen na os, go na ɔspitul in Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm.
- De risk fɔ ‘kraysis’ kin ridyus if yu de drink bɔrku wata ɔltɛm, protɛkt yusɛf frɔm kol, ɛn de liv fayn layf.
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