Yu pikin in spayna na weda? Mek wi tok abaut Spina Bifida ditail!

We nyu pikin kam na dis wɔl, di big tin we ɔl mama ɛn papa want na fɔ gɛt pikin we gɛt wɛlbɔdi. Bɔt sɔntɛnde, dɛn kin bɔn pikin dɛn wit smɔl smɔl wɛlbɔdi prɔblɛm dɛn we wi nɔ kin ivin tink bɔt. Tide, wi go tɔk bɔt wan spɛshal sik we kin apin na di spayna, dat na di bak, fɔ sɔm pikin dɛn we dɛn bɔn dɛn. Dɔktɔ dɛn kin kɔl dis Spina Bifida . Pan ɔl we di nem strenj smɔl, i rili impɔtant fɔ no bɔt dis.

Wetin rili na Spina Bifida?

Fɔ tɔk am simpul wan, Spina Bifida na wan nyural tiub we nɔ fayn . Naw yu go de wɔnda wetin na nyural tiub. Tink bɔt dis, insay di fɔs wik dɛn we di pikin gɛt bɛlɛ, di pikin in bren ɛn in spɛnal kɔd kin bigin fɔ divɛlɔp frɔm wan smɔl tiub we de rɔn dɔŋ di spayna. Dɛn kɔl dis nyural tiub . if dis tכb nכ kכloz fayn, sכm sכm gap, כ opin, de fכm na di spayna. Na dat wi de kɔl spina bifida. dis gap kin afekt di vεrbra, spεnal kכd, εn di nεv dεm we de kכnekt to dεm. insay sכm siriכs kes dεm, wan sak we fulכp wit wata kin kכmכt frכm dis gap.

Yu tink se kayn kayn Spina Bifida de?

Yɛs, tri men kayn dis sik de. Ɛni wan pan dɛn difrɛn frɔm di ɔda wan.

1. Meningocele: dis na sak we fulכp wit wata we de kכmכt na di opin we de na di spεnal kכd. כltu, dis sak nכ gεt di spεnal kכd. Dis na di kayn spina bifida we nɔ kin bɔku.

2. Maylomeningocele: Dis na di kayn spina bifida we kin rili bad ɛn we kin kɔmɔn. insay dis kes, di sak we fulכp wit wata we de kכmכt na di opin de gεt pat pan di spεnal kכd εn pat pan di nεv dεm. dis kin mek di pikin gεt difrεn kכmplikεshכn dεm.

3. Spina Bifida Occulta: Dis na di kayn sik wae nɔr kin pasmak ɛn wae kin pasmak. na ya, pan כl we sכm gap de na di spεnal kכd, dεn nכ de si nכ sak. Bɔrku tɛm, dɛn pipul ya nɔr kin gɛt ɛni sayn. Sɔntɛnde, dɛn kin no am bay we dɛn tek spayna ɛkstrem fɔ ɔda rizin.

Wetin na di sayn dɛm fɔ dis sik?

Di sayn dɛm kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. Dɛn kin dipen pan aw big di gap na di spayna de, usay i de, ɛn us kayn spina bifida i bi. Sɔm sayn wae kin kam pan pɔrsin wae gɛt dis sik na:

• Bak pen.
• Wikɛd, swɛt, ɔr nɔr de fil fayn na yu leg.
• prכblεm dεm wit di bכdi εn blad fכ wok (e.g., inkontinεns).
• sכm pikin dεm kin notis wan strenj pat pan di skin, wan tuft fכ ia, כ wan sכm bכmp usay di gap de (especially in kes dεm fכ Spina Bifida Occulta).

Sɔmbɔdi wae gɛt wan sik wae nɔr kin pasmak kin ebul fɔ liv wae nɔr sho ɛni sayn.

Wetin mek dis kin apin? Wetin na di tin dɛn we kin mek pɔsin gɛt dis sik?

Dɛn nɔ no yet di rayt tin we kin mek pɔsin gɛt spina bifida , bɔt dɔktɔ dɛn biliv se na bikɔs ɔf di jɛnɛtiks ɛn di tin dɛn we de apin na di say we i de. dis min se di nyural tכb kin nכ de divεlכp fayn fayn wan di fכs stej dεm fכ divεlכp na di mama in bεlε.

Dɛn dɔn no sɔm tin dɛn we kin mek pɔsin gɛt prɔblɛm. If yu de op fɔ bɔn pikin, i fayn fɔ no bɔt dɛn tin ya:

• Fɔlik Asid we nɔ de: We pɔsin nɔ gɛt inof fɔlik asid, we na wan vaytamɛn we impɔtant fɔ mek uman gɛt wɛlbɔdi, na di men tin we kin mek i gɛt prɔblɛm.
• Sɔm mɛrɛsin dɛm: Tin dɛm lɛk sɔm antiseizure mɛrɛsin dɛm wae dɛn kin tek fɔ kɔndishɔn lɛk epilepsy.
• Mama in wɛlbɔdi prɔblɛm: Di mama gɛt tin dɛn lɛk dayabitis ɔ fat .
• di ay fiva ɔ di bɔdi wam pasmak we uman gɛt bɛlɛ: Dis kin kam bikɔs ɔf tin dɛn lɛk fɔ yuz ɔt tub bɔku tɛm.
• Famili histri: If pɔsin na di famili gɛt dis sik, ɔ if pikin we bin dɔn bɔn bifo bin gɛt nyural tyub prɔblɛm, di risk kin bɔku smɔl.

Yu kin tɔk to yu dɔktɔ bɔt dɛn tin ya we kin mek yu gɛt prɔblɛm ɛn gɛt di advays we yu nid fɔ gɛt bɛlɛ we gɛt wɛlbɔdi.

Us ɔda prɔblɛm dɛn dis kin mek pɔsin gɛt?

difrεn kכmplikεshכn dεm kin apin, spεshal wan pan siriכs kes dεm lεk myelomeningocele. Dɛn tin ya na:

• I nɔ kin izi fɔ waka: Sɔm pikin dɛn kin gɛt prɔblɛm fɔ waka, ɔ dɛn nɔ kin ebul fɔ waka atɔl.
• Hydrocephalus: Dis na di kכndyushכn we di ed de big bikoz fכ di akyumuleshכn fכ di sεribrospεnal fכluid insay di bren. Dis kin nid fɔ gɛt ɔpreshɔn fɔ pul di wata we pasmak ɛn put shunt.
• I nɔ kin izi fɔ lan: Tin dɛn lɛk aw pɔsin kin ebul fɔ du in wok , aw i kin mɛmba, ɛn aw i kin sɔlv prɔblɛm kin afɛkt am.
• Paralayz: Di leg dɛn kin paralayz ɔl.
• Skɔliosis: Di spayna kin kɔba to wan say.
• di spεnal kכd we dεn tεd: Dis na we di spεnal kכd de atak di insay pat pan di spayna. Nɔmal wan, i fɔ bi fri. Dis kin nid fɔ du ɔpreshɔn bak.

Fɔ liv wit bɔdi prɔblɛm lɛk dis kin mek yu gɛt sɔm kayn strɛs na yu maynd bak as di pikin de gro. So, i rili impɔtant fɔ aks fɔ ɛp frɔm pɔsin we de gi advays bɔt mental wɛlbɔdi biznɛs ɔ jɔyn sɔpɔt grup fɔ mama ɛn papa dɛn we gɛt di sem pikin dɛn.

Aw Spina Bifida kin afɛkt big pipul dɛn?

Big pipul dɛm wae gɛt spina bifida kin gɛt difrɛn prɔblɛm dɛm pas pikin dɛm. Fɔ ɛgzampul:

• aksεlεrayt εj prכsεs (di mכsul trεnk dεn dכn dכn, di fleksibiliti dεn dכn dכn, di fכshal trεnk dεn dכn dכn, di sεns abiliti dεm dεn dכn dכn).
• Posisibul f כ wan tεthered spinal k כd apin bak.
• Kɔnstipɛshɔn ɔ bɛlɛ pen.
• Bɔn prɔblɛm (e.g. ɔstioporosis , at at sik kin bigin kwik kwik wan , bak pen kin bɔku).
• Di skin nɔ kin fil fayn, di blɔd nɔ kin ebul fɔ waka fayn, i nɔ kin ebul fɔ swet, i kin izi fɔ mek i brus, ɛn i kin te di wund wɛl.
• Latɛks alɛji: Na alɛji to latɛks.
• Di ay blɔd prɛshɔn.
• Slip apnea ( obstructive slip apnea ɛn sɛntral slip apnea ).
• Fat.

Pan ɔl we uman dɛn we gɛt spina bifida kin gɛt bɛlɛ, di bɛlɛ kin kɔmplikt, so i impɔtant fɔ fala yu dɔktɔ in advays.

Aw dɔktɔ dɛn kin no bɔt dis sik?

Bɔrku tɛm, dɛn kin no dis sik we uman gɛt bɛlɛ (prenatal diagnosis) . Di tɛst dɛn we dɛn kin yuz fɔ dis na:

• Alfa-fetoprotein (AFP) blɔd tɛst: Dis na tɛst we dɛn kin du pan di mama in blɔd.
• Amniocentesis: na tεst we de tek sεmpl fכ di amniotic fluid we de rawnd di pikin.
• כltra saund skan: Dis kin chεk fכ eni abnכmaliti na di pikin in spayna.

If dɛn no se yu pikin gɛt wan sik lɛk maylomeningocele, dɔktɔ dɛn kin tɛl yu fɔ du C-section fɔ mek di say we yu pikin in spayna we dɔn pwɛl nɔ pwɛl mɔ.

Ivin afta dεn bכn di pikin, dεn kin no di sik bay di sayn dεm. Dɛn kin du imej tɛst dɛn lɛk CT skan , MRI , ɔ ɔltra saund bak fɔ chɛk di spayna ɛn spɛshal kɔd.

Sɔmtɛm, sɔm kayn tin wae nɔr kin pasmak lɛk spina bifida occulta nɔr kin sho di sayn dɛm ɛn nɔr kin no bɔt am te i big. Bɔku tɛm dɛn kin no am bay chans we dɛn de du di spɛshal ɛgzamin fɔ ɔda rizin.

Wetin na di tritmɛnt dɛn?

Spina Bifida nɔ go ebul fɔ wɛl ɔl.Bɔt bɔku tritmɛnt dɛn de we kin ɛp fɔ kɔntrol di sik ɛn ɛp di pikin fɔ liv nɔmal layf.

• Ɔpreshɔn: Dɛn kin du ɔpreshɔn fɔ lɔk di ol we de na di spɛshal kɔd. If i sik bad bad wan, lɛk maylomeningocele, dɛn kin du dis ɔpreshɔn we uman gɛt bɛlɛ na sɔm kɔntri dɛn. Bɔt bɔku tɛm, dɛn kin du am insay sɔm dez afta dɛn bɔn di pikin. Dɛn kin pul di sak we de kɔmɔt na do, lɔk di ol, ɛn stich di wund ɔp. Dɛn kin du ɔpreshɔn bak fɔ wan sik we dɛn kɔl tethered spinal cord .
• Mɛrɛsin: Dɛn kin gi mɛrɛsin fɔ prɔblɛm wit yu urinary ɛn bowel, pen, ɛn ɔda sayn dɛm.
• Fizik tritmɛnt ɛn ɔkupeshɔn tɛrapi: Dɛn tin ya kin ɛp fɔ mek pikin ebul fɔ muv, trɛnk, ɛn ebul fɔ du di wok dɛn we i de du ɛvride fɔ insɛf.

Di mɛdikal tim go mek wan tritmɛnt plan we dɛn mek fɔ di pikin in nid.

Pikin we gɛt Spina Bifida kin waka?

di we aw dis kכndyushכn de afekt fכ waka de difrεn dipכnt pan usay di spεnal stεnosis de (hכy כ lכw) εn aw di kכndyushכn siriכs. Di ay stenosis de, lɛk nia di nɛk, na di mɔ yu nɔ go ebul fɔ waka fɔ yusɛf. כltu, if di stenosis dכn lכs, lεk nia di hip dεm, yu kin ebul fכ waka wit sכm sכpכt (e.g., bres, waka ). If i nɔr kin izi fɔ waka, i nɔ kin afɛkt di we aw pɔsin de waka atɔl.

Di tin dɛn we dɛn kin yuz fɔ muv, lɛk wilchia ɛn pɔsin we de waka, kin ɛp dɛn fɔ du tin dɛn we dɛn kin du ɛvride fayn fayn wan ɛn fɔ dɛnsɛf. Di mɛdikal tim kin ɛp yu fɔ pik dɛn divays ya ɛn tich yu aw fɔ yuz dɛn sef wan.

Wetin a fɔ ɛkspɛkt as mama ɔ papa?

Ɔl pikin difrɛn. Dis kin bi mɔ fɔ pikin we gɛt Spina Bifida. Yu fɔ mɛmba dɛn tin ya we yu pikin de gro:

• Injury: Dɛn nɔ kin fil smɔl skrap ɔ brus na di pat dɛn na di pikin in bɔdi we di sik afɛkt. So, i impɔtant fɔ de chɛk di pikin in bɔdi ɔltɛm fɔ si if i gɛt injury.
• Fɔ muv: Yu pikin kin nid sɔm ɛp fɔ mek i ebul fɔ waka fayn fayn wan. Tin dɛn lɛk wilchia ɔ pɔsin we de waka kin ɛp dɛn fɔ gɛt mɔ indipɛndɛns.
• Fɔ tren yu pikin fɔ go na tɔylɛt: Yu pikin nɔ go fil se i nid fɔ pis ɔ fɔ pul dɔti. Dis kin mek i nɔ izi fɔ tren fɔ go na tɔylɛt. Yu kin aks dɔktɔ dɛn advays fɔ mek yu nɔ wet klos we yu nɔ nid ɛn fɔ mek yu pikin gɛt kɔnfidɛns pan insɛf.

If yu pikin gɛt spina bifida, tɔk to dɛn mɛdikal tim bɔt ɔl dis. Dɛn kin ansa yu kwɛstyɔn dɛn ɛn kɔnɛkt yu wit di tin dɛn we yu nid.

Yu tink se dɛn kin ebul fɔ mek dɛn nɔ gɛt Spina Bifida?

Pan ɔl we dɛn nɔ go ebul fɔ stɔp am ɔltogɛda, bɔku we dɛn de fɔ ridyus di risk fɔ mek pikin gɛt spina bifida:

• Fɔ gɛt inof fɔlik asid: Dis na di tin we impɔtant pas ɔl. If yu de plan fɔ gɛt bɛlɛ, yu fɔ bigin fɔ tek wan fɔlik asid pil ɛvride fɔ at le wan mɔnt bifo yu gɛt bɛlɛ. I rili impɔtant bak fɔ kɔntinyu fɔ tek am fɔ di fɔs tri mɔnt we yu gɛt bɛlɛ. Aks yu dɔktɔ ɔmɔs yu nid.
• Nɔ yuz ɔt tub ɔ sawna: Nɔ ɔt yu bɔdi we yu gɛt bɛlɛ kwik kwik wan.
• Fɔ kɔntrol di tin dɛn we de apin lɛk dayabitis: If yu gɛt dayabitis, kɔntrol am fayn fayn wan bifo yu gɛt bɛlɛ.
• Fɔ tɔk to yu dɔktɔ bɔt yu mɛrɛsin: If yu de tek ɛni mɛrɛsin, tɔk to yu dɔktɔ bifo yu gɛt bɛlɛ. Dɛn kin ebul fɔ gi ɔda mɛrɛsin we nɔ bad.

Usay a go ebul fɔ no mɔ bɔt dis?

Jɔs lɛk bɔku ɔda kɔndishɔn dɛm, fɔ no gud gud wan bɔt Spina Bifida ɛn fɔ kɔnɛkt wit lokal sɔpɔt grup dɛm na di bɛst we fɔ manej di sik ɛn fɔ mek yu nɔ gɛt mɔ kɔmplikeshɔn. Yu kin aks yu dɔktɔ bɔt dɛn ples ya.

Fɔ dɔn, mɛmba dɛn tin ya (Take-Home Message) .

We yu kam fɔ no se yu pikin we yu jɔs bɔn gɛt Spina Bifida, da gladi gladi tɛm de kin bi wan we yu kin wɔri ɛn nɔ kin no wetin fɔ du wantɛm wantɛm. Yu go gɛt wan milyɔn kwɛstyɔn dɛn we de rɔn na yu maynd, ɛn yu nɔ go no usay fɔ bigin.

Bɔt nɔ wɔri. Nɔto yu wan de. Yu mɛdikal tim ɔndastand aw dis nyus kin tranga. Dɛn go de nia yu ɛn yu pikin in sayd ɛvri step na di rod, fɔ gi yu di kia we yu nid.

Mɛmba se if yu no yu pikin kwik kwik wan ɛn trit yu kwik kwik wan, dat kin ɛp yu fɔ liv bɛtɛ layf. Eduket ɔda pipul dɛn bɔt aw fɔlik asid impɔtant. Di tin we pas ɔl na fɔ gi yu pikin bɔku lɔv ɛn sɔpɔt.

` Spina bifida, spεnal kכd dεfεkt, nyural tyub dεfekt, fכlik asid, bכn difεkt, maylomeningocele, pikin hεlth