Yu no bɔt dis strenj sik (Susac Syndrome) we kin afɛkt yu yay, yes, ɛn bren di sem tɛm?

Imajin if yu gɛt bad bad ed pen wantɛm wantɛm, yu nɔ de si fayn, ɛn yu nɔ de yɛri igen? Yu go tink se dɛn tin ya na tri prɔblɛm dɛn we nɔ gɛt natin fɔ du wit dɛnsɛf. Bɔt tide wi de tɔk bɔt wan sik we nɔ kin apin so ɔltɛm we kin kam togɛda fɔ ɔl dɛn tri tin ya, bɔt dɛn nɔ kin tɔk bɔt am bɔku bɔku wan na sosayti. Dɛn kɔl dis "Susac Syndrome." Dis nem kin bi nyu tin to yu. Bɔt i rili impɔtant fɔ no bɔt dis.

Fɔ tɔk am simpul wan, wetin na Susac Syndrome?

Susac Syndrome na wan sik wae de mek wi yone bodi in difεns sistεm, di imyun sistεm, de mistek atak wi כwn bכdi. Wi kin kɔl dis ɔtoimyun kɔndishɔn. Imajin se wan ami de fɛt fɔ wan kɔntri we mistek atak in yon pipul dɛn.

Insay dis sik, wi imyun sistɛm kin tɔch di smɔl smɔl blɔd vesel dɛn na tri rili impɔtant ples dɛn na wi bɔdi. Dɛn tri ples dɛn de na:

1. Bren

2. Retina we de na di bɔdi

3. Insay ia (Kɔklia) .

We dis kin apin, di insay wɔl dɛn na dɛn blɔd vesel dɛn ya kin swel. Jɔs lɛk aw wata paip kin lɔk, na so di wata we kin pas na dɛn blɔd vesel ya kin stɔp, ɛn sɔntɛnde i kin blok ɔl. Dis kin mek di bren, yay, ɛn yes nɔ gɛt di ɔksijɛn ɛn tin dɛn we dɛn nid. Na da tɛm de de sayn dɛm fɔ dis sik kin bigin fɔ sho.

Wetin na di men sayn dɛm fɔ dis sik?

Insay Susac Syndrome, de sayn dɛm wae gɛt fɔ du wit dɛn tri men pat ya kin apia togɛda ɔr difrɛn. Bɔt bɔku tɛm, ɔl di tri pat dɛn kin afɛkt. Lɛ wi si wetin na dɛn sayn ya.

Wetin mek dis kin apin ɛn udat de pan denja pas ɔl?

As wi bin dɔn tɔk, dɛn nɔ dɔn fɛn di rayt tin we mek dis apin yet . Di wangren tin we dɛn no na dat na ɔtoimyun kɔndishɔn. I nɔto sik we pɔsin kin gɛt frɔm in mama ɛn papa . Dat min se no pruf nɔ de fɔ se pikin dɛn go gɛt am if dɛn mama ɛn papa bin gɛt am.

Bɔt sɔm tin dɛn kin mek dɛn no pipul dɛn we de pan denja fɔ gɛt dis sik:

• Jɛnda: Uman dɛn kin gɛt dis sik lɛk tri tɛm pas man dɛn.
• Ej: Dɛn sayn ya kin bigin fɔ sho pan pipul dɛm wae ol bitwin 20 ɛn 40 ia .

Aw dɔktɔ dɛn kin fɛn dis?

I kin tranga fɔ no bɔt Susac Syndrome bikɔs in sik dɛn kin tan lɛk bɔku ɔda sik dɛn. Fɔ ɛgzampul, di sayn dɛm kin rili fiba di wan dɛm wae de kam wit sik dɛm lɛk Multiple Sclerosis (MS), strok, ɛn bren infɛkshɔn (ɛnsɛfalaytis). So, dɔktɔ kin mistek tink se na difrɛn sik.

So, dɛn kin du sɔm spɛshal tɛst dɛn fɔ mek dɛn no di sik kɔrɛkt wan.

• Fɔ ɛgzam fɔ yu bɔdi
• Nyurolɔjik ɛgzam
• Ɔftalmɔlɔjik ɛgzam

Apat frɔm dat, dɛn spɛshal tɛst ya rili impɔtant fɔ no if pɔsin gɛt di sik.

Wetin na di tritmɛnt?

Di men gol fɔ trit dis sik na fɔ kɔntrol wi imyun sistɛm, we nɔ de wok fayn. Dat min se fɔ stɔp di wok we i de du. Wi kin kɔl di mɛrɛsin dɛn we dɛn gi fɔ dis rizin imyun suprɛsant .

Dɛn tritmɛnt ya kin nid fɔ tek lɔng tɛm. Sɔm pan di mɛrɛsin dɛn we dɛn kin yuz mɔ na:

• Kɔtikosterɔyd dɛn - ɛgz. prɛdnisɔn we dɛn kɔl prednison
• Imyunoglobulin we dɛn kin put insay di bɛlɛ (IVIG) .
• Maykofenolayt we dɛn kɔl
• Azatiɔprin we dɛn kɔl
• Sayklɔfosfamid
• Rituximab we dɛn kɔl Rituximab

Bɔku we dɛn de fɔ gi dɛn mɛrɛsin ya. Dɛn kin gi sɔm as pils, ɔda wan dɛn kin gi as injɛkshɔn, ɛn sɔm mɛrɛsin dɛn kin gi insay di bɛlɛ (IV) as salin sɔlvushɔn.

Lɛk ɔl di mɛrɛsin dɛn, dis wan kin gɛt sayd ɛfɛkt. So tɔk opin wan wit yu dɔktɔ bɔt am bifo yu bigin fɔ trit yu. If ɛni sayd ɛfɛkt apin, tɛl dɛn wantɛm wantɛm.

Aw wi go gɛt op fɔ tumara bambay?

Pan ɔl we di nem Susac Syndrome kin tan lɛk se yu de mek yu fred, rili gud tritmɛnt dɛn de fɔ dis sik. Ɛspɛshali if dɛn no di sik ɛn trit am kwik, di tin we kin apin kin rili fayn. If yu trit yu kwik kwik wan, dat kin mek yu bren, yay, ɛn yes nɔ pwɛl sote go.

Bɔt if di tritmɛnt delay, sɔntɛnde, i kin lɔs di we aw i de si ɛn yɛri sote go. Bɔt, dis nɔ kin apin so ɔltɛm.

Dis sik nɔ kin rili mek pɔsin in layf de pan denja. Dat min se i nɔ de mek di layf we pɔsin de liv shɔt. Bɔt, i kin afɛkt di kwaliti fɔ liv ɛvride. We tin dɛm lɛk fɔ si ɛn yɛri, we bin fayn bifo, chenj, ɛn bak chenj na di we aw yu de tink ɛn mɛmba, i kin gɛt rili saykilɔjik impak. So, fɔ tɔk to pɔsin we de gi advays bɔt mɛntɛl hεlth afta yu dɔn no bɔt dis kayn sik, dat kin mek bɔrku pipul dɛn fil fayn bak.

Ustɛm a fɔ go to dɔktɔ?

If yu ɔ pɔsin we yu sabi gɛt wan ɔ mɔ pan dɛn chenj ya di sem tɛm, go to dɔktɔ we yu nɔ go te .

• Di chenj we yu de si wantɛm wantɛm (blak spat, fil lɛk se dɛn de kɔba yu wit kɔtin).
• I nɔ de yɛri igen wantɛm wantɛm , i kin tɔn diziz, ɔ i kin ring na yu yes.
• I nɔ izi fɔ tink ɔ mɛmba (chenj na di bren wok).
• Di chenj dɛn we pɔsin kin chenj pan di we aw pɔsin de biev ɔ di pɔsin we i bi we pɔsin nɔ ebul fɔ ɛksplen .
• If dɛn sayn ya de ambɔg yu ɛvride layf .

Yu dɔktɔ kin no di rayt tin we kin mek yu gɛt dɛn sik ya ɛn gi yu di tritmɛnt we yu nid, we kin ɛp fɔ mek yu nɔ gɛt prɔblɛm dɛn we go de fɔ lɔng tɛm.