Yu spɛshal kɔd dɔn trɔp sɔmsay? Mek wi lan bɔt Tethered Spinal Cord.

Yu ɔ yu pikin dɔn notis ɛnitin we nɔ fayn, pen, ɔ chenj na yu bak ɔ aw yu de waka? Sɔntɛnde, yu go dɔn notis wan smɔl bɔmp ɔ bɔmp na di skin na di bɔt ɔf yu bak. wan tin we kin mek dεn tin ya kin bi wan kכndyushכn we dεn k כl ‘tethered spinal cord’ . Di nem kin tan lɛk se yu de mek yu fred smɔl, bɔt if yu no dis, bɔku prɔblɛm dɛn kin sɔlv. Tide, wi go tɔk bɔt dis simpul we we yu go ɔndastand.

Wetin na ‘tethered spinal cord’?

Fɔ tɔk am simpul wan, wi spɛnal kɔd , we na di men nɛv fayv we de rɔn tru wi spayna, fɔ muv fri wan insay di spayna. Jɔs lɛk waya we de insay tiub. כltu, insay dis ‘tethered spinal cord’ kכndishכn, di spεnal kכ d nכ de atak di insay wכl na di spayna כ to כda tisu dεm nכmal wan.

Imajin, yu tay rop na wan ples ɛn pul am na di ɔda say. Dɔn di rop kin pul, nɔto so? Na dat de apin na ya bak. we di spεnal kכd kin pinch lεk dis, we wi de klaym כ du wi εvride aktiviti dεm, di spεnal kכd de bigin fכ pul. Dis pul kin pwɛl di spɛnal kɔd ɛn i kin mek di blɔd nɔ flɔ to di nɛv dɛn we de rɔn tru am . Dɛn kin kɔl dis bak `(Tɛda Kɔd Sindrom)` ɔ `(Tɛda Spinal Kɔd Sindrom)`.

Wetin na wi spɛshal kɔd?

fכ כndastand dis fayn, yu nid fכ gεt sכm aidia bכt di spεnal kכd. di spεnal kכd na tik tik tik we de kכmכt frכm di bכs pat na wi sכkul to di midul pan wi spayna. di nεv signal dεm we de rilet to כltin na wi bכdi, lεk fכ muv εn fכ fil, de travul tru dis spεnal kכd. In ɔda wɔd dɛn, i tan lɛk di say we wi bɔdi de kɔntrol wi bɔdi.

Wetin na di difrɛns bitwin ‘Tethered Spinal Cord’ ɛn ‘Spina Bifida’?

Yu kin dɔn yɛri bɔt wan sik we dɛn kɔl ‘Spina Bifida’. Dis na wan sik we de apin we dɛn bɔn am. Pikin dεm we gεt ‘Spina Bifida’ kin gεt ‘Tethered Spinal Cord’ kכndishכn bak we dεn bכn.

Maylomeningocele na wan bad bad we fɔ gɛt spina bifida. dis kin apin we di lכw εnd pan di pikin in spεnal kכd εn da pat pan di spayna nכ de divεlכp fayn fayn wan insay di pikin in tεm. Dɔn, we dɛn bɔn di pikin , di spɛshal kɔd kin kɔmɔt na do ɛn i kin stɔp na di skin.

Sɔm kayn we dɛn de bak we nɔ kin rili bad fɔ gɛt spina bifida. fכ egzampl, wan kכndyushכn we dεn kכl ``Spina Bifida Occulta''. insay dis, di spεnal kכd kin atak di wכl na di spεnal kanal abnכmal bikoz fכ wan fεt tisu (lipoma) כ wan tik filum (band כf tisu) we de na di εnd pan di spεnal kכd.

Bɔku tɛm, pikin dɛn we gɛt spina bifida kin gɛt ɔpreshɔn we dɛn smɔl fɔ pul di kɔd. כltu, sכ mtεm ska tisu kin fכm na di εria afta dεn כpεrayshכn εn di kכd kin tay bak na di spayna.as pikin dεn de gro, dis kin mek di spεnal kכd strεch, we kin mek dεn kכl wan kכndyushכn we dεn kכl ‘tethered spinal cord syndrome’.

Di tin we impɔtant pas ɔl na fɔ ɔndastand se ivin if di kɔndishɔn we dɛn kɔl ‘Spina Bifida’ nɔ de klia wan, wan ‘Tethered Spinal Cord’ kɔndishɔn kin de.

Udat dis tin kin afɛkt mɔ?

Tethered Spinal Cord Syndrome na wan sik wae dɛn kin si bɔrku pan pipul dɛm wae gɛt opin spina bifida. Sɔm masta sabi bukman dɛn se lɛk wan pan ɔl tu pikin dɛn we gɛt maylomeningocele go gɛt tethered spinal cord syndrome. Bɔt lɛk aw wi bin dɔn tɔk, i kin apin bak we yu nɔ gɛt klia spina bifida.

Wetin na di sayn dɛm fɔ ‘tethered spinal cord’?

De sayn dɛm fɔ dis sik kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. Sɔm pikin dɛn kin sho sɔm sayn dɛn we dɛn bɔn dɛn. Bɔrku tɛm, dɛn sayn ya kin apun as pikin dɛn de ol. Nɔr kin bɔrku, sɔm pipul dɛn nɔr kin gɛt ɛni sik we dɛn bin smɔl ɛn dɛn kin gɛt dis sik leta na dɛn layf, bikɔs dɛn nɔr bin dɔn no bɔt dɛn fɔs.

Pikin ɛn big pipul dɛn kin gɛt dɛn sik ya we gɛt fɔ du wit dis sik:

• I nɔ izi fɔ waka: Yu fɔ wɔri if pikin de waka na ɔda kayn we, mɔ we i bigin fɔ waka, ɔ if chenj de na di we aw i de waka.
• di skin de chenj na di lכw bכk: Yu kin notis wan sכmכl dimple na di lכw bכk, jכs oba di bכtכk. Ɔ, yu kin notis se di ia nɔ de gro fayn na da say de. Yu kin si bak di tumbu dɛn we nɔ fayn, di say dɛn we de na di skin we nɔ gɛt kɔlɔ , ɔ di mak dɛn we dɛn kin bɔn we dɛn kɔl ɛmanjiɔm. sכmtεm, yu kin si sכm sכm sכm lεk mכl dεm bak na di skin (skin tεg / akrochכdכn) .
• Yu leg ɔ bak nɔ de fil fayn ɔ yu nɔ de fil fayn: If bɔku tɛm yu kin fil se yu leg dɛn de swɛ, ɔ if yu fil lɛk se yu leg dɛn nɔ de fil fayn, pe atɛnshɔn to am.
• Bɔrku pen na yu leg ɔr bak: Bɔrku tɛm dis pen kin go na di rεktum ɔr di jεnital εria.
• Skɔliosis: If i tan lɛk se di spayna kɔba to wan say.
• Prɔblɛm fɔ kɔntrol di urinary ɛn di bɔdi: Prɔblɛm dɛn lɛk fɔ pis ɔltɛm, i nɔ kin izi fɔ ol di urine, ɔ i nɔ kin izi fɔ kɔntrol di bɔdi we i de muv.
• di sist dεm we fulכp wit wata na di spεnal kכd (Syringomyelia): dεn kin כnli no dis wit skan.
• Mɔsul Atrofi: Ɛspɛshali if i tan lɛk se di mɔsul dɛn na di leg dɛn dɔn atrofi ɛn tan.

If yu gɛt wan ɔ mɔ pan dɛn sayn ya, i go fayn fɔ mek yu go to dɔktɔ.

Wetin na di tin dɛm wae kin mek pɔrsin gɛt ‘Tethered Spinal Cord Syndrome’?

Dis kכndyushכn kin bi we dεn bכn am (we de de we dεn bכn am) כ i kin gεt am leta na layf.

Di tin dɛn we kin mek pɔsin bɔn am:

• di abnכmal tik we di tisu de tik frכm di εnd pan di spεnal kכd to di telbon (Sacrum) (Filum Terminale) na di kכmכn kכz.
• Di kɔndishɔn we dɛn kɔl Spina Bifida.

Di tin dɛn we kin mek pɔsin gɛt dis sik:

• Skar tisu afta spεnal ɔpreshɔn.
• Infεkshכn dεm.
• Sivεr spεnal trauma.
• Tumɔs dɛn.

Sɔm pipul dɛm we de stɔdi bɔt dis biliv se di tin dɛm we de mek pɔsin gɛt jɛnɛtiks kin ple bak pan tin dɛm lɛk spina bifida. pan ɔl we dɛn dɔn si se wan link bitwin myelomeningocele ɛn di jin dɛm, dɛn nɔ dɔn pruv klia link bitwin tethered cord syndrome ɛn di jin dɛm yet.

Aw fɔ no wan ‘tethered spinal cord’?

Bɔku tɛm na wan dɔktɔ we de stɔdi bɔt nyuro kin no bɔt dis sik . I go chɛk yu ɔ yu pikin ɛn aks am bɔt di sayn dɛn we yu gɛt. Apat frɔm dat, bɔku tɛm dɛn go du dɛn imej tɛst ya :

• MRI (Magnetic Resonance Imaging) scan: Dis na di tɛst we dɛn kin yuz fɔ no dis sik. I de yuz magnet ɛn redio wev fɔ si klia wan di spɛshal kɔd, di nɛv dɛn, ɛn di tisu dɛn we de rawnd am.
• Maylogram: insay dis, dεn de injεkt wan spεshal day insay di sak we de kכba di spεnal kכd (di thecal sak). afta dat dεn kin tek εks-ray fכ si if di spεnal kכd de kכmprεs di spεnal kכd.
• CT (Computed Tomography) scan: Dɛn kin yuz spɛshal kɔmpyuta ɛn ɛkstrem rayt fɔ luk insay di bɔdi. Sɔntɛnde dɛn kin du CT skan afta dɛn dɔn du maylogram fɔ si aw di day de muv rawnd di spɛshal kɔd.
• Ultrasound scan: Dis de yuz ay frikshɔn sawnd wev fɔ luk insay di bɔdi. bכku tεm dεn kin yus am fכ si aw di spεnal kכd de muv insay di spεnal kכlכm insay pikin dεm we rili yכng .

Aw dɛn kin trit spɛshal kɔd we dɛn tay?

Di men tritmɛnt fɔ dis sik na ɔpreshɔn. Di kayn ɔpreshɔn we dɛn kin du kin dipen pan bɔku tin dɛn, fɔ ɛgzampul:

• Di tik we yu `(Filum Terminale)`.
• usay di spεnal kכd de kכmprεs.
• Yu na big pɔsin ɔ yu na pikin?

Bɔku tɛm, dɛn kin du dis ɔpreshɔnNyurosɔjɔn na dɔktɔ we spɛshal pan ɔpreshɔn pan bren ɛn spɛnal. Fɔs, i kin kɔt smɔl pat na di ɔda pat na di bɔdi we de dɔŋ. Dɔn, dɛn kin yuz ɔspitul inschrumɛnt dɛn fɔ tek tɛm pul di skata ɛn fri di spɛshal kɔd frɔm di spɛshal kɔd.

Wetin kin apin afta dɛn dɔn du ‘tethered spinal cord’ ɔpreshɔn?

Afta dɛn dɔn du di ɔpreshɔn, yu ɔ yu pikin kin bigin fɔ du tin dɛn we nɔmal ɛn layt jɔs afta dat. Bɔt yu fɔ avɔyd fɔ du tin dɛn we de mek yu tranga, lɛk fɔ es ebi ebi tin dɛn, fɔ siks to et wiks, ɔ fɔ lɔng tɛm, lɛk aw yu dɔktɔ tɛl yu. Yu nid fɔ gi di wund tɛm fɔ mek i wɛl.

Sɔm pipul dɛn kin nid fɔ gɛt fizik tritmɛnt ɔ ɔkupeshɔn tɛrapi afta dɛn dɔn du dɛn ɔpreshɔn fɔ ɛp dɛn fɔ mek dɛn nɔ ebul fɔ wok fayn igen. Dɛn kin du dis ɔpreshɔn fɔ stɔp mɔ damej pan di nerv dɛn. Bɔt i nɔ go ebul fɔ mek di nerv dɛn we dɔn ɔlrɛdi pwɛl kpatakpata. So, sɔm pipul dɛn kin kɔntinyu fɔ gɛt prɔblɛm wit dɛn mɔsul dɛn ɔr muvmɛnt prɔblɛm afta dɛn dɔn gɛt tritmɛnt.

Yu tink se dɛn go ebul fɔ mek dis tin nɔ apin?

כnכfכs, no we nכ de fכ mek di spεnal kכd we dεn tay. Bɔt if yu gɛt tritmɛnt kwik, yu kin rivɛns di sayn dɛm. So, if yu tink se yu ɔ yu pikin gɛt ɛni wan pan dɛn sik ya, go to dɔktɔ wantɛm wantɛm.

Wetin na di lukin-grɔn fɔ di ‘tethered spinal cord’ kɔndishɔn?

Wit tritmɛnt, bɔrku pipul kin liv nɔrmal layf. Di spid we yu de gɛt tritmɛnt fɔ wan spɛshal kɔd we dɛn tay de sho yu chans fɔ mek yu wɛl ful wan. Sɔm sayn dɛm, lɛk wae i nɔr kin izi fɔ kɔntrol aw pɔrsin kin muv, aw pɔrsin kin fil, ɔr kin wik, nɔr kin dɔn, mɔr lɛk if dɛn du ɔpreshɔn leta.

Mi ɔ mi pikin go nid fɔ du pas wan ɔpreshɔn?

Fɔ bɔku pipul dɛn , wan ɔpreshɔn nɔmɔ go du fɔ trit wan spɛshal kɔd we dɛn tay. Bɔt, lɛk wan pan ɛvri fayv pikin dɛn kin nid fɔ ɔpreshɔn pas wan tɛm. di tεda spεnal kכd simptom dεm kin wכs כ kam bak insay di tεm dεm we di pikin de gro kwik kwik wan (gכw spurt). Dɛn kayn tɛm dɛn de, dɛn kin nid fɔ du ɔda ɔpreshɔn afta di pikin dɔn lɔng pasmak. Pikin dɛn we ol bitwin 7 ɛn 12 ia kin gɛt di ay risk fɔ mek dɛn nid ɔda ɔpreshɔn.

Us kwɛstyɔn dɛn a fɔ aks mi dɔktɔ?

If yu ɔ yu pikin gɛt ‘tethered spinal cord’ kɔndishɔn, ɔ if yu tink se yu kin gɛt wan, i go fayn fɔ aks yu dɔktɔ dɛn kwɛstyɔn ya:

• di fכs simptom dεm fכ wan ‘tethered spinal cord’.Wetin?
• Us tɛst dɛn kin du fɔ no dis sik?
• Wetin na di tritmɛnt opshɔn dɛm fɔ dis?
• Wetin na di chans fɔ mek di sik kam bak afta dɛn dɔn trit am?

I pɔsibul fɔ liv nɔmal layf wit ‘tethered spinal cord’ kɔndishɔn?

Yɛs. Bɔrku pipul dɛm wae gɛt tritmɛnt kwik kwik wan fɔ wan spɛshal kɔd wae dɛn tay kin liv nɔrmal layf ɛn gɛt nɔrmal layfspan.

di spεnal kכd we dεn tεd na di abnכmal we di spεnal kכd de atak di spεnal kכlכm. Na nɔmal tin fɔ mek yu fred we yu ɔ yu pikin kam fɔ no se yu gɛt dis sik, bɔt fɔ trit yu kwik kwik wan kin ɛp fɔ mek yu nɔ gɛt di sik ɛn ivin mɛn am. dis kכndyushכn kכlכs fכ spina bifida, we na wan sik we dεn bכn we di spεnal kכd כ spayna nכ de divεlכp fayn fayn wan. Dɔn bak, bɔku pikin dɛn we dɛn dɔn ɔpreshɔn fɔ maylomeningocele leta kin gɛt wan spɛshal kɔd we dɛn tay. If yu ɔ yu pikin notis ɛni wan pan dɛn sik ya, go to dɔktɔ wantɛm wantɛm.

Di impɔtant tin dɛn we yu nid fɔ mɛmba (Take-Home Message) .

Okay, so lɛ a sɔma sɔm pan di impɔtant pɔynt dɛn frɔm wetin wi dɔn tɔk bɔt:

• di spεnal kכd we dεn tεd na di kכndyushכn we di spεnal kכd de trכp εn strεch insay di spayna.
• Dis kin de we dɛn bɔn am ɔ i kin divɛlɔp leta na layf . Pikin dɛn we gɛt spina bifida kin gɛt ay risk.
• Di sayn dɛm kin difrɛn: bak ɛn leg kin pen, yu kin gɛt swɛt, i nɔ kin izi fɔ waka, yu skin kin chenj, ɛn yu kin gɛt prɔblɛm wit yu blad/bɔwel kɔntrol.
• MRI skan na di men tin fɔ no if pɔsin gɛt di sik.
• Di men tritmɛnt na ɔpreshɔn. Dis kin stɔp di damej we di nerv dɛn kin gɛt.
• Di kwik we yu gɛt tritmɛnt, na di mɔ yu go gɛt chans fɔ wɛl. Sɔm sayn dɛn kin kɔntinyu fɔ de.
• Nɔ wɔri! If yu gɛt di rayt tritmɛnt, yu go ebul fɔ liv nɔmal layf.
• If yu ɔ yu pikin gɛt ɛni wan pan dɛn sik ya, nɔ west tɛm ɛn go to dɔktɔ.

A op se dis infɔmeshɔn go yusful to yu. Stay wit wɛlbɔdi!

` Spina, spayna kכd, spina bifida, nyurolכjik sik dεm, כpεrayshכn, pikin hεlth, bak pen