Sɔntɛnde, yu kin fil lɛk se sɔntin lɛk kɔp ɔ pen fɔdɔm na grɔn wantɛm wantɛm fɔ natin? Ɔ yu kin fil lɛk se yu leg dɛn de trip we yu de waka, ɔ yu wɔd dɛn de slɔp we yu de tɔk? Pan ɔl we bɔku tɛm dɛn tin ya na jɔs tin dɛn we kin apin to wi, sɔntɛnde dɛn kin bi di fɔs sayn dɛn we de sho se sɔntin siriɔs de apin insay wi bɔdi. Na so wi go tɔk bɔt wan sik we gɛt fɔ du wit wi nervɔs sistɛm tide. Dat na ALS.
Fɔ tɔk am simpul wan, wetin na ALS?
ALS na wan abbrevieshɔn fɔ Amyotrophic Lateral Sclerosis . Sɔm pipul dɛn kin kɔl am bak ‘Lou Gehrig in sik’, afta Lu Gehrig, we na bin wan big big besbɔl pleya insay di 1930 dɛm. Fɔ tɔk am simpul wan, na sik we kin afɛkt wi nervɔs sistɛm, mɔ di nerve cells we dɛn kɔl motor neurons .
Naw yu kin de wɔnda wetin na dɛn motoka nyuron ya. Imajin, yu es yu an, muv yu leg, tok, chew fud... Yu de du ol dis volontia, no bi so? Wεl, dεn mכtal nyuron dεm ya de kכntro di volontia mכsul dεm we wi de tink bכt εn kכntrol. dis nεv sεl dεm de kכri di mεsej frכm di bren to di mכsul dεm, we de se, "Du dis." we ALS de divεlכp, dεn mכtal nyuron dεm ya de wik sכmtεm εn dεn nכ de wok. Dɔn di mɛsej dɛn we de kɔmɔt na di bren nɔ kin rich di mɔsul dɛn fayn fayn wan. Dis kin mek di mɔsul dɛn wik ɛn smɔl smɔl.
Di tin we kin mek wi at pwɛl pas ɔl na dat, dis sik kin mek di dayafragm, we na di mɔsul we de ɛp wi fɔ blo, wik. Bɔku pasɛnt dɛn kin day bikɔs dɛn nɔ kin ebul fɔ blo fayn . No definitiv mɛrɛsin nɔr stil de fɔ dis sik.
Wetin na di tin dɛn we kin mek pɔsin gɛt ALS?
Dɛn nɔ dɔn no yet di rayt tin we kin mek pɔsin gɛt ALS, bɔt dɛn dɔn no sɔm tin dɛn we kin mek pɔsin gɛt ALS.
- Jɛnɛtiks: Fɔ smɔl pasɛnt pan pipul dɛm wae gɛt ALS, lɛk 10%, na ɛridayt. Dis min se if pɔsin na di famili gɛt di sik, 50% chans de fɔ mek di jin pas to dɛn pikin dɛn. Dɛn kɔl dis famili ALS .
- Ej: De risk fɔ gɛt dis sik kin bɔku wit di ej te i rich 75. Dɛn kin no dis sik mɔr pan pipul dɛm wae ol bitwin 60 ɛn 80 ia.
- Sεks: Na pipul dεm we nכ rich 65 ia, man dεm kin gεt dis sik sכmtεm pas uman dεm. Bɔt afta we i ol 70 ia, da difrɛns de nɔ de igen.
- Fɔ smok: .Sɔm stɔdi dɛn dɔn sho se di wan dɛn we de smok kin gɛt mɔ risk fɔ gɛt ALS, mɔ pan uman dɛn afta dɛn dɔn lɛf fɔ gɛt bɛlɛ.
- Pɔyzin : Risach pipul dɛn biliv se if pɔsin gɛt sɔm kemikal dɛn lɛk lid, dat kin mek i gɛt prɔblɛm bak. Dɛn stil de chɛk dis.
- Soja wok: I sɔprayz fɔ no se sɔm stɔdi dɛn dɔn sho se di wan dɛn we dɔn wok na sojaman kin gɛt ALS smɔl. Wi nɔ no di rayt tin we kin mek i apin, bɔt dɛn tink se i gɛt fɔ du wit tin dɛn lɛk we pɔsin gɛt pɔyzin ɛn we i kin strɛs bad bad wan.
- Stumbling wen yu de waka, legs get tangled.
- I at fɔ ol sɔntin fayn fayn wan na di an (e.g., fɔ drɔp kɔp, pan).
- Tɔk we nɔ de tɔk fayn.
- I nɔ kin izi fɔ swɛla it ɔ wata.
- Mɔsul dɛn kin kramp ɔ pen.
- di mכsul dεm we de twitch - dεn kכl am bak fasciculations .
- I nɔ izi fɔ mek di bɔdi kɔntinyu fɔ tinap, nɔ ebul fɔ kip di nɛk stret.
- EMG (Ilektromayografi): .dis de mכsu di ilektrikal aktiviti na di mכsul dεm. insay ALS, di mכsul dεm nכ de gεt mεsej frכm di nεv dεm fayn fayn wan, so di EMG tεst de sho wan spεshal abnכmal patεn.
- Nεv Kכndukshכn Stɔdi: Dis de mכsu di spid we ilektrikal signal dεm de travul along di nεv dεm. Dis kin gi yu aidia bɔt aw di nerv dɛn dɔn pwɛl.
- Fizik tritmɛnt: I de ɛp fɔ du big big mɔsul aktiviti dɛm lɛk fɔ waka ɛn tinap.
- Ɔkupeshɔn tɛrapi: I de ɛp wit fayn fayn motoka skil dɛm lɛk fɔ bɔtin shirt ɛn it wit spun.
- Spich therapy: I de ɛp fɔ mek yu tɔk klia wan ɛn fɔ manej di prɔblɛm dɛn we yu kin gɛt fɔ swɛla.
- ALS na sik we de afɛkt di nerve cells we dɛn kɔl motor neurons we de kɔntrol wi volontia mɔsul dɛm.
- Di fɔs sayn dɛm kin rili shɔt, lɛk fɔ wik na yu an ɛn fut dɛm, i nɔ kin izi fɔ waka, ɛn yu nɔ kin tɔk fayn.
- Nɔr patikyula tɛst nɔr de fɔ no di sik, ɛn dɛn kin kɔnfirm di diagnosis bay wae dɛn nɔr gɛt ɔda sik.
- Pan ɔl we dɛn nɔ stil gɛt kɔmplit mɛrɛsin fɔ di sik, fizik tritmɛnt, tɔk tritmɛnt, ɛn difrɛn tin dɛn we de ɛp am kin mek di pɔsin in kwaliti layf kɔntinyu fɔ bi gud lɛvul.
- If yu gɛt dɛn sik ya fɔ lɔng tɛm, go mɔs go to dɔktɔ.
Impɔtant: If yu tink se yu dɔn it pɔyzin kemikal, nɔ panik ɛn kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ gɛt di rayt mɛrɛsin advays.
Wetin na di fɔs sayn dɛm fɔ ALS?
ALS simptom nɔ kin kam wantɛm wantɛm, bɔt i kin kam sloslo. Fɔs, yu go notis smɔl chenj. Sɔntɛm yu an kin fil fɔdɔm we yu ol di stiarin na motoka. Ɔ yu kin gɛt prɔblɛm fɔ tɔk bifo ɛni ɔda sayn fɔ sho. Di fɔs sayn dɛm kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin.
Bɔt sɔm kɔmɔn tin dɛn de we kin apin fɔs:
Dis sik kin sheb to tu men kayn bays pan aw i bigin: Limb onset (de bigin na di limbs) ɛn Bulbar onset (de bigin wit prɔblɛm fɔ tɔk ɛn swɛla) .
| Aw di sik kin bigin | Di kɔmɔn sayn dɛm |
|---|---|
| Limb (Spinal) we de bigin | Fɔ bɔrku pipul dɛm, dis sik kin bigin dis we. Di sayn dɛm fɔs kin apia na di an ɔr leg.
|
| Bulbar Onset (we de bigin wit tɔk/swɛla) . | Dis nɔ kin apin smɔl. Di sayn dɛm kin bigin fɔs na di mɔsul dɛm na di fes, nɛk, ɛn trot.
|
| Dis sik kin wɔs as tɛm de go. | |
| We di sik de wɔs | Di mɔsul dɛn kin wik, di mɔsul dɛn kin lɔs (atrophy), i nɔ kin izi fɔ it ɛn swɛla, i nɔ kin ebul fɔ ɔndastand aw i de tɔk, ɛn i nɔ kin izi fɔ blo. |
Aw dɛn kin no se pɔsin gɛt ALS?
Fɔ no bɔt ALS na kɔmplikɛt prɔses bikɔs no wan tɛst nɔ de we de sho se i gɛt am. Dɔktɔ dɛn kin pul ɔl di ɔda tin dɛn we kin mek yu gɛt di sik bifo dɛn no se yu gɛt ALS.
Yu dɔktɔ, mɔ di dɔktɔ we de mɛn yu nyuro, go du dɛn tɛst ya:
1. Kɔmplit mɛdikal ɛgzamin: Wi go tɔk bɔt yu sik dɛn ɛn yu famili mɛdikal istri fɔ lɔng tɛm, ɛn chɛk fɔ si if yu mɔsul dɛn wik, yu mɔsul dɛn de spam, ɛn yu nɔ ebul fɔ tɔk.
2. Blɔd ɛn urine tɛst: Dɛn tin ya kin ɛp fɔ pul ɔda tin dɛn we kin sho se yu gɛt sayn dɛn we fiba ALS, lɛk tayroyd sik, vaytamɛn B12 we nɔ de, ɛn ɔda infɛkshɔn.
3. MRI skan: MRI nɔ de sho ALS dairekt wan, bɔt i impɔtant fɔ chɛk fɔ ɔda tin dɛn lɛk we yu bren ɔ spɛnal kɔd tɔmɔs ɔ disk we dɔn slip.
4. Ilektrofysiolojikal tɛst: Dɛn tin ya rili impɔtant fɔ no if pɔsin gɛt di sik.
Bikɔs fɔ no se pɔsin gɛt ALS na big tin, bɔku pipul dɛn kin want fɔ gɛt sɛkɔn opinion. Dat na gud tin. Dɔn bak, bikɔs di sik kin go bifo as tɛm de go, i kin fayn fɔ mek dɛn du tɛst bak afta lɛk 6 mɔnt fɔ si if di sik dɔn bɛtɛ.
Aw fɔ kɔntrol di sayn dɛm?
Pan ɔl we dɛn nɔ stil gɛt kɔmplit mɛrɛsin fɔ ALS, bɔku we dɛn de fɔ kɔntrol di sik dɛn ɛn mek di pɔsin in layf bɛtɛ.
Apat frɔm dat, tin dɛn de lɛk wilchia, CPAP mashin dɛn fɔ ɛp pɔsin fɔ blo, ɛn spɛshal kɔmpyuta tɛknɔlɔji dɛn (sɔftwia we de mek pɔsin no in yay) fɔ ɛp di wan dɛn we nɔ izi fɔ tɔk fɔ tɔk to dɛnsɛf.
If yu ɔ pɔsin we yu sabi kɔntinyu fɔ gɛt di sik dɛn we wi dɔn tɔk bɔt na ya, duya nɔ west tɛm ɛn go to dɔktɔ we sabi du di wok . Fɔ no di sik kwik kwik wan kin ɛp fɔ mɛn am.
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