Yu dɔn ɛva si yu smɔl pikin de jɔk, stif , ɔ butu dɛn ed wantɛm wantɛm? Sɔntɛnde, dɛn tin ya kin apin bɔku tɛm insay wan row. Na nɔmal tin fɔ mek mama ɔ papa fil bad bad wan we dɛn si dɛn tin ya. Yu kin wɔri if dɛn tin ya na nɔmal spasm ɔ sɔntin we siriɔs. Tide wi de tɔk bɔt ‘Infantile Spasms’, we na siriɔs sik we kin apin to pikin dɛn we de sho dɛn sik ya. Dɛn kin kɔl dis bak ‘Wɛst Sindrom’.
Aw ɛksaktɔli dɛn spasm ya tan lɛk?
Dɛn kɔnvulshɔn ya, ɔr sik ya nɔ kin las fɔ lɔng tɛm. Dɛn kin dɔn insay sɔm sɛkɔn dɛn. Bɔt sɔntin spɛshal de bɔt dis wan. Dɛn kin kam insay grup dɛn . Dat min se as soon as wan dɔn, ɔda wan de kam.
Sɔntɛnde, dɛn tret ya kin rili klia. Ɔda tɛm dɛn, dɛn kin rili bad. Yu pikin kin gɛt dɛn tu kayn tin ya difrɛn tɛm dɛn.
- Insay wan muvmɛnt we nɔ klia: I kin tan lɛk se di pikin de tilt in ed.
- If pɔsin shɔk bad bad wan: Di bɔdi kin stif wantɛm wantɛm , dɛn kin trowe di an dɛn na di sayd dɛn, ɛn di ni dɛn kin bɛn to di bɛlɛ. Ɔ dɛn kin trowe di ed bak ɛn dɛn kin stret di an ɛn leg dɛn.
- Sɔntɛnde, dɛn tret ya kin afɛkt wan say nɔmɔ na di bɔdi.
- Di pikin kin kray bifo ɔ afta di kɔntrakshɔn.
Ɔda sayn dɛm wae yu kin gɛt
Apat frɔm dɛn jɔk ya, yu kin notis se yu pikin in mɔsul dɛn de jɔk ɔ twitch we nɔ klia. Dɔktɔ dɛn kin kɔl dis ‘Myoclonus’. Dis kin apin tu men we dɛn.
| Mayoklɔnɔs tayp | Wetin de apin? |
|---|---|
| Pozitiv Mayoklɔnɔs | Spasm kin apin bikɔs di mɔsul dɛn kin tayt wantɛm wantɛm. |
| Negativ Mayoklɔnɔs | Spasm kin apin bikɔs di mɔsul dɛn kin rilaks wantɛm wantɛm. |
Dis na bebi.I nɔto sɔntin we dɛn mek bay wilful . I tan lɛk se wi de wek wantɛm wantɛm we wi want fɔ slip, sɔntin we di pikin nɔ ebul fɔ kɔntrol.
di Wεst Sεndrכm kin afekt di pikin in כtonom nεv sεstem bak. dis na wetin de mek tin dεm we wi nכ kin kכntro, lεk wi at rεt εn di dilayshכ n fכ wi pupil dεm. So dɛn kin si dɛn sayn ya bak we pɔsin gɛt sik we de mek i sik.
- di pikin in skin kin bכku כ rεd.
- We pɔsin de swet
- Di pupil na di yay we de mek di yay big
- Kray wata we de kɔmɔt na di yay
- Di rεt we di brith de inkrεs כ dεn de dכn
- Di at rit we de go ɔp ɔ we de go dɔŋ
Dis go afɛkt di pikin in divɛlɔpmɛnt?
Yɛs, dis na pɔynt we rili impɔtant. As di pikin de gro, i kin go tru sɔm tin dɛn we i kin du we i de gro. Tin dɛn lɛk fɔ rɔl, fɔ no yu vɔys, ɛn fɔ put tin dɛn na in mɔt. Bɔt pikin we gɛt Wɛst Sindrɔm kin tek lɔng tɛm pas nɔmal pikin fɔ rich dɛn maylston ya. Dɔktɔ dɛn kɔl dis divɛlɔpmɛnt we de te .
Wetin kin mɔna am na dat sɔntɛnde pikin kin fɔgɛt tin dɛn we i dɔn lan . Fɔ ɛgzampul, yu go notis se pikin we bin de sidɔm fayn, nɔ go ebul fɔ du am igen. dis dεn kכl dis divεl כpmεnt rεgrεshכn . If yu si sɔntin lɛk dis, nɔ ignore am.
Us chenj dɛn kin apin insay di bren?
Ilektrikal aktiviti de apin ɔltɛm insay yu pikin in bren. If dis aktiviti nɔr de bi abnɔmal, i kin mek yu gɛt sik. Yu dɔktɔ kin ɔda fɔ mek dɛn du EEG (Electroencephalography) tɛst fɔ no aw yu pikin in bren de wok.
dis involv fכ tay ‘ilεktroyd’ dεm we lεk stika na di pikin in ed, kכnekt dεm to mashin, εn rεkכd di bren in ilektrikal wev patεn. wan spεshal, chaotic patεn we dεn kכl ‘Hypsarrhythmia’ dεn kin si am bכku tεm na di EEG rεkכd fכ bebi dεm we gεt Infantile Spasms.
Apat frɔm dat, di dɔktɔ kin tɛl yu fɔ du skan na yu bren lɛk CT (Computed Tomography) ɛn MRI (Magnetic Resonance Imaging) . Dɛn pikchɔ ya kin ɛp fɔ no if di bren de divɛlɔp fayn ɛn if ɛnitin dɔn pwɛl, infɛkshɔn, ɔ lɛsin de na di bren.
Wetin kin mek dis kayn tin apin?
Fɔ tɔk am simpul wan, ɛnitin we de pwɛl di pikin in bren kin mek di pikin gɛt spam. Sɔm tin dɛn kin apin bifo dɛn bɔn di pikin, ɛn ɔda wan dɛn kin apin afta dɛn bɔn am.
| Mek | Wan shɔt ɛksplen |
|---|---|
| Tuberous Sklerosis Kɔmpleks we de mek pɔsin gɛt sik | Dis na di tin we kin mek pɔsin gɛt dis sik. Wan kɔndishɔn we pɔsin kin gɛt we i kam pan jɛnɛtiks. di tכmכro dεm we nכ de fכ kansa de fכm na ples dεm lεk di bren, di skin, εn di kidni dεm. |
| Di kɔndishɔn dɛn we de na di jɛnɛtiks | Kɔndishɔn dɛn lɛk Down Syndrome. |
| Injury na di bren | Bren injuri we dɛn bɔn am ɔ afta dɛn bɔn am. |
| Bren we nɔ de wok fayn | di bren strכkchכ nכ de fכm fayn fayn wan na di bכdi. |
| Ɔksijɛn we nɔ de | di rεdyus כksijεn saplai to di bren we dεn bכn am. |
| Infεkshכn dεm na di bren | Infεkshכn dεm lεk mεningayt כ εnεfalaytis. |
| Vitamin B we nɔ de | Ɛspɛshali di vaytamɛn B6 we nɔ de. |
Sɔntɛnde, dɔktɔ dɛn nɔ kin ebul fɔ fɛn wan patikyula rizin fɔ dis. Bɔt wan tin klia. Nɔ pruf nɔ de fɔ se ɛni kɔnekshɔn de bitwin di vaysin we dɛn kin gi pikin dɛn ɛn dis kɔndishɔn. So nɔ fred fɔ dat we yu nɔ nid fɔ fred.
Wetin mek yu fɔ go to dɔktɔ wantɛm wantɛm?
Dis na di tin we impɔtant pas ɔl. If yu notis ɛni wan pan di pikin dɛn we de shek shek, we de stif , ɔ ɔda chenj dɛn we de apin na di we aw yu pikin de gro we wi tɔk bɔt na dis atikul, kɛr am go to dɔktɔ we de mɛn pikin dɛn wantɛm wantɛm ɛn nɔ de te.
Dis nɔto simpul tin lɛk di we aw pikin kin twitch ɔltɛm. Dis na siriɔs tin we kin afɛkt di bren. fכ no di sik kwik kwik wan εn trit am kwik kwik wan rili implεnt fכ di pikin in bren divεlכpmεnt fכ di fכs.
Fɔ mek dɛn no di sik, di dɔktɔ kin tɛl dɛn fɔ du blɔd ɛn urine tɛst, fɔ mek dɛn du EEG, fɔ skan in bren, ɛn sɔntɛm fɔ pank di lɔmba fɔ chɛk fɔ si if pɔsin gɛt infekshɔn lɛk mɛningaytis.
Mɛsej we dɛn kin kɛr go na os
- If yu pikin bigin fɔ shek shek wantɛm wantɛm, mek in bɔdi stif , ɔ tilt in ed insay wan grup, nɔ ignore am.
- Dis nɔto nɔmal twitch, bɔt kin bi sayn fɔ siriɔs sik we nid fɔ go to dɔktɔ wantɛm wantɛm.
- If yu fil se yu pikin de gro slo, ɔ if i tan lɛk se i de fɔgɛt tin dɛn we i dɔn lan (lɛk fɔ sidɔm, smayl), tɛl yu dɔktɔ wantɛm wantɛm.
- Ilɛk wetin mek di pikin gɛt dis sik, i impɔtant fɔ no di sik kwik kwik wan ɛn fɔ trit am fɔ mek di pikin in bren gro.
- Nɔr pruf nɔr de bitwin dis kɔndishɔn ɛn vaysin dɛm. So, nɔ skip di vaysin dɛm we yu pikin fɔ gɛt pan dɔktɔ advays.
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