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Wetin na Ambiguous Genitalia?
Fɔ tɔk am simpul wan, dis na sik we de apin we dɛn bɔn am. If na so i bi, i nɔ kin izi fɔ no klia wan se na man ɔ uman. Sɔntɛnde di ɔgan dɛn nɔ kin divɛlɔp fayn, ɔ dɛn kin gɛt man ɛn uman kwaliti dɛn.Di impɔtant tin na dat, dis nɔto sik. Dis na difrɛns pan mami ɛn dadi biznɛs. pan mεdikal tεm dεm, wi kin kכl dis "Difrεns fכ Sεks Divεlכpmεnt" ( DSD ).Bɔku tɛm, di we aw pikin de luk na do nɔ kin mach in insay sɛks (uterus, ovaries, ɔ testicles) ɔ in jɛnɛtik sɛks. Dis nɔto tin we rili kɔmɔn. I kin afɛkt lɛk 1 pan ɛvri 1,000 to 4,500 pikin dɛn.
Wetin na di sayn dɛm wae yu kin si pan dis kayn tin?
di men tin na dat di εksternal jεnitalia nכ de lεk nכmal penis כ vagina. Bɔt dis kin difrɛn frɔm wan pikin to ɔda pikin. I dipen pan di tin we mek i afɛkt di we aw i de du mami ɛn dadi biznɛs. Lɛ wi si aw dɛn kin si dis sik pan gyal pikin ɛn bɔy pikin dɛn jɛnɛtiks.| di kכntribyushכn dεm we dεn kin si if di pikin na uman in jεnεtik (XX) . | di kכntribyushכn dεm we dεn kin si if pikin na jεnεtik man (XY) . |
|---|---|
| di klitoris kin big pas aw i kin bi ɛn i kin tan lɛk smɔl penis. | di penis kin rili sכm (i kin luk lεk sכm penis) כ i nכ de divεlכp atכl. |
| di labia dεm de stכp tכgeda, i de lεk skrotum. | di urethral opin de na di bכs pat pan di penis, pas na di tכp. (Dɛn kɔl dis Hypospadias) |
| di abnכmal say we di urethral opin. | di skrotum sכm, i opin, εn i lεk di labia. |
| wan say we di tisu de insay di labia we dεn kin mistek tink fכ di tεstikul dεm. | di tεstikul dεm nכ dכn dכn dכn insay di skrotum. |
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Check Availability →Aw dɛn kin no dis sik? (Diagnosis) .
Bɔku tɛm, di mɛdikal tim kin no di sik we dɛn bɔn am. sכmtεm, skan we dεn bεlε kin gi wan clue, bכt dεn nכ kin kכnfכm am te afta dεn bכn di pikin. Yu dɔktɔ ɛn di mɛdikal tim go aks fɔs bɔt yu famili in mɛdikal istri. Dɔn, dɛn go nid fɔ du sɔm tɛst dɛn fɔ no udat na di pikin in tru tru man ɔ uman ɛn di rayt tin we mek i gɛt di sik.- bכdi tεst : Chεk di pikin in kromozom dεm (XX כ XY) εn di כmon lεvεl dεm.
- Imej tɛst: Tɛst dɛn lɛk ɔltra saund skan , ɛkstrem rayt , ɔ MRI skan de chɛk di ɔgan dɛn we de insay di pikin in bɔdi, lɛk di uterus , ovaria, ɔ tɛstikul .
- spεshal tεst dεm: insay sכm tεm dεm, dεn kin tek sכm sכm tisu frכm di jεnital fכ egzamin (Biopsy) כ dεn kin yuz sכmכl kεmεra fכ luk insay di bכdi (Laparoscopy).
Wetin kin mek dis apin?
dis kכndyushכn kin apin we wan tin de we de ambɔg di divεlכpmεnt fכ di jεnital dεm di fכs stej dεm we di pikin de divεlכp insay di bεlε. Bɔku men tin dɛn de we kin mek i apin:- Prɔblɛm dɛn we gɛt fɔ du wit ɔmon dɛn:di pikin we in jεnεtik man (XY) nכ de gεt inof man כmon fכ divεlכp man jεnitali, כ wan jεnεtik uman (XX) pikin de εkspos to man כmon.
- jεnεtik chenj dεm: mכtεshכn dεm na sכm jin dεm we de afekt sεks divεlכpmεnt (mutated genes).
- di kromozom abnכmaliti: Na abnכmal tin na di pikin in kromozom, lεk we i lכs כ gεt wan kromozom.
Di tin dɛn we kin mek pɔsin gɛt prɔblɛm
Famili istri kin ɛp bak. If pɔrsin na yu famili dɔn gɛt dɛn kayn sik ya, yu risk kin pas smɔl:- Bebi dɛn we de day bikɔs dɛn nɔ no wetin mek dɛn day.
- Di uman dɛn na di famili kin gɛt prɔblɛm fɔ bɔn pikin, dɛn kin lɛf fɔ gɛt mɔnt, ɔ dɛn kin gɛt ia we de gro pasmak.
- Ɔda pɔsin na di famili gɛt bɔdi we nɔ fayn.
- Abnɔmal tin dɛn we pɔsin kin du we i yɔŋ.
- Di sik dɛn we pɔsin kin gɛt frɔm in mama ɛn papa we kin afɛkt di adrenal gland dɛn, lɛk Congenital Adrenal Hyperplasia (CAH) .
Aw dɛn kin du di tritmɛnt ɛn wetin fɔ du nɛks?
Bikɔs dis na tin we rili kɔmpleks ɛn we rili impɔtant, nɔto wan dɔktɔ nɔmɔ kin disayd fɔ du sɔntin. Wan tim we gɛt spɛshal pipul dɛn go ɛp yu ɛn yu pikin. Dis tim kin tipikul inklud:- Neonatologist: Na dɔktɔ we spɛshal pan pikin dɛn we dɛn jɔs bɔn.
- Endocrinologist: Na dɔktɔ we spɛshal pan ɔmon dɛn.
- Jɛnɛtiks: Na spɛshal pɔsin we sabi bɔt jin ɛn kromozom.
- Yurolɔjis: Na spɛshal pɔsin we sabi bɔt di urinary ɛn riprodaktiv sistɛm.
- Dɔktɔ we de du ɔpreshɔn: Na dɔktɔ we de du ɔpreshɔn if nid de.
- Saikɔlɔjis: Na spɛshal pɔsin we de gi yu ɛn yu pikin saykilɔjik sɔpɔt.
Di pikin in fiuja
Na nɔmal tin fɔ mek yu gɛt kwɛstyɔn dɛn lɛk, "Mi pikin go ebul fɔ bɔn pikin tumara bambay?" ɛn "Yu tink se prɔblɛm go de bɔt in sɛkshɔnal aydentiti?"- Fɔ bɔn pikin dɛn:Sɔm pipul dɛn kin ebul fɔ bɔn pikin dɛn tumara bambay, i kin dipen pan wetin kin mek i gɛt dis sik. Fɔ ɛgzampul, gyal pikin dɛn we gɛt Congenital Adrenal Hyperplasia kin ebul fɔ gɛt bɛlɛ afta dɛn dɔn trit dɛn wit ɔmon.
- Jɛnda Aydentiti: Na di kromozom dɛn nɔmɔ nɔ de sho if pɔsin na jɛnɛral. di we aw di bren de wok ɛn di tin dɛn we de apin to di pɔsin we de wit ɔda pipul dɛn kin ɛp bak. So, i impɔtant fɔ tɔk bɔt dis wit wan dɔktɔ we gɛt ɛkspiriɛns ɛn disayd fɔ du sɔntin we go gi di pikin di bɛst tumara bambay.
Mɛsej we dɛn kin kɛr go na os
- Ambiguous Genitalia na wan sik we nɔ kin apin so ɔltɛm ɛn nɔto di mama ɛn papa fɔlt kin mek i apin.
- As dɛn dɔn no dis sik so, i rili impɔtant fɔ go to wan spɛshal mɛdikal tim fɔ ɛp yu. Nɔ mek yu wan disayd fɔ du sɔntin.
- Fɔ gi pikin jɔnda aydentiti na rili kɔmpleks disizhɔn. I fɔ tek tɛm tink bɔt ɔl di mɛdikal ripɔt ɛn advays dɛn.
- Mɔ impɔtant pas tritmɛnt na di sɔpɔt ɛn lɔv we dɛn de gi di pikin ɛn di wan ol famili pan aw i de fil.
- Tɔk to yu dɔktɔ opin wan bɔt ɛni kwɛstyɔn, fred, ɔ dawt we yu gɛt.
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