Sɔntɛnde, yu kin fil lɛk se yu nɔ de kɔntrol yu bɔdi smɔl smɔl? Yu nɔr balans we yu de waka, ɔltin kin rili slo, i kin tan lɛk se yu vɔys de shek... Pan ɔl we dɛn tin ya na nɔmal tin we kin apin as yu de ol, sɔm tɛm dɛn kin bi sayn fɔ wan kɔndishɔn we wi nɔ kin tɔk bɔt bɔku, bɔt i impɔtant fɔ no bɔt. Tide wi de tɔk bɔt dis kayn sik wae nɔr kin bɔrku bɔt wae gɛt siriɔs nervɔs sistɛm: Multiple System Atrophy, ɔr MSA.
Fɔ tɔk am simpul wan, wetin na Multiple System Atrophy (MSA)?
Multiple System Atrophy (MSA) na wan sik we de afɛkt wi nervɔs sistɛm. I kin afɛkt di ɔtomɛtik tin dɛn we wi bɔdi kin du, fɔ ɛgzampul, fɔ kɔntrol di we aw wi de muv ɛn fɔ mek wi balans . Na sik we nɔ kin bɔku.
Di sad tin na dat, no kɔmplit mɛrɛsin nɔr de fɔ dis sik yet. Bɔt nɔr wɔri, wit di rayt mɛrɛsin ɛn smɔl chenj na wi layf , wi kin kɔntrol dɛn sik ya ɛn layf kin izi.
Wetin na di sayn dɛm fɔ MSA?
Bɔrku tɛm , de sayn dɛm fɔ dis sik kin bigin fɔ sho bitwin 50 ɛn 60 ia. Sɔm pipul dɛn kin kɔnfyus di tu sik dɛm bikɔs di fɔs sayn dɛm kin fiba sɔm kayn wae fɔ Pakinsin sik.
| Men fɔs simptom dɛm | |
|---|---|
| Prɔblɛm dɛn we kin apin we pɔsin de muv | Di bɔdi de muv sloslo, di mɔsul dɛn de stif, ɛn i de shek. |
| Tink di rayt we | Lɔs fɔ balans ɛn fɔ mek yu nɔ ebul fɔ du natin we yu de waka ɔ du wok. |
| I nɔ izi fɔ tɔk | Tin dɛn lɛk vɔys we de shek shek ɛn wɔd dɛn we de slɔp. |
| Blɔd prɛshɔn prɔblɛm dɛn | Faint ɔ diziz, mɔ we yu tinap wantɛm wantɛm frɔm we yu sidɔm. |
| Prɔblɛm dɛn we de na di urinary system | Wan nid fɔ pis wantɛm wantɛm ɔ we i nɔ ebul fɔ ɛmti di blad ɔltogɛda. |
Apat frɔm dis, ɔda tin dɛn kin apin.
Apat frɔm dɛn men sayn ya, ɔda men tin dɛn we de apin na di bɔdi kin afɛkt bak.
- I nɔ de swet igen , i nɔ de kray , ɛn i nɔ de kɔmɔt fayn.
- Kɔnstipɛshɔn ɔ nɔ ebul fɔ kɔntrol di bɔdi we de muv .
- Erectile Dysfunction (ED) we de mek pɔsin nɔ ebul fɔ waka.
- Fɔ stɔp fɔ blo we yu de slip (slip apnea) ɔ fɔ akt we yu de slip, lɛk fɔ ala ɔ fɔ flay yu an ɛn leg.
- We pɔsin de swɛt.
- An ɛn fut dɛn we kol ɔ we nɔ gɛt kɔlɔ.
- I nɔ kin izi fɔ kɔntrol di filin, wɔri, ɔ pwɛl hat.
Tu men kayn MSA sik de.
Bay di men sayn dɛm, yu dɔktɔ go no us kayn MSA yu gɛt.
| MSA tayp | Men tin dɛn we de insay de |
|---|---|
| Di kayn sik we dɛn kɔl parkinsonian (MSA-P) . | Dis na di kayn we we pipul dɛn kin gɛt mɔ. Di men sayn dɛm kin rili fiba di sik we dɛn kɔl Pakinsin. Di mɔsul dɛn we de stif, we yu nɔ de muv sloslo, we yu de shek shek, ɛn we yu nɔ de balans na di men tin dɛn. |
| Di kayn sɛribɛl (MSA-C) . | Di men sayn na we yu nɔ de wok togɛda ɛn balans. I kin mek bak i nɔ izi fɔ tɔk, swɛla, ɛn nɔ kin si fayn. |
Aw fɔ no bɔt dis sik?
MSA kin tranga smɔl fɔ no fɔs bikɔs, lɛk aw wi bin dɔn tɔk, in sayn dɛn kin rili fiba di sik we dɛn kɔl Pakinsin. So, yu go nid fɔ go to dɔktɔ we de mɛn yu nyuro .
Yu dɔktɔ go chɛk yu, tɔk bɔt yu sik dɛn, ɛn luk fɔ chenj dɛn na yu bren ɛn yu nervɔs sistɛm. Fɔ no if yu gɛt MSA ɔr Pakinson, dɛn kin du dɛn tɛst ya:
- כtonomik tεst: Na spεshal tεst we de chεk aw di nεv sεstem de wok.
- MRI scan: Fɔ si if ɛni chenj de na di bren.
- Blɔd prɛshɔn fɔ mɛzhɔ: Dɛn kin mɛzhɔ blɔd prɛshɔn we yu sidɔm ɛn tinap.
- ECG test: Fɔ chɛk di ilɛktrik signal dɛn na di at.
- Swet tɛst: Fɔ tɛst aw di bɔdi de swet.
Wetin kin mek pɔsin gɛt MSA?
Fɔ tɔk am simpul wan, pɔsin we gɛt MSA kin gɛt wan spɛshal prɔtin we de bɔku na di sɛl dɛn we de sɔpɔt di nɛv sɛl dɛn na di bren. Dis kin mek sɔm pat dɛn na di bren ɛn spɛshal kɔd kin atrofi ɔ day smɔl smɔl. Masta sabi bukman dɛm se wi nɔr stil no wetin mek dis sik de kam.
Kɔmplikɛshɔn dɛm wae kin kam bikɔs ɔf di sik
Fɔ bɔrku pipul, de sik kin kam to siriɔs prɔblɛm insay sɔm ia, so e fayn fɔ no bɔt dɛn tin ya bak.
- I nɔ kin izi fɔ du di wok dɛn we pɔsin kin du ɛvride.
- difεlεns fכ brith, spεshal kכndishכn dεm lεk `Slip apnea`.
- Fɔdɔm ɔltɛm.
- I nɔ kin izi fɔ muv smɔl smɔl, i kin nid fɔ yuz wilchia ɛn leta i nɔ kin ebul fɔ grap na bed.
- Paralayz na di vokal kɔd dɛn.
- Nɔ ebul fɔ swɛla it.
- Infεkshכn dεm na di lכng lεk nyumonia.
- Infεkshכn dεm na di urinary tract.
- Blɔd we de klɔt.
De lɔng tɛm wae pɔrsin kin liv wit dis sik kin difrɛn frɔm pɔrsin to ɔda pɔrsin. Sɔm pipul dɛn kin liv fɔ 15 ia ɔ pas dat. Bɔrku tɛm, day kin bi bikɔs ɔf kɔmplikeshɔn wae kin kam wae pɔrsin nɔr kin ebul fɔ blo fayn.
Aw fɔ trit ɛn manej
Bikɔs no patikyula mɛrɛsin nɔ de fɔ MSA, di men gol fɔ tritmɛnt na fɔ kɔntrol di sik dɛn ɛn mek layf fayn as i pɔsibul.
Mɛrɛsin ɛn tritmɛnt fɔ mɛrɛsin
- Sɔmtɛm, mɛrɛsin lɛk levodopa, wae dɛn kin yuse fɔ trit dis sik wae de kam pan pɔrsin kin ɛp fɔ kɔntrol aw pɔrsin kin shek, aw pɔrsin kin stif, ɛn aw pɔrsin kin muv sloslo.
- Di dɔktɔ kin gi mɛrɛsin lɛk `droxidopa`, `fludrocortisone`, ɔ `midodrine` fɔ kɔntrol blɔd prɛshɔn.
- Sɔntɛnde, dɛn kin nid fɔ yuz pesmɛka fɔ mek di at rit fayn.
- Mεdikeshכn dεm lεk mirabegron כ oxybutynin kin εp fכ kכntrכl urinary. Sɔntɛnde, dɛn kin nid kateshɔn fɔ ɛp yu fɔ pas urine.
- Dɛn kin gɛt mɛrɛsin bak fɔ di wan dɛn we nɔ de du mami ɛn dadi biznɛs di we aw Gɔd nɔ want.
Di tritmɛnt dɛn we dɛn kin gi
- Fyzikal tritmɛnt ɛn ɛksesaiz kin mek di mɔsul dɛn strɔng ɛn ebul fɔ chenj.
- Occupational therapy kin ɛp yu fɔ lan aw fɔ du ɛvride wok izi wan.
- Tɔk tritmɛnt kin ɛp fɔ mek yu nɔ ebul fɔ waka ɛn fɔ tɔk.
Tin dɛn we yu kin du yusɛf na os
Dɛn tin ya kin ɛp fɔ mek yu layf izi smɔl, bɔt nɔ fɔgɛt fɔ tɔk to yu dɔktɔ bifo yu du ɛnitin.
- Fɔ mek yu blɔd prɛshɔn go ɔp, ad smɔl mɔ sɔl to yu it ɛn drink bɔku wata.
- We yu wɛr spɛshal kɔmpreshɔn stɔkin fɔ ɛp fɔ mek blɔd go ɔlsay.
- Nɔ grap wantɛm wantɛm fɔ sidɔm ɔ ledɔm. Get grap sloslo.
- Fɔ kip di ed fɔ di bed ɔp smɔl we yu de slip.
- It tin dɛn we gɛt fayv, vɛjitebul, ɛn frut fɔ mek yu gɛt kɔnstipɛshɔn.
- Nɔ mek di bɔdi wam pasmak.
- Muv as mɔ as yu ebul fɔ mek blɔd nɔ klɔt.
Mɛsej we dɛn kin kɛr go na os
- Multiple System Atrophy (MSA) na wan siriɔs sik we de go bifo ɛn we de afɛkt di nervɔs sistɛm.
- Bikɔs di fɔs sayn dɛm kin tan lɛk Pakinsin sik, i impɔtant fɔ go to dɔktɔ we de mɛn nyuro fɔ no di sik kɔrɛkt wan.
- Pan ɔl we nɔto kɔmplit mɛrɛsin fɔ dis sik, mɛrɛsin, tritmɛnt fɔ tritmɛnt, ɛn chenj di we aw pɔsin de liv in layf kin kɔntrol di sayn dɛn ɛn mek layf izi.
- If yu ɔr pɔrsin wae yu sabi gɛt dɛn kayn sik ya, nɔr panik ɛn go to dɔktɔ kwik kwik wan. Di sɔpɔt ɛn lɔv we di famili mɛmba dɛn gɛt rili impɔtant to di pɔsin we sik dis tɛm.
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