Oli mweraliikirivu olw’amabala n’ebiwundu ebyewuunyisa ku lususu lwo? Ka tuyige ku Mycosis Fungoides.

Ofunye ekizimba oba ekizimba ku lususu lwo mu bwangu naddala mu bitundu ebitali mu musana, gamba ng’olubuto oba mu bisambi? Ziyinza okusiiwa oba okulabika ng’ekizimba. Wadde abantu bangi balowooza nti kino kizibu kya lususu ekya bulijjo, oluusi kiyinza okuba akabonero akasooka ak’embeera y’olususu etali ya bulijjo eyitibwa Mycosis Fungoides. Teweeraliikiriranga, kino tujja kukyogerako mu bujjuvu.

Mu ngeri ennyangu, Mycosis Fungoides kye ki?

Erinnya liraga nti omuntu alina obulwadde bwa ffene, naye si bwe kiri. Mycosis Fungoides mu butuufu mbeera ereetebwa obutoffaali bwa T, ekika ky’obutoffaali obweru mu musaayi gwaffe, okufuuka obutoffaali bwa kookolo.

Lowooza ku kino, obutoffaali buno obwa T bulinga abaserikale mu mibiri gyaffe. Omulimu gwabwe kwe kutukuuma endwadde nga balwanyisa obuwuka nga akawuka ne obuwuka obuyingira mu mubiri. Naye mu bulwadde buno, obutoffaali buno obwa T bwe bumu bufuuka butoffaali bwa kookolo ne butandika okukosa olususu lwaffe.

Obulwadde buno buli mu kibinja kya kookolo ekiyitibwa Cutaneous T-cell Lymphoma (CTCL) . Kwe kugamba, bulwadde bwa T-cell lymphoma obukosa olususu. Kale jjukira nti ono si kookolo wa lususu, kookolo wa musaayi akwata olususu. Si butoffaali bwa lususu, wabula obutoffaali bwa T obuli mu musaayi bwe bufuuka obutoffaali bwa kookolo wano.

Bubonero ki obulaga obulwadde buno? Kikyuka kitya okuva ku mutendera okudda ku mulala?

Obubonero bwa Mycosis Fungoides tebujja mangu. Zilabika mu mitendera, nga waliwo enkyukakyuka mu lususu. Kyokka, si buli muntu nti afuna emitendera gino gyonna. Abantu abamu bayinza okuba n’emitendera egiwerako mu kiseera kye kimu.

Okusobola okwanguyirwa okutegeera, katutunuulire emitendera gino.

Embeera eno bw’efuuka ey’amaanyi, obutoffaali bwa T obwa kookolo bungi butandika okutambula mu musaayi. Obutoffaali buno buyitibwa obutoffaali bwa Sézary . Singa obutoffaali buno buba bungi nnyo mu musaayi, embeera eyo eyinza okukula n’efuuka embeera eyitibwa Sézary Syndrome . Kino kiyinza okuvaako ekizimba ekimyufu mu mubiri gwonna.

Lwaki ekintu nga kino kibaawo?

Ekituufu ekivaako kino tekinnamanyika , naye abakugu balowooza nti enkyukakyuka mu buzaale eyinza okukola kinene. Mu ngeri ennyangu, kirowoozebwa nti ensobi mu DNA mu butoffaali bwaffe zireetera obutoffaali bwa T okufuuka kookolo.

Naye ekikulu kiri nti enkyukakyuka zino ez’obuzaale teziyisibwa okuva ku mulembe okudda ku mulala. Ekyo kitegeeza nti tozikulaakulanya olw’okuba bazadde bo baalina. Abanoonyereza bakyanoonyereza oba obutwa oba yinfekisoni ezimu ezibeera mu butonde ziyinza okuvaako kino.

Omusawo kino akizuula atya?

Okuzuula obulwadde buno kiyinza okukusoomooza katono kubanga mu ntandikwa, obubonero bwabwo bufaanagana nnyo n’embeera z’olususu eza bulijjo nga eczema oba psoriasis. N’olwekyo kizibu okumanya oba Mycosis Fungoides ng’otunudde ku lususu lwokka.

N’olwekyo, omusawo wo ajja kukola okukeberebwa okulala okuwerako okukakasa oba okugaana obulwadde buno.

• Okukebera olususu: Kino kye kigezo ekisinga obukulu. Kizingiramu okuggya akatundu akatono mu kitundu ky’olususu ekikoseddwa n’okakebera mu laabu.Sampuli eno ey’ebitundu by’omubiri ekeberebwa okuzuula obutoffaali bwa kookolo obukwatagana ne Mycosis Fungoides. Kiyinza okwetaagisa okukola ebigezo ebiwerako eby’okukebera omubiri okuzuula obutoffaali bwa kookolo obutuufu.
• Okukebera omusaayi: Baggyibwako omusaayi ne batunuulirwa enkyukakyuka mu butoffaali bw’omusaayi n’obubonero obumu obw’eddagala.
• Enkola y’okukuba ebifaananyi: Okukebera nga CT scan oba PET scan kuyinza okukolebwa okulaba oba kookolo asaasaanidde mu nnywanto oba ebitundu ebirala eby’omunda.

Omutendera gw’obulwadde guzuulibwa gutya?

Obulwadde buno bwe bunazuulibwa, abasawo bajja kusalawo ‘omutendera’ gwabwo. Kino kigabanyaamu kookolo w’asaasaana n’engeri gy’ali, okuva ku mutendera I okutuuka ku IV. Kino kikulu nnyo mu kutegeka obujjanjabi obusinga obulungi gy’oli.

Nga osalawo ku mutendera guno, ensonga zino wammanga zitunuulirwa:

• Enkula y’ebiwundu by’olususu (amabala, amayumba, amayumba).
• Ebiwundu bino bye bibunye ku lususu.
• Kookolo ono asaasaanidde mu bitundu by’omubiri ebiyitibwa lymph nodes?
• Obutoffaali bwa kookolo buyingidde mu musaayi?
• Busaasaanidde mu bitundu by’omubiri ebirala ng’oggyeeko olususu?

Bujjanjabi ki obukolebwa ku kino?

Obujjanjabi bwa Mycosis Fungoides businziira ku mutendera gw’obulwadde buno n’enkyukakyuka mu lususu lwo. Ekigendererwa ekikulu eky’obujjanjabi obusinga kwe kufuga obubonero n’okukuuma omutindo gw’obulamu bwo.

Omusawo ayinza okukuwa obujjanjabi nga buno:

• Obujjanjabi obulung’amya olususu: Buno bujjanjabi obusiigibwa butereevu mu bitundu by’olususu ebikoseddwa. Mu bino mulimu eddagala eriweweeza ku mubiri, eddagala eriyitibwa steroids, retinoids, n’eddagala eriweweeza ku kitangaala .
• Enkola y’obujjanjabi: Lino ddagala eriweebwa ng’empeke oba mu misuwa. Zikwata obutoffaali bwa kookolo mu mubiri gwonna. Eby'okulabirako mulimu eddagala nga methotrexate .
• Obujjanjabi bw’abaserikale b’omubiri: Kino kizingiramu okusitula abaserikale baffe bennyini okuzuula n’okusaanyaawo obutoffaali bwa kookolo.
• Obujjanjabi obugendereddwamu: Eddagala lino lizuula butereevu era ne lisaanyaawo obutoffaali bwa kookolo bwokka, bwe kityo ne kikendeeza ku kwonoona obutoffaali obwa bulijjo.
• Radiation therapy: Okukozesa emisinde gy’amaanyi egy’amaanyi okusaanyaawo obutoffaali bwa kookolo oba okuyimiriza okukula kwabwo.

Chemotherapy, obujjanjabi bwe tutera okuwulira nga twogera ku kookolo, tebukozesebwa nnyo ku bulwadde buno kubanga tebukola nnyo ku bulwadde buno era bulina ebizibu bingi.

Obulamu bunaaba butya n’obulwadde buno?

Obulwadde bunoTewali ddagala lyonna n’okutuusa kati. Naye teweeraliikiriranga. Abantu bangi bwe bazuulibwa amangu n’okujjanjabibwa, basobola okubeera mu bulamu obwa bulijjo nga tebalina bubonero bwonna okumala emyaka.

Enteebereza yo esinziira ku bintu ebiwerako, ng’ekisinga obukulu ku byo gwe mutendera gw’obulwadde.

Okusinziira ku bibalo, singa kizuulibwa mu mitendera egy’olubereberye (entandikwa), emikisa gy’okuwangaala emyaka 10 giri waggulu nga 95%. Singa obulwadde buba bwa maanyi (advanced-stage), ekiseera kino kiyinza okukendeezebwa okutuuka ku myaka esatu ku etaano. Naye jjukira nti zino nnamba zokka. Ebintu bingi bikosa kino, gamba ng’emyaka gyo n’obulamu bwo okutwalira awamu. N’olwekyo, omusawo wo yekka y’asobola okukuwa ennyonyola esinga obulungi ku mbeera yo.

Kino kisobola okuziyizibwa? Nkole ntya?

Tewali ngeri ekakasiddwa ey’okuziyiza Mycosis Fungoides okukula. Naye waliwo by’osobola okukola okukendeeza ku bulabe bw’obulwadde okugenda mu maaso okutuuka ku mutendera ogw’amaanyi ennyo. Kwe kugamba, genda okwekebejjebwa abasawo buli kiseera.

Ekisinga obukulu kwe kukebera olususu lwo wekka waakiri omulundi gumu mu mwezi. Genda mu ndabirwamu otunule mu mubiri gwo gwonna. Noonya amabala amapya, ebizimba, enkwaso oba enkyukakyuka mu langi oba sayizi y’ezo eziriwo. Bw’olaba enkyukakyuka yonna, tozibuusa maaso n’ogenda ew’omusawo w’ensusu amangu ago. Gy’okoma okuzizuula amangu, obujjanjabi gye bukoma okukola obulungi.

Ebibuuzo by’olina okubuuza omusawo wo

Bw’ozuulibwa ng’olina obulwadde buno, oyinza okuba ng’olina ebibuuzo bingi mu birowoozo byo. Toziyiza kintu kyonna, buuza omusawo wo.

• Bujjanjabi ki bwe nnina?
• Waliwo ebizibu byonna ebiva mu bujjanjabi buno?
• Omukisa guli gutya obulwadde okuddamu oluvannyuma lw’okujjanjabibwa?
• Kiki ekibaawo singa sifuna bujjanjabi?
• Kiki kye nnyinza okukola okutangira obulwadde buno obutadda?