I fate hian kal a harsat em? Balance tha lo tak a nei niin a lang em? Hemi (Ataxic Cerebral Palsy) chungchang hi han sawi ila!

A châng chuan i fa tê chu a kal laiin a nghing deuh tih i hre tawh mai thei a, a nih loh leh thil pakhat man tûra i kut i phar chuan a kut chu a che deuh niin a lang. "Aw, ka fa hi a mak mai mai," tiin i ngaihtuah tawh mai thei. Nu emaw pa emaw hian hetiang thil an hmuh hian hlauhna nasa tak an nei hi thil pangngai tak a ni. Mahse heng zawng zawng hnuaiah hian damdawi lam chhan a awm mai thei. Chu chu `(Ataxic Cerebral Palsy)` tih chu a ni.

Chuti a nih chuan hei hi eng nge ni (Ataxic Cerebral Palsy)?

A awlsam zawngin, `(Ataxic Cerebral Palsy)` hi kan naupangte chetna a ti nghet lo va, chubakah balance leh coordination lama harsatna a thlen bawk. A châng chuan i fate "depth perception" a nghawng thei bawk . Chu chu thil pakhat a lian zia leh anmahni atanga a hlat zia hriatthiam theihna a ni. Ngaihtuah teh, i fa chuan inkhelhna thil pakhat man tumin a kut a phar a, mahse a kut chu a pan nghal lo va, chu ai chuan a kal leh zel zawk a ni. Hei hi a chhan chu thluak atanga kut thlenga thuchah kal ngai te hi a dik leh a hun takah a kal loh vang a ni. Chu chu, he dinhmun hi thluak atanga taksa peng leh chetna control tu pathways (`(brain pathways)`)-a inthlak danglamna a awm hian a lo awm tihna a ni. Hei hi damdawi lama `(Ataxia)` kan tih \henkhat chu a ni.

Hetiang dinhmun hi a hluar em?

Dik tak chuan ``Ataxic Cerebral Palsy'' hi ``Cerebral Palsy'' chi khat zingah chuan a awm lo ber a ni. ``Cerebral Palsy'' vei hmuhchhuah zinga pakhat aia tlem chuan hetiang ``Ataxic'' hi an nei a ni. Chuvangin, a natna hi a tlem hle.

Hetiang natna (Ataxic Cerebral Palsy) hi eng nge a lan chhuah?

Tunah chuan hetiang natna vei naupangah hian eng symptom nge i hmuh theih ang tih hi han en ila. Chungte chu naupang pakhatah a inang lo deuh thei a, mahse a lan chhuah dan tlangpui chu:

• Tremors: I kut leh keah a khur tlem thei a, chu chu ding reng emaw, thil tih tum lai emaw pawhin a ni thei.
• Incheina dik tak siam harsa: Dawhkan chunga no pakhat chu kut i phar tum a, mahse i kut chuan a thleng dik lo emaw, hmun dik lovah i thlen tum emaw han mitthla teh.
• Overcorrection: A hmaa kan sawi tawh ang khan thil pakhat i kut i phar tum a, tihsual i neih hian i kut chu siam that nan a tul aia nasain i sawn leh thin .
• Inremna ngai chetna tih harsa: Entirnan, kutbeng emaw, ziak emaw ang chi hnaah harsatna engemaw zat i nei thei a, hengte hian kut leh kut zungtang inremna tha tak a mamawh avangin.
• Kal dan nghet lo leh balance hloh: I kal laiin i nghet lo thei a, i tlu dawn ang maiin i inhria thei bawk.
• Wide gait: Kal lai hian ke hi hip-width aiin a zau zawk a, hei hi balance neih tumna a ni.
• Thusawi leh ei harsa: Thusawi emaw, ei leh in tur ei harsa emaw i nei thei.
• Slow eye movement: Mit che vel chakna chu a tlangpui aia slow zawk a ni thei.
• Target paltlang mit: Thil pakhata i mit i dah hian i mit chu target kal pelin, a awmna dik takah kir leh tum ang maiin a lang thei.

A châng chuan, heng naupang tête chetna hi sawi lawk theih loh a nih avângin, chu chu kawng khata kal leh kawng danga kal tihna a nih avângin, pâwn lam aṭanga entu chuan naupang chu fimkhur lo mai mai, a nih loh leh "rui" mai mai niin a ngai mai thei. Mahse chutiang chu a ni lo, chutiang chu he dinhmun hi a ni.

Chu chuan engtin nge inbiakna chu a nghawng?

`(Ataxic Cerebral Palsy)` hmang hian i fate thusawi control tu ruh te, chubakah an ei theihna te pawh a nghawng thei a ni. Hei hian "scanning speech" tih dinhmun a thlen thei a ni. Chumi awmzia chu thumal emaw, syllable emaw inkarah an ding thei a, an chawlhsan thei tihna a ni a, an thusawi chu monotonous a ni thei tihna a ni a, chu chu tone inangah an sawi tihna a ni a, ritch leh expression engmah a danglam lo tihna a ni. A châng chuan thawk ri nasa tak a awm thei bawk.

He natna hian taksa peng engte nge a nghawng?

He natna (Ataxic Cerebral Palsy) hian naupang taksa peng pakhat chauh ni lovin, hmun engemaw zat a nghawng thei a ni. A nghawng theihna hmun lian ber berte chu:

• Ke te
• Kut a ni
• Kut leh kut zungtang
• Mit
• Throat muscle te a awm

Ataxic Cerebral Palsy hi engte nge ni?

Hetiang dinhmun kan neih chhan ber chu kan thluak hmun thenkhat cerebellum tih chhiatna a ni . He i thluak peng cerebellum an tih hi a takin movement leh coordination control tu a ni. Kan taksa che vel control tu computer te tak te ang maiin han ngaihtuah teh. Chuvangin, he hmun pawimawh tak hi a chhiat chuan ``Ataxic Cerebral Palsy'' a lo awm ta a ni.

He thluak hi a chhiat theih dan kawng hrang hrang a awm a. Naupai lai emaw, nau neih lai emaw, nau piang hnu rei vak lovah emaw hian thluak hi a tichhe thei a, chu chu hetiang hi a ni:

• Thluak lama thisen kal tlem: Hei hi ``ischemic stroke'' an ti bawk.
• Thluaka thisen chhuah: Hei hi hemorrhagic stroke an tih a ni.
• Infection avanga thluak chhiatna.
• Traumatic brain injury (TBI) chu lu a chetsualna avanga thluak chhiatna a ni.

Chu bakah, he natna hi genetic variation thenkhat (genetic variants / mutations) vang pawh a ni thei tih hmuhchhuah a ni bawk. Hemi chungchangah hian zirchianna dang neih mek a ni.

Risk factors te chu engte nge ni?

Nu (naute hrintu nu) emaw, naute emaw hian a hnuaia dinhmunte hi a neih chuan Cerebral Palsy (Ataxic Cerebral Palsy chauh ni lovin, Cerebral Palsy a tlangpuiin) vei theihna a sang thei a ni:

• Naupai laia naute emaw, nausen emaw a nghawng thei natna hrik chu fimkhur hle a ngai a ni .
• Preterm birth chu a pian hun hmaa nau neih a ni.
• Naupai laiin harsatna a awm thin. Entirnan, placental abruption emaw uterine rupture ang chi thilte hian nausen pum chhunga thisen kal chu a ti tlem thei a ni.
• Vawi khata nausen pum chhunga fa tam tak neih (e.g. twins, triplets).
• Naute hi a pian tirh atanga a rihna a hniam hle a ni.
• Nau piang hnuah jaundice na tak a lo awm a, enkawl tha a ni lo.

Hei hian heng thil nei zawng zawng hian cerebral palsy an vei vek dawn tihna a ni lo va, mahse a hlauhawmna chu a sang deuh tihna a ni .

Ataxic Cerebral Palsy natna avanga harsatna awm thei te chu engte nge ni?

Hetiang dinhmun hian harsatna engemaw zat a thlen thei a ni. Chungte chu:

• Uncoordinated movements: Hemi chungchang hi kan sawi tawh a. Hei hian nitin hna thawh a harsat phah thei a ni.
• Tlu leh accident hlauhawmna a sang. Balance tha lo vangin awlsam takin i tlu mai thei.
• Motor hnathawhna lama hmasawnna tlai: Entirnan, naupang dangte aiin crawling, walking leh grasping te hi a tlai zawk thei.

Chu bâkah, hmuh tam lo mah se, naupang ṭhenkhat chuan rilru lama harsatna emaw, seizures emaw ang chi natna an nei thei bawk. Mahse, hei hi a tlem hle.

Ataxic Cerebral Palsy hi rilru lama harsatna a ni em?

Hei hi nu leh pa tam takin zawhna an neih a ni. Naupang ``Ataxic Cerebral Palsy'' vei zawng zawng hi rilru lama harsatna nei vek an ni lo. A tam zawkah chuan he dinhmun hian naupang finna a nghawng lo va, chu chu ``rilru lama harsatna a thlen lo tihna a ni.'' Mahse, mi tlemte chauhvin chutiang nghawng chu an tawk thei a ni. Hetiang dinhmun hi naupang hrang hrangah a inang lo. Naupang che vel a nghawng ber a ni.

Engtin nge he dinhmun hi kan hriat theih ang?

Doctor chuan nausen lai emaw, naupan lai emaw hian he natna (Ataxic Cerebral Palsy) hi a hmuchhuak tlangpui. A hmasa ber chu naupang chu uluk taka enfiah (physical exam) a ni. Tichuan, a tul chuan doctor chuan test dang (follow-up testing) neih belh a rawt thei bawk.

Doctor chuan i fate chezia te, a thanlenna kawng hrang hrang te, leh i natna lan chhuahna dang eng pawh a zawt ang che. Doctor chuan i fa chu a taksa ruh (muscle tone), motor skill leh coordination te enfiah turin a enfiah bawk ang.

Eng ang test nge tih thin?

Naupang enfiahnaah ``Ataxic Cerebral Palsy'' a vei tih a hriat chuan doctor chuan thluak chhiatna a awm leh awm loh enfiah turin imaging test a ti thei ang. Tin, natna dang, symptom inang nei te chu paih chhuah tumin test an ti thei bawk. ``Ataxic Cerebral Palsy'' hriat theihna atana test tih theihte chu:

• MRI test (Magnetic Resonance Imaging test): Hei hian thluak thlalak chipchiar tak a hmu thei a.
• CT scan (Computed Tomography scan): Hei hi thluak thlalak lak dan dang a ni.
• EEG test (Electroencephalogram): Hei hian thluaka electrical activity a test a, a bik takin seizure ang chi condition te enfiah nan a hmang thin.
• Thisen leh zun test a ni.
• Thusawi tehna (evaluation) a ni.
• Mit enfiah a ni.
• Genetic testing: Hei hi a chang chuan genetic cause a awm em tih hriat nan an ti thin.

Ataxic Cerebral Palsy hi eng enkawlna nge ni?

`(Ataxic Cerebral Palsy)` enkawlna atan a hnuaia mite hi tih theih a ni:

• Coordination practice turin home exercise neih a ni.
• Taksa lam enkawlna, hnathawhna lama enkawlna, leh/ emaw thusawi hmanga enkawlna te. Hengte hi a pawimawh hle. Physical therapy hian kea kal leh balance ang chi thil a tichangtlung thei a ni. Occupational therapy hian nitin hna i thawh theih nan a pui che a, chu chu incheina leh ei leh in te hi a ni. Speech therapy hian thusawi leh ei harsatnaah a pui a ni.
• Brace emaw wheelchair emaw ang chi support te. Hengte hi a tul anga hman tur a ni.
• Muscle tih hahdamna a ni. Hengte hi taksa ruh (muscle stiffness) tihtlem nan pek thin a ni.

I fa healthcare team chuan i fa chu an symptoms enkawl dan tur leh a theih ang anga independent turin an pui ang. Ataxic Cerebral Palsy hi tihdam theih vek a ni lo. Chuvangin, symptoms enkawl hi dam chhung zawnga tih tur a ni. I doctor nen enkawlna avanga nghawng tha lo awm thei te chu sawiho rawh. Chu chuan fimkhur tûr thilte chu a hriatthiamtîr ang che.

He dinhmun hi hun kal zelah a zual zel dawn em ni? (Prognosis / Hriat dan tur) .

Hei hi nu leh pa tam takin an hlauh em em a ni. Mahse `(Ataxic Cerebral Palsy)` hi hun kal zelah a zual zel `(progressive)` a ni lo. Chumi awmzia chu naupang a lo puitlin chuan a dinhmun a na zual lo tihna a ni. Mahse, a natna lan chhuah dan chuan naupang a lo puitlin chuan a nghawng thei a ni. Chuvangin, dam chhung zawnga he natna hi enkawl turin medical team puihna a ngai a ni. Enkawlna dik tak an neih chuan mi tam zawk chuan mahni inrintawkna neia hnathawh dan an zir thei a, mahni in enkawl theiin, an chhehvela him takin an inher kual thei bawk.Chu chu thlamuanna ropui tak a ni lawm ni?

Hei hian dam chhung a nghawng em?

Ataxic Cerebral Palsy hian mi dam chhung hi direct-in a nghawng lo. Hetiang natna vei te hi an dam rei zawng chu a pangngai atanga a pangngai hnaih ber a ni. He natna hian a chang chuan harsatna dang a thlen thei a, mahse, chu chu tihziaawm thei enkawlna a awm.

Engtikah nge doctor i hmuh ang?

I fate zingah chetna danglam tak i hmuh chuan (e.g., khur, mit chetna slow), emaw, i fain kum nena inmil thil tih a harsat hmel hle a nih chuan (e.g., kea kal, thusawi) doctor pan ngei ngei tur a ni. Diagnosis a hma chuan a tha zawk.

Tin, i fa a tlu a, hliam na tak a tuar chuan damdawi inah hruai nghal la, a nih loh leh 1990 (kan ram emergency ambulance service) ah call rawh.

Doctor hnenah eng zawhna nge i zawh tur?

Doctor hnenah i fa chungchang i sawi dawnin hetiang zawhna hi zawh a pawimawh:

• ``Doctor, ka fa diagnosis chungchang hi tlem tal i sawifiah thei ang em?''
• ``Naupang natna lan chhuah dan tur enkawlna tha ber chu eng nge ni?''
• ``Heng enkawlna atang hian eng thil tum nge kan beisei tur?''
• ``Heng enkawlnate hian side effect a nei em? Eng nge an nih?''
• ``Ka fa tanpui thei tur assistive devices a awm em?''
• ``Naupang chu eng chen nge physical therapy emaw occupational therapy emaw pek tur?''

Hetiang zawhna zawh hian nang leh i fate tan engkim chiang taka hriatthiam a pawimawh hle.

A tawp berah chuan thil hriat reng tur (Take-Home Message) .

``Ataxic Cerebral Palsy'' tih natna hi naupang tan chuan enkawl a harsa deuh thei. Naupang chuan engtiang pawhin bei mah se, thil engemaw thlen emaw, inthlauhna vawng reng emaw a tum chuan thluak a kaihhnawih chu a inbiakpawhna mumal lo a, chu chuan hna thawh zawh a harsat phah a ni. Nu leh pate’n hetiang an hmuh hian lungngaihna an nei hi thil pangngai tak a ni.

Mahse a pawimawh ber chu i fate tanpui thei tur enkawlna a awm tih hi a ni. Physics therapy leh occupational therapy ang chi thilte hian i fate balance leh coordination tihchangtlun nan a pui thei a ni. Tichuan, i fa chu a lo upat deuh deuh chuan an cheziaah an inringtawk zawk ang a, anmahni chauhin thil an ti thei ang. Chuvangin, beiseina nen, he zinkawng hi i fa nen kal rawh.

Nangmah chauh i ni lo. Doctor leh therapist te chu nang leh i naute tanpui turin an awm reng a ni. An thurawn zawm a pawimawh hle.

` Ataxic Cerebral Palsy, Cerebral Palsy, Movement Disorders, Balance, Coordination, Naupang hriselna, Thluak lama harsatna te