I naute thluak thenkhat chu a lu atang hian a rawn chhuak em? Hei hi encephalocele an ti a!

Naute ṭhenkhat chu an lu ruh-ah khur te tak te neiin an piang a, an thluak ṭhenkhat chu a chhuak chhuak tih i hmu tawh mai thei, a nih loh leh i hre tawh mai thei bawk. Nu leh pa tu pawhin hei hi an hmuh hian an hlauthawng hi thil pangngai a ni. Vawiin hian he natna encephalocele an tih hi kan sawi dawn a ni. Ngaihtuah buai suh, chipchiar leh awlsam takin kan sawi dawn a ni.

Encephalocele chu eng nge ni?

A awlsam zawngin sawi ila, encephalocele hi piansualna a ni a, naute luruh ruhte chu a inkhar tha lo va, chu chuan thluak tissue a rawn chhuak a ni. Hei hi luruh atanga balloon te tak te lo chhuak ang mai a ni thei.

Hetiang dinhmun hi neural tube defect vang a ni . Tunah chuan he neural tube hi eng nge a nih i ngaihtuah mai thei. A awlsam khawp mai. Naute chu nausen pum chhunga nau pai a nih hnuah, kar hmasa lamah chuan naute thluak leh ruhro chu tube ang maiin a lo thang lian tan thin. Hei hi neural tube kan tih chu a ni. He neural tube chunglam hi a khar tha lo a nih chuan he natna encephalocele an tih hi a lo awm thin. Hei hi a chang chuan natna tenau tak a ni thei a, a nasat em avangin nunna atana hlauhawm tak a ni thei bawk.

Encephalocele chi hrang hrangte chu engte nge ni?

Encephaloceles hi luruh chhunga an awmna hmun a zirin an thliar hrang a. A hnuaia hmun hrang hrangah hian an awm ber a ni:

• Occipital: Naute lu hnung lamah, a kawr bulah. Hei hi a tam ber chi a ni.
• Parietal: Lu chung lamah, hnunglam hawiin.
• Frontoethmoidal (Sincipital an ti bawk): Naute hmai chu dinglamah a awm a.
• Sphenoidal: Lu chhungah, mit hnung lamah leh beng hmaah a awm. Hei hi pawn lam atanga hmuh theih a ni lo mai thei.

Chu bâkah, doctor-te chuan hei hi chi hnih-ah an ṭhen a, chu chu lu hma lam emaw, lu hnung lam emaw a nih dan azirin a ni:

• Anterior: Naute lu ruh hmalam.
• Posterior: Naute luruh hnung lamah.

Hetiang dinhmun hi engtiang chiahin nge a awm?

Encephalocele hi a awm lo hle a ni. America ang ram statistics i en chuan he natna hi naute piang 10,500 zinga pakhat vel ah a awm thin. Chu chu kum khatah naute 375 vel tihna a ni. Sri Lanka ramah hian statistics dik tak hmuh harsa hle mah se, hei hi hmun tinah thil awm lo takah ngaih a ni.

Naute encephalocele vei chu eng ang nge a nih?

Nausen piang tharin encephalocele a neih chuan an lu ruh chhungah khur a inkhar kim lo tih i hmu thei. Chuvângin, thluak tissue chu vun khuh bawm ang maiin luruh chhûnga khur aṭangin a rawn chhuak a ni . Lu atanga balloon rawn chhuak ang mai a ni. A khur awmna hmun azirin, sac-ah hian sam ang chi a awm thei.

He luruh chhunga khur hi lu chungah khawi hmunah pawh a awm thei. Mahse, hmaiah emaw, lu hnung lamah emaw, kawr hnaihah emaw hmuh tur a tam ber.

Encephalocele natna lan chhuah dan chu engte nge ni?

Hetiang natna lan chhuah dan hi mi hrang hrangah a inang lo thei. Luruh chhunga khur lian leh te, a awmna hmun leh thluak atanga chhuak engzat nge awm tih ah te an innghat a ni. A lan chhuah dan tlangpui thenkhat chu:

• Lu na (a bik takin naupang kum upa zawk emaw, a hnua hmuhchhuah a nih chuan) .
• Mit hmuhna lama harsatna a awm
• Ke ruh leh ke ruh (muscle) chak lohna
• Pian tirh atanga beisei aia lu te zawk
• Ataxia (kal emaw, che emaw a inthlauhna) .
• Facial deformities (a bik takin hmai chhehvel) .
• Hnar natna (hnar chhungah encephalocele a awm chuan) .
• Hnar emaw beng atanga spinal fluid leak

A châng chuan, thluak chhunga tui ang chi tui a awm khawm vang pawh hian symptoms a awm thei bawk (hei hi hydrocephalus an ti a ni ).

Encephalocele natna avanga harsatna awm thei te chu engte nge ni?

Encephaloceles te tak te thenkhat chu harsatna lian tham awm lovin a bo thei bawk. Mahse, a then phei chuan hun rei tak chhung harsatna a awm thei. Chung zingah chuan:

• Hmasawnna tlai (e.g., thusawi tlai, kea kal) .
• Thinlung lama harsatna nei
• Mit hmuhna lama harsatna a awm
• Taksa lama thanlenna tihkhawtlai
• Seizures a awm thin

Engte nge encephalocele awm chhan?

A tam zawkah chuan encephalocele hi pianpui natna a ni. Chu chu nausen pum chhunga a la awm laia thil thleng a ni tihna a ni. Mahse, a tlem hle a, a hnuah lu hliam, thluaka tumor, emaw, thil dang hmuh tur awm lo, idiopathic intracranial hypertension

Congenital encephalocele hi a hmaa kan sawi tawh neural tube chunglam a khar tha lo a nih chuan a awm thin. He neural tube hi naute thluak leh ruhro (spinal cord) a lo pian hmasak berna tissue a ni. Naupai kar thumna emaw, kar linaah emaw chuan tube ang deuhah a chang a, uluk taka khar a ngai a ni. He top hi a khar tha lo a nih chuan luruh chu a insiam kim lo ang. Chuvang chuan naute thluak thenkhat chu he khur atang hian a chhuak thin.

Neural tube khar dik loh chhan dik tak chu hriat a la ni lo a, mahse zirchianna chuan a hnuaia thilte hian hmun a chang thei tih a tarlang:

• Genetic changes (nau pai lai a thil thleng) .
• Naupai laiin nuin a kai theih natna thenkhat (e.g. Toxoplasmosis , Rubella , Cytomegalovirus) ., Herpes Simplex Virus (Herpes Simplex Virus ) te a ni a, a chhuahna tur hmun leh a hmanna tur a awm lo.
• Nervous system natna thenkhat (e.g. Type 3 Chiari Malformation) .

Encephalocele hi damdawi lam thil dang thenkhat vang pawh a ni thei bawk. Entir nan:

• Walker-Warburg Syndrome natna a ni
• Knobloch Syndrome natna a ni
• Roberts Syndrome natna a ni
• Amniotic Band Syndrome natna a ni

Encephalocele vei theihna tur risk factors te chu engte nge ni?

I chhungkuaa mi tu emaw chuan neural tube defect (NTD) a nei tawh a nih chuan i vei theihna a sang deuh hlek a ni. Tin, naupai hma leh naupai laiin folic acid (vitamin B9) i ei tlem chuan neural tube defect nei naute neih theihna a sang zawk bawk.

Engtin nge encephalocele hi hmuhchhuah a nih?

A tam zawkah chuan i doctor hian i naupai laiin ultrasound scan pangngai (routine ultrasound scan) hmangin he natna hi a hmu thei a ni. Ringhlelna a awm chuan i doctor pawhin nau neih hmaa MRI scan neih a rawt thei bawk. Hei hian natna chungchang hi a hriat belh theih a ni.

Hetiang dinhmun hi naute pian hnua enfiah a nih chuan a dik tih finfiah theih a ni. Hei bakah hian thisen test leh scan dangte pawh tih a ni a, hei hi eng thil nge a thlen tih leh engtin nge naute a nghawng tih hriat tum a ni. Chumi ang chuan enkawl dan tur ruahman a ni.

Encephalocele hi hmuhchhuah lohvin a awm thei em?

Ni e, a chang chuan a thleng thei. A bik takin encephaloceles te tak te, naute hnar emaw hmai emawa awm te hi a chang chuan hriat lohvin an awm thei. Heng te te hian naute piang tharah hian symptom lian tham an nei lo tlangpui a, an lo puitlin chuan harsatna an siam lo bawk.

Encephalocele hi eng enkawlna nge ni?

Hetiang natna enkawlna ber chu luruh siamthat leh thluak tissue lo chhuak chu lakchhuahna surgery a ni. A tam zawkah chuan thluak atanga luruh atanga lo chhuak chu a thawk thei lo va, lakchhuah theih a ni. A châng chuan a khur chu a te a nih chuan thluak chu luruh chhungah dah leh a ni a, chutah chuan surgeon chuan luruh chu a siam ṭha leh ṭhin.

He surgery hi nau piang atanga ni engemaw zat chhung emaw, thla hmasa berah emaw, kum khat chhunga tih thin a ni tlangpui. Encephalocele lian leh te, a awmna hmun leh naute a nghawng nasat danah a innghat a ni.

A pawimawh ber chu hetiang naute hian vawi khat aia tam surgery an neih a ngai tlangpui. Facial malformation an neih chuan operation an neih a ngai a, hydrocephalus an neih chuan surgery an neih a ngai bawk.

I naute a lo upat deuh deuh chuan ṭanpuina dang a mamawh mai thei. Entir nan:

• School-ah zirtirna bik programme hrang hrang neih a ni
• Seizure i neih chuan damdawi ei la .
• Mit lama harsatna nei tan glasses

Enkawlna hian side effect a nei em?

Surgery dang ang bawkin, side effect awm thei engemaw zat a awm. Mahse, lungngai suh, i naute medical team hi an training tha hle. Heng hlauhawmnate hi tih tlem tumin theihtawp an chhuah ang.

A hlauhawmna thenkhat chu:

• Kaichhawng
• Spinal fluid a leak thin
• Thisen chhuak

Luruh khur hi a lian a, thluak hmun zau tak a inrawlh chuan thluak lama harsatna awm theihna a sang zawk. Enkawlna i tan hmain i fa doctor hnenah heng side effects te hi sawipui hmasa phawt ang che.

Naute encephalocele vei chu a dam thei ang em?

Ni e, naute encephalocele vei te chu an dam thei. Luruh siam thatna tura surgery neih hian an dam khawchhuah theih nan a pui thei a ni. Mahse, naute luruh khur lian zawk nei te hian naute khur te zawk nei te aiin symptom leh complication an nei tam zawk thei. Chuvang chuan nunna tichhe thei emaw, dam rei thei lo emaw an nei tam zawk a ni.

Research atanga a lan dan chuan naute luruh hma lama khur nei te hian hnungzang lama khur nei naute aiin outcome tha zawk an nei tih hmuhchhuah a ni.

Thihna rate hi engtin nge a awm?

U.S. Centers for Disease Control and Prevention (CDC) ang pawlte data atanga a lan dan chuan encephaloceles lian tak tak thihna hi 45% vel a ni. Chumi awmzia chu damchhuah theihna chance chu 55% a ni tihna a ni. He hlauhawmna hi luruh chhunga khur lian leh te, a awmna hmun leh naute pian tirh atanga a hriselna zawng zawng a zirin a pung thin.

Encephalocele hi ven theih a ni em?

Encephalocele laka inven dan tur chiang tak a awm lo. Mahse, neural tube defect nei naute neih theihna chu i ti tlem thei a ni. A pawimawh ber chu folic acid tam tawk neih hi a ni.

Naupai i tum a nih chuan i naupai hmain doctor rawn la, thurawn la rawh. I doctor chuan ni khatah folic acid 400 mcg (micrograms) ei turin a hrilh thei che a, chutih lai chuan naupai i tum lo a nih pawhin. Hei hi naupai thla thum khatnaah neural tube defects (NTDs) a awm vang a ni. Chumi awmzia chu i naupai tih pawh i hre lo fo tihna a ni. Chuvang chuan folic acid ei hmasak a pawimawh.

Tin, i chhungte zingah tu emaw neural tube defects (NTDs) nei tawh a nih chuan, a nih loh leh fa nei tawh i nih chuan i doctor hnenah hrilh rawh. Chumi hnuah chuan i doctor chuan nakin lawkah neural tube defects (NTDs) venna kawngah a pui thei ang che.

Engtikah nge Doctor i hmuh ang?

Naupai i tum a nih chuan preconception counselingHemi chungchang hi doctor nen sawiho rawh. Nausen piangsual nei i neih theihna tur a tihziaawm theih nan hriselna tha tak neih theih nan an pui thei che a ni.

I doctor hnenah eng zawhna nge i zawh tur?

I naute hian encephalocele a vei tih i hriat chuan zawhna tam tak neih hi thil pangngai a ni. Hetiang zawhna hi zawh hreh suh:

• Khawiah nge ka naute luruh khur chu?
• Ka fa hian operation a mamawh em?
• Surgery hian eng side effect nge a neih?
• Ka fa chu operation hnuah engtin nge ka enkawl ang?
• Eng complication nge ka fimkhur tur?
• Ka fa hian kum nena inmil hmasawnna tur thil pawimawh tak tak a hloh a nih chuan engtin nge ka tih ang?

Naute encephalocele vei neih hi emotional tak tak a ni. A bik takin i naute enkawl lai hian lungkhamna leh tanpui theih lohna nasa tak i nei thei a ni. I naute chu operation atanga a dam chhung chuan damdawi inah a awm a ngai dawn a ni. Hetih lai hian chhungte leh ṭhiante nen hual vel la, i mamawh hun apiangah ṭanpuina pe thei che a ni.

Mi tam tak chuan mental health counselor -te biak hian thlamuanna nasa tak an hmu a, a bîk takin beisei loh taka naupang an boral hnuah. Encephalocele avanga harsatna lo thleng hian naupang chu a lo puitlin chuan a nghawng thei a ni. Chuvangin, i fa doctor hmu fo la, a thanlenna leh a dam lehna tur chu en reng ang che.

I tan thuchah pawimawh tak (Take-Home Message) .

Encephalocele hi natna hlauhawm tak ni mahse, a hmaa hriatchhuah leh enkawl dan dik a nih chuan naute tam tak chu hlawhtling takin an dam thei a ni. A pawimawh ber chu naupai hmaa folic acid ei a, doctor thurawn zawm tur a ni. Hemi chungchanga zawhna i neih chuan Doctor biak pawh hlau suh. Nangmah chauh i ni lo tih hre reng ang che.

` Encephalocele, piansualna, neural tube chhiatna, thluak natna, naute hriselna, naupai hriselna, folic acid