I fa hian a ke emaw, a kut emaw a na tih a phunnawi fo em? Inkhelh laiin tlu avanga hliam tuar chu thla tam tak hnuah pawh a reh lo mai thei? Chungte chu naupangte tihsual avanga hliam tenau emaw, hliam emaw angin kan ngai fo thin. Mahse, a châng chuan, hetiang ang chi symptom bul ṭan hi thil pawi zawk chhinchhiahna a ni thei. Vawiin hian cancer hmuh tur awm lo, mahse pawimawh tak, kan hriat vek tur kan sawi dawn a ni. Chu chu Ewing Sarcoma a ni.
A awlsam zawngin Ewing Sarcoma chu eng nge ni?
Ewing sarcoma hi cancer chi khat a ni a , ruh emaw a chhehvela soft tissue emaw ah a lo awm thin . Soft tissue-ah hian kan taksa ruh, kan ruh (tendon) leh kan ruh (ligaments) te hi a tel a ni. Heng tumor te hi hip, ribs, shoulder, thigh, collarbone ang chi hmunah te a awm tam ber.
Hetiang dinhmun hi naupangte zingah a tam ber a , chutih lai chuan an ruhte chu a thang chak hle a ni. A bik takin kum 10 leh 20 inkar te a nghawng a, mahse naupang naupang zawk leh puitling naupang kum 20 leh 30 hnuai lam te pawh a nghawng thei bawk.
Ewing sarcoma chi hrang hrang lian ber ber a awm em?
Ni e, doctor-te chuan hei hi chi thum lian tak an hmuchhuak a ni. Eng nge an nih i en ang u.
| Cancer chi hrang hrang | Hrilhfiahna awlsam tak |
|---|---|
| Ewing sarcoma chu ruh a ni | Hei hi a tam ber chi a ni. A hming ang bawkin he cancer hi ruh chhungah direct-in a lo chhuak thin. |
| Extraosseous Ewing tumor (EOE) atanga lo chhuak a ni. | Hetah hian cancer hi ruh chhehvela soft tissue, muscle leh fatty tissue-ah a lo piang a. |
| A rilru a hah lutuk chuan a rilru a buai em em a, a rilru a hah lutuk chuan a rilru a buai em em bawk a. PPNET . | Hetiang chi hi a danglam deuh. Ruh atang emaw, soft tissue ah emaw a intan thei. Nerve tissue atang hian a intan thin. |
He natna lan chhuah dan engte nge ni? Nu leh pa ka nihna anga ka hriat tur thilte
He natna lan chhuah dan hi a chang chuan natna tlanglawn dang nen pawh awlsam takin a inzawm thei a, chuvangin hei hi hriat a pawimawh hle.
I fa chu cricket a khel a, a kekawrte chu a na tih a sawi fo thin tih han ngaihtuah teh. Bowl laia thil thleng hrehawm mai mai niin i ngai. Mahse, a natna chu thla tam tak chhung a awm tawh a, a bik takin zan lamah, chutah chuan hliam tenau a awm a nih chuan ngaihthah mai mai chu a tha lo.
A pawimawh ber chu naupangin natna a phunnawi chhunzawm zel chuan ngaihthah suh. Doctor pan a tha ber a, a bik takin a natna chhan chiang tak a awm loh chuan.
A hnuaia tarlan te hi Ewing sarcoma natna lan chhuah dan tlangpui tarlan a ni.
| Symptom a ni | Thu belhchian dawl zawk |
|---|---|
| Ruh a na | Hei hi a lan chhuah dan tlangpui a ni. Natna chu a lo thleng thei a, a kal bo thei bawk. Zanah natna hi a na zual thei a, a bik takin naupang mut atanga kaihthawh thei khawpa na a nih chuan. |
| Tumor emaw, a hring emaw | Cancer hi i kutah i hriat theih tur lump emaw swelling emaw angin a lang thei. A khawih chuan a lum hle thei a, a na thei bawk. Chûngte chu kut, ke emaw, rilruah emaw a lang thei a ni. |
| Chhan awm lova khawsik | A chhan dang (hnar chhuak, khuh, khawsik ang chi) nei lovin khawsik chhunzawm zel a awm thei. |
| Chhan awm lova ruh tihchhiat | Cancer hian ruh a tichak lo thei a, accident lian tak (khum atanga thawh ang chi) a nih loh pawhin a chhe thei. Doctor-te chuan hei hi ‘pathological fracture’ tiin an sawi. |
| Thil dang pawh a awm | Taksa rihna tlahniam nghal leh chau reng reng ang chi thil hi a thleng thei a, mahse hengte hi taksa peng dangah cancer a darh tawh chauhvin hmuh tur a awm fo. |
Engvangin nge hetiang natna hi a lo awm?
He zawhna hi nu leh pa tam tak hnenah a lo thleng thin. "Thil dik lo kan ti em?" Mahse chu chu thudik a ni lo.
Ewing sarcoma hi naupang pian hnua genetic mutation atanga lo awm a ni a . A awlsam zawngin kan cell-a gene pahnih (EWSR1 leh FLI1) te chu an inzawm khawm a, faulty gene thar an siam a ni. He gene thar hian cell te chu thunun theih lohvin a inthen darh a, cancer tumor a siam a ni.
A pawimawh ber chu hei hi thlahtu natna a ni lo tih hi a ni. Tin, zirchiangtute chuan cancer chi dang ang bawkin pawn lam thil, meizuk emaw, chemical inhriatthiamna emaw avanga lo awm a ni tih an hmu lo. Hei hi a chhan chu naupang tê tê leh puitling tleirawl, hun rei tak chhûng chutiang thila inhmuhna hun remchâng nei loteah a lo ṭhang chho fo vâng a ni. Chuvangin, hei hi tu mah tihsual vang a ni lo.
Risk factors a awm em?
He natna hi tu pawhin an vei thei a, mahse pawl thenkhatah chuan tlem chuan an hlauhawm zawk tih hmuhchhuah a ni.
- Kum: Kum 10 leh 20 inkar te hi an hlauhawm ber.
- Gender: Hmeichhia aiin mipain an vei tam zawk.
- Hnam: He natna hi Asian emaw, mipa dum emaw aiin mipa hring zingah a tam zawk.
Engtin nge doctor-te hian he natna hi dik taka an hriat theih?
I fate natna lan chhuah dan i rinhlelh avanga Doctor i pan chuan a tih hmasak ber chu i fate uluk taka enfiah hi a ni. A natna emaw, a hring emaw a hriat chuan nang leh i fa chu a natna lan chhuah dan a zawt ang a, chutah chuan a natna hriat chian nan test hrang hrang a ti ang.
1. Imaging test: Hengte hian taksa chhunga ruh leh soft tissue te thlalak a la a.
- X-ray hmanga enfiah a ni
- CT scan a ni
- MRI scan a ni
- PET hmanga scan a ni
- Ruh scan a ni
2. Biopsy: Hei hi natna 100% a finfiahna test a ni . Hetah hian tumor atanga tissue te tak te tak te chu lakchhuah a ni a, microscope hmangin an enfiah thin. Hei hian cancer nge Ewing’s sarcoma tih chiang takin a hrilh ang che.
3. A rilru a hah lutuk chuan a rilru a buai em em a.Thisen test: Thisen chhiar kim (CBC) leh enzyme level dang (LDH ang chi) te hian cancer awmzia leh a darh tawh loh hriatna engemaw zat a pe thei a ni.
Hei hi eng enkawlna nge ni?
Ewing sarcoma hi oncologist team ten an enkawl thin a ni. Enkawl dan tur chu damlo hrang hrangah a inang lo thei. Tumor lian leh te, a awmna hmun leh hmun dangah a darh tawh leh tawh lohah a innghat a ni.
Enkawl dan tlangpui chu:
- Chemotherapy: Hei hian taksain cancer cell thattu damdawi pek a huam a ni. Chemotherapy hi tumor tihtlem nan pek hmasak a ni tlangpui. Chumi hnuah operation hnuah cancer cell la awm zawng zawng tihhlum nan chemotherapy pek leh a ni.
- Surgery: Chemotherapy hmanga tumor a lo tlem hnuah operation hmangin a chhuak vek a ni.
- Radiation Therapy: A then phei chuan high-energy rays hmangin operation hnua cell la awmte emaw, operation avanga tumor chu a chhuah kim theih loh chuan tihchhiat nan an hmang thin.
Ram changkang thenkhatah chuan cancer hi ruhroah a darh loh chuan autologous stem cell transplant ang chi enkawlna an hmang bawk. Enkawlna thar zirchiang mek clinical trial -ah pawh i tel thei mai thei bawk. Hemi chungchang hi i doctor nen inbiakna neihpui la, a chipchiar zawkin i hre thei ang.
Enkawlna avanga side effect leh hun rei tak chhunga nghawng a neih dan
Cancer enkawl hi a awlsam lo. Chemotherapy leh radiation therapy hian hun rei lote chhunga side effects a thlen thei a, chu chu sam tlakchham, luak chhuak, leh hahna te a ni. Hun rei tak chhunga nghawng (late effects) pawh a awm thei a, chu chu enkawlna a tawp hnu thla emaw kum emaw hnuah a lo lang thei bawk.
- Internal organs (thinlung, kal) a nghawng dan .
- Naupang hmasawnna a nghawng dan
- Rilru hriselna lama harsatna (lungkhamna, lungngaihna) .
- Zirna leh hriatrengna lama nghawng a neih
- Nakin lawka nau neih theihna tura nghawng a neih dan
Chuvangin, enkawl lai leh enkawl hnu pawha doctor enkawlna hnuaia awm chhunzawm zel a pawimawh hle.
Engtin nge kei hian nu leh pa angin ka fate hi ka puih theih ang?
Naupangin cancer a vei tih hmuhchhuah a nih chuan chhungkua pumpui chu a inthen darh vek a ni. Chu chu thil pangngai a ni. Mahse he hun khirh tak karah hian i fa hian a hma aia nasa zawkin a mamawh che a ni.
Ngaihtuah teh, tleirawl lai hian naupangte rilru a sang leh hniam reng a, an hmel lan dan leh an thiante an ngaihtuah nasa hle. Chutiang huna cancer dona a ngaih chu an tuar theih loh phurrit a ni thei.
- Dawhthei takin ngaithla rawh:An hlauhthawnna te, thinrimna te, leh lungngaihna te sawi chhuah phalsak rawh. "Ngaihtuah suh" tih ai chuan an thusawi ngaihthlak a tha zawk.
- Nitin nun: Inenkawlna avanga sikul kal leh thiante nena inkhelh theih loh tur chu an lungngai hle mai thei. A theih ang anga ṭhiante nena inzawmna nei reng turin fuih la (video call ang chi) leh in lama an tih theih tur hobby-ah te inhmang turin fuih bawk ang che.
- Nangmah pawh ngaihtuah teh: I fa enkawl tur chuan i chak hmasak phawt a ngai a ni. Nang pawhin he thil hi i hmachhawn harsat a nih chuan i rintlak mi pakhat nen inbia ang che. A tul chuan psychological counselling zawng rawh.
- Damdawi lam team nên hna thawk ho rawh: I fa dinhmun, a enkawl dân, leh a nghawng ṭha lote chu chiang takin hre rawh. Zawhna zawh hreh suh.
Hei hi chhungkua anga kan hmachhawn ho zinkawng a ni. He harsatna hi inṭanpui tawnna leh inhmangaihna nen kan hneh thei a ni.
Take-Home Thuchah a ni
- Ewing Sarcoma hi cancer chi khat hmuh tur awm lo tak a ni a, naupang leh puitling naupangte ruh leh soft tissue te a nghawng ber a ni.
- Sawifiah loh, ruh na reng reng (a bik takin zanah), hring hring emaw, lump emaw i neih chuan ngaihthah suh la, doctor pan nghal rawh.
- He natna hi nu leh pa emaw naupang emaw sual vang ni lovin, genes random change avanga lo awm a ni.
- Enkawl dan (chemotherapy, surgery, radiation) hi harsa viau mahse, result hlawhtling tak a pe a ni.
- He zinkawng harsa tak karah hian naupang chuan damdawi lam enkawlna a mamawh a, chubakah chhungte hmangaihna, enkawlna leh rilru lama tanpuina a mamawh bawk.
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