Lupus (Systemic Lupus Erythematosus - SLE) hi i hre tawh em? Kan sawi dawn nia!

A châng chuan ngaihtuah phak loh khawpa hahna, taksa na, ruh na, a nih loh leh i vunah vun natna i nei em? Heng thilte hi vawi khat emaw vawi hnih emaw chauh ni lo, vawi khatah vawi tam tak i tawn chuan a chhan chu lupus an tih natna a ni thei. Ngaihtuah buai suh, he hming hi thil lian tak angin lang mah se, dik taka hriattirna leh enkawlna dik tak i dawn chuan a tam zawka thunun theih dinhmun a ni. Vawiin hian lupus chungchang hi i hriatthiam theih tur awlsam takin kan sawi dawn a ni.

Lupus chu eng nge ni? A awlsam zawngin i hrethiam ang u.

A awlsam zawngin, lupus hi kan taksa immune system a thawk tha lo vanga lo awm a ni . A tlangpuiin kan immune system hian natna leh hrik lakah min venghim thin. Mahse lupus vei taksaa thil thleng chu he immune system hian anmahni taksa cell leh tissue hrisel tak takte chu a bei sual a ni. Ngaihtuah teh, he hmuna thil thleng hi kan ram venghimtu sipai, kan ram mipuite bei sual ang mai a ni. Doctor-te chuan hei hi ` autoimmune disease` an ti a.

Chutianga immune system-in a beih chuan, taksa hmun hrang hrangah inflammation , chu chu a hring, a sen, leh a na tihna a ni. Hei hian taksa peng eng pawh a nghawng thei a ni. Entir nan:

• I vun
• Thisen
• Junction hrang hrangah a awm
• Kidney a ni
• Thluak
• Thinlung
• Chuap

Natna thar emaw, vun rawng emaw, vun, sam, mit inthlak danglamna i hmuh chuan doctor pan a pawimawh hle.

Lupus chi hrang hrangte chu engte nge ni?

Doctor-te chuan lupus chungchang an sawi hian ``Systemic Lupus Erythematosus (SLE)'' an ti fo thin. Hei hi lupus chi khat zingah chuan a tam ber a ni. ``SLE'' tih awmzia chu he natna hian i taksa pum a nghawng tihna a ni. Tin, chi dang engemaw zat a awm bawk:

• Cutaneous lupus erythematosus: Hetiang lupus chiah hian i vun chauh a nghawng a ni .
• Drug-induced lupus: Damdawi thenkhat hian side effect angin lupus symptoms a thlen thei. Mahse, hei hi hun eng emaw chen atan a ni fo . Chumi awmzia chu damdawi ei a chawlhsan hnuah a natna lanchhuahna chu a bo thei tihna a ni.
• Neonatal lupus: Hei hi a tlem hle. A chang chuan nausen piang tharte hian lupus an vei thei bawk. Lupus vei nu atanga naute piang zawng zawng hian lupus an vei vek dawn lo a, mahse a hlauhawmna tlem a awm thei.

Lupus natna lan chhuah dan chu engte nge ni?

Lupus hi natna chi hrang hranga lang chhuak a ni. Chumi awmzia chu mi hrang hrangah symptoms a inang lo thei tihna a ni , natna nasat dan pawh a inang lo. Mi thenkhatin symptoms na tak tak an nei a, thenkhat erawh chuan symptoms na lo zawk an nei thung.

Lupus symptoms hi a tlangpuiin a kal zel lo.. An lo kal a, an kal leh thin. Symptoms pung hun chhung hi "flare-up" kan ti thin. Heng hun chhung hian symptoms a nasat em avangin nitin hnathawh pawh i ti thei lo. Tin, natna lan chhuahna a tlahniam emaw, a lan loh emaw pawh a awm bawk. Chungte chu "remission" an ti a.

Symptoms hi a tlangpuiin a lo lang zauh zauh thin . A tirah chuan symptom pakhat emaw pahnih emaw chauh a lang thei a, mahse a hnuah chuan symptom tam zawk a lo lang thei a, a awmsa pawh a danglam thei bawk.

Heng a lan chhuah dan tlangpui thenkhat chu hetiang hi a ni:

• Joint na, muscle na, rilru na (a bik takin thawk lak hian) .
• Lu na
• Skin rash (a tam zawkah chuan butterfly ang maia lang, hmai sir lehlamah hmui leh hnar atanga tlan chhuak - ``Butterfly rash`` - hmuh tur a awm)
• Khawsik
• Sam tlakchhamna
• Kawngkhar natna
• Chronic fatigue (chau reng reng) .
• Thâwk harsa (`(Dyspnea)`) .
• Glands a lo hring chhuak
• Kut, ke emaw, hmai emaw a hring chhuak
• Rilru tibuai
• Thisen a chhuak thin

Lupus hian a chang chuan hriselna lama harsatna dang a thlen thei a, chungte chu:

• Photosensitivity ( ni êng laka sensitivity) 1.1.
• Mit a vawt
• Depression emaw rilru lam harsatna dang emaw a awm thei
• Epileptic natna (`Seizures`) a awm thei.
• Thisen a hemoglobin tlahniam (anemia) .
• Raynaud’s syndrome (khaw lum laiin kut zungtang leh ke ruhte a sen, a sen) .
• Osteoporosis (ruh hring hring) .
• Lung natna
• Kal natna

Eng thilin nge lupus hi a thlen?

Mithiamte chuan lupus awm chhan dik tak chu an la hre lo a , mahse zirchiannaah chuan thil engemaw tak chuan lupus lo awm chhan hi a thlen thei tih hmuhchhuah a ni.

• Genetic factors: I genes-ah hian inthlak danglamna engemaw zat (genetic mutations) i neih chuan lupus i vei theihna a sang zawk. Chumi awmzia chu i chhungkuaa mi tu emaw chuan a neih chuan nang pawhin i tihhmasawn theihna chance tlemte i nei tihna a ni.
• Hormone: Taksain hormone thenkhat, a bik takin estrogen a dawn dan hian lupus natna lo awm turah hian chanvo a nei nia ngaih a ni. Hei vang hian lupus hi hmeichhiaah a tam zawk a ni.
• Environment factors: I chenna hmuna thil awmte, entirnan, boruak bawlhhlawh leh ni chhuahna hian lupus vei theihna a nghawng thei a ni.
• I hriselna chanchin: Meizial zu mi, stress nasa tak i neih emaw, autoimmune natna dang i neih chuan lupus vei theihna a sang thei.

Tute nge lupus vei theihna sang zawk?

Tu pawhin lupus an vei thei a, mahse pawl thenkhatah chuan an hlauhawm zawk:

• Hmeichhia: A bik takin hmeichhia kum 15 leh 44 inkar.
• Mihring dum.
• Hispanic mite an ni.
• Asian (he pawlah hian kan tel ve bawk).
• Native American, Alaska Native leh First Nations mite an ni.
• Pacific Island-a awmte an ni.
• Nu leh pa pakhat lupus vei nei te.

Engtin nge lupus hi an hriat theih?

Lupus hriatchhuah hi a chang chuan a harsa deuh thei. Taksa peng hrang hrang tam tak a nghawng avangin a natna lan chhuah dan pawh a inang lo thei hle. Doctor chuan taksa enfiahna leh test thenkhat tih hmangin lupus a hriat theih ang .

Doctor emaw nurse emaw chuan i natna lan chhuah dan chu ngun takin a ngaithla ang. I natna lan chhuah tirh atanga i hriat zawng zawng te, eng inthlak danglamna nge i hriat te, leh a hmaa i natna te leh tuna i damdawi ei mek te hrilh vek rawh.

I tana thil mak nia i hriat zawng zawng, thil tenawm tak pawh ni se, i doctor hnenah hrilh hreh suh. Nang aia i taksa hi tumahin an hre chiang lo.

Lupus hmuhchhuah nan eng test nge tih thin?

Lupus i vei tih finfiahna test pakhat mah a awm lo . Doctor te chuan natna dang tihbo nan ``differential diagnosis`` an hmang tlangpui . Chumi awmzia chu i natna lan chhuah chhan hriat tumin test engemaw zat an ti a, lupus i vei tih an sawi hmain natna dang an mawhphurtu a ni lo tih an enfiah hmasa thin tihna a ni. Chumi atana hman theih test thenkhat chu:

• Thisen test: Hengte hian i immune system hnathawh dan te, natna hrik i neih leh neih loh te, thisen tlakchhamna ang chi condition i neih leh neih loh te, thisen cell count hniam i neih leh neih loh te a enfiah thin.
• Urinalysis: Hei hian i zun ah natna hrik emaw hriselna lama harsatna dang emaw a awm leh awm loh enfiah nan a pui thin.
• Antinuclear antibody (ANA) test: Hei hian antibody a awm leh awm loh a test thin. Antibodies hi protein marker a ni a, chu chuan kan taksain natna a do dan chanchin a tarlang a ni. Lupus vei tam tak chuan heng ANA antibodies te hi an nei sang hle. Hei hian immune system a overactive tih a tilang a ni.
• Skin or kidney biopsy: A chang chuan vun emaw kidney atanga tissue te tak te lakchhuah a ni a, microscope hmangin immune system in a tichhe em tih enfiah a ni.

Lupus enkawlna tur engte nge ni?

I doctor chuan lupus natna hi i natna lan chhuah dan control leh enkawl turin a rawt ang che . Hetah hian thil tum ber chu:

• Taksa peng chhiatna tih tlem.
• Lupus natnain i nitin nunah nghawng a neih tihtlem.
• Flare-ups awm lohna tur.
• Natna nasa tak a thlen hun chhunga natna lan chhuahna nasatzia tihtlem.

Lupus vei tam tak chuan damdawi engemaw zat inzawmkhawm an mamawh a ni.A hnuaia damdawi thenkhat hi i mamawh mai thei:

• Hydroxychloroquine: Hei hi natna tidanglam thei antirheumatic drug (DMARD) an tih class-a awm a ni. Lupus symptoms tihziaawmna leh natna kal zel dan tur control turin a pui bawk.
• Nonsteroidal anti-inflammatory drugs (NSAIDs): Hengte hi over-the-counter (OTC) damdawi lei theih a ni a, natna leh inflammation (swelling) tihziaawmna a ni. I doctor chuan eng NSAID chi nge i tan a tha tih leh eng chen nge i ei tur tih a hrilh ang che. Hengte hi doctor thurawn lo chuan vawi khatah ni 10 aia tam ei loh tur a ni.
• Corticosteroids: Hei hi damdawi chak tak, doctor-in inflammation tihziaawmna atana a pek a ni. Prednisone hi corticosteroid a ni a, lupus natna atana hman tlanglawn tak a ni. Pill angin emaw, injection angin emaw direct-a ruh (joint)-ah pek theih a ni.
• Immunosuppressants: Heng damdawi te hian i immune system hnathawh tihtlem leh control in hna a thawk a, tissue tihchhiat leh inflammation venna atan a pui thin.

Heng damdawi chi hrang hrang bakah hian symptom bik i neih emaw, lupus vanga hriselna lama harsatna dang (e.g. thisen tlakchhamna, thisen sang, ruh hring) te tan enkawlna hran i mamawh thei bawk.

Lupus i vei chuan eng nge i beisei theih ang?

Lupus hi dam chhung zawng (`chronic`) natna a ni . Hei hian i dam chhungin lupus symptoms i hmachhawn a, i enkawl a ngai dawn tihna a ni.

Lupus hi a sawi lawk theih loh hle . Chumi awmzia chu a nghawng dan che chu a hun hunah a danglam thei tihna a ni. Chuvangin, i symptoms inthlak danglamna enfiah turin doctor i pan fo tur a ni .

Lupus natna vei i zir chhoh zel chuan doctor team nen thawhhona i neih a ngai dawn a ni . I chhungkaw doctor (primary care provider) chuan i mamawh specialist te chu a rawn rawt ang che. A tam zawkah chuan rheumatologist — autoimmune natna hriatchhuah leh enkawl thiam doctor i hmu ang. Specialist dang i mamawh chu i symptoms leh i taksa a nghawng danah a innghat ang.

Lupus hi a dam kim thei em?

Vanduaithlak takin tunah hian lupus damdawi hi a la awm lo . Mahse, i doctor chuan i natna lan chhuahna control-na tur leh remission hun engemaw chen i neih theihna tura puitu tur enkawlna inzawm zawng turin a pui thei che a ni — chu chu i natna lan chhuah lohna emaw, i neih tlem lutuk emaw hun chhung a ni.

Lupus hi ven theih a ni em?

Mithiamte chuan lupus thlentu dik tak an la hriat loh avangin, ven theih dan tur a awm lo . I nu leh pa zinga pakhatin lupus a vei chuan i doctor nen i risk chungchang sawipui rawh.

Lupus flare-ups hi engtin nge kan ven theih ang?

Lupus hi ven theih ni lo mah se, flare-up tihtlem leh venna tur thil engemaw zat a awm. Hei hian i natna lan chhuahna tizual thei thilte pumpelh a huam a ni.

• Ni chhuah loh tur: Mi thenkhat tan chuan hun rei tak ni chhuahna hian lupus symptoms a ti na zual thei. Chuvangin, ni peak hun (a tlangpuiin zing dar 10 a.m. leh tlai dar 4 inkar)-ah pawn lama i hun hman kha tihtlem rawh. Pawnah i chhuak a nih chuan, kawrfual kawr sei, lukhum, leh ni laka invenna thawmhnaw ha rawh. Sunscreen SPF 50 aia tlem lo hmang rawh .
• Tay active: Joint natna hian a chang chuan che emaw exercise emaw a ti harsa thei. Amaherawhchu, zawi zawia che leh exercise hi natna lanchhuahna te, natna leh ruh na te tihziaawmna tha ber a ni. Kea kal, cycle khalh, tui chawi, yoga, leh tai chi te hi i ruhkawr chungah pressure nasa lutuk siam lovin i taksa tihchet dan tha tak a ni. I doctor hnenah exercise i tih theih tur him tak tak zawt rawh.
• Mut tam la, i rilru hriselna enkawl rawh: Lupus natna nena nun hi a chang chuan a buaithlak thei. Mut tlem (puitling tan darkar 7-9) leh stress tihziaawmna hian mi thenkhat chu flare-ups an neih loh nan a pui thei a ni. Psychologist emaw, mental health counselor dang emaw chuan i hmachhawn dan tur siam turin a pui thei che a ni.

Engtikah nge Doctor ka hmuh ang?

Symptom thar i neih chuan, emaw, i symptoms a danglam nia i hriat chuan doctor pan nghal rawh. I symptoms-a inthlak danglamna tenau te pawh hi a pawimawh thei hle.

Tuna i enkawlna hian i lupus symptoms a control lo nia i hriat chuan i doctor hnenah hrilh rawh . Flare-up i neih tam zawk emaw, i symptoms a na zual emaw a nih chuan doctor hnenah hrilh rawh. I doctor chuan a tul angin i enkawlna chu a siamrem thei che a ni.

Emergency-ah, chu chu hetiang symptoms i neih chuan damdawi inah kal nghal la, 1990 ah call rawh:

• I thaw thei lo a nih chuan.
• Natna nasa tak a awm chuan.
• Heart attack symptoms i neih nia i ngaih chuan.

Doctor hnenah eng zawhna nge ka zawh ang?

Doctor i hmuh hian hetiang zawhna hi zawh a tha ang:

• Lupus emaw autoimmune natna dang emaw ka nei em?
• Eng ang damdawi nge ka mamawh?
• Eng chen nge ka hmuh ang che (`follow-up appointments`)?
• Specialist dang ka hmuh a ngai dawn em ni?
• Ka tanpui thei tur support group emaw mental health service dang emaw min hrilh thei ang em?

A tawp berah chuan hriat reng tur (Take-Home Message) .

Lupus hi a chang chuan lungngaihna leh chak lohna thlentu a ni thei bawk. I taksa pum puiah natna, inflammation leh discomfort nena nun hi thil awlsam a ni lo. Mahse, mahni inngaihluhna chu theihnghilh suh . Natna khirh tak nena nun hi hna hahthlak tak a nih avangin nitin i natna lan chhuah dan enkawl tura i thawhrimna avangin hriat hlawh i phu a ni.

I ngaihtuahna leh rilru put hmang mi pakhat hnena sawipui chu a \angkai i tih chuan, i doctor hnenah rilru lam hriselna lama service leh support group chungchang zawt rawh.

Doctor nena inbiakna leh zawhna zawh pawh hlau suh. I symptoms-a inthlak danglamna tenau te pawh hi lupus hian a nghawng danglam che tih chhinchhiahna a ni thei. I taksaah thil dik lo nia i hriat chuan roreltu tha ber i ni tih hre reng ang che.

` Lupus, SLE, autoimmune natna, ruh na, vun rawng, lupus enkawlna, lupus symptoms te