I fain lupus a vei tih i ngaihtuah em? Hemi chungchang hi chipchiar takin sawi ila!

I fa chu a chau reng niin a lang em? A rilru hahna, khawsik fo, leh ruh natna te a complain em? I hmui leh hnar-ah hian hnim hring, hnim hring ang maia hring hring a awm tih i hmu ngai em? Nu leh pa angin hetiang thil i hmuh hian hlauhna leh lungkhamna nasa tak nei hi thil pangngai a ni. Vawiin hian nu leh pa tam takin an hlauh em em, mahse uluk taka hriatthiam leh enkawl a nih chuan i fa chu nun pangngaia nunpui thei tur dinhmun kan sawi dawn a ni. Chu chu naupangte zingah lupus a ni.

A awlsam zawngin Lupus hi eng nge ni?

Kan taksa chhungah hian natna laka min vengtu sipai a awm tih han ngaihtuah teh. He sipai hi immune system kan ti a . Pawn lam hmelma, virus leh bacteria te taksaa an luh chuan he sipaite hian min bei a, min venghim thin.

Lupus hi autoimmune natna a ni a . Heta thil thleng hi thil mak tak a ni. Kanmahni defense force, immune system hian kan cell leh tissue hrisel tak takte hi "hmêlma" angin a ngai sual a, kan bei tan ta a ni. Kan sipai ngeiin kan ram an beih ang mai a ni. He attack hian taksa hmun hrang hrangah inflammation , chu chu inflammation leh swelling a thlen a, symptom hrang hrang a thlen bawk.

Naupangin lupus an neih chuan puitling aiin a na deuh thei. Chumi awmzia chu:

• Natna hi a thawkrim zawk a, a na zawk thei bawk.
• Tin, taksa peng lian tak tak, kal, thinlung, leh thluak te tihchhiat theihna a sang hle.
• Enkawlna atan chuan damdawi chak zawk dose sang zawk a ngai thei.
• Damdawi thenkhat (entir nan, corticosteroids) hian hun rei tak hman a nih chuan side effect a nei thei.

Naupangte zingah lupus chi khat awm tam ber chu Systemic Lupus Erythematosus (SLE) a ni. Hetiang chi hi "lupus" tiin kan sawi tlangpui. A chang chuan doctor-te chuan ``Childhood-onset SLE'' emaw ``Juvenile-onset SLE'' emaw an ti bawk.A natna lan chhuah dan hi kum 12 vel atanga tan a ni tlangpui a, mahse a hma emaw a hnu emaw pawhin a intan thei. Mahse, naupang kum 5 hnuai lam tan he natna hi an vei hi a tlem hle.

Naupangah lupus natna lan chhuah dan engte nge ni?

Lupus hian naupang zawng zawng a nghawng dan inang vek lo. Naupang tinte symptoms hi a inang lo deuh vek a. Chuvangin doctor-te chuan hei hi "lupus fingerprint" an ti a, a chhan chu mi tin tan a danglam bik a ni.

Hriatthiam awlsam zawk nan heng features te hi hmun hnih ah then ila.

Lupus vang hian eng harsatna dang nge awm thei?

Enkawlna dik tak chuan heng natna te hi nasa takin a tihziaawm thei a, mahse naupang thenkhat chu heng natna te hi an la vei thei tho a ni.

• Kidney chhiatna: Hei hi lupus nephritis an ti a. Hei hi lupus natna khirh ber pakhat a ni.
• Lung leh thinlung a na: Lung chhunga lining (pleurisy) emaw, thinlung chhehvela sac inflammation (pericarditis) emaw a awm thei. Heng pahnih hian rilru natna nasa tak a thlen thei a ni .
• Central nervous system-in nghawng a neih dan: Thluak leh ruhro (spinal cord) a nghawng thei. Hei hian lu na a thlen thei a, nungchang a tidanglam thei a, leh natna a thlen thei bawk .
• Thisen zam: Thisen zam a hlauhawm hle a, a bik takin keah hian thisen zam a awm thei. Hei hian symptoms a thlen thei a, chu chu ke na, a hring, leh a sen te a ni.

Engvangin nge naupangte hian lupus an vei? A chhan chu eng nge ni?

Dik tak chuan zirchiangtute chuan lupus thlen chhan chiang tak pakhat mah an la hmu lo. Mahse, an rin theory an nei ve tho a, chu chu "two-hit theory" an ti a ni. Chu chu lupus hi thil pahnih inzawmkhawm hian a lo awm tihna a ni.

1. Factor hmasa ber - Genetics: Genetic predisposition a awm tur a ni a, chu chu thlah khat atanga thlah dangah a kal zel tur a ni. Chu chu naupang chu lupus vei theihna genetic predisposition neia piang a ni tihna a ni.

2. Second factor - Trigger: Genetic predisposition awm mahse, natna lo awm tur chuan thil pakhatin a tichhuak tur a ni. Chutiang trigger chu hetiang hi a ni thei:

• Viral infection a ni
• Hormone level inthlak danglamna (a bik takin puitlin lai) .
• Ni êng na tak (UVA/UVB rays) hnuaia awm .

Mahse, he genetic predisposition nei zawng zawng hian lupus an vei vek dawn lo. A châng chuan, natna hrik kai theihna tur genes nei mah la, i dam chhung zawng natna nei loin i awm thei a ni.

Engtin nge doctor hian lupus hi dik taka a hriat theih ang?

I fain lupus symptoms a nei nia i rinhlelh chuan doctor pan ngei ngei tur a ni. Doctor chuan heng step te hi zawmin diagnosis a siam ang:

• Nang leh i fate natna lan chhuah dan zawhfiah: I fain a lan chhuah dan te, eng chen nge a neih tawh tih te, leh chhungkaw zingah tu emaw pawhin hetiang natna hi an nei tawh em tih zawhfiah.
• Taksa enfiahna kimchang: Naupang chu a lu atanga a ke thlengin enfiah a ni a, vun natna leh ruh hring hring te chu a bik takin ngaihven a ni.
• Thisen leh zun test: Lupus nena inzawm marker awm leh awm loh enfiah nan test hrang hrang an nei thin. Chung zingah chuan a chunga kan sawi tak `(ANA)` test leh thisen cell count te pawh a tel.

Lupus enkawlna tur engte nge ni?

Sawi hmasak ber tur chu lupus damdawi a la awm lo tih hi a ni. Mahse, lungngai suh. Tunlai hian natna thunun thei, a lan chhuah tlem theihna tur leh i fate nun pangngaia nunpui thei tur enkawlna tha tak tak a awm a.

Enkawlna tum berte chu:

• Naupang natna lanchhuahna (natna, hahna ang chi) tihziaawmna.
• Immune system-in taksa peng hrang hrang a tihchhiat loh nan.
• Naupang taksa leh rilru hriselna zawng zawng level tha taka vawn.

Chumi atan chuan doctor team, pediatric rheumatologist kaihhruaiin an inkhawm a, naupangte tana siam tur treatment plan an siam a ni.

A hnuaia tarlan te hi lupus damdawi hman lar ber berte an ni.

Enkawlna avanga side effects te pawh i hrechiang ang u.

Heng damdawi te hian naupang nunna a chhanhim thei a, mahse side effect engemaw zat a thlen thei bawk. Hei hi hriat chian a pawimawh.

Steroid damdawi `Prednisone` ang chi te hun rei tak ei hian hetiang hi a thlen thei a ni:

• Rihna a sang chho zel
• Vun ah hian stretch mark a awm
• Thisen sang a sang
• Ruh hring (osteoporosis) .
• Rilru lama harsatna emaw, lungngaihna emaw
• Thisen sugar level sang (zunthlum) .
• Cataract emaw glaucoma emaw a awm thei

Heng side effects te hian naupang hmel, rilru hriselna leh hmasawnna te a nghawng thei a ni. Chuvangin doctor thupek angin a hun taka clinic kal hi a pawimawh hle.

Damdawi `Hydroxychloroquine` hian mit retina a tichhe thei lo hle. Chuvangin, naupang he damdawi ei apiang hian mit lam doctor hnenah mit enfiah fo tur a ni.

Engtin nge nu leh pa angin ka fa chu ka puih theih ang?

I fain lupus a vei tih i hriat chuan ṭanpui theih lohvin i inhria mai thei. Mahse, he zinkawng zawh tur hian i fate tanpui theih tur thil tam tak a awm.

• Ni laka inveng rawh: Ni êng hi lupus natna tizualtu lian tak a ni. Chuvangin, i fa chu pawn lama a chhuah apiangin , sunglass, lukhum, leh thawmhnaw kawr sei bun ngei ngei tur a ni. Tin, SPF 30 aia sang sunscreen hmang bawk ang che. Hei hi chhum niah pawh tih tur a ni. I fa chu zing dar 10 a.m leh tlai dar 4 inkarah a theih ang angin ni chhuahnaah dah la.
• Chawlh la, exercise la: I fa chu a chau nia a hriat chuan chawlh tir rawh. Mahse, a dam lai ni-ah chuan kea kal leh tui chawi ang chi exercise nem tak tak ti turin fuih rawh. Hei hian a taksa ruhte a tichak thei dawn a ni.
• Infection laka invenna: Lupus leh a damdawi ei \henkhatte hian i fate taksa chakna (immune system) a tichak lo thei a ni. Hei hian an natna a tizual a ni. Sahbawn leh tui hmanga kut sil fo turin zirtir rawh. Damlote lakah hla takah dah rawh.
• Symptoms log-ah vawng reng rawh: I fate symptoms te, a na zual ni te leh symptoms thar lo lang te chu record la. Hei hi Doctor i pan hunah a tangkai hle ang.
• School hriattir: School zirtirtu leh principal hnenah naupang dinhmun hriattir. Hei hian naupang tan a tul ang ang a siamsak thei dawn a ni.
• Rilru hrisêlna ngaihtuah rawh: Natna khirh tak nêna nun chu naupang tân rilru lamah a harsa thei hle. I fa chu tlang takin a biak theih nan phalsak rawh. A tul chuan counselor tanpuina zawng rawh.
• Mahni in enkawl rawh: Heng zawng zawng nen hian nu leh pa anga in enkawl hi a pawimawh hle. Hun hmang la, chawlh hahdam la, i hriselna ngaihtuah rawh. I hrisel phawt chuan i fa chu tha takin i enkawl thei ang.