I fa thluak hi a hlauhawm em? Medulloblastoma chungchang hi han sawi ila!

Medulloblastoma tih hi i hre tawh em? A ni lo mai thei. Thluak cancer chi khat a ni a, naupang tê tê, a bik takin kum 16 hnuai lamte zingah a tam ber a, mahse lungngai suh, hei hi chiang takin sawi ila. A chhan chu he dinhmun hi hriat chian a pawimawh hle a ni.

Chuti a nih chuan, medulloblastoma chu eng nge ni?

A awlsam zawngin, medulloblastoma hi cancer natna a ni a, i central nervous system (CNS) , i thluak leh i ruhroah a lo awm a ni. A tlangpuiin i thluak hmun, cerebellum an tih, i thluak hnung lama awmah a lo thang lian thin. He thluak te tak te hian i taksaa thil tam tak, balance, kalna, leh i kut leh ke chet dan te a thunun tih i hria em?

He natna hian naupang leh puitling naupang kum 16 hnuai lam a vei tam ber a, mahse, puitlingah pawh a awm thei a, a tlem hle nachungin. Puitlingah a awm chuan kum 20 leh 45 inkarah hmuh tur a awm tlangpui.

Hei hi a takah chuan cancer chi khat, a tlem hle. Mahse, naupang thluak cancer chi khat zingah chuan a tam ber a ni . Naupang kum 5 leh 9 inkar ah a awm tam ber.

Medulloblastoma tumor hi a thang chak hle a, cerebrospinal fluid – kan thluak leh kan ruhro hualtu tui thianghlim tak hmangin thluak leh ruhro hmun dangah a darh thei a ni.

Hei hi eng symptoms nge ni? Engtin nge i hriat chian?

Medulloblastoma symptoms hi mi hrang hrangah a inang lo thei. I kum, tumor lian leh te, leh a lo seilian tawhna ang chi thilte a innghat a ni. Symptom thenkhat chu tumor awmna hmun emaw, luruh chhunga pressure sang vang emaw a ni thei. Heng thilte hi en reng a tha:

• Lu na fo: Hei hi lu na pangngai nen a danglam thei a, zing lamah a na zawk thei bawk.
• Nausea leh vomiting: Hetiang dinhmun hi a bik takin zing lamah hmuh theih a ni.
• Balance issues: Kal laiin nghet lo anga inhria, ding nghet thei lo.
• Kal harsa: I kea ding tha thei lo, stairs chho leh chhuk harsa.
• Dizziness: Thil a rawn inher chhuak tih hriatna.
• Mit a inthlak danglam: Mit a fiah nghal vat a, mit pahnih a hmu thei.
• Chauhna: Eng ang pawhin muthilh mah ila chau ngai lo ang maia inhriatna.
• Back pain: A chang chuan, cancer hi spinal cord-ah a darh chuan hnungzang na a awm thei.
• Zun leh bawlhhlawh control theih lohna:Tun hmaa thununna tha tak nei tawh mah la, hetiang harsatna hi a lo chhuak thut a nih chuan i ngaihtuah tur a ni. Naupang tê tête chungchângah chuan ‘accident’ awm tamna hi a pung thei a ni.

Heng symptoms pakhat emaw pahnih emaw i neih vang mai mai hian medulloblastoma hi hlau suh. Mahse, heng symptoms hi a zawnin eng emaw zat i neih chuan, a bik takin naupang tê têah chuan doctor pan a, thurawn dil chu a finthlak hle.

Engvangin nge medulloblastoma hi a lo awm? A chhante chu engte nge ni?

Doctor-te chuan medulloblastoma hi eng nge a thlen tih chiang takin an la hre lo. Mahse, genetic disorder thenkhat chuan a vei theihna a tipung thei tih hmuhchhuah a ni. Chumi awmzia chu thlah kal zelah genetic change thenkhat lo kal zel hian nghawng a nei thei tihna a ni.

Chutiang hlauhawmna tipungtu genetic condition thenkhat chu hetiang hi a ni:

• BRCA1 gene mutations: BRCA1 leh BRCA2 genes hi i hre tawh ngei ang. An protein siam te hian kan DNA a chhiat hunah a siam that thin. Heng genes chi hrang hrang rochuntute hian cancer chi hrang hrang an vei theihna a sang hle.
• `Nevoid basal cell carcinoma syndrome (NBCCS): Hei hi `Gorlin syndrome` an ti bawk.Hei hi thlahtute atanga lo chhuak a ni bawk. Hetiang vei te hian basal cell skin cancer an vei theihna a sang zawk. Tin, medulloblastoma vei theihna chance 5% an nei bawk.
• Turcot syndrome: Hetiang natna vei te hian colon cancer nen hian central nervous system tumor, medulloblastoma emaw pituitary adenoma emaw an nei thei a ni.
• Li-Fraumeni syndrome: Hetiang natna vei te hi sarcomas, hnute cancer, thluak cancer chi dang (gliomas, choroid plexus carcinomas), adrenal gland cancer, leh leukemia te an vei theihna a sang hle.

Heng genetic condition te hi a buaithlak hle. Hemi chungchang hi i hriat belh duh chuan Doctor nena inbiak a tha ber.

Engtin nge doctor-te hian hei hi an hriat chian?

Nang emaw i fa emaw hian a chunga kan sawi tak symptoms te hi i neih chuan i doctor chuan i symptoms chungchang a sawi hmasa ang a, i chhungte medical history a enfiah hmasa ang. Tichuan, medulloblastoma an rinhlelh chuan test eng emaw zat an ti ang a, an natna hmuhchhuah chu finfiah turin an ti ang.

Eng test nge tih tlangpui?

• Neurological exam: Hetah hian doctor chuan i hriatna, i mit hmuh dan, i coordination leh i reflexes te a enfiah ang. Hei hian thluak hmun eng nge a nghawng tih hriat theihna a pe thei che a ni.
• `Imaging test te`: 1.1.Hei hian MRI (Magnetic Resonance Imaging) scan emaw CT (Computed Tomography) scan emaw a huam a ni. Heng scan te hian thluak chhungah hian tumor a awm em tih te, a lian zia te, a awmna hmun te chiang takin a hmu thei a ni.
• Biopsy: A châng chuan doctor-te chuan tumor aṭanga tissue sample tlemte an lak a ngai ang a, chu chu pathologist, tissue enfiahna lama tui doctor hnenah an thawn a ngai ang. Scan chauh hmanga diagnosis finfiah theih loh chuan biopsy hi tih a ni fo thin.
• Spinal tap (Lumbar Puncture): Hetiang tih danah hian surgeon chuan cerebrospinal fluid sample te tak te a la a, cancer cell a awm leh awm loh a enfiah thin. He test hi tumor lakchhuah emaw, thluak chhunga pressure control a nih hnuah emaw tih a ni tlangpui.

Medulloblastoma hi eng enkawlna nge ni?

Enkawl dan tur chu thil tam takah a innghat a, chung zingah chuan i kum, hriselna zawng zawng, leh tumor lian tham te pawh a tel. A tam zawkah chuan medulloblastoma enkawlna ber chu surgery hmanga tumor lakchhuah a ni. Hei hi chemotherapy emaw, radiation therapy emaw, a pahnih emaw hmangin a zui thei bawk.

• `Surgery`: He surgery hi `Neurosurgeon` tih a ni. Hei hian thluak chhunga pressure a tihziaawm thei a, tumor chu a paih vek thei bawk. Mahse, a chang chuan thluak chhung thuk takah, hmun sensitive takah a awm a nih chuan paih kim a harsa thei hle.
• Radiation therapy: He enkawlna hi operation hnua cancer cell awm thei zawng zawng tihchhiat nan hman a ni. A chang chuan Chemotherapy nen pawh pek dun thin a ni.
• Chemotherapy: He enkawlna hi oncologist-in a pe thin. Heng damdawi te hi operation hnuah emaw, radiation therapy hnuah emaw, radiation therapy nen emaw pek theih a ni. A then phei chuan chemotherapy hnuah stem cell transplant pek theih a ni.

Heng enkawlna zawng zawng hi doctor team-in an rel vek tih hre reng la, i dinhmun bik ang zela siam a ni.

A dam leh theih nan eng chen nge hun a duh? (Recovery Hun) 1.1.

Enkawl rei zawng leh dam hun chhung hi mi hrang hrangah a inang lo. Brain surgery i neih chuan a dam leh theih nan kar li atanga kar riat vel a ngai tlangpui . Chemotherapy emaw radiation therapy emaw i neih chuan kar engemaw zat emaw, thla tam tak emaw pawh a la ngai thei. Natna awm danah a innghat a ni. Nangmah emaw, i fa emaw tan eng chen nge a daih dawn tih chiang taka hriat theih nan doctor nen inbiakna neih a tha ber.

Engtikah nge Doctor ka hmuh ang?

Nangmah emaw i fa emaw hian a chunga kan sawi tak symptoms (lu na, rilru hah, buai, mit danglam ang chi) i neih chuan doctor pan nghal rawh . Tin, medulloblastoma i vei tawh a nih chuan i side effects i neih apiang chu doctor hnenah hrilh bawk ang che. I natna lan chhuah dan enkawl nan an pui thei a, i rilru hahna pawh a tiziaawm thei bawk.

Medulloblastoma vei chuan eng nge a beisei theih ang?

Hetiang dinhmunah hian tanpui turin medical team lian tak an awm a. Chung zingah chuan:

• `Damdawi lam oncologist te`
• `Neurosurgeon te`
• `Natna lam thiamte`
• `Tisa lam thiamte`
• `Radologist te` a ni
• `Radiation hmanga oncologist te`
• `Neuropsychologist` ang mi te pawh an tel ve mai thei.

An pahnih hian i mamawh ang zela enkawl dan tur ruahmanna (personalized treatment plan) an siam dun a ni.

Medulloblastoma hi tihdam theih a ni em?

Ni e, a tam zawkah chuan. Medulloblastoma hi nervous system zawng zawnga darh thei natna ni mahse, mi tam tak chu tihdam theih an ni. A bik takin cancer hi thluak leh ruhro hmun dangah a darh lo a nih chuan damchhuah theihna chance a sang hle.

Hei hi eng prognosis nge ni?

Medulloblastoma vei kum nga chhunga dam rei zawng chu 80% aia tam a ni . Hei hian medulloblastoma vei hmuhchhuah zinga 80% aia tam chu kum nga hnuah pawh an la dam tihna a ni. Heng statistics te hi tun hmaa he natna vei tawhte outcome atanga siam a ni.

Mahse, heng statistics te hian i dinhmun chu eng nge thleng dawn tih chiang takin a hrilh thei lo tih hre reng ang che. I dinhmun leh i dam leh dan tur chiang taka hriat duh chuan i doctor nen inbiakna neih a tha ber.

Brain tumor chungchang hriat hian taksa, rilru leh rilru lama harsatna a thlen thei a ni. A bîk takin i fa a nghawng a nih chuan a buaithlâk thei hle. Mahse, enkawlna \ha tak tak a awm a, chuvangin beiseina a awm . I doctor hnenah enkawlna thar, clinical trial ang chi te zawt rawh. Tin, i doctor nen pawh i tanpui thei tur resources leh support group te chungchang sawipui bawk ang che. He hun harsa tak karah hian nangmah ang bawka thil tawn tawhte bula awm hi chakna leh thlamuanna nasa tak a ni thei.

A tawi zawngin, thil hriat reng tur

Okay, chuvangin medulloblastoma chungchanga kan sawi tawh pawimawh tak tak thenkhat kha han hriat nawn tir ila:

• Medulloblastoma hi thluak cancer a ni a, naupangte zingah a awm ber a ni., mahse puitling pawhin an nei thei bawk.
• Lu na, luak chhuak, leh balance hloh ang chi symptoms te chu fimkhur rawh .
• A chhan dik tak hriat ni lo mah se , genetic condition ṭhenkhat chuan chanvo an nei thei a ni.
• He natna hi MRI, CT scan, biopsy ang chi test hmanga hriat theih a ni .
• Enkawl dan hrang hrang, surgery, chemotherapy, leh radiation therapy te pawh a awm .
• The chance of recovery is high , a bik takin a hmaa hmuhchhuah leh enkawl a nih chuan.
• Symptoms i neih chuan doctor pan hlau suh .

He thu hi in tan a tangkai ngei ka beisei. Nangmah chauh i ni lo tih hre reng ang che. Zawhna i neih chuan Doctor biak hreh suh.

` Medulloblastoma, thluak cancer, naupan lai cancer, nervous system, cancer symptoms, cancer enkawl dan, genetic diseases