I ke leh ke ruhte chu a hring reng em? Meige Disease a ni thei ang em? Kan sawi dawn nia!

A chang chuan i ke, a bik takin i ke ruhte chu a rit leh a hring mai mai angin i inhria em? I ding rei lutuk vang emaw, i chau vang emaw niin i ngai mai thei. Mahse he swelling hi puberty vel atanga intan a, zawi zawiin a pung a nih chuan a pangngai lo mai thei. Chu chu vawiinah kan sawi dawn a ni. Hei hi Meige natna an ti a. Phên dangin sawi ila, lymphedema praecox an ti bawk.

Meige natna hi eng nge ni? A awlsam zawngin...

Kan taksa hian kawng tenau tak tak network a nei niin han ngaihtuah teh. Hei hi lymphatic system kan ti a . Bawlhhlawh paih chhuaktu leh thisen tifai thei tur drainage system ang mai a ni. He system hian lymph node leh lymph vessel a nei a. Hengte hi taksaa tui ang chi extra, lymphatic fluid an tihte chu a kal tlang a ni.

Tunah chuan Meige natna vei chunga thil thleng chu lymphatic system a lo thang tha lo a, a bik takin taksa peng thenkhatah chuan a lo thang tha lo a ni. Chu drainage system hmun ṭhenkhat chu a inkhar a, a nih loh leh a ṭhat ṭhat loh angin han ngaihtuah teh. Tichuan lymphatic fluid hian kalna tur a nei tawh lo va, hmun khatah a khawlkhawm ta a ni. Chu chu a khawlkhawm lai a ni a, chu chu swelling, a nih loh leh edema a awm lai a ni.

Hei hi genetic condition a ni a, kan nu leh pate hnen atanga kan rochun thil a ni tihna a ni. He natna hi hun kal zelah a na zual thei a, chuvangin, natna hi hriat hmasak a, enkawl tan a tha ber . Mi tam tak chuan non-surgical treatment hmangin hahdamna an hmu thin.

Hetiang dinhmun hi engtiang chiahin nge a awm? Mi zawng zawngah a thleng vek em?

Meige natna hi a takah chuan primary lymphedema chi khat a ni ber . "Primary" tih awmzia chu natna dang avanga lo awm a ni lo tihna a ni. Mahse chuti chung pawh chuan natna hmuh tur awm lo tak a ni . I ngaihtuah thei ang em, kum 20 hnuai lam mi 100,000 zinga pakhat chauh hian he primary lymphedema hi an vei theihna chance an nei a ni. Chu chu a tlem hle. Mipa aiin hmeichhiaah a tam zawk tih hmuhchhuah a ni.

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Meige natna lan chhuah dan chu engte nge ni? Engtin nge a hriat chhuah?

A bulpui ber chu ke, ke ruh leh kea hring (edema) a ni . He hliam hi puitlin hun vel atang hian a intan tlangpui a, thla engemaw zat chhungin a pung zauh zauh thin. A na lo, mahse a hringna hmun chu a rit hlein a lang thei. I keah thil eng emaw a innghat ang maiin a lang.

He hliam bakah hian lymphedema praecox vei te hian natna dang engemaw zat an nei thei a:

• Hriatna hloh
• Extra eyelashes neih, chu chu mitmeng pakhat ni lovin hmun khat atanga mitmeng pahnih lo piang tihna a ni a, chu chu distichiasis an ti a ni.
• Thingpui ruh thenkhat chu a insiam tha lo hle.
• Thluaka thisen kalna kawng \henkhat chu a insiam \ha lo.

Pawimawh: Meige natna hi Milroy natna nen hian inzawm lo tur a ni . Milroy natna hi lymphedema chi khat a ni bawk. Mahse, hetiang dinhmunah hian kum khatna chhungin ke a hring chhuak thin. Meige natna hi kum engemaw zat hnuah a lo lang leh a.

Eng thilin nge hei hi a thlen? Engvangin nge hetiang hi a lo awm?

Meige natna vei, chu lymphatic system ka sawi tawh kha, an hmasawnna kawngah harsatna an nei a. Scientist-te chuan genetic variation thenkhat chu Meige natna nen a inzawm tih an hmuchhuak a. Mahse mak tak mai chu, he natna vei tam zawkah hian chutiang genetic link chiang tak chu hmuh tur a awm lo.

Genetic a nih avangin nu leh pa zinga pakhatin he genetic variant hi nei mahse naupang chuan a nei thei a ni. Mahse naupang zawng zawng hian an neih vang mai maiin he natna hi an nei vek dawn lo. Tlem a buaithlak deuh.

Hemi atanga harsatna lo awm thei te chu engte nge ni?

Meige natna hi uluk taka enkawl a nih loh chuan harsatna engemaw zat a awm thei. Chung zingah chuan:

• Kea vun natna, cellulitis ang chi .
• Vunah hian wart ang chi bumps a lo lang a, chu chu papillomatosis an ti a ni.
• Vun a thim, chu chu hyperkeratosis .
• Lymphatic vessel infection, lymphangitis tia hriat bawk.
• Vun chhe, hliam.

A tlem hle a, lymphedema praecox hi cancer-ah a chang thei a, chuvang chuan symptom i neih chuan doctor lam pan nghal a pawimawh hle.

Engtin nge doctor-te hian hei hi an hriat chian?

Heng symptoms te hi i neih chuan doctor i hmuh hunah a hnuaia mite hi an ti ang:

• Taksa enfiahna (physical exam) neih a ni ang. Hei hian i hliam na hmunte en leh hriat tihna a ni.
• I medical history chungchang an sawi dawn a ni . Tun hmaa natna i neih tawh leh neih loh leh i chhungte zingah hetiang dinhmun hi an nei tawh em tih an zawt ang.
• Test pakhat emaw a aia tam emaw ti turin an ti thei che a, chu chu confirm belh tur a ni.

Doctor-te’n Meige natna an hriat theih nan test an hman thinte chu:

• Ultrasound hmanga enfiah a ni
• Magnetic Resonance Imaging (MRI) hmanga tihchhuah a ni.
• Lymphoscintigraphy - Hei hi test a ni a, lymphatic system kal tlanga tui a kal dan enfiahna a ni.
• Computed Tomography (CT) hmanga tihchhuah a ni

Heng test te hian doctor chu i hliam chhan dik tak leh i lymphatic system-a harsatna awm chu a hriat chian theih nan a pui ang.

Meige natna enkawlna tur engte nge ni?

Tunah hian hei hi damdawi a la awm lo . Mahse lungngai suh, enkawlna hian lymphatic fluid a pungkhawm a ti tlem thei a, swelling a control thei bawk.

Meige natna enkawlna hrang hrangte chu:

• Compression stocking emaw compression device emaw hmanga siam. Chungte chuan ke chu compress a, tui awmkhawm tihtlem nan hna an thawk a ni.
• Taksa tihchakna, chu chu exercise tih hi a ni . Tui chawi ang chi thil hi a tha hle.
• Lymphatic drainage hmanga hnawih chhuahna massage . Hei hi massage technique bik a ni a, lymph fluid a kal tir thei a ni.
• Ke a san zawng.
• Laser hmanga enkawlna .
• Liposuction - Hei hi surgery a ni a, thau leh tui tam lutuk paih chhuahna a ni.
• Surgery dang - A chang chuan lymphatic system-a blockage awmte tihziaawm nan surgery pawh tih theih a ni.

I doctor chuan eng enkawlna nge i tan a tha ber tih a rel ang.

Meige natna ka neih chuan eng nge thleng ang? Ka hmalam hun chu eng ang nge ni ang?

Lymphedema praecox hi natna rei tak , hun rei tak chhunga awm thei a ni. Chuvangin i dam chhung zawng i enkawl a ngai dawn a ni. Hun kal zelah a natna hi a zual zel thei. Mahse mi tam tak chu operation tel lovin an dam thei a ni . Enkawlna dangin a puih loh chuan operation tih chauh ngaihtuah a ni.

A pawimawh ber chu hetiang hi i nei tih i hriat veleh hlauthawng lo la, damdawi lam thurawn zawm hi a ni.

Engtin nge ka in enkawl ang? (Mahni invenna) .

Mahni in enkawl nan thil engemaw zat i tih theih a awm. Hengte hi a awlsam hle a, mahse thil pawimawh tak tak a ni:

• I vun hi enkawl tha rawh . Moisturizer hnawih fo thin ang che. Pawn chhuah dawnin pheikhawk bun tur a ni. Hliam te tak te pawhin natna hrik a thlen thei.
• Salt i ei tam lutuk kha tihtlem rawh . Chi ei tam lutuk hian i taksain tui a vawng tam thei a, chu chuan vun a tipung thei a ni.
• Chutiang compression socks i hman chuan thla thum atanga thla ruk danah thlak leh thin ang che , a chhan chu an upa deuh deuh chuan an nghet lo thei a, hna a thawk tha tawh lo thei bawk.
• I doctor-in a tih angin exercise la. I ke ruh exercise hian lymph fluid a ti che thei a ni.

Engtikah nge Doctor ka hmuh ang?

A tir lamah chuan doctor pan fo a ngai dawn a ni. Mahse, chu dinhmun chu thunun theih a nih chuan kum khatah vawi khat chauh doctor i hmuh a ngai mai thei.

I doctor i hmuh fo chuan i dinhmun a enfiah thei a, enkawlna a thawk tha em tih a enfiah thei a, i dinhmun a chhe zual em tih a enfiah thei bawk.

Tin, vun natna chhinchhiahna cellulitis (e.g., ke sen, lum, na), emaw , harsatna chhinchhiahna dang i hmuh chuan i doctor hnenah i hriattir nghal tur a ni

Doctor hnenah eng zawhna nge ka zawh ang?

Doctor hmu tura i kal hian hetiang zawhna hi i zawt thei ang:

• Ka tan enge inenkawlna tha ber?
• Ni khatah darkar engzat nge compression garment ka ha tur?
• Ka chhungkuaa midangte pawhin he natna hi an vei thei em?
• Exercise engzat nge ka tih ang? Eng ang exercise nge tha?
• Ei leh in chungchangah eng nge ka fimkhur bik ang?

Hetiang zawhna zawh a, i dinhmun hriatthiamna chiang tak neih hi a pawimawh hle.

A tawp berah chuan thil hriat reng tur (Take-Home Message) .

Tuman natna khirh tak nei tura beisei an awm lo a, mahse Meige natna hi mi tam tak tan chuan operation tel lova tha taka enkawl theih a ni.

A pawimawh ber chu i doctor nen i symptoms chungchang zalen taka sawipui a, an thurawn zawm hi a ni. I chhungte leh i thiante hnen atangin tanpuina dawng rawh. I ngaihtuahna leh rilru put hmang sawi hian he dinhmun nena nun dan zir turin a pui thei bawk che a ni. You are not alone , mi dang tam takin he dinhmun hi an hmachhawn a ni. Chuvangin chak leh positive taka awm reng a pawimawh.