Nu emaw, pa emaw tan chuan an fa damlo hmuh tluka hrehawmna lian zawk a awm lo. Engtiang chiahin nge common cold kan neih theih nan kan lungkham? Chutiang a lo thlen chuan nu leh pate’n an fain cancer ang chi natna khirh tak a nei tih an hriat huna an hrehawmna chu sawi theih loh a ni. Vawiin hian naupang thluak cancer chi khat, a tlem hle, mahse hlauhawm tak, naupangte zingah a awm thin chungchang kan sawi dawn a ni. Hei hi DIPG, a nih loh leh Diffuse Intrinsic Pontine Glioma an ti a. A hming hi a buaithlak deuhin lang mahse, a awlsam zawngin sawi ila.
DIPG-ah hian thluak hi eng nge thleng tak tak?
Awle, hei hi eng nge a nih kan en hmasa phawt ang u. A awlsam zawngin DIPG hi cancer natna a ni a, kan thluak nena inzawm thluak zung (brain stem) hmun khatah a lo awm a ni. A bik takin he tumor hi thluak zung (brain stem) hmun pakhat "pons" an tih ah a lo awm thin.
Ngaihtuah teh, kan taksa hi building lian tak ni ta se, he "pons" an tih hi chu building-a electrical control room lian ber ang mai a ni ang. Hetah hian kan nunah hna pawimawh leh pawimawh ber berte chu thunun a ni.
- Thâwk chhuah
- Lung chakna (thinlung thawk) .
- Thisen sang a ni
- Chaw ei chhuah
- Mit hmuh leh mit chetna
- Taksa inthlauhna
Chutiang thil pawimawh tak takte thunun theihna hmuna cancer a lo awm chuan taksa chunga nghawng a neih dan chu i mitthla thei a ni.
He cancer hi glioma tih pawlah a tel a, chu chu thluaka glial cells atanga intan tihna a ni. Chuvang chuan a chang chuan pontine glioma an ti thin.
He natna hi tuin nge vei tam ber?
DIPG hi puitling aiin naupang a nghawng nasa zawk a ni. A tlem hle nachungin naupang kum 4 leh 11 inkar a vei tam ber a, khawvel pumah kum tin naupang 200 atanga 400 vel chauhin he natna hi an vei tih hmuhchhuah a ni. Hmeichhia leh mipa te pawh a nghawng vek a ni.
DIPG natna lan chhuah dante chu engte nge ni?
Heng tumor te hi an thang chak hle. Chuvangin naupang symptoms chu hun rei lote chhungin a na zual thei a ni. Tumor a lo lian zel chuan thluak "pons" part chu a press a. Chu chuan chu peng in a thunun taksa hnathawh chu a tibuai a ni. I fate zingah heng symptoms te hi en reng ang che.
| Symptom category hrang hrang a awm | Engtin nge kan lantir ang |
|---|---|
| Balance leh kal dan | Kal laiin nghet lo taka awm nghal mai, i balance hloh ang maia i awm. |
| Hmai leh hmuiah inthlak danglamna | Chewing leh ei harsa, tawng inthlak danglam, leh hmai sir khata tlak. |
| Mit lama harsatna nei | Mit che vel control theih lohna, double vision, mitmeng tlahniam. |
| Hriatna lama harsatna nei | Hriatna hloh rang emaw, hriatna hloh vek emaw. |
| Thil awm dan tlangpui dangte | Nausen leh luak chhuak, a bik takin zing emaw, luak chhuah hnu emaw, lu na, kut leh ke chak lo. |
Heng tumor te hi a lo thang lian thei a, a lian thei bawk a, thawk leh thinlung thawkna ang chi hna pawimawh tak tak te chu nasa takin a nghawng a, nunna atana hlauhawm pawh a ni thei.
DIPG hi eng thilin nge a thlen? A veng thei ang em?
Hei hi nu leh pa i rilruah zawhna lian ber a ni. "Engvangin nge ka fa chungah hetiang thil hi a lo thlen? Ka sualna a ni em?"
Khawngaihin thil pakhat hre reng ang che: DIPG hi i thil tihsual avanga natna lo awm a ni lo.
DIPG tumor hian genetic change engemaw zat a nei thei (doctor-te chuan heng mutations hi an ti). Amaherawhchu, nu leh pa atanga fate hnena genes hmanga kai theih natna a ni lo. Tin, boruak chhunga thil eng emaw, meikhu te, chemical te, a nih loh leh radiation te nena inzawmna avanga lo awm pawh a ni lo. Chuvangin , he natna laka invenna tur emaw, kan fate vei theihna tur tihziaawmna tur emaw hian engmah kan ti thei lo.
Doctor-te chuan he natna hi naupang thluak lo thanlen dan nen a inzawm thei niin an ngai. Heng tumor te hi thluak a inthlak chak em em kum ah hian a lo awm duh zawk a ni.
Engtin nge natna hi dik taka kan hriat theih ang? (Diagnosis) tih a ni.
I fain heng symptoms te hi a neih chuan naupang doctor hnenah i hruai hmasa tur a ni. Doctor chuan i fa chu a enfiah ang a, an symptoms leh medical history te a zawt ang. Tichuan, an diagnosis tih finfiah nan test thenkhat an ti mai thei bawk.
1. Thluak scan (Imaging) .
Brain scan, a bik takin CT scan leh MRI scan te hian DIPG hi a nemnghet thei a ni. A châng chuan test bik, magnetic resonance spectroscopy (MRS) tih pawh tih theih a ni. Tumor chiang taka lantir nan MRI hmain tui bik, contrast dye an tih chu inject theih a ni. Doctor-te chuan thluak zung chhunga tumor awmna hmun leh a chhehvel tissue-a a darh dan an en hian DIPG hi an ringhlel thei a ni.
2. Biopsy tih a ni
MRI hian natna hi hriat theih ni mahse, naupang thenkhat, natna lan chhuah dan danglam tak nei te chu biopsy lak a ngai mai thei a, chu chu 100% a hmuhchhuah a ni. Hei hi naupang neurosurgeon-in a ti thin. Hei hian luruh chhungah khur te tak te tak siam a, chuta tang chuan thluak chhungah needle te tak te dah a, tumor atanga tissue te tak te tak te lakchhuah a ni. Hetiang tih dan hi ``stereotactic biopsy'' an ti a. Chumi hnuah pathologist chuan tissue sample chu microscope hmangin a enfiah a, cancer cell a awm leh awm loh a finfiah a ni.
DIPG enkawl dan tur chu engte nge ni?
Hei hi sawi harsa ber a ni. A chhan chu DIPG hi cancer chi khat enkawl harsa tak a nih vang a ni. Tuna kan enkawl mekte hian he natna hi a tidam kim thei lo. Mahse, naupang natna lanchhuahna tihziaawmna leh dam rei thei tur enkawlna a awm.
- Radiation Therapy: Hei hi DIPG enkawlna ber a ni. Chutah chuan tumor lam hawia high-energy X-ray hman a ni. Hei hi nitin session engemaw zatah tih thin a ni a, a chang chuan a vaiin session 30 thleng tih thin a ni. Naupang tam zawkah chuan he enkawlna hian tumor chu a ti tlem a, thluaka pressure a tihziaawm a, symptoms te a tiziaawm bawk. Hei hian naupang dam chhung thla eng emaw zat a ti sei thei a ni. Mahse, a nghawng chu rei lo te chauh a ni. Thla engemaw zat chhungin tumor hi a lo thang leh tan ang.
- Chemotherapy: Chemotherapy damdawi thar zawk, tuna enchhin mekte hi radiation therapy nena inkawp a pek thin a ni. Mahse, he cancer chi hi enkawlna tha tak hmuh tur a la awm lo. Thil thar angin, a chang chuan cancer damdawi direct-a tumor-a thlen thei enkawlna pawh an test bawk.
- Surgery: DIPG tan chuan operation tih theih a ni lo tlangpui. Hei hi a chhan chu tumor chu chhangphut hrual chunga butter ang a nih vang a ni. Chu chu a darh a, thluak cell hrisel takah a lo thang lian tawh tihna a ni. Chuvangin solid tumor awlsam taka lakchhuah theih a ni lo. Surgery tih a nih chuan thluak peng hrisel, pawimawh tak takte tihchhiat theihna a sang hle. Naupang tan pawh nunna atana hlauhawm tak a ni thei.
DIPG tana thlirletna
Dik tak chuan DIPG vei naupang tan chuan outlook a tha vak lo. Hei hi hriat a hrehawm hle tih ka hria. Doctor-te thil tum ber chu naupang chu a nuam thei ang bera leh natna nei lo tura siam a ni. Tuna enkawlna hman mekte hi natna tihdam ai chuan a natna lan chhuah dan thunun tumna a ni.
Statistics atanga a lan dan chuan naupang 10% chauh hi an natna hmuhchhuah atanga kum 2 hnuah an dam thei a ni. 2% aia tlem chu kum 5 chhung an dam. Heng number te hi i hriat hian i rilru put hmang hi ka hrethiam. Mahse he dinhmun hi hriat chian a pawimawh.
Take-Home Thuchah a ni
- DIPG hi naupang thluak zung cancer chi khat, a tlem hle a, mahse hlauhawm tak a ni.
- He natna hi nu leh pa te dik lohna emaw pawn lam boruak in nghawng a neih vang emaw a ni lo . Inchhir suh.
- I fate kal dan, a balance, a mit chetna, a thusawi, a nih loh leh a ei leh in a inthlak danglam nghal tih i hriat chuan doctor pan nghal rawh .
- He natna atan hian surgery hi a hlawk lo. Enkawlna ber chu radiation therapy hmanga natna lanchhuahna tihziaawmna a ni.
- Hei hi naupang leh chhungkaw tan chuan hun harsa tak a ni. Doctor, ṭhiante, leh counselor-te hnen aṭanga ṭanpuina zawng hi a pawimawh hle.
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