He pukupuku pēnei kei roto i tō taringa? (Neuroma Ākotika) Me ako tātou mōna!

Kei te ahua ngoikore te whakarongo i roto i te taringa kotahi i ētahi wā? Kei te rongo noa rānei koe i te tangi tonu i roto i tō taringa, kei te pōuriuri i ētahi wā, kei te ngaro rānei tō taurite? Ahakoa he mea ēnei kāore tātou e aro nui ana ki ētahi wā, tera pea he take iti kei muri i tēnei. I tēnei rā ka kōrero tātou mō tētahi pukupuku he take pēnei pea, engari ehara i te matepukupuku, ā, he āhuatanga e kiia nei ko te 'Acoustic Neuroma' .

He aha te Neuroma Ākokiko?

He kupu ngāwari, he pukupuku pai te neuroma acoustic. Ko te tikanga, kāore e horapa ki ētahi atu wāhanga o te tinana. E kiia ana hoki ko te vestibular schwannoma . Ka puta tēnei pukupuku i runga i te io e haere ana mai i tō taringa o roto ki tō roro. Hei whakamārama, ka puta i runga i te io cranial 8 (io vestibulocochlear) i roto i tō tātou mahunga. Ko te nuinga o tēnei io ka āwhina i a koe ki te whakarongo (te whakarongo) me te pupuri i tō taurite (te taurite).

Whakaarohia tēnei io hei taura iti e kawe ana i ngā karere mai i te taringa ki te roro. Nō reira, ina puta he pukupuku iti ki tēnei taura, ka taea e ia te whakararuraru i te tuku o aua karere. Koinei te pānga o te whakarongo me te taurite.

Ahakoa kāore ēnei pukupuku e horapa puta noa i te tinana pērā i te mate pukupuku , i a rātou e tipu haere ana, ka pāngia te whakarongo, ka tangi tonu ngā taringa (tinnitus), ka ngaro te taurite, ā, i ētahi wā ka ngoikore, ka ngoikore rānei tetahi taha o te mata. Ko ngā maimoatanga mō tēnei ko te pokanga me te rongoā irahiko. Kāore i te tino hiahiatia te rongoā matū.

He mea noa te kīanga o tēnei āhuatanga ko te neuroma acoustic?

Kāo, ehara i te mea tino noa. Tata ki te kotahi i roto i te 100,000 tāngata ka pāngia e te mate i ia tau. Ko te hunga i waenga i te 65 me te 74 tau te pakeke ka nui ake te tūponotanga ka pāngia e te mate i te hunga taitamariki me ngā tamariki nohinohi.

He aha ngā tohu o te neuroma acoustic?

Kāore ngā tohu o tēnei e puta ohorere mai. I te nuinga o te wā, ka puta pōturi.

Ngā tohu ka kitea i ngā wāhanga tuatahi:

• Te ngaro haere o te rongo i te taringa kotahi: Koinei te tohu tōmua tino kitea. Tērā pea kāore e taea e koe te whakarongo mārama i te taringa kotahi ina kōrero ana koe i te waea, tērā pea ka rongo koe kei te muhumuhu te oro i te taha kotahi ina kōrero ana tetahi.
• Tinnitus: Koinei te rongonga tonu i ngā oro rerekē i roto i ngā taringa (hei tauira, he tangi, he haruru, he ngunguru rānei). He tino hoha tēnei ki ētahi tāngata.
• Ngā raruraru taurite: Tērā pea ka rite koe ki te mea kei te tata koe te hinga i a koe e hikoi ana, ā, he uaua pea te noho ki te wāhi kotahi.
• Vertigo: He āhua hurihuri, he āhua takahurihuri rānei i a koe. Ka tino kino rawa atu tēnei.

I te tipu haere o te pukupuku, ka puta pea ngā tohu e whai ake nei:

• Pararutiki kanohi, ngoikore rānei: Tērā pea ka pāngia tetahi taha o te mata e te ngaungau, te ngoikore rānei o te uaua i taua taha.
• Mamae upoko: He maha ngā mamae upoko, i ētahi wā he kino rawa.
• Whakapairuaki me te ruaki.
• Ngā panonitanga reka: Tērā pea ka rerekē te reka o te kai i tō te tikanga.
• Te uaua ki te horomi (Dysphagia).
• Ngā raruraru tirohanga: Te tirohanga pōuri, te tirohanga takirua rānei.

Kia maumahara, ko te whai i ēnei tohu ehara i te mea he neuroma acoustic tōu. Heoi, ki te mau tonu tētahi, ētahi rānei o ēnei tohu, he mea nui kia toro atu koe ki tētahi tākuta mō ētahi tohutohu.

He aha i puta ai tēnei neuroma acoustic?

Kāore anō kia tino mōhiotia e ngā kairangahau te pūtake o ēnei pukupuku. Engari ko te mea e mōhiotia ana ko te tipu rerekē o tētahi momo pūtau e kiia nei ko ngā pūtau Schwann te take o ēnei. Ko ēnei pūtau Schwann he pūtau e mahi ana hei hipoki tiaki i ngā io o roto i tō tātou pūnaha io, inā koa ko ērā e pā ana ki te whakarongo me te taurite.

Ko tētahi atu mea, ko te hunga whai mate ira e kiia nei ko te 'Neurofibromatosis momo 2' (NF2) ka nui ake te tūponotanga ka pāngia e ngā neuromas acoustic bilateral i ngā io whakarongo i ngā taha e rua o te roro.

Me pēhea te tautuhi i tēnei?

Ina haere koe ki te tākuta, ka pātai tuatahi ia ki a koe mō ō tohumate. Kātahi ka tirotirohia e rātou te tinana. Hei tāpiri, ka whakahaerehia pea e rātou ngā whakamātautau pēnei i:

• Ngā whakamātautau whakaahua: Ka taea e ēnei te āwhina ki te whakatau mēnā kei reira te puku, tōna rahi, me tōna wāhi.
• Matawai MRI (Atahanga Āhua Aukume): Koinei te huarahi pai ki te kite i te neuroma acoustic.
• Matawai CT (Tomography Rorohiko): Ka whakamahia anō hoki tēnei i ētahi wā.
• Ngā whakamātautau whakarongo: He maha ngā whakamātautau ka mahia hei tirotiro i te pai o tō whakarongo. Ko tētahi o aua whakamātautau ko te Auditory Brainstem Response (ABR) .
• Ngā whakamātautau taurite: He whakamātautau anō hoki hei tirotiro i tō taurite.
• Te whakamātautau hikohiko (ENG): Mā tēnei ka whakamātautau i te whanaungatanga i waenga i ngā nekehanga o ngā kanohi me te taurite.

He aha ngā maimoatanga mō te neuroma acoustic?

He maha ngā āhuatanga e pā ana ki te āhua o te rongoā mō tēnei. Kei roto i ēnei ko:

• Te rahi o te pukupuku me tōna taunga.
• Te nui o te pānga o te pukupuku ki tō whakarongo me tō taurite.
• Tō tau me tō hauora whānui.

He maha ngā kōwhiringa maimoatanga matua:

1.Te tirohanga:

• I ētahi wā, mēnā he tino iti te puku, mēnā he puhoi te tipu, ā, mēnā kāore he tohu nui e pā mai ana ki a koe, ka kī pea tō tākuta kia kaua e mahi i tētahi mea i tēnei wā, engari kia aroturukihia te puku mā te whakamahi i ngā matawai MRI auau . He maha ngā tāngata ka noho mō ngā tau kāore he raruraru.

2. Pokanga Reo Irirangi Whakairoiro:

• He rite tēnei ki te rongoā irahiko, kāore he pokanga. Ka arotahihia ngā hihi kaha o te irahiko ki te pukupuku. Ka taea e ia te aukati i te tipu o te pukupuku, ā, i ētahi wā ka whakaitihia. He iti noa te kino e pā ki ngā kiko hauora e karapoti ana. He maimoatanga kotahi te rā i te nuinga o te wā.

3. Pokanga iti:

• Koinei anake te huarahi hei tango katoa i te pukupuku. Ka mahi āta ngā taote pokanga i tēnei pokanga mā te whakamahi i ngā taputapu motuhake. Ka rerekē pea te tikanga pokanga i runga i te wāhi me te rahi o te pukupuku.

• He maha ngā momo pokanga moroiti:
• Te huarahi o te poka waenga: Ka whakamahia tēnei tikanga mēnā kei roto te puku i te awa taringa, ā, he iti noa iho. Ka tangohia te puku mā te tapahi iti i te taha o te māhunga.
• Huarahi Retrosigmoid: I tēnei mahi, ka tapahia he puku i muri i te taringa, kātahi ka tangohia te pukupuku mā tētahi wāhanga o te angaanga ki roto i te taringa o roto.
• Huarahi Translabyrinthine : Tērā pea ka tūtohutia tēnei tikanga mēnā kua ngaro katoa tō rongo i tētahi taringa. Ka tangohia te pukupuku mā te tapahi i muri i te taringa, ka tangohia te wheua o te taringa o roto. I muri i tēnei tikanga, kāore koe e rongo anō i roto i taua taringa.

4. Te rongoā matū:

• He onge te whakamahinga o tēnei. I ētahi wā, ka taea e te rongoā e kiia nei ko te bevacizumab te āwhina i te whakaiti i ngā pukupuku, inā koa hei tiaki i te rongo o ngā tamariki whai NF2. Ka whakamahia hoki hei rongoā i te mate pāwera irahiko, he raruraru ka puta i muri i te rongoā irahiko.

5. Te Whakaora i te Pūnaha Urutā:

• I ētahi wā, i te wā pokanga, me tango ngā wāhanga o ngā io e whai wāhi ana ki te taurite. Ka pā pea tēnei ki te taurite o te tinana. Ko te whakaora vestibular he raupapa o ngā mahi whakakori tinana me ngā whakangungu e whakangungu anō ana i te tinana hei utu mō te mahi io kua ngaro. Ka mahia tēnei e te kaiwhakaora tinana.

He aha ngā raruraru ka puta mai i muri i te pokanga moroiti?

Pērā i ngā pokanga katoa, tera pea ētahi raruraru ka pā mai i muri i tēnei pokanga. Mā tō rōpū hauora ēnei e whakamārama atu ki a koe i mua. Kaua e manukanuka, he maimoatanga me ngā huarahi whakahaere mō te nuinga o ēnei.

• Te ngaronga, te heke rānei o te rongo i te taringa kotahi.
• Te pararutiki o te kanohi (tērā pea he wā poto, he wā pumau rānei).
• Tinnitus (te tangi i roto i ngā taringa).
• Te turuturu o te wai cerebrospinal (CSF).
• Ngā raruraru taurite.
• Te uaua ki te horomi.
• Pōuriuri.
• Te tirohanga takirua, te kanohi maroke rānei.
• Te mamae o te upoko.
• Ngā mate urutā.
• Te mate kiriuhi roro ( he mate rite ki te kirika - he tino onge).
• Te tupu anō o te puku (he onge noa iho).

Mena he neuroma acoustic tōku, he aha ngā mea ka tumanakohia e au?

He maha ngā mea e whakawhirinaki ana ki tēnei, pērā i tō āhua, te momo maimoatanga i pā ki a koe, me ngā raruraru i puta. Mā tō taote pokanga roro koe e whakamārama ki te taote pokanga ngā kōwhiringa maimoatanga me ngā raruraru pea.

I ētahi wā, ki te ngoikore tō whakarongo, kei reira ngā taputapu hei āwhina. Hei tauira, ka taea e koe te whakamahi i ngā mea pēnei i te 'bone conduction hearing implants' me ngā 'cross hearing aids' (CROS - contralateral routing of signals hearing aids) .

Me pēhea taku tiaki i ahau anō?

Ina kitea e koe he neuroma acoustic tōu, tera pea ka mataku koe, ka āwangawanga hoki, inā koa mēnā ka whakatau tō tākuta ki te tirotiro i a koe me te kore he maimoatanga. Tērā pea ka whakaaro koe ki ētahi mea pēnei i te, "Ka nui ake tēnei pukupuku? Ka kino ake taku whakarongo?" I taua wā, pātai atu ki tō tākuta he aha ngā huringa e tohu ana kei te pā te pukupuku ki ngā io.

Mena kei a koe ngā tohu, ā, ka tūtohu tō tākuta kia pokanga, tera pea ka pāngia tō taurite i muri i te pokanga. Mena koinā, ka tūtohu pea tō tākuta i te rongoā whakaora vestibular, kua whakahuatia ake nei. Ka taea e tēnei te āwhina i a koe ki te hoki ki ngā mahi o ia rā.

He aha ngā pātai me pātai atu e au ki taku tākuta?

Mena he neuroma acoustic tōu, me pātai atu pea koe ki tō tākuta i ēnei pātai:

• Me rongoā ahau, ka tirotirohia rānei te pukupuku?
• He aha te tūponotanga ka puta he taumata whakarongo whai hua i tōku taringa?
• He aha te tūponotanga ka hoki mai anō tēnei pukupuku i muri i te pokanga, i te maimoatanga irahiko rānei?
• He nui ake te mōrearea o te whakawhanake i ētahi atu momo pukupuku?
• He aha ngā painga me ngā ngoikoretanga o te pokanga neuroma acoustic?
• Me whai maimoatanga whakaora ahau i muri i te pokanga?

Hei whakamutunga, ngā mea hei maumahara (Karere hei tango ki te kāinga)

He puku puhoi te tipu o te neuroma acoustic, ehara i te matepukupuku, ka pā ki tō whakarongo me tō taurite. Kaua e manukanuka, he pai ngā maimoatanga mōna.

Tērā pea ka tūtohu tō tākuta kia pokangahia hei tango i te pukupuku. Mena koinā, tera pea he maha āu pātai mō te pokanga, he aha ngā mea ka puta i muri mai, mēnā ka pā ki tō whakarongo, me ētahi atu pānga taha. He mea noa tēnei. Kua rite tō tīma hauora ki te whakautu i ō pātai katoa me te whakamama i ō mataku. Nō reira, kōrero ki a rātou mō ngā mea katoa kei roto i tō hinengaro.

Ko te mea nui ko te rapu tohutohu hauora tonu mēnā ka pāngia koe e ēnei tohu. Mā te tere o te tautuhi i te mate, ka angitu ake te maimoatanga.

Neuroma oro , pukupuku taringa, schwannoma vestibular, io whakarongo, ngaronga whakarongo, tinnitus, pororaru