Kei te mamae tonu tō tuara, tō kaki, me tō hope, ā, kei te ngenge tonu koe i te rā roa? He mea noa te pouri, te ahotea, me te pōuri ina noho roa ana koe me tēnei mate. Engari he mea nui kia whakahaerea ēnei kare ā-roto i mua i te pikinga ki te pouri. Me kōrero tātou mō tēnei i tēnei rā.
He aha tonu te Ankylosing Spondylitis?
Ki te whakarapopoto, ko te Ankylosing Spondylitis (AS) he momo mate rumatiki e pā nui ana ki te tuaiwi. I ētahi wā ka kiia ko te radiographic axial spondylitis. Ko tōna āhua he mumura, arā, he pupuhi me te pakari, o ngā hononga sacroiliac, e hono ana i te tuaiwi me te tuara o raro ki te wheua hope. I te nuinga o te wā ka tīmata i te taiohitanga, i waenganui i te 17-20 tau te pakeke.
Kia tirohia tātou he aha ngā tohu matua o tēnei mate.
| Tohu | He whakamārama māmā |
|---|---|
| Mamae tuara me te hope | Te mamae nui, inā koa ki te tuara o raro me te papa. |
| Te pakari o te ata | Ina ara ake koe i te ata, ka mārō tō tuara me tō kaki. Ka memeha haere tēnei kare ā-roto ina neke haere koe. |
| Ngā raruraru ki ētahi atu hononga | Te mamae, te pupuhi, te whero, me te māhana o ngā wāhi pēnei i ngā maihao, ngā rekereke, ngā pona waewae, ngā turi, ngā rara, ngā pakihiwi me te kaki. |
| Ngenge mau tonu | Te tino ngenge me te kore ora ahakoa te moe pai. |
| Hiahia kai | Ka heke te hiahia ki te kai. |
I te whanaketanga o te mate, ka pēhia pea ngā tuaiwi o te tuaiwi. Ka taea e tēnei te whakaiti i te kaha ki te piko me te huri i te tuaiwi, ka mārō ai pērā i te rākau. Mēnā ka pēhia ngā rara pēnei, ka pāngia hoki te mahi a ngā pukahukahu. Hei tāpiri, ka puta pea ngā raruraru pērā i te uveitis, te mumura o ngā kanohi, ngā whatiwhatinga, me te mate manawa.
Ko te mea nui, ahakoa kāore e taea te whakaora katoa i tēnei mate, mā te maimoatanga tika ka taea te whakahaere i te mamae, ka taea te pupuri i te tuaiwi kia tika, ka taea te ārai i ngā hononga me ngā whekau kei pakaru, ā, ka taea hoki te pupuri i te kounga pai o te oranga .
He aha te whanaungatanga i waenga i tēnei mate me te pouri?
Kua kitea e ngā rangahau he nui ake te tūponotanga o te hunga e pāngia ana e te ankylosing spondylitis (AS) ki te pāngia e te pouri. He mārama te take mō tēnei. Ka pāngia te harikoa o te tangata e te mamae e kore e taea te pehi, te ngenge, me te kore e taea te mahi.
Whakaarohia, he rite tēnei ki tētahi huringa kino.
1. Ka pōuri, ka pouri hoki koe i te mamae me te kore whakamarie i puta mai i te AS.
2. Ina pouri koe, arā, ina ahotea hinengaro koe, ka piki ake te mamae o tō tinana.
3. I te kaha haere o te mamae, ka totohu haere te ngākau.
Hei mawhiti i tēnei huringa, he mea nui kia mōhio koe ki ngā tohu o te pouri.
| Ngā tohu hei tūpato i roto i te pouri | |
|---|---|
| Te pouri, te kore rānei o ngā kare ā-roto i ngā wā katoa | Te whakaaro kino ki te ao |
| Te ngaronga o te hiahia ki ngā mea i pai ai koe i mua | Te kore moe, te nui rawa rānei o te moe |
| Te ngenge tonu me te ngoikore o te tinana | Te huringa o te hiahia kai (te hekenga, te pikinga rānei) |
| He uaua ki te aro ki tetahi mea | Ngā mamae tinana kāore i te mārama, ngā mamae upoko, ngā mamae puku |
Inaianei ka kite koe he rite ētahi o ēnei tohu (pēnei i te ngenge, te mamae o te tinana) ki ērā o te AS. Nō reira, ko te huarahi pai ki te mōhio mēnā he AS, he pouri rānei tēnei, ko te toro atu ki tō tākuta me te kōrero māhorahora mō ēnei tohu katoa. Kātahi ka taea e ia te whakatau mēnā he tinana, he hinengaro rānei, ā, ka tuku atu i a koe ki te maimoatanga e tika ana.
He aha tā tātou e taea ai te whakatau i tēnei āhuatanga?
He maha ngā mea ka taea e koe te mahi hei wawahi i tēnei huringa o te mamae me te ahotea. Mā te mahere e whakakotahi ana i ngā rongoā, ngā whakaora, me ngā huringa āhua noho ka āwhina i te whakahaere i ngā tohu i mua i te kino haere.
Ngā rongoā
Tērā pea ka tohua e tō tākuta ēnei rongoā e whai ake nei i runga i te āhua o tō mate:
- Ngā rongoā anti-inflammatory kore-steroidal (NSAID): He rongoā ēnei hei whakaiti i te mumura me te mamae. Ka taea te hoko mai i ētahi o ēnei mā te kore utu, engari he mea nui kia whakamahia kia rite ki ngā tohutohu a tō tākuta.
- Ngā rongoā ārai-rūmātiki whakarerekē-mate (DMARD): He rongoā ēnei e whakarerekē ana i te ahunga o te mate, e ārai ana hoki i te kino o ngā hononga.
- Ngā rongoā koiora: Kei roto hoki ēnei i te rōpū DMARD o ngā rongoā kua arotahihia. Ka mahi rātou mā te arotahi ki ngā pūmua motuhake (pērā i te tumor necrosis factor - TNF) e puta ai te mumura i roto i te tinana.
- Ngā Corticosteroids: Ahakoa kāore ēnei e hoatu mō te mamae o te tuara, ki te nui te mamae me te pupuhi i tētahi atu hononga, pērā i te turi, i te pakihiwi rānei, ka taea te hoatu hei werohanga tika ki taua hononga.
Te Whakaora Tinana me te Whakaora Mahi
Mā te kaiwhakaora tinana koe e ako ki ngā mahi tika hei whakapakari i ō uaua, hei āwhina i te pupuri i tō tuaiwi kia tika, hei whakaiti hoki i te mamae. Mā te kaiwhakaora mahi koe e ako ki ngā taputapu me ngā tikanga hei āwhina i te whakahaere i ō mahi o ia rā.
Ngā Huringa Āhua Noho
- Whakakorikori Tinana: Ki te kore koe e whakamahi i ō hononga, ka pakari, ka mamae pea. He pai ngā whakakorikori tinana pēnei i te hikoi, te kaukau, me te yoga. Rapua he āwhina mai i tētahi kaiwhakaora tinana hei waihanga i tētahi mahere whakakorikori tinana e tika ana māu.
- He kai pai: Tāpirihia he ika, he hua rākau, he huawhenua, he pīni, me ngā witi katoa ki roto i tō kai. Whakaitihia te mīti whero, te huka, me ngā kai tukatuka kia rite ki te taea.
- Kia mau ki te tū tika:I a koe e mahi ana, ngana ki te whakarerekē i ō tūnga noho me ō tūnga tū. I ngā rā e tino mamae ana koe, whakarongo ki tō tinana, ā, me okioki i te mahi.
- Āta karohia te kai hikareti: Ka taea e te kai hikareti te whakararu i ngā tohu o te AS me te kino o ngā hononga, ā, ka taea hoki te whakaiti i te angitu o ngā maimoatanga.
- Kia nui te moe: Mā te kore moe ka kino ake te mamae. Mō te moe pai, me tango tō rongoā i te wā tika, me whakakorikori tinana i te awatea, kaua e inu kawhe/tī i te pō, me whakaiti hoki i te wā mātakitaki waea/pouaka whakaata i mua i te moe.
Te hiranga o te tiaki i a koe anō me ō whanaungatanga
Ko te ahotea tētahi o ngā āhuatanga nui e whakanui ake ana i ngā tohu o te AS. Nō reira, he mea tino nui te whakahaere i te ahotea. Whakauru atu ki ngā mea hei whakamarie i te hinengaro. Hei tauira, ka taea e koe te mahi i ngā mea pēnei i te whakaaroaro, te whakarongo waiata, te noho tahi me tētahi mōkai, te pānui pukapuka rānei.
Mena kei te pāngia koe e te whakaaro pouri, kei roto rānei koe i te raruraru hinengaro nui, haere tonu ki te Tari Whakaora o te Hōhipera (ETU) e tata ana. Waea atu rānei ki te 1333 ka rapu awhina mai i Sumithrayo . He ratonga tūmataiti tēnei.
Ko tētahi atu mea nui ko te wikitoria i te mokemoke. Kōrerohia ō kare ā-roto ki tētahi e whakawhirinaki ana koe, ā, ka whakarongo mai. He mema whānau, he hoa rānei. Ki te tika, rapua he tohutohu. He maimoatanga tino whai hua te rongoā whanonga hinengaro (CBT) mō te pouri me te manukanuka. Mā te kōrero ki tētahi kaitohutohu koe e āwhina ki te mārama ki te pānga o ō whakaaro, o ō kare ā-roto, me ō whanonga tetahi ki tetahi, me te hanga i te kaha e hiahiatia ana e koe hei aro atu ki te ao.
Karere Tangohia ki te Kāinga
- Ehara te Ankylosing spondylitis (AS) i te mamae tuara anake. He mate mau tonu tēnei ka pā ki tō tinana katoa me te kounga o te oranga.
- He rite te hiranga o te hauora hinengaro ki te hauora tinana . Ka taea e te mamae te whakapouri i a koe, ā, ka taea e te pouri te whakakino i a koe.
- Kōrero ki tō tākuta, kaua e whakaroa, mō tō mamae tinana, tae atu ki tō pouri kare ā-roto, tō pouri, me tō ahotea.
- Mā te maimoatanga hauora tika, te whakaora tinana, me ngā huringa oranga pai, ka taea e koe te ora angitu me tēnei mate.
- Kāore koe i te mokemoke. Rapua he tautoko mai i ō whanaunga, i ō tākuta, ā, ki te tika, i tētahi kaitohutohu hauora hinengaro.
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