He mamae tō tuara, tō hope rānei? (Ankylosing Spondylitis)

Kei te rongo koe i ētahi wā i te mamae rerekē, i te kōpikopiko rānei i tō tuara o raro, i ō hope, me tō papa (arā, i runga ake i tō papa)? Ina koa ka ara ake koe i te ata. Ehara pea tēnei i te mamae tuara noa iho. I tēnei rā ka kōrero tātou mō tētahi momo mate rumatiki roa e kiia nei ko te Ankylosing Spondylitis e whakaatu ana i ēnei tohu. Kaua e manukanuka, ka kōrero māmā noa tātou mō tēnei.

He aha tēnei (Ankylosing Spondylitis)?

Ki te whakarapopoto, ko te Ankylosing Spondylitis he momo mate rumatiki e pā ana ki ngā hononga o tō tuaiwi . I ētahi wā ka kiia e ngā tākuta ko te Axial Spondyloarthritis. Ka pā te nuinga ki te wāhanga o raro o tō tuaiwi, arā, ngā hononga e tūtaki ai ō wheua hope (pelvis). Ka kiia ēnei hononga ko ngā hononga Sacroiliac .

Whakaarohia, ko ngā hononga sacroiliac te wāhi e tūtaki ai te wheua tapatoru i te pito o tō tuaiwi (sacrum) me te tihi me te tuara o tō wheua hope (ilium). He rite ēnei ki ngā piriti matua e rua e hono ana i tō tuaiwi me te rohe hope. Inaa, koinei ētahi o ngā hononga nui rawa atu o tō tinana. Ka whakamahia ēnei hononga i ia wā e neke ana koe, i ia wā e neke ana koe i ō hope ki mua, ki muri. Nō reira, he aha te āhua ina raru koe ki a rātou?

Ahakoa ehara i te katoa, mō ētahi tāngata, ka pāngia pea ētahi atu hononga e te Ankylosing Spondylitis. Hei tauira:

• ō pakihiwi
• ngā hope
• turi

Ka pā mai pea te mamae, te kōpikopiko, me ētahi tohumate o te puku i tēnei āhuatanga. Mēnā kei te mamae tō tuara o raro, ina koa ka kino haere, ā, ka uaua ki te mahi i ngā mahi o ia rā, he mea nui kia toro atu koe ki te tākuta mō ētahi tohutohu.

He aha ngā tohu o te Ankylosing Spondylitis?

Ka rerekē pea ngā tohu i ia tangata, i ia tangata. Heoi, ko te tohu tino kitea ko te mamae o te tuara o raro . Ka puta mai tēnei i te mumura, i te Sacroiliitis rānei i roto i ngā hononga sacroiliac.

Ka horapa pea tēnei mamae ki ētahi atu wāhi i ētahi wā, hei tauira:

• Te mamae i ngā hononga hope
• Te mamae i roto i te papa
• Mamae kaki
• Tērā pea ka pāngia ētahi tāngata e te mamae o te puku.

Hei tāpiritanga, tera pea ētahi atu tohu:

• Te pakari, te kore rānei e taea te neke tika i ngā hononga o te hope me te tuara o raro . Ka kitea nuitia tēnei ina ara ake koe i te ata, i muri rānei i te tū roa i te tūranga kotahi.
• Te ngenge tonu . Me te mea kāore he ora o te tinana.
• Tērā pea ka pāngia ētahi tāngata e te uaua ki te manawa (dyspnea) .
• Te ngaronga o te hiahia kai, te ngaronga rānei o te taumaha, kāore he take e kitea ana .
• Tērā pea ka pāngia ētahi tāngata e te mate korere .
• Ngā ponana kiri .
• Tērā pea ka raru te tirohanga .

He aha tēnei ka puta ai (Ankylosing Spondylitis)?

He mate pūnaha ārai mate te Ankylosing Spondylitis . Ki te whakarāpopototanga, he ope taua tō tō tātou tinana e whawhai ana ki ngā hoariri, e kiia nei ko te pūnaha ārai mate. Hei tiaki i a tātou i ngā mate tēnei. Engari i roto i tēnei mate pūnaha ārai mate, ka whakaekea hētia e tō tātou ake ope taua ō tātou ake pūtau pai. He rite ki te whakaeke i tō tātou ake kāinga.

Kāore anō kia mōhiotia te tino pūtake o te Ankylosing Spondylitis. Heoi, kua kitea e ngā rangahau he maha ngā whakarerekētanga ira motuhake e hono kaha ana ki te mate. Ko ēnei whakarerekētanga ira he huringa iti e puta ana i roto i tō tātou DNA i te wā e wehea ana ō tātou pūtau, ko te tikanga ka hangaia he pūtau hou.

Neke atu i te 60 ngā ira kua whakarerekētia e whakaarohia ana he hononga ki te mate. Ko tētahi tauira nui ko te ira HLA-B27 . Kua kitea he neke atu i te 90% o ngā tāngata mā e pangia ana e te Ankylosing Spondylitis kei a rātou tēnei ira HLA-B27 kua whakarerekētia.

Ko wai kei te nui ake te mōrearea ki te whakawhanake i tēnei mate?

Ka pāngia te tangata katoa e tēnei mate, engari he nui ake te tūponotanga ka pāngia ētahi rōpū.

• Te hunga kei raro iho i te 40 tau te pakeke : Neke atu i te 80% o te hunga e pāngia ana e te Ankylosing Spondylitis ka kitea i te 30 tau te pakeke.
• He nui ake te tūponotanga ka pāngia ngā tāne e tēnei mate.
• Mena kei te pāngia tētahi o tō whānau, inā koa ō mātua, e te Ankylosing Spondylitis, kei te tūpono koe ki te pāngia anō hoki e taua mate.

Waihoki, ko te hunga whai mate kē atu ka nui ake te tūponotanga ki te pāngia e te Ankylosing Spondylitis. Hei tauira:

• (Te mate a Crohn) (he mate mumura o te ara nakunaku)
• Te mate puku (he mate mumura o te whekau nui)
• (Psoriasis) (mate kiri)

He aha ngā raruraru ka pā mai i te Ankylosing Spondylitis?

He nui ake te mōrearea o te hunga whai Ankylosing Spondylitis ki te whati o te tuaiwi nā te mea ka ngoikore haere ngā wheua o te tuaiwi i roto i te wā.

Tērā pea ka puta mai ētahi atu raruraru:

• Ngā tuaiwi kua hanumi : Nā tēnei ka uaua te piko, te huri rānei i te tuaiwi, ā, kāore e taea te pupuri i te tuaiwi kia tika.
• (Kyphosis) : Ko te tikanga o tēnei ka piko whakamua te tuaiwi, me te mea kei te piko tetahi.
• Osteoporosis : Ka pakarukaru ngā wheua, ā, ka ngawari te whati.
• Ngā raruraru kanohi me te tirohanga : Hei tauira , ka pā mai pea te uveitis (mumura o te paparanga o roto o te kanohi) te aro rānei ki te mārama.
• Mate ngakau : (Aortitis)Ngā āhuatanga pēnei i te (mumura o ngā uaua nui), te (Arrhythmia) (te pā o te ngakau kāore i te tika) me te (Cardiomyopathy) (te ngoikore o te uaua o te ngakau).
• Te pakaru o te io .

Kāore ēnei raruraru e pā ki te katoa, engari he nui ake te mōrearea o aua raruraru mēnā kāore te mate e whakahaeretia tika.

Me pēhea te tautuhi a ngā tākuta i te Ankylosing Spondylitis?

Mā te tākuta e tātaritanga tuatahi tēnei āhuatanga mā te mahi i tētahi whakamātautau tinana . Ka tirohia e rātou tō tinana, ka kōrero ki a koe mō ō tohumate. He mea nui kia kōrero koe ki tō tākuta mō te wā i tīmata ai koe ki te pāngia e te mamae, e ētahi atu tohumate rānei, te wā o te rā ka tino pāngia koe e te mamae, me te mea ka kino haere i roto i tētahi mahi.

Me toro atu pea koe ki tētahi tākuta rumatiki, he tākuta e tohunga ana ki te mate rumatiki me ngā mate rite .

He aha ngā whakamātautau e whakamahia ana hei tautuhi i te Ankylosing Spondylitis?

Kāore he whakamātautau kotahi hei whakaū i te aroaro o tēnei mate. Ka puta te whakatau a te tākuta i muri i te whakahaere i ētahi whakamātautau.

• Ngā hihi-X o ngā hononga sacroiliac me te tuaiwi : Ka tirohia e ēnei ngā tohu o te mate rumatiki.
• (Whakaahua Āhua Aukume - MRI) : Ka taea e tēnei te kite i ngā taipitopito atu i te hihi-X. Ka taea hoki e ia te kite i ngā huringa ngawari o ngā hononga.
• Ngā whakamātautau toto : Ka taea e koe te whakahaere i tētahi whakamātautau toto hei tirotiro mēnā kei a koe te ira kua whakarerekētia i mua ake nei (HLA-B27). Heoi, ehara i te mea ko te hunga katoa kei a rātou tēnei ira ka pāngia e te Ankylosing Spondylitis, ā, ahakoa ko te hunga kāore i a rātou tēnei ira ka pāngia e tēnei ira. Nō reira, kotahi noa iho tēnei āhuatanga.

Me pēhea te rongoā i te Ankylosing Spondylitis?

Ka tūtohu tō tākuta i ngā maimoatanga hei āwhina i te whakahaere i ō tohumate me te whakaiti i te pānga o te mate ki tō oranga o ia rā.

Ko ngā rongoā tino rongonui mō te Ankylosing Spondylitis ko:

• Korikori Tinana : Mā te korikori tinana auau ka āwhina i te whakaiti i te pakari o ngā hononga, me te aukati i te kino haere o te mate. Mō te tini o te tangata, ka kino haere te mamae ina kore rātou e mahi i tetahi mea. Ka taea e te kaiwhakaora tinana te tūtohu i ngā totoro me ngā mahi whakakori tinana motuhake hei whakapakari i ngā uaua e tautoko ana i tō tuara me tō tuaiwi.
• Ngā rongoā anti-inflammatory kore-steroidal (NSAID) : Ka taea e ngā rongoā kore-steroidal pēnei i te ibuprofen me te naproxen te āwhina ki te whakaiti i te mamae me te mumura. Heoi, he pai ake te kōrero ki te tākuta i mua i te tango i ēnei rongoā mō ngā rā neke atu i te 10.
• Ngā rongoā ārai-rūmātiki whakarerekē-mate koiora (DMARD) : He rongoā whakahaunga ēnei hei whakaiti i te mumura me te mamae. Ka taea hoki e rātou te aukati i te kino haere o te mate (Ankylosing Spondylitis).
• (Ngā rongoā corticosteroid)He rongoā ārai-mumura anō hoki ēnei e tohua ana e te tākuta. I ētahi wā, ka taea te hoatu tika i ngā werohanga cortisone ki ngā hononga e pāngia ana.
• Pokanga : Kāore e hiahiatia he pokanga mō te ankylosing spondylitis. Ko te tikanga, ka tūtohu ngā tākuta kia pokangahia anake mō te hunga he nui ngā tohumate kāore anō kia pai ki ētahi atu maimoatanga.

Kia pēhea te roa ka pai ake ai taku wairua?

Kia tīmata te maimoatanga, ka āta pai haere tō āhua. Kāore pea ō tohumate e memeha rawa, engari i a koe e kitea ana he maimoatanga e pai ana mōu, ka iti haere ō tohumate, ā, ka māmā ake tō oranga. He mea roa te wā e mahi ai te whakakori tinana me te whakaora tinana. Waihoki, he rerekē te roa o te wā e mahi ai ia rongoā. Nō reira, pātai atu ki tō tākuta mō te roa o te wā e kite ai koe i te whakapainga.

He aha ngā mea e tika ana kia tumanakohia e te tangata e pāngia ana e te Ankylosing Spondylitis?

He mate mau tonu te Ankylosing Spondylitis, he mate roa . Tērā pea me whakahaere e koe ō tohumate mō te wā roa, mō tō oranga katoa pea. Tērā pea ka iti ake, ka ngawari ake rānei ngā tohumate o ētahi tāngata (ngā murunga mate). Heoi, ahakoa kāore he tohumate mō tētahi wā, ka taea tonu e rātou te hoki mai.

Ko te mea nui, kāore he rongoā mō te Ankylosing Spondylitis, mō tētahi atu momo mate rumatiki rānei. Engari, ehara i te mea me noho koe i roto i te mamae.

Kōrerotia marietia ki tō tākuta ōu kare ā-roto, te pānga o ō tohu ki ō mahi o ia rā, me te āhua o tāu mahi i ngā mea e arohaina ana e koe.

Me pēhea taku tiaki i ahau anō?

Haunga te whai i tō tikanga maimoatanga mō te Ankylosing Spondylitis, he maha ngā mea ka taea e koe te mahi hei whakaiti i te mumura i roto i tō tinana me te whakaiti i te pēhanga ki ō hononga:

• Whāia he kai hauora me he mahere whakakori tinana e pai ana ki a koe.
• Whakawhāitihia te inu waipiro.
• Ki te kai paipa koe, kati. Ka taea e tēnei te whakanui ake i te mumura.

Āhea ahau me toro atu ki taku tākuta?

Tirohia te tākuta mēnā ka puta he tohu hou, ka kino haere rānei ō tohu. Me kōrero hoki ki tō tākuta mēnā kāore tō maimoatanga e whakahaere ana i ō tohu pērā i mua.

Ki te pāngia koe e tētahi o ngā tohu e whai ake nei, me toro atu ki te tākuta tonu:

• Mamae o te uma
• Te uaua ki te manawa
• Ngā raruraru tirohanga
• Te mamae nui o te tuara, te mamae hononga rānei
• Mena he tino pakari tō tuaiwi, ā, kāore e taea te piko
• Mena kei te ngaro tō taumaha mō te kore take e kitea ana

He aha ngā pātai me pātai atu e au ki taku tākuta?

Ko ētahi pātai ka taea e koe te pātai atu ki tō tākuta:

• Kei a au te Ankylosing Spondylitis, tētahi atu momo mate rumatiki rānei?
• Me whai whakamātautau ira ahau?
• He aha ngā maimoatanga ka āwhina i te whakahaere i aku tohumate?
• Me whai rongoā tinana ahau?

Hei whakamutunga, ngā mea hei maumahara

He uaua te noho tahi me tetahi momo rumatiki. Mēnā he Ankylosing Spondylitis tōu, he tino mamae rawa atu. Ka pāngia tō oranga o ia rā e te mamae, te pakari, me ētahi atu tohu. Engari ko te rongo pai, he ngāwari te whakahaere i te Ankylosing Spondylitis.

Ka taea e tō tākuta te āwhina i a koe ki te kimi maimoatanga hei whakaiti i te pānga o ō tohumate Ankylosing Spondylitis ki tō oranga o ia rā. Kaua e wehi ki te pātai me te kōrero mō tō maimoatanga. Ko koe te mea tino mōhio ki ō kare ā-roto. Nō reira, whakapuakihia ō whakaaro ki tō tākuta.

Mamae tuara, ankylosing spondylitis, rumatiki, pūnaha ārai mate, tuaiwi, maimoatanga, HLA-B27