E mōhio ana ahau he uaua te noho me te ankylosing spondylitis, arā, te AS mō te poto, i ētahi wā. E mōhio ana te hunga kua pāngia e tēnei mate ki te uaua o te noho i te rā me te mamae tonu o te tuara me ngā hononga me te pakari o te ata. Engari, ehara i te mea ko koe anake. He maha ngā huarahi me ngā rauemi hei āwhina i a koe, hei whakakaha i a koe, hei whakarato hoki i ngā mōhiotanga hou mō tēnei haerenga. Koinā te mea e kōrerohia ana i tēnei rā.
He aha te hiranga o tēnei momo tautoko ki a koe?
He māmā noa iho, he mate onge te AS ka pā ki ngā āhuatanga maha o tō koiora. Nā te mea he mate mau tonu, he mea nui kia tangohia te rongoā i te wā tika, kia ako hoki ki te noho tahi me taua mate. Koinei te wāhi e whai hua ai ngā rōpū tautoko me ngā puna mōhiohio pono.
Whakaarohia te whakamarie o te kōrero ki tētahi e mārama ana ki te mamae e pā ana ki a koe me ngā raruraru e pā ana ki a koe. Ā, me pēhea te ngāwari ake o tō oranga mēnā ka ako koe i ngā maimoatanga hou me ngā huarahi ngāwari ki te whakahaere i ō tohumate. Koia te mea nui kia mōhio koe ki ngā rauemi pēnei i ēnei.
Kei hea ahau e kite ai i te tautoko me ngā mōhiohio?
He maha ngā wāhi hei āwhina i a koe, hei ārahi hoki i a koe ki te huarahi tika. Ko ētahi o ēnei rōpū ka tūtaki kanohi ki te kanohi, ko ētahi ka mahi tuihono noa iho. Me whiriwhiri noa e koe te tikanga e pai ana ki a koe.
| Kei hea te tiki āwhina | Te tautoko e whiwhi ana koe |
|---|---|
| Tō tākuta. | Ko te tangata pai rawa atu hei pātai atu mō ngā rōpū tautoko pono, ngā rauemi rānei e tika ana mō tō āhua. |
| Te hōhipera, te whare hauora rānei e whiwhi ana koe i te maimoatanga | He maha ngā hōhipera he kaupapa tautoko motuhake, he kaupapa whakamōhiotanga rānei mō ngā tūroro. Tirohia. |
| Ngā Pokapū Hauora Hapori | Ka taea hoki e koe te tiki mōhiohio mō ngā kaupapa hauora maha mā roto i ngā pokapū pēnei i ēnei i tō rohe. |
| Ngā wāhanga hauora o ngā whare wānanga | I ētahi wā ka ako tātou mō ngā kaupapa e aro ana ki te tūroro mā roto i ngā whare wānanga rangahau. |
I mua i te whiriwhiri i tētahi rōpū, rangahauhia ngā kaupapa matua o te rōpū, me pēhea rātou e tūtaki ai (ipurangi, kanohi ki te kanohi rānei), me te hunga hoki e ārahi ana i te rōpū.
Kia tūpato ki ēnei mea ina haere koe ki te ipurangi!
I ēnei rā, he nui ngā kōrero ka kitea e koe i runga i ngā pāpāho pāpori pēnei i a Pukamata me YouTube. Ka taea e koe te pānui me te mātaki i ngā wheako o te hunga e noho ana me te AS, me ā rātou mahi. He mea whakamarie ēnei. Heoi, he wāhi tēnei me tino tupato koe .
Kia maumahara, kaua e tangohia tetahi mea ka kitea e koe i runga ipurangi, inā koa ko ngā wheako whaiaro a tetahi, hei tohutohu hauora. He mea nui kia kōrero koe ki tō tākuta i mua i te whakamātau i tetahi mea.
Ina tirohia ngā mōhiohio i te ipurangi, pātai atu ki a koe anō ēnei pātai:
- Ko wai te kaiwhakahaere o tēnei paetukutuku, o tēnei whārangi Pukamata rānei? Nā tētahi whakahaere hauora rongonui, nā tētahi atu tangata rānei kāore i te mōhiotia te kaiwhakahaere?
- Kei te ngana rātou ki te hoko i tētahi mea? I ētahi wā ka ngana rātou ki te hoko i ā rātou hua mā te kī pēnei i te "Ka pai ake tō wairua i tēnei rongoā." Kaua e māmingatia koe e tēnā.
- He pai rawa te tangi, kāore e taea te pono? Ki te kite koe i tētahi mea pēnei i te "Te mea ngaro ki te whakaora i te AS i roto i ngā rā e whitu," he teka pea.
- He mea hou tēnei mōhiohio? He pūtake pūtaiao anō hoki? Tirohia mēnā he mea rangahau, ā, he mea hou tonu ngā mōhiohio kua whakaputaina.
Ngā whakahaere me ngā paetukutuku o te ao e pono ana
He torutoru tonu ngā whakahaere AS e aro ana ki Sri Lanka. Heoi, he nui ngā whakahaere o te ao e rangahau ana i tēnei mate, e āwhina ana hoki i ngā tūroro puta noa i te ao. Ahakoa kei te reo Pākehā ēnei paetukutuku, he tino whai hua, he tika hoki ngā kōrero e whakaputaina ana e rātou mō te mate, ngā maimoatanga hou, te whakakori tinana, me pēhea te noho tahi me te mate. Mena he paku mōhio koe ki te reo Pākehā, ka tino whai hua ēnei.
- Te Rōpū mō ngā Mate Pūkahukahu o Amerika (SAA):Ko tēnei tētahi o ngā whakahaere nui rawa atu i te Hononga o Amerika e aro ana ki te spondylitis, tae atu ki te AS. He nui ngā huihuinga tūroro, ngā rōpū tautoko, me ngā mōhiohio hou kei roto i tā rātou paetukutuku (spondylitis.org).
- Te Tūāpapa Mate Pukupuku: He whakahaere nui tēnei e whakarato ana i ngā mōhiotanga mō ngā momo mate pukupuku katoa. Kei tā rātou paetukutuku (arthritis.org) he wāhanga motuhake mō te AS.
- Te Tūāpapa Rangahau ā-Motu mō te Mate Rua: Ka tautoko rātou i ngā rangahau hei kimi i tētahi rongoā mō te mate rua. Ka kitea e koe ngā kōrero hou mō ngā rangahau i runga i tā rātou paetukutuku (curearthritis.org).
- Te Whare Wānanga ā-Motu mō te Mate Pūkahukahu me ngā Mate Uaua me te Kiri (NIAMS): He tari kāwanatanga tēnei nō Amerika. He tino pono, he mea whakamātauhia hoki ngā mōhiohio kua whakaputaina ki tā rātou paetukutuku (niams.nih.gov).
Ngā hapori ipurangi e taea ai e koe te pānui i ngā wheako o ētahi atu tāngata
Mā ngā papaaho pāpāho pāpori koe e hono atu ai ki ngā tāngata o te ao e noho tahi ana me te AS pērā i a koe. He puna whakatenatena nui te tautoko e riro mai ana i a koe. Engari, e ai ki taku kōrero i mua, kaua e whakamātau i tetahi mea me te kore e kōrero ki tō tākuta.
| Papaaho | Whakaahuatanga |
|---|---|
| Pukamata | Ki te rapu koe i te Ankylosing Spondylitis, ka kitea e koe he maha ngā rōpū. Ko ētahi he rōpū tūmataiti, ā, me tono koe kia uru atu. I roto i ēnei, ka pātai ētahi atu, ka whakawhitiwhiti wheako hoki. |
| He wāhi rongonui tēnei hei whakawhitiwhiti kōrero me ngā whakaaro. Whakauru atu ki te hapori e kīia nei ko te `r/ankylosingspondylitis`, ka taea e koe te pātai me te pānui i ngā wheako o ētahi atu tāngata. | |
| Instagram / Twitter | Ka kitea e koe ngā pou e tika ana mā te whakamahi i ngā tohuwāhi pēnei i te `#ankylosingspondylitis`, `#arthritis`, `#chronicpain`. Heoi anō, me tino tupato koe ki te tika o ngā kōrero kei roto i ēnei. |
Me pēhea te tirotiro mēnā he pono tētahi pūkete ipurangi?
- Whakarongo ki tō puku: Ki te mea he ahua hē, he rūpahu rānei tetahi mea ina tirohia e koe te pūkete, tera pea he hē.
- Rapua ngā Pūkete Kua Manatokohia: He tohu kikorangi kei te taha o ngā pūkete mai i ngā whakahaere nui, whai ingoa nui, ko te tikanga he pūkete tūturu, ehara i te rūpahu.
- Pātaihia te kounga o ngā mōhiohio: E ai ki te kōrero i mua ake nei, whakaarohia ko wai kei te mahi i tēnei, kei te hokona, ā, he mea pūtaiao rānei.
He mokemoke, he uaua hoki te haerenga me tēnei mate i ētahi wā. Engari mā te mōhiotanga tika me te tautoko tika, ka taea e koe te whakahaere pai i te āhua me te noho harikoa.
Karere Tangohia ki te Kāinga
- Kāore koe i te mokemoke i roto i tō haerenga me te Ankylosing Spondylitis (AS). He mano tini atu anō, pērā i a koe, kei te noho me tēnei mate.
- Ko tō tākuta e rongoā ana i a koe te puna mōhiohio pai rawa atu. Kōrero ki a ia i te tuatahi mō ngā mea katoa.
- Ahakoa he wāhi pai te ipurangi, inā koa ko ngā pāpāho pāpori, hei tiki kōrero, kaua e whakapono ki ngā mea katoa e pānuihia ana e koe. Kaua e whakaaro ka pā ki a koe ngā wheako whaiaro a tētahi.
- I mua i te whakamātau i tētahi korikori tinana hou, i tētahi kai hou rānei, i tētahi atu mea rānei, me pātai atu ki tō tākuta mēnā he tika mōu.
- Ahakoa kei te reo Ingarihi ngā paetukutuku a ngā whakahaere o te ao, he tino āwhina ngā mōhiotanga pūtaiao, tika hoki e whakaratohia ana e rātou ki te whakapiki ake i tō mātauranga.
💬 Comments (0)
Kaore ano kia tukuna he korero. Tāpirihia to korero ki konei mo te wa tuatahi.
Tāpirihia to korero