Kei te mārō, kei te mamae rānei tō tuara ina ara ake koe i te moenga i te ata? Ka memeha haere tēnei mamae i muri i tētahi wā, ina hikoi koe? Kei te raru rānei koe i te mamae tonu i ngā wāhi pēnei i ō hope me ō rekereke? He tohu tōmua pea ēnei o tētahi mate e kiia nei ko te Ankylosing Spondylitis (AS). He māmā noa iho, he mate e pupuhi ana, e mumura ana hoki ngā hononga o te tuaiwi me te hope. Nā te mea he mate mō te wā katoa, ehara i te mea ka taea e te tangata kotahi anake te rongoā. Me whai rōpū pai o ngā tākuta me ngā tohunga hauora mohio. I tēnei rā, me kōrero tātou mō tēnei rōpū whai hua hei āwhina i a koe i tō haerenga hauora.
Te taahiraa tuatahi me te kaiārahi matua o te haerenga maimoatanga
Tō tākuta whānau (Taote Manaaki Tuatahi)
I te nuinga o te wā, ko te mea tuatahi ka kite koe ina pāngia koe e ēnei tohu ko tō tākuta whānau, ko tō tākuta whānui rānei (GP). Ka whakarongo pai ia ki ō tohu, ka tirotiro i a koe, ā, ki te whakapae rātou kei a koe te AS, ka tukuna koe e rātou mō ngā whakamātautau taketake e tika ana. Tērā pea ka tohua e rātou ngā rongoā mamae taketake. Heoi, kia tika ai te tautuhi i te mate me te whakawhanake i te mahere maimoatanga tino tika, me tuku koe ki tētahi tohunga.
Rheumatologist - Tō rata tiaki tuatahi
He māmā noa iho, he tākuta te tākuta rumatiki e tohunga ana ki ngā mate o ngā hononga, ngā uaua, me ngā wheua. Nā te mea he mate rumatiki anō hoki te Ankylosing Spondylitis, ko ia te tangata matua i roto i tō haerenga maimoatanga.
Ka tātarihia tō āhua e te tākuta rumatiki, ka aromatawaihia tōna kaha, ā, ka whakawhanakehia he mahere maimoatanga e tika ana māu. Ka tohua e ia he rongoā hei whakahaere i te mamae, te pupuhi, me te pakari o tō tuara me ētahi atu hononga. I te tīmatanga, me toro atu koe ki tō tākuta i ia rua ki te whā wiki kia kite ai koe me pēhea te mahi a te rongoā māu, me te mea kei te pai te āhua. Kia pai te āhua, me toro atu pea koe ki tō tākuta i te marama, i ia torutoru marama rānei.
I a koe e noho tahi ana me te Ankylosing Spondylitis, ka rite tō tākuta rumatiki ki tō hoa pai. Kaua e wehi ki te kōrero ki a ia mō ngā pātai, ngā āwangawanga rānei kei a koe.
Hei whakapai ake i te mahi me te nekehanga o te tinana
Kaiwhakaora Tinana
I roto i te AS, ka taea e te tuaiwi te whakakeke haere, ka piko whakamua. Hei ārai i tēnei, hei pupuri hoki i te ngāwari me te nekehanga, he mea nui te whakaora tinana. Ko te kaiwhakaora tinana he tangata kua whiwhi whakangungu motuhake hei āwhina i te hunga he raruraru nekehanga.
Ka arotakehia e ia tō āhua, ā, ka waihanga i tētahi kaupapa whakakori tinana motuhake māu.
- Ngā totoro: Ka āwhina ēnei ki te whakaiti i te pakari o ngā wāhi pēnei i te tuara, te kaki, me ngā hope.
- Āwhina ki te pupuri i te tū tika: Ka ako i te pupuri i tō tuara kia tika, kia noho, kia tū tika hoki.
- Ngā mahi manawa hōhonu: I te mea ka taea e te AS te whakawhāiti i te uma, he mea nui ēnei mahi hei pupuri i te mahi pai o ngā pukahukahu.
- Te kaukau me ngā mahi wai: He pai ēnei mō te neke i ngā hononga me te kore mamae, nā te mea he iti ake te taumaha o te tinana i roto i te wai.
Kaiwhakaora Mahi
Ina rongo te nuinga o te tangata i te ingoa kaiwhakaora mahi, ka whakaaro rātou ki tētahi e mahi ana i te wāhi mahi. Engari ehara i te mea koinā te āhua. Mā te kaiwhakaora mahi koe e āwhina ki te mahi i ō mahi o ia rā kia māmā ake, kia kore hoki e mamae.
Hei tauira, ki te mamae tō tuara, ā, he uaua ki te tango i tētahi mea mai i te papa, ki te mau rānei i ō hu, i ō tōkena rānei, ka taea e te kaiwhakaora mahi te āwhina i a koe ki te kimi huarahi hei mahi i taua mahi, i tētahi taputapu āwhina rānei. Hei tauira:
- He paepae kaukau hei whakamahi i roto i te wharepaku
- He taputapu te kaiponu hei āwhina mēnā he uaua ki te toro atu ki te tiki i tētahi mea kua hinga ki te papa.
- He taputapu hei whakangāwari i te piki me te heke i te motuka (arawhata motuka)
Ma tenei, ka awhina ia i a koe ki te whakarite i to kainga me to taiao mahi kia pai mo koe.
Ngā tohunga mō ētahi atu raruraru ka puta mai i te AS
| Tākuta tohunga | Me pēhea taku āwhina i a koe? |
|---|---|
| Tākuta kanohi | He nui ngā tūroro AS ka pāngia e te mate e kiia nei ko te iritis , he mumura tēnei o te wāhanga tae o te kanohi. Ko ngā tohu ko te whero, te mamae, me te aro ki te mārama. I ētahi wā ka tātaritatia tuatahitia te AS e te tākuta kanohi. He māmā ake te rongoā i te kitenga wawe. |
| Tohunga kai | Kua kitea e ngā rangahau he hononga i waenga i te AS me te mumura o te puku. Tērā pea ka pāngia ētahi tūroro AS e ngā mate mumura o te puku (IBD) pērā i te mate a Crohn, te mate ulcerative colitis rānei. |
Kaimātai Kai
Ka taea e ētahi kai te whakanui ake i te mumura, ko ētahi ia ka taea te whakaiti. He mea nui hoki te whakahaere i tō taumaha hei whakaiti i te pēhanga ki ō hononga. Ka taea e te tohunga kai te hoatu tohutohu tika ki a koe mō ngā kai e pai ana mōu, ko ēhea kai e whakaiti ana i te mumura, me ēhea kai hei karo.
Kaiwhakaora Hauora Hinengaro
He uaua pea te noho tahi me te mate mō te wā roa. Tērā pea ka pōuri koe, ka pouri, ka manukanuka rānei i ētahi wā nā te mamae me te uaua ki te mahi i ngā mahi o ia rā. He mea nui kia whai kōrero koe mō tēnei. Ka taea e te kaitohutohu hauora hinengaro te āwhina i a koe ki te whakahaere i ō kare ā-roto me te aro atu ki tēnei wero me te kaha.
Hei huarahi whakamutunga anake...
Ngā taote pokanga
He mea tino nui tēnei: Kāore e hiahiatia he pokanga mō ngā tūroro AS. Ka taea e te nuinga o te tangata te whakahaere pai i te mate mā te rongoā, te whakakori tinana, me ētahi atu maimoatanga.
Heoi, i ngā wā tino kino, ki te pakaru rawa tetahi hononga, pērā i te hope, ka taea e te taote wheua te mahi i te pokanga whakakapinga hope. Waihoki, ki te mea ka kopiko te io i te tuaiwi, ka hiahiatia pea he taote roro. Heoi, kia mahara, he tino onge ēnei wā.
Karere Tangohia ki te Kāinga
- He mate mō te wā roa te Ankylosing Spondylitis (AS). Heoi, mā te maimoatanga me te whakahaere tika, ka taea e koe te noho ora noa, oraora hoki.
- Hei whakatutuki i tēnei, he mea tino nui kia rapu i te tautoko a tētahi rōpū tohunga, kaua ki te rapu i te tautoko a te tangata takitahi.
- He tākuta rumatika tō tākuta tiaki tuatahi. He mea nui kia whai i ana tohutohu me te haere ki ngā wāhi rongoā i te wā tika.
- Ko te whakakori tinana me te whakaora tinana ngā pou tokomanawa o te whakahaere i tēnei mate. Kaua rawa e warewarehia.
- Ki te mamae ō kanohi, whero, raru rānei ō puku, me whakamōhio tonu atu ki tō tākuta.
- Kaua e wehi ki te kōrero mō te ahotea ka pā mai i tēnei mate. Rapua te āwhina a tētahi tohunga hauora hinengaro mēnā e tika ana.
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