Kei te whakaaro koe kei te whawhai takitahi koe ki te Ankylosing Spondylitis (AS)? Anei te āwhina!

Tērā pea he uaua te kīanga hauora o te Ankylosing Spondylitis, he momo mate rumatiki motuhake tēnei e pā ana ki te tuaiwi me ōna hononga. I a koe e noho roa ana me tēnei mate, i ētahi wā ka whakaaro koe ko koe anake te tangata e pāngia ana e tēnei mamae me te kore whakamarie. Engari kāore koe i te mokemoke. He maha ngā wāhi me ngā tikanga hei āwhina i a koe i tēnei haerenga, hei whakarato i ngā mōhiohio tika ki a koe, hei tūtaki hoki ki ngā tāngata kua pāngia e ngā wheako rite ki a koe. Koinā te mea e kōrerohia ana e tātou i roto i tēnei tuhinga i tēnei rā.

Tuatahi, he aha te Ankylosing Spondylitis (AS)?

I mua i tā tātou tirohanga hōhonu ki tēnei, me mārama tātou ki tēnei mate. Ko te Ankylosing Spondylitis (AS) he momo mate mumura. Ko te tikanga o te "mumura" ka puta te mumura i roto i te tinana. Ko te nuinga o te wā ka pā ki ngā hononga o tō tuaiwi .

Whakaarohia, he mea hanga tō tātou tuaiwi i ngā wheua iti (vertebrae) e whakatakotoria ana tetahi ki runga i tetahi. Mā ngā hononga i waenganui i ēnei wheua ka āwhina i a tātou ki te piko, ki te toro, ki te takahuri. I roto i te AS, ka whakaekea hētia e te pūnaha ārai mate o te tinana ēnei hononga hauora. Nō reira, ka pupuhi, ka mamae, ka pakari ēnei hononga. I roto i te wā, ka puta he tupu wheua hou i roto i te tuaiwi i tēnei mumura, ka honoa ngā tuaiwi, ā, ka ngaro rawa te kaha ki te piko. Ka tīmata pea tēnei me te pakari o te tuaiwi ina ara ake koe i te ata, ā, i roto i te wā, ka pā ki ētahi atu hononga, pērā i ngā hope me ngā pakihiwi.

Kei hea koe e whiwhi tautoko me ngā mōhiohio

I te wā e noho ana koe i roto i tētahi āhuatanga pēnei, he mea utu nui te kaha e puta mai ana i ngā mōhiotanga tika me te tautoko kare ā-roto. Me titiro tātou ki ētahi o ngā wāhi matua ka taea e koe te tiki āwhina.

Tuatahi, tō tākuta.

Ko tō tākuta rongoā tō hoa pai me tō kaiārahi i tēnei haerenga. Ahakoa te nui o ngā mea e akohia ana e koe i te ipurangi me ō hoa, ko ia anake te mōhio ki tō āhua, ngā maimoatanga tika, ngā rongoā hou, me ngā mahi whakakori tinana me mahi e koe.

• Kaua e wehi ki te pātai atu ki te tākuta mō ngā pātai, ngā feaa rānei kei a koe.
• I mua i te whakamātau i tētahi mea i kitea e koe i runga i te ipurangi, kōrero ki tō tākuta mō taua mea.
• Ki te mea he huringa kei roto i ō tohu, ki te mea he mamae hou kei a koe, kōrerotia katoatia ki a ia.

He aha ngā Rōpū Tautoko?

He wāhi te rōpū tautoko hei huihuinga mā ētahi atu tāngata whai AS pērā i a koe. Ka taea ēnei te whakarite i te taumata hōhipera, i te ipurangi rānei. I Sri Lanka, he māmā ake te kimi rōpū ipurangi.

He aha ngā painga ka riro i a koe mai i tētahi rōpū pēnei?

• Kaua e noho mokemoke:He puna nui te kaha o te whakaaro "Ehara i te mea ko au anake tēnei e pāngia ana e tēnei".
• Ka taea e koe te whakapuaki i ngā wheako: Ka taea hoki e koe te ako i ngā mahi tinihanga iti e whakamahia ana e ētahi atu hei whakahaere i te mamae me te whakangawari ake i ngā mahi o ia rā.
• He āhua whakamarie: He tino whakamarie te kōrero ki tētahi e mārama ana ki ō raruraru.

Whakaarohia kia rua ngā wā i a koe e rapu ana i ngā mōhiohio i te ipurangi!

I ēnei rā, he moana mōhiohio te Ipurangi. Engari i roto i taua moana, kei reira ngā pērara me ngā para, tae atu ki ngā mea morearea. Ina rapu mōhiohio koe mō AS, ka tahuri koe ki ngā blog, ki ngā huihuinga ipurangi, me ngā pāpāho pāpori. Me tino tupato koe ki reira.

I mua i te whakawhirinaki ki tētahi paetukutuku, ki tētahi hapori ipurangi rānei, pātai atu ki a koe anō i ēnei pātai.

Ngā paetukutuku me ngā umanga o te ao e pono ana

Ahakoa kāore he whakahaere nui e whakatapua ana ki te AS i Sri Lanka, he maha ngā whakahaere rongonui o te ao e whakarato ana i ngā mōhiohio pūtaiao. Ahakoa kei te reo Ingarihi ngā mōhiohio o roto, he tino whai hua.

• Te Rōpū Spondylitis o Amerika (SAA): Koinei te whakahaere matua i te Hononga o Amerika e aro nui ana ki te AS me ngā āhuatanga e pā ana. He nui ngā kōrero kei roto i tā rātou paetukutuku mō te mate, ngā maimoatanga, me ngā mahi whakakori tinana.
• Te Tūāpapa Mate Pukupuku: He whakahaere nui tēnei e whakarato ana i ngā mōhiotanga mō te mate pukupuku whānui. He wāhanga motuhake anō tōna mō te AS.
• Te Whare Wānanga ā-Motu mō te Mate Pūkahukahu me ngā Mate Uaua me te Kiri (NIAMS): He tari hauora kāwanatanga tēnei nō te US. He tino pono ngā mōhiohio e whakaratohia ana e rātou.

Kia tūpato hoki tātou ki ngā pāpāho pāpori pērā i a Pukamata me Reddit.

Kei ngā papaaho pāpāho pāpori pēnei i a Pukamata ngā rōpū ā-rohe me ā-ao e aro ana ki ngā tūroro AS. He wāhi pai ēnei hei whakawhitiwhiti wheako me te pātai. Heoi anō, he mea nui anō hoki te whakatūpato kua whakahuatia i runga ake nei.

• Whakamahi i runga i ō kare ā-roto: Ki te kite koe i tētahi rōpū, whārangi, pou rānei e ahua whakapae ana, e rūpahu ana rānei, tera pea he rūpahu. Āta karohia aua wāhi.
• Kaua e whakapoauau i te wheako whaiaro me te tohutohu hauora: Ahakoa te mea ka mea tetahi, "I tango ahau i tēnei rongoā, ā, kua pai ake te ahua," ehara i te mea he tika mōu. Tērā pea he mea morearea mōu. Me whai tonu i ngā tohutohu a tō tākuta mō ngā mea katoa.
• Rapua ngā Pūkete Kua Manatokohia: He tohu kikorangi kei ngā whārangi Pukamata o ngā whakahaere nui, whai ingoa. Ko te tikanga tēnei ko tā rātou whārangi mana. He pono ake ngā mōhiohio mai i aua wāhi.

He wero te noho tahi me te AS. Engari kāore koe e hiahia ki te aro atu ki tēnei mea ko koe anake. Mā te whiwhi i ngā mōhiohio tika me te tautoko mai i ngā tāngata tika ka māmā ake ai tēnei haerenga māu.