Kia ako tātou mō te Central Pontine Myelinolysis (CPM), he mate kino e ngaro ai te konutai i te tinana, ā, ka ngana ki te whakakapi!

He mea morearea te hekenga o te tote, te konutai rānei, i roto i tō tātou tinana i ētahi wā. Engari i mōhio koe mēnā ka piki ake te nui o te konutai kua heke, ka kino pea tō tātou roro? Ko tētahi mate kino ka puta i taua wā ko te 'Central Pontine Myelinolysis (CPM).' I ētahi wā ka kiia hoki ko te 'Osmotic Demyelination Syndrome (ODS).' Me kōrero taipitopito tātou mō tēnei, nā te mea he mea tēnei me mōhio tātou katoa.

He aha te 'Central Pontine Myelinolysis (CPM)'? He māmā noa iho...

Ki te whakarāpopototanga, ko te 'Central Pontine Myelinolysis (CPM)' he kino ki ngā pūtau io i te rohe 'Pons' i waenganui o tō tātou roro me te hipoki tiaki e karapoti ana i a rātou, e kiia nei ko te 'pūkahu myelin.' Whakaarohia he rite ki te hipoki kirihou e karapoti ana i te waea. Ka āwhina tēnei pūkahu myelin i ngā pūtau io kia tere ake te haere.

He wāhanga tino nui o te tinana tō tātou pūtake roro. Koinei te wāhi e haere ai ngā kōrero i waenganui i te taurakira me te wāhanga "whakaaro" nui o te roro. Ka āwhina hoki ki te whakahaere i ngā mahi nui pēnei i te manawa, te nakunaku, me te manawa o te ngākau.

Nō reira, i roto i te take o te `CPM`, ka pakaru tēnei pūkahu myelin, ā, i te mutunga ka taea te whakangaro i ngā pūtau io. He maha ngā wā ka puta tēnei mena ka piki ohorere te taumata konutai i roto i tō tātou tinana, he tere rawa. Ka puta mai tēnei mōrearea ina koa kei te rongoatia e tātou te iti o te konutai i roto i te tinana (koinei te mea e kiia nei e tātou ko te `hyponatremia`).

Ka taea e te CPM te whakaputa i ngā momo tohu. Kei roto i ēnei ko te ngoikore o te uaua, te pararutiki, ngā uauatanga ki te kōrero, me ngā huringa whanonga. Ka ora katoa te nuinga o te tangata, engari ko ētahi ka pāngia e ngā hauātanga roa. I ētahi wā onge, ka mate pea.

Ko wai te hunga tino mōrearea ki te whakawhanake i tēnei āhuatanga `CPM`?

Ina hoki, ko tetahi mate, ko tetahi āhuatanga rānei e whakaiti ana i ngā taumata konutai i roto i te tinana ka whakanui ake i te mōrearea o te CPM. Ko te hunga kua iti ngā taumata konutai mō te neke atu i te 48 hāora te hunga kei roto i te mōrearea nui rawa atu.

Ko ngā āhuatanga e pā ana ki te `CPM` ko:

• Te nui rawa o te inu waipiro ('Te mate whakamahi waipiro') : Koinei te tino take.
• Te whakawhitinga ate : Ka puta pea ngā raruraru konutai ahakoa kāore te ate e mahi tika ana.
• Ngā Wera Kino : Ka pā te kore taurite o ngā wai me ngā tote o te tinana i ngā wera kino.
• Hyperemesis gravidarum (te ruaki nui i te wā e hapu ana) : Ka ruaki nui ētahi whaea i te wā e hapu ana, ā, ka iti pea te taumata o te konutai.
• Te kore kai pai : Ka puta ake ēnei raruraru ahakoa kāore he kai me he inu tika.

He pēhea te noa o te ingoa o tēnei āhuatanga ko te 'Central Pontine Myelinolysis'?

Ki te pono, kāore e taea e ngā tākuta te kī tika i te whānui o tēnei mate. Ko tētahi take he maha ngā tāngata he CPM ngawari kāore e whakaatu i ngā tohu. Arā, kāore rātou e mōhio kei a rātou te mate.

Heoi, ko ngā keehi kino o te CPM ka kitea nuitia i roto i te hunga e inu nui ana i te waipiro, i ngā kaiwhiwhi whakawhitinga ate, me te hunga he mate hauora kino kē atu.

He aha i puta ai tēnei 'Central Pontine Myelinolysis'? He aha ngā take?

E ai ki te kōrero i mua ake nei, ko te tino take o te 'Central Pontine Myelinolysis' ko te pikinga tere o ngā taumata konutai. Ka puta tēnei i te nuinga o te wā ina rongoāhia te iti o ngā taumata konutai i roto i te tinana ('hyponatremia').

Nā, tirohia, he mea nui te konutai hei irahiko mō ō tātou tinana. He māmā noa iho, ka āwhina te konutai ki te whakataurite i te nui o te wai i roto, i waho hoki i ō tātou pūtau. Ka taea e te nui o te inu waipiro, te mate ate, me ētahi atu āhuatanga hauora te whakaiti i te taumata konutai i roto i te tinana. Ki te kore e rongoatia tika tēnei āhuatanga, e kiia nei ko te hyponatremia, ka arahi pea ki te mate kino, tae atu ki te whakaurunga ki te hōhipera.

Nō reira, ina noho koe ki te hōhipera, ka whakatikahia e ngā tākuta tēnei taumata iti o te konutai mā te hoatu ki a koe he otinga tote ā-uaua (IV) . Heoi, ki te tere rawa te piki o tō taumata konutai i konei, koinei te wā ka puta ai te CPM.

Whakaarohia tēnei mea, pērā i te mea ka puta ina ringihia ohoreretia he wai nui ki runga i tētahi tipu maroke. He mea tēnei me mahi āta. Pērā anō hoki mō te whakatikatika i ngā taumata konutai o te tinana.

Me pēhea te puta o tēnei 'Central Pontine Myelinolysis'? He aha te mea e tupu ana i roto i te tinana?

Ina piki tere te taumata o te konutai i roto i tō toto, ka neke te wai i roto i ngā pūtau io ki waho o ngā pūtau. Ka kiia tēnei he 'nekehanga osmotic' . Ka meinga ngā pūtau io kia maroke , me te mea kei te maroke. Ka pakaru ngā pūtau io me te papa myelin e karapoti ana i a rātou i tēnei maroke. Ka kiia tēnei kino ki te papa myelin ko te 'myelinolysis' .

Ko ngā pūtau io i roto i te 'Pons', he wāhanga o te take roro, he tino pāngia e tēnei momo 'myelinolysis'. Koia i huaina ai ko te 'Central Pontine Myelinolysis'.

He aha te rerekētanga i waenga i te 'Central Pontine Myelinolysis (CPM)' me te 'Extrapontine Myelinolysis (EPM)'?

Kāore tēnei kino o te myelin e puta i ngā pons anake. I ētahi wā, ka puta te myelinolysis i ētahi atu wāhanga o te roro. Ko tēnei momo kino o te myelin i waho o ngā pons e kiia ana ko te extrapontine myelinolysis (EPM) .

Heoi, he tino onge te EPM. Tata ki te kotahi i roto i te whā o ngā tāngata whai CPM (tata ki te 25%) ka pāngia pea e te EPM.

He aha ngā tohu o te 'Central Pontine Myelinolysis'?

Ko ngā tohu o te CPM ka tīmata i roto i ētahi rā torutoru i muri i te whakatikatika tere o ngā taumata konutai. Ka rerekē pea ēnei tohu i runga i te wāhi i pakaru ai te myelin i roto i te roro me te nui o te pakaru. Ko ngā tohu matua ka kitea ko:

• Ngā huringa whanonga: pērā i te riri ohorere, te āwangawanga rānei.
• Pōhēhē: Te āhua nei kua pōuriuri tō hinengaro, me te mea kua wareware koe ki hea koe me te wā.
• Te uaua ki te kōrero (dysarthria): Ka pōturi ngā kupu, ā, ka kore e mārama te kōrero.
• Te uaua ki te horomi (dysphagia): Te uaua ki te horomi i te kai me te inu, me te mea kei te kōkō koe.
• Pararutiki kanohi: Ka ngoikore tetahi taha o te mata, ā, ka mutu te mahi tika.
• Ngoikoretanga o te uaua: Me te mea kua ngoikore ngā peka me ngā waewae.
• Te ngaro o te taurite me te taunga o ngā nekehanga: Te hēmanawa ina hikoi ana, te kore e taea te hopu tika i ngā mea.
• Ngā nekehanga uaua me ngā wiri ā-ringa ('Wiri'): Te wiri kore e taea te whakahaere o ngā peka.
• Ngā nekehanga kanohi koretake ('Te ngoikore o te oculomotor').
• Te mate a Parkinson: Tērā pea ka puta ngā wiri, te uaua ki te kōrero, me te uaua ki te hikoi, he rite ki te mate a Parkinson.
• Quadriparesis: He ngoikore o ngā ringa e whā , ngā waewae, me ngā waewae.

I ngā wā tino kino, ka taea e te CPM te whakaputa i tētahi āhuatanga e kiia nei ko te 'locked-in syndrome', arā, ka pararutiki ngā uaua katoa engari ko ngā uaua kanohi. Ko te tikanga tēnei ka taea e te tūroro te whakaaro me te neke i ōna kanohi, engari kāore e taea te kōrero, te neke rānei i tōna tinana. Ka taea hoki e ia te taka ki te koma, te mate rānei.

Me pēhea te tātaritanga i tēnei āhuatanga 'Central Pontine Myelinolysis'? (Tauātanga)

Hei tātaritanga i te CPM, ka mahi tō tākuta i ēnei e whai ake nei:

• Pātai atu mō ō tohumate: he aha ō kare ā-roto, kia pēhea te roa o te pāngia koe e ēnei raruraru, me ētahi atu.
• Ka rapua e rātou ngā take pea: ngā mea pēnei i te āhua o ō taumata konutai i te wā i rongoatia ai koe, me te mea he mate hauora anō ōu.
• He matawai MRI: Ka taea e te MRI te āwhina i tō tākuta ki te kite i ngā wāhi kua pakaru (ngā whara) i roto i tō roro i puta mai i te myelinolysis. Heoi, i ētahi wā, kāore pea ēnei wāhi kua pakaru e kitea i runga i te MRI tae noa ki te rua wiki i muri i te tīmatanga o ngā tohu.

He aha ngā maimoatanga mō te 'Central Pontine Myelinolysis'?

Kāore he maimoatanga paerewa motuhake mō te CPM. Ko te whāinga matua o te maimoatanga he whakahaere i ngā tohu. Hei tauira, i ētahi wā ka whai hua ngā rongoā dopaminergic (ngā rongoā e whakanui ana i ngā taumata dopamine) mō te hunga whai tohu a Parkinson (te wiri, te uaua ki te kōrero).

Kua rongoāhia e ētahi tākuta te mate o te `CPM` mā te whakaheke anō i ngā taumata konutai, kātahi ka whakapiki haere anō i aua taumata mā te āta haere. Heoi, kāore tēnei tikanga rongoā e whai hua mō te katoa.

Me pēhea te tiaki i a koe mai i te 'Central Pontine Myelinolysis'? (Ārai)

Koinei te mea tino nui.

• Mena he mate hauora tōu e iti ai te taumata o te konutai i roto i tō tinana, kia tūpato koe ki tēnā.
• Mena he mate inu waipiro tōu, rapua he awhina mai i tō tākuta. Ka taea e te inu waipiro te whakararu i te hyponatremia (he iti te taumata konutai). Ka taea hoki e ia te arahi ki te ngoikore o te ate, ka taea ai te whakawhitinga ate. Koinei ngā tino take mōrearea mō te CPM.

Ka ārai ngā tākuta i te Central Pontine Myelinolysis (CPM) mā te whai i ngā aratohu haumanu o nāianei hei whakapiki haere i ngā taumata konutai i roto i ngā tūroro e pāngia ana e te hyponatremia me te haumaru.

Ka taea te whakaora i te Central Pontine Myelinolysis? Ka taea te whakakore?

He raruraru tēnei e pā ana ki te tini o te tangata. E ai ki ngā rangahau tata nei, tata ki te 94% o te hunga e pāngia ana e te CPM ka ora tonu. Waihoki, i waenga i te 25% me te 40% ka ora katoa.

Heoi, tata ki te 25% o te hunga whai CPM kāore e tino ora. Tērā pea ka hiahia ēnei tāngata ki ētahi tautoko puta noa i ō rātou oranga. Mā ngā maimoatanga pēnei i te whakaora kōrero, te whakaora mahi, me te whakaora tinana ka āwhina i a rātou ki te mahi i ngā mahi o ia rā.

Me pēhea te noho tahi me te āhuatanga `CPM`?

Mā tō tākuta koe e hoatu ki a koe ngā tohutohu e hiahiatia ana e koe. Mā te whai i taua mahere maimoatanga, ka taea e koe te whakahaere i ngā tohu e whakararuraru ana i tō oranga o ia rā.

Ka taea e koe me tō whānau te whai hua nui mai i ngā ratonga tautoko. Kōrero ki tō tākuta mō te tiaki i te kāinga, ngā rōpū tautoko, me ētahi atu rauemi.

Me pēhea te tiki āwhina mō te mate whakamahi waipiro?

Ka rongoāhia e ngā tākuta te mate inu waipiro mā te rongoā whanonga me te rongoā. He maha anō hoki ngā rōpū tautoko e tuku ana i te whakatenatena me te āwhina ki te whakahaere i te kawenga.

Ka taea e te hunga whai mate waipiro te whiwhi maimoatanga i ngā hōhipera, i ngā whare whakaora noho, i ngā ratonga hauora rānei.

Ko te taahiraa tuatahi ki te ora mai i te mate inu waipiro ko te whakaae he raruraru tōu. Ina rapu awhina koe i te tākuta, ka nui ake te tūponotanga o te ora.

Ko te mea nui - kia maumahara! (Karere hei tango ki te kāinga)

Ko te Central Pontine Myelinolysis (CPM) he āhuatanga ka taea te ārai. E whai ana ngā tākuta i ngā aratohu o nāianei hei whakanui ake i ngā taumata konutai i roto i ngā tūroro e pāngia ana e te hyponatremia (iti te konutai).

Ka taea e koe te whakaiti i tō mōrearea, inā koa mēnā he raruraru tōu ki te whakamahi waipiro, mā te mahi i ngā mahi hei whakamutu. Mēnā e hiahia ana koe ki te āwhina, kōrero ki tō tākuta. Ka taea e rātou te whakarato i te tautoko me ngā rauemi e hiahiatia ana e koe hei hanga i ngā huringa āhua noho me te whakawhanake i ngā tikanga hauora.

Kia maumahara, ko te mōhiotanga te parenga nui rawa atu!

` Te Myelinolysis o te Pontine Waenga, te Roro, ngā Io, te Konutai, te Myelin, te Waipiro, te CPM