Kei te āwangawanga koe mō ngā ira whero porohita i runga i tō kiri? Me kōrero tātou mō te Discoid Lupus!

Kua kite koe i ētahi tāngata he whero, he paku piki ake ngā ira i runga i ō rātou mata, i ō rātou paparinga, i te tumuaki rānei? I ētahi wā, kāore ēnei e mākūkū, e mamae rānei. Ahakoa he tokomaha e whakaaro ana he mate kiri noa tēnei, he mate pea tēnei e hiahia ana kia aro nui atu. I tēnei rā, e kōrero ana tātou mō tētahi mate e kiia nei ko te 'Discoid Lupus' e puta ai ēnei tohu. Ahakoa he ingoa tauhou tēnei, he mea tino nui kia mōhiotia.

He aha te Discoid Lupus?

Ko te Discoid Lupus, e mōhiotia whānuitia ana ko te 'Discoid Lupus Erythematosus (DLE),' he mate e pā tika ana ki tō tātou kiri. Kei roto i te whakarōpūtanga 'Cutaneous Lupus Erythematosus (CLE)' o te lupus. Ko te tikanga o te kupu 'Cutaneous' he 'e pā ana ki te kiri.' Ko te tikanga ko ēnei momo lupus te nuinga e pā ana ki tō tātou kiri.

Ka puta he whara porowhita, whero, paku piki ake, me te matotoru ki te kiri o te tangata e pangia ana e te discoid lupus, inā koa ki te mata, ki ngā paparinga, ki te ihu, me te tumuaki. Tērā pea ka kiripaka ēnei i roto i te wā. Ka kiia hoki tēnei ko te chronic cutaneous lupus. Ko te tikanga o te chronic he roa te wā e mau ana.

Nā, he aha te 'Lupus'?

Ina kōrero tātou mō te 'lupus', he maha ngā wā ka kōrerohia he mate e kiia nei ko te 'Systemic Lupus Erythematosus (SLE).' Koinei te momo lupus tino noa. Tata ki te 70 i roto i te 100 ngā tūroro lupus e pāngia ana e tēnei mate.

Nā, tirohia, ahakoa ko te discoid lupus (DLE) te nuinga o te pānga ki te kiri, ko te momo e kiia nei ko te SLE ka pā ki te tinana katoa. Koinei te tikanga o te 'pūnaha'. He mate pūnaha ārai mate . I roto i ngā kupu māmā, ka pōrearea te pūnaha parepare o tō tātou tinana, te pūnaha ārai mate, ka tīmata ki te whakaeke i ō tātou ake pūtau me ngā kiko hauora. Ka puta te mumura, te mumura rānei, puta noa i te tinana.

Ko te tangata whai SLE ka pāngia pea e ngā tohu penei:

• Te kirika e puta mai ana me te kore take
• Te mamae o ngā hononga me te pupuhi
• Ngenge tonu
• Mamae o te uma
• Te putanga mai o ngā momo ira me ngā koha i runga i te kiri
• Te aro ki te hihi o te rā (photosensitivity)

Ko te mea nui, ehara i te mea ka pāngia te tinana katoa e te discoid lupus erythematosus (SLE), e pāngia ai te tinana katoa. Ka kōrerohia tēnei e tātou i muri tata mai.

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He aha ngā momo lupus (CLE) e pā ana ki te kiri?

E ai ki tā mātou i kōrero ai i mua ake nei, ko te discoid lupus he momo lupus e pā ana ki te kiri. E toru ngā momo matua. He rerekē te tauira o ngā whara kiri o ia momo.

Ka taea e te tangata te pāngia e te neke atu i te kotahi momo lupus?

Ae, ka taea. Kotahi anake te momo lupus o ētahi tāngata. Ko te tikanga ka pāngia ētahi e te SLE anake, ko ētahi ka pāngia e te DLE anake. Engari i ētahi wā ka pāngia te tangata e te neke atu i te kotahi momo lupus i te wā kotahi.

Engari kia maumahara ki tēnei. Ko te nuinga o te hunga whai discoid lupus (DLE) kāore he pūnaha lupus erythematosus (SLE), e pā ana ki te tinana katoa. Tata ki te 5% o te hunga whai DLE, ara tata ki te 5 i roto i te 100, ka pāngia e te SLE i muri mai. Waihoki, tata ki te hauwhā (25%) o te hunga whai SLE ka pāngia e ngā whara kiri e rite ana ki ērā e kitea ana i roto i te discoid lupus. Nō reira, he hononga kei waenganui i ngā āhuatanga e rua, engari kāore te hunga katoa e pāngia ana e tētahi ka pāngia e tētahi atu.

He aha ngā take o te discoid lupus? Ko wai te hunga tino mōrearea?

Ina hoki, kāore anō kia mōhiotia e ngā tākuta te tino take o te lupus, tae atu ki te discoid lupus. Engari e mārama ana he hapa kei roto i tō tātou pūnaha ārai mate. Waihoki, ka horapa tēnei mate i roto i ngā whānau . Ko te tikanga, ki te pāngia tētahi o tō whānau e te mate pūnaha ārai mate pēnei i te lupus, tera pea ka tūpono koe ki te mate.

Kia tirohia tātou ko wai kei te nui ake te mōrearea ki te pāngia e te discoid lupus.

He aha ngā tohu me ngā raruraru o te discoid lupus?

Ko te tohu matua ko ngā whara kōpae i kōrerotia e tātou i mua ake nei.

• Tauwāhi: Ka kitea nuitia ki te tumuaki me te mata, engari ka taea hoki te puta ki ētahi atu wāhanga o te tinana, inā koa ngā wāhi e pāngia ana e te rā.
• Ngā Āhuatanga: Kāore ēnei ira e mamae, kāore hoki e mākūkū . He whero, he paku piki ake, ā, i ētahi wā he āhua unahi te mata.
• Ngā āhuatanga o muri mai: I muri i te ora o ēnei ira, ka puta he koha, ka memeha te tae . I ētahi wā ka huri te kiri ki te mā, ki te parauri/mangu rānei.

Ngā raruraru pea

• Te ngaro o te makawe: Ki te puta ēnei ira ki te tumuaki, ka taka pea te makawe o taua wāhi. Ko te mea kino rawa atu, ki te puta he koha ki taua wāhi, ka mutu pea te tupu o te makawe mō ake tonu atu .
• Te mōrearea o te mate pukupuku kiri:Mena he roa te wā e mau ana ngā ira discoid lupus i roto i a koe, he iti noa te mōrearea o te whakawhanake i te mate pukupuku kiri i aua wāhi. Ina koa ka puta ēnei ira i roto i te waha, tera pea ka nui ake te mōrearea o te whakawhanake i tētahi momo mate pukupuku kiri e kiia nei ko te squamous cell carcinoma.
• Lupus Chilblain: He tino onge tēnei mate. I roto i tēnei mate, ka puta he ira papura, he mātā rānei ki te kiri ina pāngia e te makariri. Ka tino mamae ēnei.

Me pēhea te tautuhi i tēnei mate?

Mena kei a koe ēnei tohu, ko te mea pai ko te toro atu ki tētahi tākuta kiri . Māna koe e tirotiro, e whakahaere whakamātautau hoki hei whakaū i te mate.

Ka kiia tēnei he koiora kiri . Ko te tikanga o tēnei ko te tango i tētahi wāhanga iti rawa o te kiri mai i te wāhi e pangia ana te ira. Kātahi ka tukuna ki tētahi taiwhanga, ka tirotirohia i raro i te karuārai. Mā te titiro ki ngā huringa o aua pūtau, ka taea e tātou te tino mōhio mēnā he discoid lupus, he mate kiri kē atu rānei.

He aha ngā maimoatanga?

Kāore e taea te whakaora katoa i te discoid lupus. Heoi, ka taea e te maimoatanga te āwhina i te whakahaere i ngā tohu, te ārai i ngā putanga hou, me te āwhina i a koe kia ora noa. Ma tō tākuta e tohu te maimoatanga tika māu i runga i te kaha o ō tohu.

Kei raro nei ētahi o ngā tikanga maimoatanga matua e whakamahia ana.

He mea nui: Me tīmata noa ēnei maimoatanga katoa i runga i te tohutohu a te taote . Kaua e whakamahi i te rongoā māu ake.

Me pēhea te aukati i ngā putanga o te mate pāwera?

Anei ngā mea me mōhio te hunga katoa e pāngia ana e te discoid lupus. Mō te 70% o ngā tūroro lupus, ka kino ake ngā tohu ina pāngia e te hihi ultraviolet (UV) o te rā. Ko te tikanga ka puta ake pea ngā ira hou, ka whero pea ngā ira o mua, ka nui haere rānei. He mea nui rawa atu tēnei mō te tangata e noho ana i tētahi whenua pēnei i a tātou e kaha ana te rā i te tau katoa.

Hei tiaki i a koe i te rā, hei ārai hoki i te kino haere o te mate, me mahi ēnei e whai ake nei:

• Pania he paninga rā i ia rā i mua i te haerenga ki waho i te rā. Kōwhiria he paninga rā whānui (e tiaki ana i te UVA me te UVB) me te SPF 30 pea te iti rawa.
• He mea pai te whakamahi i te hinu ārai rā, ehara i te mea i te wā e haere ana koe ki waho anake, engari i te wā e noho ana koe i roto i te whare, ina koa mēnā kei te tata koe ki te matapihi.
• Tāpirihia anō te hinu ārai rā i ia 4 hāora. Tāpirihia anō i mua i te werawera, i mua rānei i te haere ki te wai.
• Kia tupato kia kaua e pā ki ngā hihi tino kaha o te rā i waenga i te 10 i te ata me te 4 i te ahiahi .
• Ina haere koe ki waho, whakamahia ngā mea pēnei i ngā kākahu ringaringa roa, ngā pōtae whānui, me ngā maru .
• Ahakoa ngā rama kōrekoreko i roto i te whare, ka taea e rātou te tuku i ētahi hihi UV, nō reira kaua e noho roa i raro i aua rama.
• Kaua rawa e whakamahia ngā moenga tanning .

Ki te whai koe i ēnei mea i runga i te tika, ka taea e koe te whakahaere i ngā tohu ki te taumata nui.