Kei te pāngia koe e ngā whero, e te ekisema rānei i tō kiri, ā, kei te whakararuraru i a koe? He tohu pea tēnei nō te mate e kiia nei ko te lupus . He maha ngā tāngata e mataku ana ina rongo i te ingoa, engari ki te mōhio koe, ehara i te mea uaua te whakahaere i tēnei mate. Me titiro tātou ki ēnei mate lupus , he aha i puta ai, me ngā mea me mahi e tātou.
He aha ngā ponana lupus? Nō hea mai?
He whakarāpopototanga noa iho, ko te kiri mākūkū he wāhi e mumura ana , e mākūkū ana, e pupuhi ana, e rerekē ana rānei te tae o te kiri. Ka puta ēnei i ngā wāhi katoa o tō tinana. Engari ko te nuinga o te wā ka kitea i:
- I ngā ringa e rua
- I te tuara
- I te mata
- Ngā nikau me ngā ringaringa
- I te kaki
Ko tētahi o ngā tohu tino mōhiotia o te lupus ko te ponana āhua pūrerehua . Hei whakamārama, he ponana whero e rite ana ki te pūrerehua e whera ana i ōna parirau, e tīmata ana i tō ihu ka horapa ki raro i ō paparinga. E mōhiotia ana tēnei e te hauora ko te 'ponana mate'. Engari ehara i te mea koinei anake, he maha atu anō ngā momo ponana ka puta i runga i te momo lupus kei a koe.
Ko te mea nui ko te tino take o tēnei ponana ko te pānga ki te rā . Ka tino pāngia tō kiri e ngā hihi ultraviolet (UV) mai i te rā, i te mārama horihori rānei. Ka taea e tēnei te whakaputa ponana, te whakakino rānei i te ponana o mua.
He aha ngā momo matua o ngā ponana lupus?
He rerekē ngā momo lupus, ā, he rerekē anō hoki te puta o te ponana kiri. Me titiro tātou ki ngā momo matua.
| Momo Whēwhe | Ngā āhuatanga matua | Ngā koha/ngā panoni kiri |
|---|---|---|
| Te Pōuri o te Lupus Discoid (DLE) | Koinei te momo lupus kiri tino noa. Ko te mata me te tumuaki te mea tino pāngia ai. He ponana porowhita, matotoru, unahi ēnei, he rite te āhua ki te moni. Kāore i te mākūkū, kāore hoki i te mamae. | Tērā pea ka puta he koha i muri i te whakaoranga. Tērā pea ka huri te tae o te kiri mō ake tonu atu (ka huri hei mā/mangu). Mēnā ka puta ki te tumuaki, ka taka pea te makawe. |
| Te Pōuri o te Kiri i raro i te Āhua Koretake (SCLE) | He maha ngā wā ka puta mai i ngā wāhi e whiti ana te rā pērā i ngā ringa, ngā pakihiwi, te uma, me te kaki. He rite tonu ki ngā mowhiti e honoa ana tetahi ki tetahi. Kāore e mamae, kāore hoki e mākūkū. | Kāore he koha e puta ana i te wā e ora ana, engari ka rerekē pea te tae o te kiri mō ake tonu atu. |
| Te Pōuri o te Kiri (ACLE) | Ka puta ēnei i te wā e pāngia ana te mate lupus. Ko te ponana āhua pūrerehua (Malar Rash) i whakahuatia i mua ake nei nō tēnei momo. Tērā pea ka puta he puku māwhero/whero, ā, ka haere tahi me te mamae (mumura). | Kāore e waiho he koha i te nuinga o te wā, engari ka roa pea tēnei ponana kia ora rā anō te mate. |
Kia ako tātou mō ētahi atu momo onge
Haunga ēnei momo matua e toru, he maha atu anō ngā momo ponana onge.
- Chilblain lupus : He puku mākūkū, he mamae e puta mai ana i te makariri me te makuku.
- Lupus erythematosus tumidus: He pupuhi teitei, he pupuhi teitei i runga i te kiri. Kāore ēnei e waiho i ngā koha ina ora.
- Lupus panniculitis: He momo e pā ana ki ngā paparanga hohonu o te kiri. Koia te takeKa puta pea ngā mate pukupuku me ngā kōhatu e puta tūturu mai ana hei poka i runga i te kiri i a rātou e ora ana.
- Lupus pēpi hou: He mate e pā ana ki ngā pēpi hou. Ka kitea ngā ira porowhita i te upoko, te mata, me te kaki.
He aha i puta whakarere mai ai tēnei ponana lupus?
He maha ngā take ka puta ohorere mai ai, ka kino haere rānei te mate lupus. Ka kiia ēnei e mātou he 'pūtake'.
He māmā noa iho, he mate pūnaha ārai mate te lupus, e whakaekehia ai e tō tātou ake pūnaha ārai mate tō tātou ake tinana. Nō reira, ina pāngia tātou e te rā, ka kaha rawa te mahi a ēnei pūtau ārai mate, ka puta te mumura o te kiri. Koinei te hua ka kitea e tātou he ponana.
Haunga te hihi o te rā, he maha atu anō ngā take noa:
- Mate pāwera
- Te whara ki te tinana
- Ētahi rongoā
- Te kai paipa (Te pānga ki te auahi)
- Te ahotea nui
- Ngā huringa o te pāmahana
Ka taea e koe te kōrero ki tō tākuta kia kitea ai te tino pūtake o tō ponana.
He aha ngā maimoatanga mō tēnei?
He maha ngā maimoatanga e wātea ana hei whakahaere me te whakaora i ngā ponana lupus. Mā tō tākuta e tohu te mea tino tika i runga i te momo ponana kei a koe me te kaha o te mate.
- Ngā kirimi ā-papa – hei tauira, te kirimi corticosteroid
- Rongoā ārai malaria
- Ngā rongoā paturopi
- Ngā momo retinoid (A retinoid)
- Ngā rongoā ārai mate
- Ngā rongoā koiora (Ngā rongoā koiora)
Ko te mea nui: Ko tō tākuta anake ka taea te whakatau i te maimoatanga e pai ana mōu.Ka whakatauhia te maimoatanga i runga i te momo ponana kei a koe me te āhua o te mate. Nō reira, me rapu tohutohu hauora koe.
He aha ngā wā pai rawa atu hei toro atu ki te tākuta?
Mena kei a koe te lupus, ki te whakaaro rānei koe kei a koe anō, he mea tino nui kia kite koe i te tākuta me te tiki tohutohu tika.
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Ka taea te ārai i ngā ponana lupus?
Ahakoa kāore e taea te ārai katoa i ētahi o ngā ponana lupus, mā te karo i ngā mea whakaoho ka nui te whakaora. He mea tino nui te tiaki i te rā.
- Mauria he hinu ārai rā pai i ia rā, ahakoa kei roto koe i te whare . Tāpirihia anō i ia rua hāora.
- Whakaitihia te pānga ki te rā kaha i waenga i te 10 i te ata me te 4 i te ahiahi. Koinei te wā e kaha rawa ana ngā hihi o te rā.
- Ki te mea kei te haere koe i te rā, taupokina tō kiri ki ngā mea pēnei i ngā kākahu ringaringa roa me te pōtae whānui.
- Kaua e whakamahia ngā moenga kiriuhi.
- He pai ake mēnā ka taea e koe te tāpiri i ngā taupoki matapihi tiaki ki ngā matapihi o tō whare hei tiaki i a rātou mai i ngā hihi UV.
He uaua te whakahaere i te Lupus. Tērā pea ka tino taumaha ngā raruraru kiri, ina koa ko te hinengaro me te tinana. Engari kāore koe e hiahia ki te mamae i ēnei mea ko koe anake. Ka taea e te tākuta kiri whai tohu, e tō tākuta whānau rānei te āwhina i a koe ki te whakahaere i tēnei āhuatanga.
Karere Tangohia ki te Kāinga
- He mea noa te puta o ngā ponana kiri i roto i te lupus. Ko te ponana āhua pūrerehua i te mata (te ponana mate pāwera) tētahi o ngā tohu matua.
- Ko te hihi o te rā te tino pūtake o tēnei ponana, nō reira he mea nui te tiaki i a koe mai i te rā.
- Ki te puta he ponana rerekē, he ira rānei i runga i tō kiri, kaua e tātaritanga i a koe anō, kaua hoki e rongoā, engari me toro atu ki te tākuta.
- Mā te maimoatanga tika, ka taea te whakahaere i ngā ponana lupus, ā, ka taea hoki te whakaiti i ngā koha. Nō reira kaua e wehi ki te rapu tohutohu hauora.
👩🏽⚕️ Ngā pātai tāpiri (FAQs)
💬 Me āwangawanga koe mēnā ka puta he whero, he āhua pūrerehua (Lupus Rash) i tō mata?
Ki te mea he maha ngā wā ka pāngia koe e te whero nui i ō paparinga me tō ihu (te whero o te pūrerehua), ehara i te mea noa. He tohu nui pea tēnei o tētahi mate kino e kiia nei ko te 'Lupus (SLE).' Nō reira, ki te pāngia tētahi pakeke e tēnei momo whero rerekē, me toro atu ki te tākuta tonu.
💬 Kei te kino te rā i te ponana i puta mai i te lupus?
Āe! Ko te hunga whai lupus te hunga tino pāngia e te hihi o te rā (photosensitivity). Ahakoa he poto noa te wā i raro i te rā, ka puta he ponana nui me te mumura e rite ana ki te werawera o te tinana katoa. Nō reira, he mea tino nui te pania o te hinu ārai rā ina haere ki waho.
💬 Ka taea te whakaora i tēnei ponana whero o te kiri?
He mate pūnaha ārai mate te Lupus e kore e taea te whakaora katoa. Heoi, mā te awhina o ngā kirimi motuhake (ngā kirimi steroid / Hydroxychloroquine) i tohua e ngā tākuta me te tiaki i a koe mai i te rā, ka taea e koe te whakakore i ngā ponana me ngā koha i tō kiri, ā, ka ora i te oranga noa.
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