E mōhio ana mātou ehara i te mea ngāwari te noho me te Ankylosing Spondylitis, te AS rānei e mōhiotia ana e tātou katoa. Ehara i te mea he raruraru tuara noa iho. He mate roa tēnei ka pā ki tō oranga katoa, ki tō mahi, ki ō mahi o te whare, ki tō wā ki ngā hoa, me ēnei mea katoa. Engari kāore koe e hiahia ki te aro atu ki tēnei wero ko koe anake. He kaha nui tēnei ki te kōrero ki te hunga e aroha ana ki a koe, e tata ana hoki ki a koe, me te tiki i tā rātou tautoko.
Ko wai tāu e hiahia ana ki te kōrero mō tēnei?
He mea tino whaiaro te kōrero ki tētahi mō tētahi mate pēnei i te AS. Nō reira, ko wai tāu e kōrero ai, me te nui o ngā kōrero ka whakapuakina e koe, kei a koe te whakatau. Nāu te whakatau.
Whakaarohia, i ētahi wā me whakarerekē e koe tētahi haerenga kua whakaritea e koe, me tono āwhina rānei kia oti tetahi mea. Ko te hunga e noho tahi ana koe i ia rā, pērā i tō whānau, i tō hoa rangatira, i tō hoa pai rānei, ko rātou te hunga e pāngia nuitia ana e tēnei āhuatanga.
I ētahi wā, ka pōuri pea koe, ka pouri rānei mō tō āhua. Tērā pea ka rite koe ki te mea kei te whakapōrearea koe i ō hoa ina kore e taea e koe te whakauru atu ki a rātou mō ngā mahi. Engari , ki te nui ake tō kōrero mō tēnei mea me te pono, me te tuwhera hoki ki ō whanaunga, ka māmā ake te noho tahi me rātou i ngā wā pai me ngā wā kino o tō ao .
He aha tāu e hiahia ana ki te kōrero? Me pēhea te kōrero?
Tērā pea kei te whakaaro koe, "Āe, māku e kōrero atu. Engari me aha ahau? Me pēhea taku tīmatanga?" He uaua pea te kōrero mō tēnei mea i ētahi wā, ahakoa ki tētahi e tino tata ana ki a koe. Ko te mea pai ko te kōrero māmā noa iho, me te kōrero tika tonu.
Ki te hiahia koe ki te whakamārama i te AS ki a rātou, me piri ki ngā kaupapa matua mēnā kāore rātou e tono mai i ētahi atu taipitopito. Ki te mea kei te kōrero koe mō ō kare ā-roto, ngana kia tika. Hei tauira, kaua e kī noa, "Kei te raru ahau," engari me kōrero mō ngā tohu e tino whakararuraru ana i a koe.
Whakaarohia kāore e taea e koe te mahi i tētahi mahi, te haere rānei i tētahi haerenga. Whakamāramahia te take ki tō hoa aroha. Ka taea e koe te kī atu pēnei, "Nā te pakari o tōku tuara, he tino mamae te noho mō ngā wā roa. Koia te take kāore e taea e au te haere i tēnei haerenga." Pērā ai, ka māmā ake tā rātou mārama ki tō āhuatanga.
Me whakamārama tō āhua hauora ki a rātou.
Kāore pea tō whānau me ō hoa i te mōhio nui ki te AS. Tērā pea ka whakaaro rātou he "raruraru manawa" noa iho. Nō reira, āwhinahia rātou kia mārama he aha te AS me tōna pānga ki tō oranga o ia rā.
He māmā noa iho, ko te AS he āhuatanga e whakaekehia ai ngā hononga o te tuaiwi e tō tātou pūnaha ārai mate nā te hapa. Ka puta te mamae, te pakari, me te uaua ki te neke.
Ki te hiahia koe, he mea pai kia kawea mai tō hoa rangatira, tō hoa, tō whānau rānei ki tō wā whakarite . Mā tēnei ka whai wāhi rātou ki te ako atu mō te tikanga tika mai i te tākuta, me te pātai atu i ā rātou pātai.
Mēnā he herenga tinana tōu nā te AS, me hiahia pea koe ki ētahi atu āwhina mō ngā mahi o te whare, mō te mahi rānei. Ahakoa he uaua te tono āwhina, he huarahi pai tēnei ki te whakapuaki i tō wheako ki tētahi atu, me te hoatu hoki i te whai wāhi ki a rātou ki te hono atu ki a koe.
| Kaupapa hei kōrero | Me pēhea te whakamārama me ngā tauira |
|---|---|
| Ngā tohu | "Ahakoa kāore au e kite i te rerekētanga nui i waho, he tino kaha te mamae me te pakari o roto. Ko te mea tino uaua ina ara ake au i te ata." |
| Ngā tohu e kore e kitea | "Ko te mea nui rawa atu e pā mai ana me tēnei mate ko te ngenge . Ina kī atu ahau he ngenge paku, ehara i te ngenge noa iho, engari he āhua e ngaro ana te kaha o tō tinana katoa." |
| Ngā herenga ā-tinana | "He uaua ki ahau te hiki i ngā mea taumaha, te piko nui, te noho roa rānei. Koia ahau ka karo ai i ētahi mahi." |
| Ngā mura o te ahi | "I ētahi rā, ka kino haere te mamae me ētahi atu tohu. Ka kiia e mātou he 'whakaekenga'. I aua rā, me nui ake tō āwhina." |
Kōrerohia hoki ō kare ā-roto.
Nā te mea ka pāngia tō oranga o ia rā e ngā tohu AS, he mea nui kia mōhio ētahi atu ka taea e ngā mea pēnei i te mamae, te pakari, me te ngenge te whakarerekē i tō mahinga o ia rā. Ko te tikanga pea tēnei kāore e taea e koe te mahi i ētahi mahi, ka rerekē rānei te huarahi e mahi ai koe i aua mahi.
Ina mārama te tangata ki tēnā, ka mārama hoki rātou ki te pānga o te ahotea e pā ana ki tō wairua. He tino whakamarie hoki te kōrero mō ō whakaaro me ō kare ā-roto ki tētahi e tata ana ki a koe.
Kia maumahara, ko ngā tohu AS he mea ka pā ki a koe engari kāore e kitea e ētahi atu. Hei tauira, he tohu tino noa te ngenge, kāore pea koe e kite, ahakoa te nui o tō mamae.
Kōrero mai ki a mātou me pēhea koe e whakahaere ana i tēnei āhuatanga.
Kāore pea te hunga o tō ao e mōhio ki te āhua o tō whakahaere i te AS i ia rā, i ia rā. He mea pai kia kōrerotia e koe tō mahere maimoatanga kia mārama ai rātou ki ngā mea ka tumanakohia.
Kei roto pea i tēnei ko ngā mahi whakakori tinana e tika ana kia mahia e koe, ngā maimoatanga whakaora tinana, ngā kai hei āwhina i te whakahaere i tō mate AS, me ngā rongoā e tangohia ana e koe. Ina mōhio rātou ki ēnei, ka māmā ake ki a rātou te mārama he aha koe me whakakori tinana i ia rā, me te take kāore koe e kai i ētahi kai.
Mena kei te hiahia koe me tō whānau ki te ako atu mō tēnei mea, he tino pono ngā kōrero kei ngā paetukutuku o ngā whakahaere o te ao pēnei i te Spondylitis Association of America (SAA). Ka taea e koe te pānui i aua kōrero me te kōrero anō ki tō tākuta mō tēnei mea.
Karere Tangohia ki te Kāinga
- Ehara te Ankylosing Spondylitis (AS) i te mate tuara anake, engari ka pā ki tō oranga katoa. Kaua e haere ko koe anake i tēnei haerenga.
- Kei a koe te whakatau ko wai ka kōrerotia e koe mō tēnei mea, me te nui o te kōrero. Engari ko te kōrero ki te hunga e tata ana ki a koe he puna kaha nui.
- I te wā e kōrero ana, kia māmā, kia pono hoki ō kare ā-roto, inā koa te whakamārama i ngā tohu kāore pea e kitea, pērā i te ngenge.
- Ehara te tono āwhina i te tohu ngoikore. Ka hoatu he whai wāhitanga ki ō whanaunga ki te tautoko i a koe.
- Kōrerotia tō mahere maimoatanga (whakakorikori tinana, rongoā) kia mārama ai rātou ki ō hiahia o ia rā.
- Ki te mea kei te ruarua koe mō tētahi mea, kōrero ki tō tākuta mō ngā tohutohu pai rawa atu, pono hoki.
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