Kotahi anake te taha o tō tinana e whero ana, e werawera ana? Tērā pea ko te Harlequin Syndrome tēnei? Me kōrero tāua!

Kua kite koe, kua pāngia rānei e te whero ohorere o tētahi taha o tō mata, ā, he mea noa iho te taha kē? Ki ētahi, he mea rerekē tēnei, he mea whakamā pea. Koinei te mea e kiia nei e mātou ko te Harlequin Syndrome i roto i ngā kupu hauora. Ahakoa te ahua nui o te ingoa, kāore he mea e wehi ai, engari he mea nui kia mōhio ki tēnei.

He aha rawa tēnei (Te Mate Harlequin)?

He whakarāpopototanga noa iho, ko te Harlequin Syndrome he āhuatanga e whero ana, e werawera ana hoki tetahi taha o tō mata, o tō kaki, me te uma o runga i ētahi wā . He mea whakamiharo, kāore tēnei e pā ki tētahi atu taha o tō tinana, he mea noa tonu.

Ka puta tēnei āhuatanga nā te panoni o te mahi a te pūnaha io pukuaroha o tō tātou tinana. Tērā pea kei te whakaaro koe he aha tēnei pūnaha io pukuaroha. He pūnaha whakahaere whakamiharo tō tō tātou tinana, e kiia nei ko te pūnaha io aunoa . Koinei te mea e whakahaere ana i ngā mea maha e puta "aunoa" ana me te kore e whakaarohia e tātou, pērā i te tere o te manawa, te toto totoka, te manawa, me te nakunaku.

Ko tētahi wāhanga o tēnei pūnaha io ā-motuhake ko te pūnaha io pukuaroha. He rite ki te pūnaha 'mataara' o tō tātou tinana. Ka whakahohehia tēnei pūnaha ina oma tātou, ina mataku tātou, ina rongo rānei tātou i tētahi kare ā-roto kaha pērā i te harikoa nui, te pouri rānei. Ka kiia tēnei ko te urupare 'whawhai-rere-ranei-rere' . Ko tēnei pūnaha io pukuaroha te mea e tohu ana i tō tātou tinana kia werawera hei whakahaere i te pāmahana o tō tātou tinana, pērā i te wā e whakakorikori tinana ana tātou hei whakamatao. (Harlequin Syndrome) Ka puta ngā tohu ina whakahohehia tēnei pūnaha io pukuaroha.

He rerekē te (Harlequin Syndrome) me te (Harlequin Sign)?

Āe, he iti noa te rerekētanga. Ko te (Harlequin Syndrome) e pā ana ki te mate pūnaha io i kōrerotia e au i mua ake nei. Ko te (Harlequin Sign) e pā ana ki te tohu matua o te mate. Arā, ka huri te tae o te kiri i tetahi taha o te tinana (ka whero, ka pōuri rānei) ā, ka noho mā, ka noho noa rānei te kiri i tetahi taha. Ka kitea tēnei (Harlequin Sign) ehara i te mea i roto i te (Harlequin Syndrome) anake engari he tohu anō hoki mō ētahi atu mate hauora.

He āhuatanga tino noa tēnei? He mea mōrearea ki te ora?

He tino onge te mate Harlequin Syndrome. He torutoru noa ngā pūrongo kua puta puta noa i te ao. Nō reira, ehara i te mea miharo mēnā kāore anō koe kia rongo mōna i mua.

Ko te mea nui , ehara tēnei mate i te mea mōrearea ki te ora . Ā, e kore e pā ki tō roanga o te ora. Nō reira, kāore he take e mataku ai koe.

He aha ngā tohu o tēnei?

I roto i te Harlequin Syndrome, he rerekē ngā tohumate e pā ana ki ia taha o tō tinana.

Ngā tohu ka kitea i te taha e pāngia ana:

• Ka whero te kiri, ka pouri ake rānei i tō tae kiri noa.
• Nui te werawera.
• Ka mahana te kiri o taua wāhi ina pāngia.

Ngā tohu e kitea ana i te taha kāore i pāngia:

• Kiri mā.
• Kāore rawa i te werawera.
• Ka mātao te kiri o taua wāhi ina pāngia.

Mā tēnei, ka rite ēnei āhuatanga ki te wehea o ngā taha o te tinana kia rua. Whakaarohia he rārangi poutū kua tuhia mai i waenganui o tō rae, ki raro i tō ihu, ki raro ki tō uma.

Haunga ēnei tohu matua, tera pea ka kitea ētahi atu tohu kāore i te tino kitea :

• I ētahi wāhi, ka maroke te kiri, ka tihore hoki, pērā i te unahi.
• Te mamae o te upoko.
• Ihu pupuhi .
• Ngā roimata e puta mai ana i ngā kanohi.
• Te piko o te kamo ki te taha kotahi me/ngā panonitanga rānei o ngā karu (e kiia ana ko te Horner Syndrome , ka hono pea tēnei ki tētahi atu mate).

Āhea ēnei tohu ka puta?

Tērā pea ka pāngia koe e ēnei tohu o te Harlequin Syndrome, inā koa i roto i ēnei āhuatanga e whai ake nei:

• Ina whakakorikori tinana: Ina oma, ina pekepeke, ina tākaro, ina whakakorikori tinana rānei i te whare takaro.
• I ngā wā e kaha ana ngā kare ā-roto, e ahotea hinengaro rānei: ina tino harikoa koe, ina pouri, ina mataku, ina pēhanga rānei i mua i tētahi mea pēnei i te whakamātautau, i te uiuinga rānei.
• I ngā āhuarangi wera: ina haere ana ki waho i te rā, ina noho ana i roto i tētahi rūma wera.
• Ina kai ana i te kai raukikī: Ina kai ana i tētahi rihi i hangaia ki te nui o te tiri.

Whakaarohia kei te tākaro kirikiti koe me ō hoa, ā, e werawera ana koe, ko te taha matau anake o tō mata e whero ana, e werawera ana, engari kei te pai te taha maui, pērā tonu i ngā wā katoa. Koinei te mea e tupu ana i tēnei wheako.

He aha ngā pūtake o te mate Harlequin?

I te nuinga o te wā, he uaua ki te kimi i tētahi tino take mō te Harlequin Syndrome. Arā, kāore i te mārama te take. Heoi, kua kitea e ngā rangahau he hapa pea i roto i te whakawhitiwhiti kōrero i waenga i ngā pūtau i te taha matau me te taha maui o tō tātou pūnaha io ā-roto.

I ētahi wā, ka pāngia tēnei ara whakawhitiwhiti kōrero. Ka haere tēnei karere whakawhitiwhiti kōrero mai i te hypothalamus i roto i tō tātou roro ki te taurakira tuaiwi o te uma i te uma o runga. Koinei te wāhi e tukuna ai e ngā io atawhai te toto ki te mata me te tinana o runga. Mā tēnei ara e whakahaere te werawera me ngā oko toto.

He maha ngā take ka puta ai tēnei aukati:

• He pukupuku tēnei e puta mai ana i te ara o te io.
• He patunga, he kino rānei i puta mai i te mate urutā, i te mumura rānei.
• He aituā e puta mai ana i te pokanga i te uma o runga, pērā i te pokanga tuaiwi.

Ko wai te mea ka nui ake te tūponotanga ka pāngia e tēnei? (Ngā āhuatanga mōrearea)

Ka pāngia te tangata o ngā tau katoa e tēnei mate, e kiia nei ko te Harlequin Syndrome, tae atu ki ngā pēpi, ngā tamariki, me ngā pakeke . Heoi, tera pea ka nui ake te tūponotanga ka pāngia koe e tēnei mate mēnā:

• Mena kua tangohia tō puku i roto i te endoscopic thoracic sympathectomy (he tikanga pokanga hei rongoā i te werawera nui).
• Mena kua whiwhi koe i te rongoā whakamoe.
• Mena kua pāngia koe e tētahi aituā i pā ki tō pūnaha io pukuaroha.
• Mena he mate hauora anō kei raro i te maru o te tinana pērā i te Horner Syndrome .

He aha ngā raruraru ka pā mai i tēnei?

Ahakoa he tino onge tēnei, ka puta pea ētahi raruraru nā te Harlequin Syndrome. Ko ēnei:

• He uaua ki te whakahaere i te pāmahana o te tinana.
• Te panoni tuturu o te tae o te kanohi (ki te taha kotahi).
• Te pouri, te manukanuka, te iti rānei o te whakaaro ki a ia anō nā te whakaaro ki tōna āhua. Nā te mea, ina kite ētahi i tēnei i roto i te hapori, ka whakama pea ētahi tāngata.

Me pēhea te tautuhi tika i te mate (Harlequin Syndrome)? (Tautuhinga)

Mā te tākuta koe e whakatau mēnā kei a koe te Harlequin Syndrome mā te tirotiro i ō tohumate. Ko te mahi tuatahi he whakamātautau tinana . Kātahi ka whakahaerehia he whakamātautau hei whakakore i ētahi atu āhuatanga ka puta pea ngā tohumate rite, me te whakatau mēnā he take kei raro.

He maha ngā whakamātautau ka taea te whakamahi hei tautuhi i te mate Harlequin:

• Whakamātautau ahotea: I roto i tēnei whakamātautau, ka whakahau te tākuta kia whakakorikori tinana koe, ā, ka mātakihia koe kia kite ai mēnā ka puta ngā tohu i te whakakorikori tinana. Ka kitea pea ngā tohu o te Harlequin Syndrome i te wā e whakakorikori ana koe.
• Ngā whakamātautau whakaahua: Mā ēnei whakamātautau ka taea e tō tākuta te kite i roto i tō tinana. He whakamātautau kore mamae ēnei. Ko ētahi tauira ko te hihi-X o te uma, te matawai CT (Computed Tomography), me te MRI (Magnetic Resonance Imaging) .

He aha ngā maimoatanga mō tēnei?

Ko te rongo pai, kāore te Mate Harlequin e hiahiatia he maimoatanga i ngā wā katoa . I ētahi wā ka pai ake te āhua. Ko te tūtohutanga a te tākuta i te maimoatanga ka whakawhirinaki ki te pūtake o ō tohu. Ko ngā kōwhiringa maimoatanga ko:

• Ka taea e te rongoā hinengaro, te tuku tohutohu rānei te āwhina ki te whakaiti i te mamae pāpori me te ahotea hinengaro i puta mai i tēnei mate.
• He kano kano i hoatu hei whakahaere i te whero o te mata, te rerekētanga rānei o te kiri`(aukati i te hononga whetu)` .
• Whakakorea te werawera me ētahi atu tohu mā te werohanga paitini botulinum .
• Mena he pukupuku, he whara rānei te pūtake, me pokanga, me whakamahi rānei i te irahiko hei tango atu.

He aha ngā mea ka taea e koe te tumanako mēnā kei a koe te Harlequin Syndrome?

Kāore te Mate Harlequin e pā kino nui ki tō tinana. Tērā pea ka memeha haere ō tohumate i roto i te wā. Tērā pea ka pāngia koe e ngā tohumate ina whakakorikori tinana koe, ina kai rānei i te kai raukikī. Ehara i te mea me rongoā te katoa. Mā tō tākuta koe e kōrero atu mō tō āhua me ngā mea hei tumanako atu ā muri ake nei.

Kia pēhea te roa o ēnei tohu?

Ko te tikanga , he torutoru meneti noa iho ki ētahi haora te roa o ngā tohu. Ko te tikanga, i muri i te whakamutu i te mahi i puta ai ngā tohu, ka hoki te kiri ki te āhua noa i roto i te wā poto. Hei tauira, ki te puta ngā tohu i te wā e whakakorikori tinana ana, ina mutu te whakakorikori tinana, ka whakamatao, ka okioki, ka hoki te kiri ki te āhua noa.

Ka taea te ārai i te mate Harlequin Syndrome?

Kāore anō kia kitea he huarahi hei ārai i te mate Harlequin Syndrome, tae noa ki ngā mea kua kitea i tēnei wā.

Āhea koe me toro atu ki te tākuta?

Mena ka pāngia koe e ngā tohu o te Harlequin Syndrome, pērā i te werawera i te taha kotahi o te tinana me te hurihanga o te tae o te kiri, he mea nui kia toro atu koe ki te tākuta . Kāore he take e manukanuka ai ki te Harlequin Syndrome. Heoi, i ētahi wā onge, he tohu pea tēnei o tētahi mate hauora kei raro, pērā i te pukupuku, nō reira he mea nui kia toro atu koe ki te tākuta kia kitea ai te tino take.

He aha ngā pātai me pātai atu koe ki te tākuta?

Ina haere koe ki te tākuta, he mea pai kia pātai koe i ēnei pātai:

• He aha te take o aku tohu?
• Me rongoā, me pokanga rānei ahau?
• He pānga taha kei te rongoā?
• Mena ka whakama ahau, ka kore rānei e pai ki ahau nā aku tohumate, he aha ngā huarahi maimoatanga e wātea ana?

He rite tonu te (Harlequin Syndrome) me te (Harlequin Ichthyosis)?

Kāo, he rerekē rawa ēnei āhuatanga e rua. He mea pai kia whakamāramahia tēnei nā te mea ka taea e te tini te whakapoauau.

Ko te Harlequin Syndrome he mate e puta ai te werawera me te hurihanga o te kiri i tetahi taha o te tinana. Ehara i te mea mōrearea ki te ora, ehara hoki i te mate ira (heoi, i ētahi wā ka whānau mai anō).

I tētahi atu taha, he mate kiri ira te Harlequin Ichthyosis ka mōrearea pea te ora.. Ka whānau mai he pēpi me tēnei mate me te kiri matotoru, taratara hoki. He rite te āhua o te kiri o ngā pēpi me te Harlequin Ichthyosis ki te taimana, ā, he mātārae te wehewehenga o ēnei e ngā kapiti hohonu. I ētahi wā ka karangatia tēnei mate e ngā tākuta ko te "Harlequin Baby Syndrome." Ahakoa he rite te tangi ki te "Harlequin Syndrome", he tino rerekē ēnei mate e rua.

Karere Tangohia ki te Kāinga

Ko te Harlequin Syndrome (he āhuatanga e puta ai te werawera mō te wā poto me te hurihanga o te kiri i te taha kotahi o tō tinana) ka pā ki te taha kotahi anake o tō tinana. He mea noa te kore whakamarie ina rerekē te āhua o tō kiri i tō te tikanga. Engari kia mahara, ehara tēnei i te āhuatanga morearea.

Ko te mea nui ko te toro atu ki te tākuta mēnā kei a koe ēnei tohu, kia kitea ai te tino take . I ētahi wā, kāore pea te take e mārama. Ahakoa ka mea koe kāore koe e hiahia ki te maimoatanga, mēnā kei te pāngia koe e te mamae hinengaro nā tēnei huringa o te āhua, ka taea e koe te kōrero ki tētahi kaitohutohu hauora hinengaro mō tēnei mea, me te kōrero mō ngā huarahi hei hanga i te whakaaro nui ki a koe anō me te whakaaro pai ki a koe anō. Kāore koe i te mokemoke, ā, kaua rawa e mangere ki te rapu āwhina.

Te Mate Harlequin, te pūnaha io, te werawera, te whero, te pūnaha io ā-roto, te Mate Horner, ngā mate onge