Ka ara ake koe i te ata me te mamae, te pakari, me te mamae o tō tuara me ō hope? Ka tino ngenge koe i te ata, ahakoa te nui o te moe i te pō? Mena ehara i te mea kotahi, e rua rānei ēnei tohu, engari kua roa e whakararuraru ana i a koe, he mea tika kia ata tiaki i a koe. I tēnei rā kei te kōrero tātou mō tētahi e noho ana me tēnei wheako me te mate e puta ai, arā, te Ankylosing Spondylitis (AS).
He aha rawa te Ankylosing Spondylitis (AS)?
He momo mate rumatiki anō hoki tēnei. Engari ko te nuinga o tēnei mate ka pā ki tō tuaiwi me ōna hononga e pā ana . Nā te hapa o te pūnaha ārai mate o tō tātou tinana, ka tīmata te whakaeke i ō tātou hononga, inā koa ko ngā hononga i waenganui i ngā tuaiwi o te tuaiwi me ngā hononga e hono ana i te wheua hope. Ka puta te mumura , arā, te pupuhi, te whero, me te mamae nui.
I roto i te wā, ka pākiki, ka honoa rānei ngā hononga e tēnei mumura. Ko te tikanga o te kupu "ankylosing" ko te "honoa tahi." Koinei te tino take o te pākiki me te mamae o te ata. He nui ake te kitea o tēnei mate i roto i ngā tāne, ā, ka tīmata i te wā taitamariki, i waenganui i te 20 me te 40 tau.
Nā, kia tirohia tātou te āhua o te wheako o te tangata e noho ana me tēnei mate. Mā tēnei kōrero koe e āwhina kia mārama ake ai ki tēnei mate.
He wero te tīmata i te rā me te AS i ia rā.
I tīmata te tangata e kōrero ana i tēnei pūrākau ki te pāngia e ēnei tohu i waenganui i ōna tau rua tekau. I te tuatahi ka pāngia ia e te ngoikore, te mamae, me te ngenge e kore e taea te tu. Tata ki te tau i muri mai ka kitea tōna mate.
He tangata tere, he tangata whakamahere tōku hinengaro, engari kāore tōku tinana e whakaae. He rite ki te tangata Momo A kua mauheretia i roto i te tinana Momo Z.
E ai ki a ia he tīmatanga uaua ia ata. Ahakoa te nui o tana moe i te pō i mua atu, ka oho ake ia me te tinana mamae me te tino ngenge. "E rite ana ki te mea kua oma koe i te marathon, ā, kei te whiua koe e tetahi ki ngā rākau," tana kī.
Ko te mea tuatahi ka mahia e au ina oho ake ahau ko te tango i taku rongoā. Kātahi ka inu kawhe ahau. Kātahi anō, ki te toe he kaha ki ahau, ka tuhituhi, ka haere ki waho ki te mahi, ki te tunu kai rānei.
"He rite te whai AS ki te whai mana mamao i tō tinana. Ka taea e rātou te whakaweto i ahau mā te pātene ngenge i ngā wā katoa e hiahia ana rātou. Ka taea e rātou te whakanui ake i te pātene mamae ki te oro tino nui. Ka taea e rātou te whakamōkito i ngā mea e hiahia ana ahau ki te mahi."
He mahere mō ngā mea katoa - me pēhea te whakahaere i te oranga kia māmā ake
I te wā e noho ana koe me tēnei momo wero, ko te otinga anake ko te whakamahere i ngā mea katoa. Mai i te hokohoko, ki te tunu kai, ki te whakahoahoa, ki te mahi, ki te moe, me whai mahere koe. Me whakarite hoki koe i te wā hei whakangā i muri i te mahi i tetahi mea.
Hei tauira, me whakaaro tātou ki te tunu kai. Kāore e taea te mahi i ēnei mea katoa i te rā kotahi, e waru hāora te mahi, e tunu kai ana i te pō, e horoi kakahu ana, e haere ana ki te toa. Nō reira, ko tāna mahi he whakarite i ngā huawhenua me ngā ranu e hiahiatia ana e ia mō te kai i ngā rā e rua, e toru rānei i mua. Ka "tunu nui" ia i te kotahi, i ngā wā e rua rānei i te marama. Ko te tikanga ka tunu ia i tētahi mea pērā i te heihei, ka hanga raihi, ka rongoa ki roto i te pouaka tio. Pērā ai, ka taea e ia te whakarite kai i te rā e pouri ana ia.
Kei te whakarite te katoa. I mua i te mahi i tetahi mea, me whakamahere koe mōna. Kātahi ka tino hiahia koe ki te okioki.
He pakanga ki te moe - te wero o te 'Painsomnia'
I te nuinga o te wā, i te ahiahi ka pai ake te āhua. Ahakoa ka taea e koe te mahi i taua wā, he uaua ki te whakatau āhea te wā e mutu ai, e okioki ai. Ehara hoki i te mea ngāwari te moe me te AS.
Ka huaina tēnei e ia ko te 'Painsomnia' . Ko tōna tikanga he kore moe nā te mamae. Ina mamae tō tinana, he uaua te kimi i te tūranga tika mō te moe. I ētahi wā, nā te ahotea, nā te mamae tinana rānei, me noho mataara tonu koe tae noa ki te ata.
I ētahi pō ka pāngia ahau e te 'mamae pakarukaru' . "He rite ki te mamae koi e wero ana i ngā wheua. Ahakoa kua 18 tau ahau e pāngia ana e tēnei mate, kei te miharo tonu ahau ina tae mai, nā te mea he tino kino."
Nō reira, pērā i ngā mea katoa, he mahere tāna mō te moe.
| Mahi | Whakaahuatanga |
|---|---|
| Te whakarite mō te moenga | Tata ki te haora i mua i te moe, hangaia he kapu tī kore-kawheine, ka inu. Ka horapa te kakara o taua tī puta noa i te rūma, hei tohu i tō tinana kia rite mō te moe. |
| Whakamamae mamae | Muri iho, ka tirohia e au te wāhi e tino mamae ana i tōku tinana, ka pania he kirīmi whakamamae mamae, he papa whakamahana rānei ki aua wāhi. I ētahi wā ka mahi au i ētahi mahi totoro. |
| Te whakamarie i a koe anō | Kātahi ka kakahuria e au he kākahu whakamarie, ka takai i ahau ki ngā paraikete maha, kātahi ka moe. |
| Ki te ara ake koe i te pō | Ki te ara ake koe i waenganui pō, ka totoro ake koe i tō tinana, ka pania rānei he kirīmi, ka ngana ki te moe anō. Ki te kore koe e moe pai, haunga te ngenge i te aonga ake, ka nui ake tō mamae i tō te tikanga. |
Kāore koe i te mokemoke - tautoko hapori
I te wā e noho tahi ana koe me tētahi mate pūmau pēnei i te AS, he kaha nui te mōhio kāore koe i te mokemoke. I ēnei rā, kua hangaia he hapori kaha o te hunga e pāngia ana i runga ipurangi. Kāore koe e hiahia ki te wehe atu i tō whare ki te kimi i a rātou.
Ko te tangata e kōrero ana i tēnei pūrākau, e hono tonu ana ki ngā tākuta, ki ngā kairangahau, me ngā tāngata he rite tonu te mate ki te ipurangi. E whakapono ana ia he rerekētanga nui tēnei. Kua kī atu ētahi ki a ia, "Nāu i whakaora tōku ora."
Nō reira, ki te mea kei a koe ēnei tohu, kua tāpaetia rānei koe kei te pāngia e tēnei mate, ko te mea pai ko te toro atu ki tētahi tākuta mātau (he rata mate pūkahukahu te mea pai) kia whiwhi ai koe i ngā tohutohu me ngā maimoatanga tika . Waihoki, ko te whakauru atu ki ngā rōpū tautoko ka taea e koe te whakapuaki i ngā wheako pēnei ka tino whakapakari i tō kaha hinengaro.
Karere Tangohia ki te Kāinga
- Ko te Ankylosing Spondylitis (AS) he mate mumura mau tonu e pā ana ki te tuaiwi me ngā hononga. Ko te pakari me te mamae o te ata ngā tohu matua.
- I te wā e noho tahi ana koe me tēnei mate, he mea tino nui kia whakamaheretia ō mahi o ia rā i mua i te wā, kia whakaritea hoki he wā mō te okioki.
- He mea noa te kore moe e pā ana ki te mamae (painsomnia). Ka taea te whakahaere i tēnei āhuatanga mā te whakatū i tētahi tikanga moe.
- Mena kei a koe ēnei tohu, kua tautuhia rānei kei a koe te mate, me toro atu ki tō tākuta, me te rapu maimoatanga me te tohutohu tika.
- Kāore koe i te mokemoke. Ko te kimi i ngā rōpū tautoko hei hono atu ki ētahi atu kua pā ki ngā wheako ōrite he puna nui tēnei o te kaha hinengaro.
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