Kua pāngia koe e te toto totoka, kua pāngia rānei koe e ētahi raruraru i a koe e hapū ana, ā, i whakamātauhia e te tākuta te toto? I āwangawanga koe i te kīnga mai o te pūrongo 'Lupus Anticoagulant positive'? I mataku koe i tō kitenga i te kupu 'lupus', ā, i whakaaro koe he lupus tēnei? He ahua pōhēhē tēnei ingoa. Koia te take he maha ngā tāngata e hē ana te mārama mō tēnei mea. Me whakamārama tātou i ngā raruraru katoa mō tēnei i tēnei rā.
He aha rawa te rongoā ārai toto o te Lupus?
He kupu ngāwari noa iho, he momo paturopi tēnei kei roto i ō tātou toto.
Whakaarohia te pūnaha ārai mate o tō tātou tinana hei ope taua e tiaki ana i tētahi whenua. Ina uru mai he huakita, he mea kino rānei ki roto i te tinana mai i waho, ka mōhio tēnei ope taua ki taua hoariri, ā, ka hangaia he rōpū hōia motuhake, e kiia nei ko ngā paturopi, hei whakangaro i a ia. Koinei te mea e tupu ana i te nuinga o te wā.
Engari, i ētahi wā ka hē te pūnaha ārai mate. Engari ko te whakaeke i ngā hoariri ke, ka tīmata te whakaeke i ō tātou ake pūtau hauora . Koinei te āhua o te lupus anticoagulant (LA) he paturopi ka hangaia mā te hē, ka kino ki tō tātou ake tinana.
Ka taea e tēnei paturopi LA, me ētahi atu paturopi e rua, te whakaputa i tētahi āhuatanga e kiia nei ko te Antiphospholipid Syndrome (APS) . He mate pūnaha ārai mate tēnei. Ko te āhuatanga matua o tēnei ko te mōrearea o te hanganga o ngā toto totoka i roto i ngā oko toto o te tinana he nui ake i te tangata noa.
Nā te aha i huaina ai tēnei ko te 'lupus'? He rite tonu tēnei mate ki te lupus?
Koinei te wāhi e pōhēhē ai, e mataku ai te tini o te tangata. Ahakoa he wāhanga 'lupus' kei roto i te ingoa, e rua ngā mea rerekē o te lupus: Lupus Anti-Coagulant (LA) me te mate Lupus. He kōrero tino whakamere te pūtake mai o tēnei ingoa.
I kitea tuatahitia tēnei paturopi i ngā tekau tau ki muri i te wā i whakamātautauhia ai e ngā kairangahau ngā tauira toto mai i ngā tūroro lupus. Nō reira i whakaaro rātou he mea motuhake ki ngā tūroro lupus.
I kite hoki rātou he roa ake te wā i mua i te totoka i roto i te vitro mai i ngā tauira toto kei roto tēnei paturopi. Ko te tikanga o te 'Anticoagulant' he 'ārai i te totoka.' Nō reira, i tapaina e rātou ko 'lupus anticoagulant', arā, 'he mea kei roto i te tinana o ngā tūroro lupus e ārai ana i te totoka.'
Heoi, i kitea i muri mai he hē aua whakaaro e rua. Inaa, ko te ritenga kē te pono. Ko tā tēnei paturopi i roto i te tinana he whakanui ake i te toto totoka, ehara i te aukati!
Hei whakamārama i tēnei pōhēhētanga, tirohia te ripanga i raro nei.
| Meka | Rongoā ārai mate Lupus (LA) | Te mate Lupus (SLE) |
|---|---|---|
| Taiao | He momo paturopi kino kei roto i te toto. | He mate pūnaha ārai mate matatini e pā ana ki ngā momo whekau o te tinana. |
| Pānga matua | Ka whakanui ake i te mōrearea o ngā toto totoka. | He maha ngā pūnaha ka pāngia, pērā i te kiri, ngā hononga, ngā whatukuhu, te ngākau me te roro. |
| Te whanaungatanga | Ahakoa he mate lupus koe, ehara i te mea kei a koe te mate lupus, engari tera pea ētahi tāngata he mate lupus tō rātou. | Ko te LA tētahi o ngā kitenga e pā ana pea ki te lupus. |
He aha i pā ai tēnei āhuatanga ki ō tātou tinana?
Nā te mea ka hē tā tātou pūnaha ārai mate. Ka whakaekea e ēnei paturopi LA ngā pūmua e piri ana ki tētahi momo matū ngako e kiia nei ko ngā phospholipid i te mata o waho o ō tātou pūtau. Ka kino ngā pūtau i tēnei whakaeke, ka piri tahi, ka nui ake te tūponotanga o te toto totoka.
Kāore anō kia tino mārama ngā tohunga he aha te take i tīmata ai te pūnaha ārai mate ki te hanga i ēnei paturopi hapa i te tuatahi. E whakapono ana rātou tera pea nā ngā āhuatanga ira, ngā awe taiao, ētahi atu mate pāwera rānei.
He aha te tikanga o te LA positive? He aha ngā pānga ki ahau?
Ko te whai LA i roto i tō toto te tikanga kei te tūpono koe ki te whakawhanake i tētahi āhuatanga e kiia nei ko te mate antiphospholipid (APS). I konei, 'kei te tūpono'He mea tino nui te kupu "will". Ehara i te mea ka tino tutuki.
Ahakoa kei roto i te toto te paturopi LA, he tokomaha te hunga e noho hauora tonu ana i roto i ō rātou oranga katoa, kāore he toto totoka, he raruraru rānei e pāngia ana.
Nō reira kaua e mataku nui ina kite koe i tēnei i roto i tō pūrongo. Heoi, he mea nui kia mōhio tō tākuta ki tēnei, kia aroturuki hoki i a koe. Nā te mea he nui ake te tūponotanga ka pāngia koe e te toto totoka i ētahi atu, he mea whakaaro nui kia mōhio koe ki tēnei.
He aha ngā maimoatanga mō tēnei?
Kāore anō kia kitea he maimoatanga hei tango katoa i tēnei paturopi LA i te tinana. Engari he tino pai ngā maimoatanga hei whakahaere i te kino ka puta mai, arā, ko te hanganga o ngā toto totoka.
Mena kāore he tohu, arā, kāore anō kia pāngia koe e te toto totoka i mua, ka whakatau pea tō tākuta ki te tirotiro noa i a koe me te kore e hoatu he rongoā ki a koe.
Heoi, ki te mea kua pāngia koe e te toto totoka i mua, kua kitea rānei kei a koe te APS, ko te maimoatanga matua ko ngā rongoā ārai toto, ko ngā rongoā whakangawari toto rānei. Ka hoatu ngā rongoā pēnei i te warfarin me te heparin hei whakaiti i te tūponotanga o te toto totoka. I ētahi wā, ka hoatu hoki ngā rongoā pēnei i te corticosteroids hei whakaiti i te kaha rawa o te pūnaha ārai mate.
Ka whakatauhia ēnei maimoatanga katoa e tō tākuta, me te whai whakaaro ki ngā āhuatanga maha pēnei i tō āhua, tō tau, me ētahi atu mate.
Āhea ahau me toro atu ki te tākuta? He aha te āhuatanga ohorere?
I te wā e noho ana i roto i tēnei āhuatanga, he mea tino nui kia mōhio ki te rerekētanga i waenga i ngā āhuatanga noa me ngā āhuatanga ohorere.
| Whai wāhitanga | Me aha? |
|---|---|
| Te tirohanga whānui | Haere ki te whare hauora i te wā kua whakaritea mō ngā tirotiro hauora e ai ki tā te tākuta. Ka whakamātauhia e rātou te toto hei tirotiro mēnā he tika te horopeta o te rongoā, me ētahi atu huringa anō hoki. |
| Āhuatanga ohorere (haere tonu ki te ETU) |
|
Ngā tohu whakatūpato o te toto totoka
- Waewae (Deep Vein Thrombosis - DVT): Pupuhi ohorere, whero, mahana, me te mamae i te waewae kotahi.
- Te Pukupuku Pūkahukahu: Te poto ohorere o te manawa, te mamae nui o te uma (ina koa i te wā e manawa ana), te maremare toto.
- Te whiu: te piko o tetahi taha o te mata, te ngaro o tetahi ringa, te uaua ki te kōrero.
Ki te puta mai tētahi o ēnei tohu, me haere tonu ki te Wāhanga Maimoatanga Ohotata (ETU) o te hōhipera .
Karere Tangohia ki te Kāinga
- Ehara te Lupus anticoagulant (LA) i te lupus tonu. He momo paturopi noa iho i roto i te toto.
- Ki te mea kei roto i ō toto te LA, he nui ake te tūponotanga ka pāngia koe e te toto totoka. Ehara i te mea ka tino tupu.
- Kaua e mataku i muri i te kitenga i te pūrongo. Engari me kōrero ki tō tākuta mō tēnei mea, me te whai i ana tohutohu.
- Ko te whāinga matua o te maimoatanga he ārai i te hanganga o ngā toto totoka. Mā tō tākuta e whakatau te kōwhiringa maimoatanga pai rawa atu māu.
- Kia tūpato tonu ki ngā tohu whakatūpato o te toto totoka (te pupuhi o ngā waewae, te mamae o te uma, te uaua ki te manawa). Mēnā ka puta mai tēnei tohu, haere tonu ki te ETU.
- He mea noa te mataku me te manukanuka ina whakaaro koe ka pā kino ki a koe tetahi mea kāore e kitea i roto i tō tinana. Kaua e noho i roto i te wehi, engari me noho me te aro nui me te aro nui. Ka taea e tō tākuta te āwhina i a koe i taua haerenga.
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