Kei a koe, kei tētahi atu rānei e mōhio ana koe, te mate lupus? Kua rongo pea koe ka pā tēnei mate ki ngā wāhanga maha o te tinana. Haunga te kiri me ngā hononga, ka pā anō hoki te mate lupus ki ngā whatukuhu, he okana tino nui ēnei i roto i tō tātou tinana. I tēnei rā ka kōrero tātou mō ngā pānga o te mate lupus ki ngā whatukuhu, he mate e kiia nei ko te Lupus Nephritis. Kaua e manukanuka, me kōrero noa iho tātou mō tēnei.
He aha te Lupus Nephritis?
Āe, me mārama tātou ki te tikanga o te Lupus. He mate pūnaha ārai mate te Lupus. Arā, ko te pūnaha ārai mate, e tiaki ana i tō tātou tinana mai i te mate, ka tīmata hē ki te whakaeke i ō tātou ake kiko me ngā whekau hauora. He rite ki tā tātou ake ope taua e whakaeke ana i tō tātou ake whenua. Ko te momo lupus tino noa ko te Systemic Lupus Erythematosus (SLE) .
Ina whakaekea e tō tātou pūnaha ārai mate ō tātou whatukuhu i tēnei ara, ka puta te mumura, arā, te pupuhi, me te kino ki ngā whatukuhu. Koinei te mate e kiia nei e tātou ko te Lupus Nephritis .
He rite ngā whatukuhu ki ngā tātari e rua i roto i tō tātou tinana. Ki te kore e mahi tika, ka puta he raruraru nui. Ka taea e te Lupus Nephritis te kore e taea e ngā whatukuhu te mahi tika i ngā mea e whai ake nei:
- Te tātari me te tango i ngā hua para i roto i te toto.
- Te pupuri i ngā taumata wai o te tinana, ngā tote, ngā waikawa me ngā kohuke ki ngā taumata tika.
- Te whakahaere i te toto toto me te nui o te toto.
- Te whakahaere i ngā taumata homoni.
Ki te kore tēnei āhuatanga e whakahaeretia tika, ka taea e ia te arahi ki te ngoikore o te whatukuhu , tae atu ki te mate whatukuhu o te wāhanga whakamutunga, e hiahiatia ana he maimoatanga mō te wā katoa. Nō reira, he mea tino nui kia mōhio koe ki tēnei.
Ko wai te mea tino tūpono ka pāngia e tēnei mate?
Hei whakawhanake i te Lupus Nephritis, me pangia te tangata e te lupus (SLE). Me titiro tātou ko wai kei te nui ake te mōrearea ki te whakawhanake i te lupus:
- Mō ngā wāhine: E iwa i roto i te tekau o ngā tāngata e pāngia ana e te lupus he wāhine. He tino teitei te mōrearea mō te hunga i waenga i te 15 me te 44 tau te pakeke. Engari he mea miharo, ki te pāngia te tāne e te lupus, he nui ake te tūponotanga ka pāngia rātou e te Lupus Nephritis.
- Ira Tuku Iho: Mena he mate lupus tō tetahi o te whānau, ka tūpono atu hoki ētahi atu ki te pangia e te mate.
- Te awe ira: He nui ake te kitea o tēnei mate i roto i te hunga Āhia, Āwherika, me te iwi taketake o Amerika.
- Ngā āhuatanga taiao: E whakaponohia ana ko te pānga ki ētahi huaketo, mate pāwera, me ngā matū paitini ka hua ake pea tēnei.
- Ētahi atu mate pūnaha ārai mate: Mena kua pāngia te tangata e tētahi atu mate pūnaha ārai mate, ka paku piki ake pea te mōrearea o te whakawhanake i te lupus.
Tata ki te 50% o ngā pakeke e pāngia ana e te lupus, arā, tata ki te kotahi i roto i te tokorua, ka pāngia pea e te lupus nephritis. Tata ki te 80% o ngā tamariki e pāngia ana e te lupus, arā, tata ki te whā i roto i te tokorima, ka pāngia pea e tēnei mate tākihi.
He aha pea ngā tohu o tēnei?
Ko ngā tohu o te Lupus Nephritis ka puta i te nuinga o te wā i te rima tau i muri i te tīmatanga o ngā tohu lupus. Heoi, i ētahi wā, ko te tohu tuatahi, ko te tohu anake o te lupus ko te pakaru o te whatukuhu. He mea nui kia mōhio ki ēnei tohu.
Whakaarohia kua pupuhi ō waewae, inā koa ō pona waewae. Ina ara ake koe i te ata, ka pupuhi ō kanohi. He nui ake te huka o tō mimi i tō te tikanga. Koinei ngā tohu tuatahi ka kitea e koe.
Kia mārama tātou ki ēnei tohu.
| Tohu | He whakamārama māmā |
|---|---|
| Pupuhi (Edema) | Te pupuhi i ngā waewae, i ngā pona waewae, i ngā waewae, i te taha rānei o ngā kanohi nā te nui o te wai i roto i te tinana. |
| Te pūmua i roto i te mimi (Proteinuria) | Ka puta te huka i te mimi (pērā i te huka hopi) nā te tukunga o te pūmua i roto i te mimi. |
| Te toto i roto i te mimi (Hematuria) | He toto iti kei roto i te mimi. Kāore pea e kitea e te kanohi tahanga, engari he māwhero, he parauri pouri rānei te tae o te mimi. |
| Te toto toto tiketike | Te pikinga o te toto toto nā te ngoikore o te mahi a te whatukuhu. |
| Te pikinga o te taumaha | Te pikinga ohorere o te taumaha nā te nui o te wai i roto i te tinana. |
| Ētahi atu tohu lupus | Te mamae, te pupuhi rānei o ngā hononga, te mamae o ngā uaua, te kirika kāore e taea te whakamārama, me te whero, te āhua o te ponana pūrerehua i te mata. |
Me pēhea te kitenga a te tākuta i tēnei?
Mena kei a koe ēnei tohu, ka tirohia koe e tō tākuta, ka pātai atu mō ō tohu me tō hītori hauora, kātahi ka whakahau i ētahi whakamātautau hei whakaū i te mate.
- Ngā Whakamātautau Toto:
- Ngā whakamātautau toto paturopi: Ka tirohia e ēnei ngā taumata teitei o ētahi pūmua (paturopi) i hangaia e te pūnaha ārai mate. He nui ake te kitea o ēnei i roto i te lupus.
- Ngā whakamātautau mahi whatukuhu: Ka ine i ngā mea pēnei i te creatinine hei tirotiro i te pai o te mahi a ngā whatukuhu.
- Ngā Whakamātautau Mimi:
- Tātaritanga mimi: Ka tirohia te mimi mō te toto, te pūmua, ētahi atu āhuatanga rerekē rānei.
- Whakamātautau pūmua mimi: Ka ine tika i te nui o te pūmua kei roto i te mimi.
- Te Kohikohi i te Whatukuhu:
Koinei te huarahi pai rawa atu hei tautuhi i te mate Lupus Nephritis me te whakatau i te whānuitanga o te kino o te whatukuhu. Ka tangohia he wahi kiko iti rawa mai i te whatukuhu mā te whakamahi i te ngira angiangi, ā, ka tirohia i raro i te karuārai. I te nuinga o te wā ka mahia tēnei i roto i te hōhipera, i raro i te rongoā whakamoe māmā.
He aha ngā maimoatanga mō tēnei?
E rua ngā whāinga matua o te rongoā i te lupus nephritis. Ko tētahi he whakahaere i ngā tohu. Ko tētahi he aukati, he whakaroa rānei i te kino atu o ngā whatukuhu. Ko te tikanga, ko te rongoā me ngā whakarerekētanga kai te tikanga o te rongoā.
| Tikanga maimoatanga | Ka ahatia? |
|---|---|
| Ngā rongoā ārai mate | Ko te mahi a ēnei rongoā mā te whakahaere i te kaha o te pūnaha ārai mate ki te whakaeke i ō tātou ake whatukuhu. Ko ngā corticosteroids te rongoā e whakamahia whānuitia ana mō tēnei kaupapa. |
| Ngā rongoā toto toto tiketike | Ko ngā rongoā pēnei i ngā aukati ACE me ngā ARB ka whakahaere i te toto totoka, ka whakaiti hoki i te tukunga pūmua i roto i te mimi, ka taea ai te whakaiti i te kino ki ngā whatukuhu. |
| Ngā rongoā whakaheke toto | Ka kiia hoki ēnei he 'pire wai'. Ka āwhina i te whakaiti i te pupuhi mā te tango i te wai nui mai i te tinana hei mimi. Ka āwhina hoki i te whakaheke i te toto toto. |
| Ngā huringa o te kai | Tērā pea ka tohutohu tō tākuta kia whakaitihia te taumahatanga ki ō whatukuhu, kia whakaitihia hoki te kai konutai . Tērā pea ka tonoa koe kia whakawhāiti i ngā kai nui te pūmua pērā i te mīti me te miraka. He pai ake te kōrero ki tō tākuta me te tohunga kai mō tēnei, kia puta ai he mahere kai e tika ana māu. |
Me mahi te dialysis ki te katoa?
Kāo. Kāore e pā ki te katoa. I waenganui i te 10% me te 30% o te hunga e pāngia ana e te Lupus Nephritis ka pāngia e te ngoikore o te whatukuhu. Mēnā ka pāngia, me whakaaro pea koe ki ēnei maimoatanga:
- Dialysis: Ko te tukanga tātari i ngā para mai i te toto mā te whakamahi i tētahi mīhini ina kore e mahi tika ngā whatukuhu.
- Te Whakatō Whatukuhu: Te whakakapinga ā-pokapū o te whatukuhu ngoikore ki tētahi whatukuhu hauora.
Āhea koe me toro atu ki te tākuta kia tere tonu ai?
Mena kei a koe te lupus, kia tūpato ki ngā huringa katoa o ō whatukuhu. Mena ka pāngia koe e tētahi, e ētahi rānei o ngā tohu e whai ake nei, he tohu pea tēnei mō te ngoikore ohorere o te whatukuhu . Mena ka puta tēnei , rapua tonutia he awhina hauora . Mena e tika ana, haere ki te rūma ohorere o te hōhipera (ETU) tata rawa atu.Haere.
- Mamae puku
- Te uaua ki te mimi, te iti rānei o te mimi e tukuna ana
- Te ngenge nui, te hiamoe rānei
- Mimi huka, mimi toto rānei
- Kiri mākūkū
- Te pikinga ohorere o te toto toto
- Hiahia kai
- Whakapairuaki me te ruaki
- Te uaua ki te manawa
- Pupuhi tinana
He uaua pea te noho me tēnei mate, engari nā te maimoatanga tika me ngā tohutohu hauora, he tokomaha kua taea te noho noa. Ko te mea nui ko te pupuri i te whakapā atu ki tō tākuta me te whiwhi i ngā whakamātautau me ngā maimoatanga katoa e hiahiatia ana e koe.
Karere Tangohia ki te Kāinga
- Ko te Lupus Nephritis he kino me te mumura o ngā whatukuhu i puta mai i te lupus (SLE).
- Ko te pupuhi o ngā waewae, te pupuhi huri noa i ngā kanohi, te mimi huka, me te toto toto tiketike pea ngā tohu matua e pā ana ki tēnei .
- Mā te tautuhi me te rongoā wawe i tēnei mate ka tino whakaiti i te kino ki ngā whatukuhu.
- Kei roto i te maimoatanga ngā rongoā ārai mate, ngā rongoā toto toto tiketike, me ngā whakarerekētanga kai.
- He mea tino nui kia tino whai koe i ngā tohutohu a tō tākuta, kia haere hoki ki te wāhi rongoā i te wā tika.
- Ki te puta ngā tohu ohorere, rapua tonutia he tohutohu hauora.
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