Kua rongo kē koe i te neuromyelitis optica , te NMO rānei e kīia nei e mātou mō te poto? Kāore pea. Nā te mea ehara i te mate tino noa i te ao. Engari he mate kino tēnei ka pā tika ki ō tātou tirohanga me te taurakira. Nō reira, he mea tino nui kia mōhio koe ki tēnei. I tēnei rā, ka kōrerohia e tātou i roto i tētahi huarahi māmā e mārama ai koe.
He aha te NMO i te whakarapopototanga?
He maha atu anō ngā ingoa o te NMO. E kiia ana e ētahi ko te Neuromyelitis Optica Spectrum Disorder (NMOSD), ko ētahi ko te Devic's Disease. He mea tino rerekē tēnei e tupu ana. Ka tīmata te pūnaha parepare o tō tātou tinana, te pūnaha ārai mate, ki te whakaeke hē i ō tātou ake pūtau hauora. He rite ki tā tātou ake ope taua e whakaeke ana i tō tātou ake whenua. E rua ngā wāhanga o tō tātou pūnaha io matua e arohia ana e tēnei whakaeke: te io whatu, e kawe ana i ngā kōrero mai i te kanohi ki te roro, me te taurakira, e rere ana i te tuaiwi.
E rua ngā huarahi matua e puta ai tēnei mate:
1. Monophasic NMO: I tēnei, ka puta ohorere mai ngā tohu i roto i ngā rā, i ngā wiki rānei, ā, ka memeha haere i roto i te whakaeke kotahi.
2. Te hokinga mai o te mate pāwera (NMO): Koinei te momo tino noa. I konei, ka puta mai ngā tohu, ka memeha haere i roto i tētahi wā. Engari, i muri i ngā marama, i ngā tau rānei, ka puta mai anō tētahi atu whakaeke. Ka kino haere pea ngā tohu i ia whakaekenga.
Ahakoa ka pā te momo tuatahi ki ngā tāne me ngā wāhine, ko te momo tuarua, arā, ko te NMO e hokihoki mai ana, he nui ake te kitea i roto i ngā wāhine i ngā tāne. Ka pā hoki ki ngā tamariki nohinohi.
He aha ngā tohu o te NMO?
E rua ngā wāhanga matua o ngā tohumate o te NMO . Mēnā kei a koe tētahi o ēnei, he mea nui kia tere tonu te toro atu ki te tākuta.
| Āhuatanga hauora | Whakamārama me ngā tohu |
|---|---|
| Te neuritis whatu | Koinei te wā e mumura ai te io whatu o te kanohi. Tērā pea ka pāngia koe e te mamae nui i roto i tō kanohi . Ka whai ake i tēnei ko te tirohanga pōuri, ā, i ētahi wā ka ngaro katoa te tirohanga. I te nuinga o te wā ka pā ki te kanohi kotahi, engari i ētahi wā ka pā ki ngā kanohi e rua. |
| Te myelitis whakawhiti | Koinei te wā e pupuhi ai te taurakira i roto i te tuaiwi. Ka mamae pea, ka ngoikore, ka ngoikore, ka pararutiki rānei ngā ringa me ngā waewae. Tērā pea ka ngaro te mana whakahaere o tō pūkahukahu me tō puku. Hei tāpiri, ka puta pea ngā tohu pēnei i te whakapairuaki, te ruaki, te ū tonu, te pakari o te kaki, me te ānini. |
Ki te pāngia ngā tamariki nohinohi e te NMO, ka kitea pea ngā tohu kino pērā i te huringa whanonga, te ngoikore o te māramatanga, te haurangi, te koma rānei.
He rite tonu te NMO ki te MS (Multiple Sclerosis)?
Kāo. He wāhi tēnei e pōhēhē ai te tini o te tangata. Ko te MS, arā, ko te Multiple Sclerosis, he mate anō e pā ana ki te pūnaha io, ā, nā te mahi a te pūnaha ārai mate i puta ai. I mua, i whakaaro ngā tākuta ko te NMO he momo MS. Engari ināianei kua kitea e ngā rangahau he tino rerekē ēnei mate e rua.
Anei ētahi o aua huringa :
| Tauwehenga | NMO (Neuromyelitis Optica) | MS (Mate Maha) |
|---|---|---|
| Te tere o te tīmatanga o te mate | He tino tere, he kino hoki ngā tohu. | Ko te tikanga ka pōturi ake te puta o ngā tohu, mō te wā roa. |
| Ngā whakamātautau toto | He whakamātautau toto motuhake (whakamātautau paturopi) hei tautuhi i te NMO. | Kāore he whakamātautau toto motuhake pēnei hei tautuhi i te MS. |
| Matawai MRI o te roro | I te tīmatanga o te mate, tera pea te āhua noa o te matawai MRI roro. | I roto i te MS, ka kitea ngā huringa i ngā matawai MRI o te roro. |
| Ētahi atu āhuatanga | He mea noa ngā tohu pēnei i te whakapairuaki, te ruaki, me te hīkoi. | Kāore ēnei tohu e kitea whānuitia ana i roto i te MS. |
He aha ngā take o te NMO?
Ina hoki, kāore anō kia mōhiotia e ngā tākuta te tino take o te NMO. Kāore he taunakitanga e whakaatu ana kua tukuna iho i tētahi whakatipuranga ki tētahi whakatipuranga. Engari kotahi te mea e mārama ana. He maha ngā tāngata whai NMO he mate pūnaha ārai mate anō ō rātou, he mate rānei nō ō rātou whānau. He māmā noa iho, he āhuatanga tēnei e whakaeke hē ai te pūnaha ārai mate o tō tātou tinana, arā, te pūnaha ārai mate, i ō tātou ake pūtau hauora. Ko te mate huka (Momo 1 Diabetes), te mate rumatiki, te psoriasis, me te vitiligo he torutoru noa iho ngā tauira o aua mate.
Me pēhea te tautuhi i te mate?
Whai muri i te pātai mō ō tohumate, ka tirotirohia koe e tō tākuta. Ka uru atu ki tēnei te whakamātautau i tō pūkenga whakaaro, tō tirohanga, tō kōrero, tō kaha tinana, me ō uruparenga.
Hei tāpiritanga, ka taea hoki te whakahaere i ēnei whakamātautau :
- Ngā whakamātautau toto: Neke atu i te 70% o te hunga whai NMO he pūmua motuhake kei roto i ō rātou toto, e kiia nei ko te paturopi . Ka taea tēnei te kitea mā te whakamātautau toto.
- Whakamātautau wai tuaiwi: I ētahi wā, me tango he wai mai i te tuaiwi, ka whakamātau.
- Matawai MRI: MRI ( whakaahua aukume)) he tikanga e whakamahi ana i tētahi aukume nui me tētahi rorohiko hei tango pikitia mārama o roto o tō tinana. Ka āwhina tēnei ki te kite mēnā kua pupuhi tō taurakira.
- Whakamātautau kanohi: Tērā pea ka tukuna koe ki tētahi tākuta kanohi, māna e whakahaere ngā whakamātautau motuhake pēnei i te OCT (Optical Coherence Tomography) hei tirotiro mēnā he kino ki te io whatu.
He aha ngā maimoatanga mō te NMO?
Koinei te wāhanga tino nui. Kāore anō kia kitea he rongoā mō te NMO. Engari he tino whai hua ngā maimoatanga hei āwhina i te whakahaere i ngā tohu me te ārai i ngā whakaekenga a meake nei.
- Ngā rongoā ārai-hopu: He maha ngā rongoā hou kua whakaaetia mō te NMO. Ko Eculizumab (Soliris), inebilizumab-cdon (Uplizna), me satralizumab-mwge (Enspryng) ētahi o ēnei rongoā. Ka mahi ēnei rongoā mā te aro ki ngā paturopi e whakaeke ana i ō tātou pūtau hauora, me te aukati i a rātou kia kaua e mahi. Hei tāpiri, ka tohua pea e tō tākuta ētahi atu rongoā hei pehi i te pūnaha ārai mate.
- Ngā Steroid: Ka hoatu ngā rongoā steroid hei whakaiti i te mumura i roto i te tinana. I te nuinga o te wā ka hoatu mā roto i te uaua (IV).
- Whakawhitinga toto: E kiia ana hoki ko te plasmapheresis, he rite tēnei ki te horoi toto. Ka wehea e tētahi mīhini motuhake te toto mai i ō toto, kei roto nei ngā paturopi kino, ā, ka tangohia. Kātahi ka tāpirihia he mea whakakapi, ā, ka whakahokia te toto kua purea ki roto i tō tinana.
Karere Tangohia ki te Kāinga
- He mate tino kino engari onge te NMO, he mate pūnaha ārai mate e pā ana ki ō tātou kanohi me te tuaiwi.
- Ki te pāngia koe e ngā tohu pēnei i te mamae ohorere o ngā kanohi, te ngaronga o te tirohanga, te ngoikore, te māuiui rānei o ō ringaringa me ō waewae, rapua tonutia he tohutohu hauora.
- He rerekē te NMO i te MS (Multiple Sclerosis). Mā te whakamātautau toto motuhake ka taea te wehewehe i ngā mea e rua.
- Ahakoa kāore e taea te whakaora katoa, he tino whai hua ngā maimoatanga e wātea ana i ēnei rā hei whakahaere i ngā tohu me te ārai i ngā whakaekenga a meake nei.
- Mena he pātai, he feaa rānei āu, e tetahi rānei e mōhio ana koe, mō tēnei mea, tena koa kōrero mārire ki tō tākuta.
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