Kei a koe ēnei tohu? Me kōrero tātou mō te Non-Hodgkin Lymphoma (NHL)

Kua kite koe i tētahi puku, i tētahi pupuhi rānei i roto i tō kaki, i tō kēkē, i tō hope rānei? Tērā pea kua ngenge, kua mamae rānei koe. He mea noa ēnei, engari i ētahi wā he tohu pea nō tētahi momo matepukupuku toto e kiia nei ko te Non-Hodgkin Lymphoma (NHL) . Kaua e manukanuka, kia māmā noa iho tēnei.

He aha te Non-Hodgkin Lymphoma (NHL)? Kia mārama tātou!

Ki te whakarāpopototanga, ko te Non-Hodgkin Lymphoma (NHL) he rōpū matepukupuku toto e whanake ana i roto i te pūnaha lymphatic o tō tātou tinana. Kua rongo pea koe i tētahi momo matepukupuku e kiia nei ko te lymphoma. Ko te NHL tētahi o ngā momo matua e rua o te lymphoma. Ka tīmata ēnei matepukupuku i roto i ngā pūtau e kiia nei ko ngā lymphocytes , he momo toto ma i roto i tō tātou tinana. He rite ēnei lymphocytes ki ngā pirihimana o tō tātou tinana. Ko rātou te hunga e tiaki ana i a tātou mā te whawhai ki ngā mate me ngā mate pāwera.

Whakaarohia, he aha te mea ka puta mēnā he huringa, he whakarerekētanga ira, kei roto i ēnei pūtau lymphocyte? Koinei te wā ka tīmata te hanga o ēnei pūtau lymphoma rerekē. Ko te tikanga ka puta ēnei i roto i ō tātou pona lymph. Koinei te wāhi e huihui ai ēnei pūtau, ka hanga pukupuku. Heoi, ehara i te mea kei roto noa i ngā pona lymph tēnei, engari ka taea hoki te tupu i roto i ētahi atu okana o tō tātou pūnaha lymphatic, pērā i te repe thymus, te whēkau, i roto rānei i te kiko lymph i ētahi atu wāhi. Ko te mea nui, ki te kore ēnei NHL e rongoatia tika, ka horapa puta noa i te tinana.

Engari kāore he take e manukanuka ai. Nā ngā maimoatanga hou e wātea ana, he tokomaha ngā tāngata whai NHL kei te ora ake, ā, kei te roa ake te ora. I ētahi wā, ka taea e te maimoatanga te "whakaora" katoa i te mate. I ētahi wā, ko te whāinga o te maimoatanga he whakahaere i te mate, te "whakaora", me te pupuri i taua āhua mō te wā roa rawa atu.

He aha ngā momo matua o te NHL?

Tērā pea ka miharo koe ki te mōhio he neke atu i te 70 ngā momo NHL! Ka whakarōpūhia ēnei e ngā tākuta i runga i te momo lymphocyte e pāngia ana:

• lymphoma pūtau-B: Ka puta mai tēnei mate pukupuku i ngā pūtau-B. Ko ngā pūtau-B he momo pūtau e hanga ana i ngā paturopi hei whawhai i ngā iroriki i roto i ō tātou tinana. Ko te lymphoma pūtau-B te 85% o ngā tātaritanga NHL.
• lymphoma pūtau-T: Ka puta mai tēnei mate pukupuku i ngā pūtau-T. Ko ngā pūtau-T he momo pūtau e aro ana, e whakaeke ana hoki i ngā iroriki me ngā whakaekenga ke, ā, e āwhina ana i ngā pūtau-B ki te hanga paturopi.

Ka whakarōpūhia hoki e ngā tākuta ngā lymphoma pūtau-B me ngā lymphoma pūtau-T ki te "kaha" me te "pōturi ". He tere ake te horapa o ngā NHL kaha i ngā NHL mangere. Nō reira, ko ngā NHL kaha me nui ake te maimoatanga.

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He pēhea te noa o te ingoa o tēnei mate ko te NHL?

He momo mate pukupuku noa iho tēnei. Hei tauira, i te Hononga o Amerika, e matapaetia ana ka tata ki te 80,620 ngā kēhi hou o te NHL i te tau 2024. Koia hoki te 11 o ngā mate pukupuku tino noa o te ao. He nui ake te noa o te lymphoma Non-Hodgkin i te lymphoma Hodgkin , tētahi atu momo lymphoma.

He aha ngā tohu o te Lymphoma Non-Hodgkin?

Ko te tohu tino kitea ko te pupuhi, te puku rānei, kāore he mamae i roto i te kaki, i te kēkē, i te uma rānei. He tohu tēnei kua pupuhi ngā kōpū lymph i aua wāhi. Ko ētahi atu tohu ka whakawhirinaki ki te wāhi kei reira ngā pūtau lymphoma. Ko ētahi atu tohu NHL pea ko:

• Ngenge tonu
• Mamae o te uma
• Maremare
• Te uaua ki te manawa (dyspnea)
• Te mamae o te puku, te pupuhi rānei
• Kei te kī tonu ahakoa i muri i te kai iti
• He kirika kāore i te mārama (ina koa he kirika neke atu i te 39.5 nekehanga Celsius (103 Fahrenheit) kāore e memeha i muri i ngā haora e rua, neke atu rānei, me te rongoā kāinga, mēnā rānei kua neke atu i te rua ngā rā te roa o te kirika)
• Nui rawa te werawera i te pō, ā, mākū ana ngā whāriki o te moenga
• Te whakahekenga taumaha kāore i te māramahia tata ki te 10% o te taumaha tinana (i roto i ngā marama 6)

Ko te mea nui kia maumahara ko te nuinga o ēnei tohu ka puta mai i ētahi atu mate. Mēnā kei a koe tētahi, neke atu rānei o ēnei tohu, ehara i te mea he NHL tōu. Heoi, ki te kite koe i ētahi huringa i roto i tō tinana, inā koa he mea hou kua roa e haere ana, he mea whakaaro nui kia kite tonu koe i te tākuta.

He aha ngā tohu "B"?

Ina tātaritangahia te lymphoma e ngā tākuta, ka rapua hoki e rātou ngā tohu "B" . Ko ēnei tohu "B" ko:

• Te kirika, kāore he take
• Te werawera nui i te pō
• Te ngaronga taumaha mō te kore take

Mā te mea kei a koe ēnei tohu ka āwhina i tō tākuta ki te whakatau he aha te momo NHL kei a koe, me te aha te maimoatanga pai rawa atu.

He aha i puta ai te Lymphoma Non-Hodgkin?

Ko te mate Non-Hodgkin Lymphoma ka puta mai i te nui rawa o ngā lymphocytes (ngā pūtau-B, ngā pūtau-T, ngā pūtau kaikōhuru tūturu (NK) rānei e whakaputahia ana e tō tinana. Nā ngā whakarerekētanga ira kua riro mai i roto i ngā ira e pā ana ki te whanaketanga o ngā lymphocytes tēnei. Ko te tikanga o te "Kua riro mai" ehara i te mea i whānau mai koe me ia, engari he mea ka puta i roto i tō oranga.

Ina rerekē te āhua o ngā pūtau toto toto, ka tere te wehewehe me te whakanui, ā, ka puta ko ngā pukupuku. Ko te tikanga ka tīmata ēnei pukupuku i roto i ngā pona toto toto. Nā te mea e hono ana tō tātou pūnaha toto toto ki te nuinga o ngā wāhanga o tō tātou tinana, ka horapa te Lymphoma Non-Hodgkin ki ētahi atu okana o te pūnaha toto toto.

He aha ngā āhuatanga mōrearea e pā ana ki te whakawhanaketanga o te NHL?

He maha ngā āhuatanga e whakanui ake ana i te mōrearea o te whakawhanake i te Non-Hodgkin Lymphoma. Ko te "āhua mōrearea" he āhuatanga, he mahi, he āhuatanga rānei e whakanui ake ana i te tūponotanga o te whakawhanake i tētahi mate. Hei tauira, ko ēnei e whai ake nei ka nui ake te tūponotanga ki te whakawhanake i te NHL:

• Ngā tāngata neke atu i te 60 tau te pakeke (ka piki ake te mōrearea o te NHL i te pakeketanga)
• Mō ngā tāne
• Mō te iwi Pākehā (he mea tēnei e kīia ana i roto i ngā rangahau o tāwāhi)

Ko ētahi atu āhuatanga mōrearea pea ko:

• Te ngoikore o te pūnaha ārai mate: Ka taea e te ngoikore o te pūnaha ārai mate nā ngā āhuatanga pēnei i te HIV te whakanui ake i te mōrearea o te NHL. Waihoki, ko te tango i ngā rongoā ārai mate i muri i te whakawhitinga okana he take mōrearea.
• Ngā mate pūnaha ārai mate: Ko te hunga whai mate pēnei i te mate mumura o te puku (IBD), te mate rumatiki, me te psoriasis he nui ake te mōrearea ki te whakawhanake i te NHL.
• Ngā Mate Pukupuku: Kua kitea he hononga ngā mate kitakita me ngā mate huaketo pērā i te mate H. pylori, te huaketo T-lymphotropic tangata Momo I, te hepatitis C, me te huaketo Epstein-Barr ki te NHL.
• Te pānga ki ngā patupatu: Kua whakaatuhia e ētahi rangahau he nui ake te tūponotanga o te hunga e pāngia ana e ngā patupatu me ngā patupatu ki te whakawhanake i te NHL.
• Hītori whānau: Mena kei te mate pukupuku lymphoma, kei tētahi atu mate pukupuku toto rānei tētahi o ō mātua, o ō tuākana, o ō tuahine, o ō tamariki rānei, tera pea ka nui ake tō tūponotanga.

Me pēhea te tautuhi i te Lymphoma Non-Hodgkin?

He tukanga maha-taahiraa te tātaritanga o te Non-Hodgkin Lymphoma. Tuatahi, ka mahia ngā whakamātautau hei whakakore i ētahi atu mate noa e puta ai ō tohu. Hei tauira, ko ngā kōpū lymph pupuhi he nui ake te tūponotanga ka puta mai i te mate urutā i te lymphoma. Kia whakatauhia e tō tākuta kei a koe te Non-Hodgkin Lymphoma, ka mahia e rātou ētahi atu whakamātautau hei kimi i te momo me te tawhiti kua horapa (te 'wāhanga').

Ko ētahi atu whakamātautau, tikanga rānei ka hiahiatia hei tautuhi i te mate pukupuku Non-Hodgkin Lymphoma ko:

• Whakamātautau tinana: Ka pātai tō tākuta mō ō tohumate, ka tirohia hoki mēnā he tohu o te Lymphoma Non-Hodgkin, pērā i te pupuhi o ngā kōpū lymph.
• Ngā whakamātautau toto: Mā ngā whakamātautau toto, pērā i te tatau toto katoa (CBC), ka taea e koe te whakaatu i tō hauora whānui. Ka taea hoki e rātou te rapu i ngā huaketo e pā ana ki te Non-Hodgkin Lymphoma, i ngā matū rānei i roto i tō toto e tohu ana i te kino o te kiko i puta mai i te mate.
• Ngā whakamātautau whakaahua: Ka whakaatuhia e ēnei whakamātautau ngā wāhi kei roto i tō tinana ngā pūtau matepukupuku. I runga i te wāhi kei roto ngā pūtau lymphoma, me whai matawai CT, MRI, ultrasound, PET rānei koe.
• Whakamātautau koiora:Ko te huarahi anake hei mōhio māu mēnā he NHL ngā pūtau rerekē ko te whakamahi i te koiora. I roto i tēnei, ka tangohia e te tākuta tētahi wahi iti o te kiko mai i te kōpū lymph, i te wāhi rānei e pāngia ana, ka tukuna ki tētahi taiwhanga. I reira, ka tirotirohia e te tohunga mate te kiko i raro i te karuārai hei tirotiro mēnā he pūtau lymphoma kei roto.
• Te Tātaritanga Ārai Mate: Mā tēnei whakamātautau ka āwhina i te tautuhi i ngā momo NHL motuhake. Ka whakarōpūhia ngā pūtau matepukupuku i runga i ngā tohu (antigens) i runga i ō rātou mata.

He aha ngā wāhanga o te Lymphoma Non-Hodgkin?

Mā ngā hua o te whakamātautau ka āwhina ngā tākuta ki te whakatau i te taumata o te mate pukupuku (te whakatau i te taumata o te mate pukupuku). Ka whakamahia te taumata o te mate pukupuku hei whakamahere maimoatanga, hei whakaatu hoki i te putanga e tumanakohia ana (te matapae). Ko ngā taumata o te Lymphoma Non-Hodgkin koia ēnei:

• Wāhanga I: Kei roto i te kotahi rohe o te kōpuku lymph, i te okana rānei o te pūnaha lymphatic ngā pūtau matepukupuku. Mēnā rānei, kei roto i te kotahi rohe o te okana kotahi i waho o te pūnaha lymphatic ngā pūtau matepukupuku.
• Wāhanga II: He lymphoma kei roto i ngā rōpū kōpuku lymph e rua, neke atu rānei, i te taha kotahi o (e tata ana rānei) ki te diaphragm.
• Wāhanga III: He pūtau matepukupuku kei roto i ngā kōpū lymph i runga ake, i raro hoki i te diaphragm, i roto rānei i ngā kōpū lymph i runga ake i te diaphragm me te whēkau.
• Wāhanga IV: Kua horapa te lymphoma ki te iti rawa i te kotahi okana i waho o te pūnaha lymphatic, pērā i te ate, i ngā pukahukahu rānei.

He aha ngā maimoatanga mō te Lymphoma Non-Hodgkin?

He maha ngā maimoatanga mō te Non-Hodgkin Lymphoma. Ko te maimoatanga e hiahiatia ana e koe ka whakawhirinaki ki ngā āhuatanga pēnei i te momo NHL, te wāhanga o te mate pukupuku, me tō hauora whānui. Ko ngā kōwhiringa maimoatanga ko:

• Aroturuki hohe: Mena he mate pukupuku kore-Hodgkin tōu, ā, kāore he tohu e kitea ana, ka whakaroa pea tō tākuta i te tīmatanga o te maimoatanga. Ka kiia tēnei ko te aroturuki hohe , ko te "tatari mataara" rānei. Ka aroturukihia tō hauora e ngā tākuta i ia wā, kia taea ai e rātou te tīmata i te maimoatanga ina puta mai ngā tohu.
• Te rongoā matū: Ko te rongoā matū he maimoatanga e whakamahi ana i ngā rongoā hei patu i ngā pūtau matepukupuku puta noa i te tinana. Koinei te maimoatanga tino noa mō te NHL. Ka taea e koe te whiwhi rongoā matū anake, te whakamahi tahi rānei me ētahi atu maimoatanga.
• Whakaora arotahi: Ka arotahi ēnei maimoatanga ki ngā ngoikoretanga motuhake o ngā pūtau matepukupuku, ā, ka whakangaro i a rātou. Ko te rongoā paturopi monoclonal he rongoā arotahi e whakamahia whānuitia ana mō te NHL.
• Te rongoā ārai mate:Ka whakaoho tēnei maimoatanga i tō ake pūnaha ārai mate, ka kaha ake ai ki te whakangaro i ngā pūtau matepukupuku. Ko te rongoā pūtau CAR-T he momo rongoā ārai mate e whakamahia whānuitia ana mō te NHL. Ko ngā paturopi takirua he momo rongoā hou. Ka aro atu ēnei ki ō ake pūtau-T, ā, ka patu i ngā pūtau lymphoma matepukupuku.
• Whakaora irahiko: Ka whakamahia e tēnei maimoatanga ngā hihi kaha-nui mai i tētahi mīhini hei patu i ngā pūtau matepukupuku. Tērā pea he nui tēnei mō te NHL wāhanga tōmua. Ka whakamahia hoki e ngā tākuta tēnei tikanga hei patu i ngā pūtau lymphoma e toe ana i muri i te chemotherapy.
• Te rongoā matū me te whakawhitinga pūtau take: I roto i tēnei maimoatanga, ka hoatu he nui o te rongoā matū hei rongoā i te mate pukupuku. Kātahi ka whakakapia ngā pūtau toto kāore anō kia pakari kua pakaru i te rongoā matū ki ngā pūtau take hauora mai i tō tinana ake, mai i tētahi kaituku rānei. Tērā pea ka hiahiatia tēnei whakawhitinga mēnā kāore ētahi atu maimoatanga NHL i āwhina.

He aha ngā pānga taha o te maimoatanga?

Ka pāngia pea koe e ngā maimoatanga matepukupuku noa mō te Non-Hodgkin Lymphoma, pērā i te chemotherapy, te radiation therapy, me te immunotherapy. He poto noa te wā e ora ai te nuinga o ēnei, ā, ka memeha atu ina oti te maimoatanga. Heoi, ka roa ake pea ētahi o ngā pānga.

I mua i te tīmatanga o te maimoatanga, me pātai atu ki tō tākuta mō ngā pānga taha ka pā mai. Ka taea e ia te whakamārama i ngā painga o te maimoatanga me ngā tūponotanga o ngā pānga taha.

Ka pēhea te āhua o te oranga me te NHL? (Tirohanga/Matapae)

I ētahi wā, ka taea e te maimoatanga te 'whakaora' katoa i te Non-Hodgkin Lymphoma. Ko te tikanga o tēnei ka whakangaromia katoatia ngā pūtau matepukupuku e te maimoatanga. Ka kitea pinepine tēnei i muri i te rongoā i ngā lymphoma pūtau-B kaha. Mena ka hoki mai anō te Non-Hodgkin Lymphoma, ka puta i roto i ngā tau tuatahi e rua i muri i te maimoatanga. Ki te kore, kāore pea e hoki mai anō. Heoi, me tirotiro tonu koe i a koe anō kia tirohia ai mēnā ka hoki anō te mate.

Ko ētahi atu momo Lymphoma Non-Hodgkin, inā koa ko ērā e horapa pōturi ana (indolent), ka roa pea te wā. Ko te tikanga me whiwhi maimoatanga tonu koe, i ētahi wā rānei, puta noa i tō oranga.

Engari, ko te mea nui, ahakoa kāore e taea te whakaora i te Non-Hodgkin Lymphoma, mā ngā maimoatanga o nāianei ka taea e te tangata te ora roa, te harikoa me te mate . He maha ngā tāngata e pāngia ana e te lymphoma puhoi te tipu ka mate i ētahi atu take, ahakoa kāore e taea te whakaora i te lymphoma.

He aha te auau whakaora mai i te NHL?

E ai ki te US National Cancer Institute, 74% o te hunga whai Non-Hodgkin Lymphoma e ora tonu ana i muri i te rima tau o te tautuhi mate.

I te nuinga o te wā, ko te hunga i kitea i mua i te horapa o te mate ka roa ake te ora i ērā i kitea i muri i te horapa o te mate pukupuku. Ko te reiti oranga mō te rima tau mō te hunga e pangia ana e te Non-Hodgkin Lymphoma wāhanga tōmua (ngā wāhanga I me te II) kei waenganui i te 79% me te 87%. Mō te hunga e pangia ana e te mate wāhanga matatau (ngā wāhanga III me te IV), ko te reiti kei waenganui i te 64% me te 73%.

Me pēhea koe e tiaki ai i a koe anō hei tangata whai NHL?

He maha ngā mea ka taea e koe te mahi hei whakahaere i te noho tahi me te Non-Hodgkin Lymphoma. Kāore ēnei mea e whakaora i tō mate, engari ka taea e rātou te āwhina i a koe kia māia ake ki te noho tahi me ia:

• Kai i ngā kai hauora: He pūngao te kai. Ko te kai pai tētahi huarahi hei pupuri i te pūngao. Pātai atu ki tētahi tohunga kai mō ētahi atu kōrero, whakaaro rānei mō ngā kai me ngā kai mātao.
• Kia nui te okiokinga: Ka taea e ngā maimoatanga pēnei i te chemotherapy te whakararuraru i a koe. Ka āwhina te okioki i tō tinana kia ora, kia kaha ake anō hoki.
• Whakahaerehia te ahotea: Ehara i te mea ngāwari te noho me te Non-Hodgkin Lymphoma. Tērā pea kei te āwangawanga koe mō te pānga o te mate me te maimoatanga ki tō oranga o ia rā. Mēnā kei te āwangawanga koe mō tō āhua o te mate, kōrero ki tō tākuta. Ka taea e ia te whakautu i ō pātai me te kōrero ki a koe mō ngā kaupapa hei āwhina, pērā i ngā rōpū tautoko.
• Korikori Tinana: Ko te korikori tinana auau tētahi o ngā huarahi pai hei pupuri i te hauora o tō hinengaro me tō tinana. Kōrero ki tō tākuta mō ngā momo korikori tinana me te kaha e tika ana māu.
• Rapua he āwhina tāpiri: Mena kei te noho koe me te Non-Hodgkin Lymphoma, tirohia te tiaki mamae. Ka whakaratohia e te tiaki mamae te whakaora i ngā tohu me te tautoko mō te hunga mate pukupuku, ahakoa te taumata o te mate, te āhua rānei o te mate.

Āhea ahau me toro atu ki te tākuta?

Mena kei te rongoatia koe mō te Non-Hodgkin Lymphoma, me toro atu ki tō tākuta tonu mena ka hoki mai ō tohu, ka kino haere rānei. Kia oti tō maimoatanga, me whakarite kia haere koe ki ngā haerenga whai muri katoa e ai ki te wā i whakaritea.

Āhea koe me haere ki te rūma whawhati tata?

Mena he nui ngā tohumate kei a koe, ka kino haere rānei ō tohumate, ā, kāore he whakaoranga mai i ngā mahi e mahia ana e koe hei whakaiti i tō mamae, haere ki te rūma whawhati tata.

Ngā pātai nui hei pātai atu ki tō tākuta

Anei ētahi pātai ka taea e koe te pātai atu ki tō tākuta:

• He aha te momo Lymphoma Non-Hodgkin kei a au?
• He aha te wāhanga o tōku mate?
• He aha ngā maimoatanga e taunaki ana koe?
• He aha ngā pānga taha o aua maimoatanga?
• Ka taea te whakaora i taku Non-Hodgkin Lymphoma?
• He aha te tūponotanga ka hoki mai anō te mate pukupuku?

He maha ngā take e taumaha ai te kitenga kei a koe te Non-Hodgkin Lymphoma (NHL). He rerekē ngā momo o te mate, he rerekē ngā putanga o ia momo. Ko ētahi momo e tere horapa ana, me nui ake te maimoatanga, ā, ka pāngia pea e ngā pānga kino - engari ka taea te whakaora. Ko ētahi atu momo, kāore pea e hiahiatia he maimoatanga tonu, engari me whakahaere mō te wā roa. Kāore he whakautu ngāwari mō tēnei tātaritanga.

Ka taea e tō tākuta te whakamārama me pēhea te pānga o tō tātaritanga NHL ki tō hauora ā muri ake nei. I tēnei wā, kia mahara kei te roa ake te ora o te hunga whai mate nei. Pātai atu ki tō tākuta mō tō matapae i runga i tō āhua.

Ngā mea nui hei maumahara (Karere hei kawe ki te kāinga)

Ahakoa he mea hei wehi mā te Non-Hodgkin Lymphoma (NHL), he mea nui kia mōhio tika koe, kia tere hoki te rapu tohutohu hauora. Kia maumahara:

• Mena kei a koe ngā tohu pēnei i te pupuhi kāore e taea te whakamārama, te ngenge tonu, te werawera i te pō, te hekenga taumaha rānei kāore e taea te whakamārama , me toro atu ki te tākuta.
• Kei te wātea ngā maimoatanga whai hua mō te NHL ināianei, ā, he tokomaha te hunga e ora angitu ana me te mate nei.
• Kōrero māhorahora ki tō tākuta, ā, pātai atu i ō pātai katoa.
• He mea tino nui te noho pai me te tiaki i a koe anō i tēnei haerenga.

Kāore koe i te mokemoke. Ko te tumanako ka whakakaha ake ēnei mōhiohio i a koe.