Kei te pupuhi ō ngutu me ō paparinga? He 'Orofacial Granulomatosis' tēnā? Me kōrero tātou mō tēnei!

Ka pupuhi ohorere ō ngutu, ō paparinga, ō wāhi rānei o tō mata? I ētahi wā ka rite koe ki ngā puku iti? Ahakoa he ahua rerekē tēnei, he mate hauora pea. I tēnei rā ka kōrero tātou mō tētahi mate e kiia nei ko te 'Orofacial Granulomatosis' e whakaatu ana i ngā tohu rite, he mea onge engari he mea nui kia mōhiotia.

He aha te 'Orofacial Granulomatosis'?

Ki te kī māmā noa, ko te 'Orofacial Granulomatosis' he mate kiri e pupuhi ana, e pupuhi ana hoki i te mata, i roto i te waha, inā koa i ngā ngutu me ngā paparinga. He mea onge tēnei. I ētahi wā ka kitea ēnei puku e te kanohi tahanga, ā, ka taea hoki te pā ki te ringa.

Nā, ki te mea ko ngā ngutu anake te take o tēnei mate `Orofacial Granulomatosis`, he maha ngā ingoa motuhake mōna. Ko ēnei:

• Te mate pūkahukahu o te cheilitis
• `Te mate kiriuhi kikorangi`
• Te mate cheilitis o Miescher

Ahakoa he ahua uaua te ahua o ēnei ingoa, kotahi tonu te tikanga - arā, ko te pupuhi me te pūkohu o ngā ngutu kua whakahuatia ake nei.

Ko wai te mea ka nui ake te tūponotanga ka pāngia e tēnei mate?

Āe, me titiro tātou ko wai te mea ka nui ake te tūponotanga ki te pāngia e te `Orofacial Granulomatosis`. Ehara tēnei i te mate tino noa. E pāngia ana e te iti iho i te 1% o te taupori. Ahakoa ka pāngia te tangata o ngā tau katoa, he mea noa iho i waenga i te hunga rangatahi i waenga i te 20 me te 40 tau te pakeke .

Ko tētahi atu mea, ka puta takitahi tēnei āhuatanga (idiopathic), arā, ka puta noa mai me te kore he mate kē atu. Heoi anō, ka puta anō hoki i ētahi wā me ētahi atu mate hauora. Hei tauira:

• Te mate a Crohn : Kua rongo pea koe i tēnei, he mate mumura mau tonu o ngā whekau.
• Sarcoidosis : He āhuatanga anō tēnei e puta ai ngā puranga pūtau iti (granulomas) i ngā wāhanga rerekē o te tinana, inā koa i roto i ngā pukahukahu me ngā kōpū lymph.
• Ngā mate pipiri maha : Hei tauira, ka hono pea tēnei ki ngā mate pipiri pērā i te mate kohi.

Ko tētahi atu mea whakamere ko tēnei āhuatanga e kiia nei ko te 'Orofacial Granulomatosis' e hono pinepine ana ki tētahi āhuatanga pūnaha io e kiia nei ko te 'Melkersson-Rosenthal syndrome' . E toru ngā tohu matua o tēnei mate:

• Te pupuhi o te mata, o ngā ngutu rānei.
• Tērā pea he āhua piupiu te arero, he hohonu rānei ngā awaawa (ngā hiwi, ngā awaawa rānei).
• Te ngaronga o te mahi a te kanohi, arā, te kore e taea te whakahaere i ngā āhua o te kanohi ('pararutiki kanohi').

He aha te take o te 'Orofacial Granulomatosis'?

He aha te tino take o te `Orofacial Granulomatosis`?Kāore anō kia tino mōhiotia e ngā kaipūtaiao he aha te take, engari kei te haere tonu tā rātou rangahau. E whakaaro ana rātou i tēnei wā he maha ngā take pea:

• Mate pāwera, mate pāwera rānei ki ētahi kai : Hei tauira, ngā mea pēnei i te hinamona, te tiakarete, me ētahi matū tiaki kai.
• Ngā mate kitakita, ngā mate harore rānei .
• Ngā panonitanga o te mahi a te pūnaha ārai mate (ngā urupare ārai mate) o te hunga whai momo ira rerekē .

E whakapono ana ngā kaipūtaiao ka puta tēnei pupuhi nā te mea ka āraihia e ngā puku iti o ngā pūtau e kiia nei ko ngā 'granulomas' (he puku iti i hangaia e ngā pūtau o te pūnaha ārai mate) tō tātou pūnaha lymphatic . Whakaarohia pēnei: ​​ko te pūnaha lymphatic he pūnaha rerenga wai e tango ana i ngā para mai i tō tātou tinana. Nō reira, ina mutu te mahi tika o tēnei pūnaha nā ēnei 'granulomas', ka nui haere te wai lymph ka pupuhi. Ka kiia tēnei ko te 'lymphedema' .

He aha ngā tohu o tēnei mate?

Ko te tohu tuatahi, ko te tohu tino kitea o te Orofacial Granulomatosis, he pupuhi ngawari, kāore he mamae o tētahi ngutu, o ngā ngutu e rua rānei. He maha ngā wā ka pupuhi ake te ngutu o raro i te ngutu o runga. Ka haere mai, ka ngaro atu tēnei pupuhi. I ētahi wā ka roa pea mō ngā wiki, mō ngā marama rānei. I roto i te wā, ka huri tēnei pupuhi hei rapa, hei mārō, hei mamae, hei pumau rānei.

Haunga tēnei tohu matua, ka kitea pea ētahi atu tohu:

• Ngutu pakaru .
• Te pupuhi i te huware , i ētahi wā kāore e taea te whakahaere.
• He kiri maroke, whero, e tihore ana huri noa i tō waha .
• E ai ki te kōrero i mua ake nei, he awaawa, he kopikopiko rānei kei runga i tō arero .
• He mate pukupuku waha, he puku iti rānei, he tohu kiri rānei i roto i te waha .
• Te uaua ki te kōrero, ki te kai rānei .
• Tērā pea ka pupuhi, ka pupuhi rānei tō waha, ō paparinga, ō kapia, ō arero, ō kauae, ō kanohi, ō rae, tae noa ki tō tumuaki . Whakaarohia te āhua o tēnei āhuatanga.

He mate hopuhopu te `Orofacial Granulomatosis`?

He pātai kei te nuinga o te tangata, mehemea he mate hopuhopu. Ka taea e te Orofacial Granulomatosis te horapa mai i tētahi wāhanga o te mata ki tētahi atu. Arā, ka tīmata i ngā ngutu ka neke ki ngā paparinga. Heoi, ehara i te mate hopuhopu . Nō reira, kāore he mea hei manukanuka.

Me pēhea te mohio ki tēnei āhuatanga?

Āe, me pēhea rā te tautuhi i tēnei mate 'Orofacial Granulomatosis'?

Hei tautuhi i tēnei, ka tirohia e te tākuta kiri te wāhi kei reira te pupuhi.Ka tangohia he wahi iti o te kiri ka tirohia (he 'biopsy'). He rite tēnei ki tētahi pokanga iti. Kātahi ka tirohia e te tohunga mate tēnei wahi o te kiri i raro i te karuārai hei tirotiro mēnā he 'noncaseating granulomas' (te ingoa hauora mō ēnei puranga pūtau). Mēnā kei reira, kua whakaūtia te mate.

Haunga tēnei whakamātautau matua, ka whakahaerehia pea e te tākuta ētahi atu whakamātautau hei tirotiro mō ētahi atu mate hauora, i kōrerotia e tātou i mua ake nei ka hono pea tēnei ki ētahi atu mate.

• Ngā whakamātautau toto hei tirotiro mō ngā mate pāwera pēnei i te mate kohi.
• Ngā hihi-X o te uma hei tirotiro mō te sarcoidosis.
• Ko te koroni (he whakamātautau e mahia ana me te kāmera i roto i te koroni) me ngā whakamātautau toto hei tirotiro mō te mate a Crohn.
• Ka mahia ngā whakamātautau papaki hei tirotiro mēnā he mate pāwera, he tairongo rānei. Ko te tikanga o tēnei ko te pania o ētahi matū ki te kiri hei tirotiro mēnā he mate pāwera koe ki aua mea.

Me pēhea te rongoā i te 'Orofacial Granulomatosis'?

Nā, kia tirohia me pēhea te rongoā i tēnei 'Orofacial Granulomatosis'. Kāore te katoa e tīmata tonu i te rongoā. Ka whakatau te tākuta ki te tīmata i te rongoā i roto i ēnei take e whai ake nei:

• Mena kei te tino āwangawanga koe, kei te pouri rānei mō tō āhua .
• Mena he mamae .
• Mena he uaua ki a koe te whakamahi tika i tō kanohi, i tō waha rānei, arā, ki te kōrero, ki te kai, ki te inu rānei .

Ko te rongoā tino noa mō tēnei mate ko te whakamahi i tētahi momo rongoā e kiia nei ko 'Corticosteroids' . Kua rongo pea koe i tēnei ingoa. He momo steroid ēnei. Ka rerekē te momo steroid e hoatu ana me te huarahi e hoatu ai i runga i te kaha o te mate:

• Ngā steroids ā-waha : Ka taea ēnei te hoko mai hei hinu, hei kirimi, hei horoi waha rānei.
• Ka tukuna tika ngā werohanga cortisone ki te wāhi e pupuhi ana .
• Ngā steroids pūnaha : I te nuinga o te wā, ko te momo steroid e hoatu ana ka kiia ko "Prednisone".

Haunga ēnei maimoatanga steroids, ka tūtohu pea te tākuta i ēnei e whai ake nei:

• Mena he mate pāwera, whawhai ki ngā 'paturopi' .
• Mena ka kitea he mate pāwera koe, ka tonoa koe kia huri i tō kai .
• Ngā rongoā ārai mate : Ka taea te hoatu i ēnei hei rongoā ā-waha, hei rongoā ā-papa rānei.
• Mena kei te whakararuraru te pupuhi tuturu i ngā mahi nui pēnei i te kōrero, te kai, me te inu, ka taea te mahi pokanga hei whakaiti i te pupuhi .

He rongoā tuturu tēnei mō tēnei?

He pātai e pātaihia ana e te tini tāngata, mehemea he rongoā tuturu mō tēnei. Engari, kāore anō kia kitea he rongoā tuturu mō te Orofacial Granulomatosis i tēnei wā. Ko te whāinga matua o te maimoatanga he whakahaere i ngā tohu me te whakaiti i te mamae e pā ana ki te tūroro, kia pai ai te noho.

Ka taea te ārai i te Granulomatosis Orofacial?

I te mea kāore i te mōhiotia te tino pūtake o te Orofacial Granulomatosis, kāore anō kia kitea he huarahi kua whakamātauhia hei ārai i tēnei mate .

He aha te tirohanga mō te hunga whai i tēnei āhuatanga?

He ahua uaua te rongoā i tēnei mate, arā, te 'Orofacial Granulomatosis'. Tērā pea ka roa ngā marama, tae noa ki ngā tau, kia puta ai ngā hua o ngā maimoatanga o nāianei. Ko te tikanga he tino puhoi ngā hua. I ētahi wā, kāore pea ngā maimoatanga e āwhina i te katoa.

He tino onge, arā, he tino onge, ka taea e tēnei āhuatanga te ora ake i a ia anō ('te murunga ohorere') me te kore he maimoatanga. Engari he tino onge tēnā.

Me pēhea e pai ai tō whakatau i tēnei āhuatanga?

He tino uaua te noho me tēnei mate, arā, te 'Orofacial Granulomatosis'. Ka pā pea ki tō āhua, ki te mahi a tō waha, ā, he maha hoki ngā pānga hinengaro. Engari he huarahi hei āwhina i a koe ki te whakatau i tēnei mate:

• Ngā wātū tohutohu : He tino āwhina tēnei mō te kōrero mō ō kare ā-roto me ō kare ā-roto, me te ako me pēhea te whakahaere i aua kare ā-roto.
• Ngā rōpū tautoko : He wāhi pai tēnei ki te hono atu ki ētahi atu e pāngia ana e ngā āhuatanga ōrite, me te whakawhitiwhiti wheako. Mā tēnei koe e āwhina kia mōhio kāore koe i te mokemoke.
• Ngā mahi whakaaroaro pai : Ngā mea pēnei i te whakaaro me te arotahi ki ō āhuatanga pai rawa atu, me ngā whakatutukitanga kua tutuki i a koe.
• Te whai wāhi atu ki ngā mahi pāpori : He mea nui kia noho tahi koe me ngā hoa me te whānau e tautoko ana, e mārama ana, kia kore ai koe e noho mokemoke.

Āhea koe me rapu tohutohu hauora?

Ki te pāngia koe e te ngoikore, te pararutiki rānei i tētahi wāhanga o tō kanohi, me rapu tonu koe i te awhina hauora . Waihoki, ki te kite koe i ngā kōpiko, i ngā awaawa rānei i tō arero, e ai ki te kōrero i mua ake nei, me whakamōhio atu hoki koe ki tō tākuta . Ko ēnei tohu he tohu pea nō te mate Melkersson-Rosenthal i kōrerotia e tātou, he mate kino rānei.

He mate kiri onge te Orofacial Granulomatosis ka pupuhi ai ō ngutu, waha, me ētahi atu wāhanga o tō mata. Nō reira, ki te pupuhi tō mata, he pai ake te toro atu ki te tākuta kia kitea ai he tātaritanga tika me te maimoatanga. Kāore he rongoā mō te Orofacial Granulomatosis, engari ka taea e ngā maimoatanga pēnei i te corticosteroids te āwhina ki te whakaiti i ngā tohu.

He aha ngā mea tino nui hei ako mā tātou i tēnei pūrākau?

Āe, kua maha ā tātou kōrero mō te 'Orofacial Granulomatosis'. Anei ētahi mea ngāwari hei maumahara:

• He mate onge te Orofacial Granulomatosis e puta ai te pupuhi me ngā puku i te mata, inā koa ko ngā ngutu me ngā paparinga.
• Kāore anō kia kitea te tino pūtake o tēnei , engari e whakaarohia ana ko ngā mate pāwera, ngā mate pāwera, ngā ira tuku iho, me ngā raruraru o te pūnaha ārai mate ētahi o ngā take whai pānga.
• Ko te tohu matua ko te pupuhi o ngā ngutu. Heoi anō, ka pā mai pea ngā mate waha, ngā panoni o te arero, me te uaua ki te kai me te kōrero.
• Ehara tēnei i te mate hopuhopu .
• Ko te tikanga matua mō te tautuhi ko te koiora kiri.
• He maha ngā wā ka whakamahia ngā corticosteroids hei rongoā. I ētahi wā, me mahi pokanga pea.
• Ahakoa kāore he rongoā tuturu i tēnei wā, ka taea tonu te whakahaere i ngā tohumate .
• Ki te kite koe i te ngaronga ohorere o te āhua o te kanohi, i tētahi panoni rerekē rānei o tō arero, me toro atu ki te tākuta tonu .

Kaua e wareware, ki te pāngia koe e ēnei tohu, kaua e whakama, kaua hoki e wehi. Rapua tonutia he tohutohu hauora. Ko te mea nui ko te tātaritanga tika i te mate, me te rapu maimoatanga tika. Waihoki, he mea tino nui te noho kaha o te hinengaro ina pa ana ki tētahi āhuatanga pēnei.

Te pupuhi o te mata, te pupuhi o te ngutu, te granulomatosis orofacial, te kiri kiri, ngā pona, te mate Melkersson-Rosenthal, ngā corticosteroids