Kei te āhua pōhēhē tō tamaiti ina kōrero koe? Me kōrero tātou mō te Auditory Neuropathy Spectrum Disorder (ANSD)!

Kāore tō tamaiti e whakarongo pai ana i a koe e kōrero ana? Kei te whakaaro rānei koe kei te pōhēhē ia i tāu e kōrero nei? I ētahi wā, tera pea he rerekētanga kei roto i te huarahi e rongo ai ngā tamariki i ngā oro. I roto i ēnei āhuatanga, ko te mate e kiia nei ko te Auditory Neuropathy Spectrum Disorder, ko te (ANSD) rānei te take. Kaua e manukanuka, me kōrero noa tātou mō tēnei.

He aha tēnei (Auditory Neuropathy Spectrum Disorder - ANSD)?

I te whakarapopototanga, ko ō tātou taringa te mea e āhei ai tātou ki te whakarongo ki ngā oro e karapoti nei i a tātou. Kātahi ka hurihia aua oro hei karere ka taea e te roro te mārama, ka tukuna atu ki te roro. Heoi, i ētahi wā ka ranea ēnei karere ina tae atu ki te roro, kāore rānei e tae atu ki reira. Koinei te mea e kiia nei e tātou ko te Auditory Neuropathy Spectrum Disorder, (ANSD rānei).

Anei ētahi mea ka pā ki ngā tamariki me tēnei mate (ANSD):

• He uaua pea te wehewehe i tētahi oro i tētahi atu.
• Kāore pea koe e mārama ki tā te tangata e kōrero nei.
• Ka rite ki te rongo koe i tētahi oro, kātahi ka ngaro whakarere .
• Tērā pea te āhua nei ko tāu e rongo ai i tētahi rā ehara i te mea e rongo ai koe i te rā e whai ake nei, arā, ka rerekē tāu e rongo ai .

Engari he rongo pai tēnei. Ahakoa ngā tamariki e pāngia ana e tēnei mate (ANSD) ka taea te whakapai ake i ō rātou pūkenga reo me te kōrero pai ki ētahi atu mā te whakamahi i ngā taputapu hauora e tika ana, te maimoatanga, me ngā tikanga whakawhitiwhiti kōrero ā-kanohi (arā, ngā tikanga whakawhitiwhiti kōrero mā te whakamahi i ngā tohu ā-kanohi).

He aha tēnei (ANSD) ka puta? He aha ngā take?

Ko te tino take o tēnei āhuatanga (ANSD) ko te pakaru i tētahi wāhi o te io whakarongo , te wāhanga o tō tātou taringa o roto e kiia nei ko te cochlea (e kohikohi ana i te oro me te hanga karere) me te roro.

He nui ake te tūponotanga o te whanaketanga o ēnei tamariki (ANSD):

• Mō ngā pēpi i whānau i mua i te rā whānau (ngā pēpi i whānau wawe).
• Mena kua pāngia tetahi o te whānau e tēnei āhuatanga (ANSD) i mua.
• Mena ka puta he jaundice kino i te whānautanga.
• Mena kāore i te rawaka te hāora i mua atu, i muri rānei i te whānautanga ((iti te hāora)) .
• Tērā ētahi rongoā ka kino pea ki ngā wāhanga tairongo o roto i te taringa, ki te io whakarongo rānei. Mēnā kua whiwhi te tamaiti i aua rongoā .
• Mena kei a koe ētahi āhuatanga ira , ngā āhuatanga pūnaha io rānei, pērā i te mate niho Charcot Marie.
• Mena he whara nui tōu upoko .

Me pēhea koe e mōhio ai mēnā kei a koe (ANSD)? He aha ngā tohu?

Ka tīmata pea ēnei tohu i ngā tau katoa. Heoi, ko te nuinga o ngā pēpi ka whānau mai me tēnei mate (ANSD). Ngā raruraru whakarongoKa rerekē pea mai i te ngawari ki te kino. He mea whakamiharo, ka taea e ētahi tamariki te rongo noa i ngā oro engari he uaua ki te mārama ki te mea e kōrerohia ana.

Tērā pea ka paahitia e ēnei pēpi te whakamātautau tirotiro taringa o ngā pēpi hou, engari i roto i te wā ka āta kite rātou he raruraru whakarongo ō rātou.

Kia tiakina ēnei mea i te tau tuatahi o tāu pēpi.

Tirohia mēnā ka pai te urupare a tō pēpi ki ēnei tohu whakarongo i te tau tuatahi o te oranga. Ki te kore, he mea pai kia kōrero ki te tākuta.

• Pēpi whānau hou : Ka ohorere ia, ka "ruaki" rānei ina rongo ohorere ia i tētahi haruru nui?
• I te toru marama pea : Ka mōhio tō pēpi ki te reo o tōna whaea, o tōna pāpā rānei? Ka tahuri tōna māhunga ki taua taha?
• I te ono marama pea : Ka tahuri ngā kanohi, ka anga rānei tō pēpi ki taua taha ina rongo ia i tētahi oro hou? Ka whakahua anō ia i ngā oro pēnei i te "uh" me te "ah"?
• I te 12 marama pea (kotahi tau) : Ka puta he oro iti, kāore he tikanga o tāu pēpi (he oro pākiki)? Ka whakautu mai tāu pēpi ina whakahuatia e koe tōna ingoa? Ka ngana tāu pēpi ki te whai i ngā kupu? Ka kōrero tāu pēpi i ētahi kupu, pērā i te "mama" me te "haere-haere"?

Kia pakeke haere tāu tamaiti, tirohia mēnā kei a ia ētahi o ēnei tohu.

I te pakeketanga ake o tāu tamaiti, ka puta pea ēnei tohu mēnā he raruraru whakarongo tōna:

• He iti te kōrero, he mārama, he kore rānei e kōrerotia .
• Kei te whakaaro koe kāore koe e whakarongohia ana, kāore rānei koe e whai ana i ngā tohutohu ?
• Kāore koe e whakautu ana ina kōrerotia mai ki a koe i te tikanga noa, kāore rānei e tika ana ō whakautu ?
• Ka ngawari te whakararuraru i a koe ina nui te haruru e karapoti ana i a koe?
• Kei te hiahia koe ki te whakanui rawa i te oro o te pouaka whakaata ?
• He raruraru ako āu?

Ki te mea he ruarua āu mō tāu tamaiti, me kōrero koe ki te tākuta. Koinei te mea pai hei mahi.

Me pēhea koe e mōhio ai mēnā kei a koe te tūnga (ANSD)?

Ko te tohunga whakarongo anake te tangata ka taea te tautuhi tika i te ANSD. Ko ia te tangata e mahi ana i ngā whakamātautau motuhake, e āwhina ana hoki i te hunga he raruraru whakarongo. He maha ngā whakamātautau matua hei āwhina i te tautuhi i te ANSD:

He aha ēnei whakamātautau?

• Whakamātautau tukunga otoacoustic (OAE) : Ka whakamātautauhia te pai o te mahi a te wāhanga o roto o te taringa e kiia nei ko te cochlea. Ka mahia tēnei i te wā e moe ana te pēpi, e noho mārire ana rānei. Ka whakanohoia ngā taringaoro iti ki roto i te taringa, ā, ka tukuna he oro ngawari, pērā i te tangi pāwhiri. Kātahi ka inehia te urupare mai i te taringa o roto mā te whakamahi i ngā tapanga iti e kiia nei ko ngā irahiko.
• Whakamātautau urupare roro whakarongo (ABR)Ka whakamātautauhia e tēnei te pai me te mārama o te haere o te oro e puta mai ana i roto i te taringa i te io whakarongo ki te take roro, kei te pūtake o te roro. Mena kāore ngā mōhiohio e tae mārama ana ki te roro, mā tēnei whakamātautau e whakaatu. I te nuinga o te wā, mena he noa te whakamātautau (OAE), ā, he iti noa, he kore rānei he urupare a te whakamātautau (ABR), ka whakaarohia he nui te tūponotanga o te (ANSD).
• Whakamātautau Whakaoho Uaua Taringa Waenga (MEMR) : He uaua iti kei roto i tō tātou taringa e whakapūmau aunoa ana ina rongo tātou i tētahi oro nui. Koia i huaina ai ko (MEMR). I roto i tēnei whakamātautau, ka whakaurua he pito rapa iti ki roto i te taringa, ā, ka tukuna he oro nui. Ka whakamahia he mīhini hei tirotiro i te urupare a tēnei uaua ki te oro. Mō te tamaiti me te (ANSD), kāore tēnei tauhohenga e puta ki ngā oro nui, me nui ake rānei te oro i te tangata noa hei whiwhi i te tauhohenga.

Ka taea e ngā kaupapa tirotiro taringa o ngā pēpi hou te whakamahi i ngā momo māmā o ēnei whakamātautau (OAE) me (ABR). Heoi, kia tika ai te tautuhi i te mate (ANSD), me mahi katoa ēnei whakamātautau.

He aha atu ngā whakamātautau e hiahiatia ana?

I muri i te tātaritanga o te mate (ANSD), me whai pea te tamaiti i ētahi atu whakamātautau:

• Whakamātautau (MRI) : Hei tirotiro mēnā he raruraru kei roto i te taringa, me te mea rānei he io whakarongo kei roto i ngā taringa e rua.
• Whakamātautau ira : Hei tirotiro mēnā he wāhanga tēnei āhuatanga (ANSD) o tētahi mate ira.
• Whakamātautau io : Tirohia mēnā he raruraru io anō.
• Te whakamātautau tirohanga : He maha ngā wā ka hono tahi ngā raruraru whakarongo me ngā raruraru tirohanga. Nō reira, he mea tino nui kia kite i tētahi tākuta kanohi mēnā ka tautuhia he tamaiti e pāngia ana e te ANSD.

Me pēhea te rongoā mō te mate (ANSD)?

Ka rongoatia ngā tamariki whai ANSD e tētahi rōpū tohunga . Ko te tikanga o tēnei ka mahi tahi te tohunga whakarongo (kaimātai whakarongo), te tohunga taringa, ihu me te korokoro (tākuta ENT), te kaiwhakaora reo-kōrero (kaimātai reo-kōrero), me te tohunga mātauranga ki te whakawhanake i te mahere maimoatanga pai rawa atu.

He maha ngā āhuatanga e whakawhirinaki ana ki te maimoatanga, tae atu ki te tau o te tamaiti, ko tēhea wāhanga o te io whakarongo kāore e mahi tika ana, me te kaha o te raruraru whakarongo.

He maha ngā wā ka whai hua nui ēnei tamariki i te whakamahinga o ngā taputapu āwhina whakarongo. Haunga ēnei taputapu, ko te haere tonu o te whakaora reo-kōrero hei whakapai ake i ngā pūkenga kōrero me te whakarongo a te tamaiti te huarahi pai rawa atu hei whakatutuki i ngā hua .

He aha ēnei taputapu whai hua?

• Ngā pūnaha whakarerekētanga auau (FM)Ka whakaitihia e tēnei pūnaha (FM) te nui o te haruru kāore e hiahiatia ana e karapoti ana i a koe, ā, ka rangona mārama, ka rangona nuitia hoki te reo o te kaikōrero (hei tauira, o te kaiako). He hopuoro iti me te (kaikawe) kei te kaikōrero. Ka tukuna e tēnei (kaikawe) he tohu hiko ki te (kaiwhiwhi) ka mau te tamaiti ki roto i tōna taringa, ka piri tika rānei ki te (āwhina whakarongo). He tino whai hua tēnei i roto i ngā akomanga me ētahi atu wāhi haruru nā te mea ka taea te kawe haere.
• Āwhina whakarongo : Ka whakamahia tēnei hei whakanui i te oro e tae atu ana ki te taringa. Ka taea e ētahi tamariki whai ANSD te whai hua mai i ngā āwhina whakarongo, inā koa ka whakamahia tahi me te pūnaha FM i whakahuatia ake nei. Heoi, kāore ngā āwhina whakarongo anake e tino whai hua mō ngā tamariki whai ANSD , nā te mea ka whakanui noa i te oro kua ngū.
• Te whakatō taringa : Mō ētahi tamariki whai ANSD, inā koa ko te hunga kāore e whiwhi āwhina nui mai i ngā taputapu whakarongo, he kōwhiringa pai te whakatō taringa. He taputapu tēnei e whakatōngia ana ki roto i te taringa mā te pokanga . Ka karohia ngā wāhanga o te taringa kāore e mahi tika ana, ā, ka whakaoho tika i te io whakarongo. Mā te whakangungu pai me te maimoatanga tonu, ka taea e ngā tamariki whai whakatō taringa te ako ki te whakarongo pai me te kōrero mārama.

He aha atu anō tāu e hiahia ana kia mōhio?

Haunga te whakamahi i ngā taputapu whakarongo, ka taea hoki e ngā tamariki whai ANSD te ako i ngā pūkenga kōrero tirohanga, arā, ngā huarahi ki te kōrero mā te whakamahi i ngā mea e kitea ana e ō rātou kanohi.

He aha ēnei tikanga whakawhitiwhiti kōrero ā-kanohi?

• Reo Tohu : He reo motuhake tēnei. He reo anō tōna, he papakupu, he tauira rerenga kōrero anō hoki. He mea hanga hei whakamahi hei utu mō te reo kōrero.
• Kōrero Ā-ringa : Kei roto i tēnei ko te mahi a te kaikōrero i ngā tohu ringa huri noa i te waha. Mā ēnei tohu ringa ka āwhina te kaiwhakarongo ki te wehewehe i ngā reta e āhua rite ana (hei tauira, 'ব' me 'প', 'ম' me 'ব' rānei). Ka taea te whakamahi i te Kōrero Ā-ringa i roto i ngā reo katoa, ā, he tino whai hua mō ngā whānau reo rua.
• Te Reo Ingarihi Tohu Tika (SEE) : He pūnaha reo tohu tēnei e whakamahi ana i te reo Ingarihi ōrite tonu e kōrerohia ana i te ara kotahi, kupu mō te kupu. He wāhanga anō hoki o te reo tohu, engari he mea tango mai te hanganga rerenga kōrero me te wetereo i te reo Ingarihi.

Ko te Cued Speech me te SEE e whakamāori tika ana i ngā mea e kōrerotia ana. Kua hangaia kia whakamahia ngātahi me te reo kōrero hei āwhina i a koe ki te mārama ki ngā mea kāore e taea e te pānui ngutu anake.

He tino hira te tūranga o ngā mātua ki te whakaako i ā rātou tamariki me te ANSD ki te kōrero me te kōrero ki ētahi atu. Ka taea te whakatutuki i ngā hua pai rawa atu mā te mahi tahi me te tīma hauora.

Ka kitea e koe ētahi atu kōrero me te tautoko i ngā paetukutuku pēnei i ēnei:

• CDC: Te Ngaronga o te Whakarongo me tāu Tamaiti (paetukutuku o te US Centers for Disease Control)
• Ringa me ngā Reo (he whatunga mō ngā mātua me ngā tohunga)

Ngā mea tino nui hei maumahara māu (Karere hei kawe ki te kāinga)

Āe, me whakamahara atu mātou ki a koe ētahi o ngā mea kua kōrerotia e tātou me maumahara koe.

• Ko te Mate Pūnaha Neuropathy Whakarongo (ANSD) he āhuatanga e kore ai e tika te haere o ngā karere oro mai i te taringa ki te roro.
• He mea nui kia mōhio wawe koe ki tēnei . Ki te whakaaro koe he rerekētanga, he whakaroa rānei te whakarongo a tāu tamaiti, me toro atu ki te tākuta tonu.
• Ka taea anake te tautuhi tika i tēnei āhuatanga mā roto i ngā whakamātautau motuhake pēnei i te (OAE) me te (ABR).
• Kaua e manukanuka, mā ngā taputapu pēnei i ngā pūnaha (FM), (ngā taputapu whakarongo), (ngā taputapu whakatō cochlear), te whakaora kōrero, me ngā tikanga whakawhitiwhiti kōrero ā-kanohi ka whakapai ake i te kaha kōrero a tāu tamaiti .
• Hei mātua, ko tō hiahia, tō whakapau kaha, me te mahi tahi me te tīma hauora te kaha nui rawa atu mō tāu tamaiti .

Kia maumahara, he rerekē ia tamaiti, ia tamaiti, nō reira he mea nui kia kitea te maimoatanga me te tautoko e tika ana mō tāu tamaiti.

Ngā Mate Pūnaha Whakarongo, ANSD, Ngā Raru Whakarongo, Hauora Tamariki, Ngā Whakamātautau Whakarongo, Ngā Whakatō Kōrero, Te Whakaora Kōrero