Ina kī mai tō tākuta he mate ate tōu e kiia nei ko te PBC, arā, ko te `Primary Biliary Cholangitis`, tera pea koe e mataku nui ana, e manukanuka ana hoki. "Ka ahatia taku ate? Me whai whakawhitinga ate ahau?" Tērā pea koe e whakaaro ana. Engari kaua e manukanuka. Inaa, ehara i te mea ko te katoa e whai PBC ana e hiahia ana ki te whakawhitinga ate. I roto i tēnei tuhinga, ka kōrerohia e mātou te wā e hiahiatia ai te whakawhitinga ate, he aha ngā take, me te pehea e whakatau ai tō tākuta i tēnei.
Tuatahi, kia tirohia tātou he aha e kore ai e hiahiatia he whakawhitinga ate mō ngā tūroro PBC katoa.
He kupu ngāwari noa iho, he mate tino puhoi te tipu o te PBC. Ina koa ka kitea wawetia, ā, ka whai i ngā tohutohu a tō tākuta, ka roa pea te 15 ki te 20 tau ka piki haere te mate ki te taumata kino. He maha ngā tāngata ka taea te whakahaere i ō rātou tohu mā te whakamahi i ngā rongoā tika, ā, ka ora noa i te oranga noa mō ngā tau, me te kore he pānga kino nui.
Arā, kāore he take e wehi ai koe ki te whai whakawhitinga ate nā te mea he PBC tōu. E hiahiatia ana tēnei mō te hunga tokoiti noa iho e pāngia ana e te mate kino rawa atu, e mate ai rātou.
Whakaarohia, mēnā kua tōmuri te tautuhi i a koe kua pāngia e te mate, mēnā rānei he momo mate kaha tōu e tere haere ana te horapa, koinā te wā me whakaaro koe ki te whakawhitinga ate.
Nō reira, āhea koe me whakaaro ki te whakawhitinga ate?
Ka tirohia e tō tākuta me tō tīma hauora ētahi āhuatanga hei whakatau mēnā me whai whakawhitinga ate koe. Ehara tēnei i te whakatau kotahi noa iho. Ka aroturuki tonu rātou i tō āhua, ā, ka tae ki tētahi whakatau.
Kia tirohia ngā take matua o tēnei āhuatanga i te ripanga i raro nei.
| Te take mō te tukunga mō te whakawhitinga ate | He aha te tikanga o tēnei? |
|---|---|
| Te korenga o te maimoatanga | Mena kāore e taea te whakahaere i te mate mā ngā rongoā e hoatu ana ki a koe, hei tauira , ko te waikawa Ursodeoxycholic (UDCA) me te waikawa Obeticholic (OCA) , ā, ka haere tonu te kino o te ate. |
| Te ngoikore o te ate | Ki te tino whara te ate (e kiia ana tēnei ko te cirrhosis ) ā, kāore e taea e te ate te mahi i ana mahi matua, pērā i te horoi i te toto me te hanga pūmua e hiahiatia ana e te tinana, |
| Te putanga mai o ētahi atu raruraru nui | Mena ka puta mai i te PBC ētahi atu raruraru hauora nui, e morearea ana ki te ora, pērā i te toto i roto i tō pūnaha nakunaku (ara GI) me te mate pukupuku ate rānei, me whakaaro pea koe ki te whakawhitinga wheua. |
| Ngā tohu e kore e taea te whakamanawanui | I ētahi wā, ahakoa kāore te ate i te ngoikore, ki te kore e taea te whakahaere i ngā tohu pēnei i te mākati kore e taea te whakamanawanui, te ngenge nui rānei ki te rongoā, ka tūtohutia pea he whakawhitinga toto hei whakapai ake i te kounga o te oranga. |
Ngā tohu e aro nui atu ana te tākuta ki
Haunga ēnei mea matua, ka rapua anō hoki e tō tākuta ētahi atu mea. Hei tauira:
- Kei te kōwhai haere ō kanohi me tō kiri (jaundice)?
- Ka kī te puku i te wai (ascites)?
- Kei te ruaki toto koe?
- Kua ngoikore te mahara me te hinengaro (Hepatic encephalopathy)?
Ko te tikanga o ēnei tohu he uaua ki te ate te mahi tika i tana mahi. I ēnei wā, ahakoa kāore ō tohu i te kino rawa, ka whakatau pea tō tākuta ki te tuku i a koe ki te whakawhitinga ate.
Me pēhea te tukanga e tukuna ai koe mō te whakawhitinga ate?
Mā tō tākuta whānui koe e tuku ki tētahi tohunga ate , he tākuta e tohunga ana ki ngā mate o te ate me te pūhā. Mēnā ka tirotirohia e ia tō āhua, ā, ka whakatauhia he mea tika kia whakawhitihia he toto ki tētahi hōhipera, ka tukuna koe ki tētahi pokapū motuhake i roto i te hōhipera e mahi ana i ngā pokanga whakawhiti toto ki tētahi tākuta.
He tukanga roa tēnei.
1. Te tūtaki ki te tīma tohunga: Ka tirotirohia koe e tētahi tīma nui tae atu ki ngā taote pokanga, ngā tohunga ate, ngā nēhi, me ngā kaimahi hapori.
2. Ngā whakamātautau: He maha ngā mahi pēnei i ngā whakamātautau toto me ngā matawai ka mahia hei tirotiro mēnā ka taea e tō tinana te tu atu ki tētahi pokanga nui pēnei.
3. Te whakanoho ki te rārangi tatari: Mena he pai ngā mea katoa, ka whakanohoia koe ki te rārangi tatari ā-motu hei tatari mō te ate.
Ka roa pea ngā marama, ā, i ētahi wā ka roa ake, kia whiwhi ai i te ate. Ka riro mai te ate i tētahi kaituku kua mate, i tētahi tangata ora rānei, pērā i tētahi mema o te whānau, nāna i tuku tētahi wāhanga o tōna ate.
Ko te mea nui, ahakoa kua tukuna koe e tō tākuta mō te whakawhitinga wheua, ehara i te mea ka mahia te pokanga āpōpō. Ko te tikanga kua tangohia e koe te taahiraa tuatahi ki te whakarite i a koe mō taua mea ā muri ake nei, ki te hiahiatia.
Me aha ahau?
Ko te mea nui kia kaua e mataku, me te pupuri tonu i te whakawhitiwhiti kōrero ki tō tākuta.
- Haere ki te whare hauora i te wā tika: Kaua e mahue tetahi whare hauora. He mea nui kia aroturukihia tō āhua.
- Tangohia tō rongoā kia rite ki tā te tākuta i tohutohu ai: Tangohia tō rongoā i te wā tika, i te horopeta tika.
- Te āhua noho hauora: Kati rawa te inu waipiro. Kai i te kai taurite. Whakawhitiwhiti kōrero ki tō tākuta mō ētahi atu tohutohu mō tēnei.
- Pātai atu: Kōrerohia ki tō tākuta ō wehi, ō ruarua, me ō āwangawanga. Kaua e wehi ki te pātai i ngā pātai pēnei i te, "E tākuta, kei te pēhea aku pūrongo? Me whakaaro ahau ki te whakawhitinga wheua?"
He uaua pea te noho me te PBC, engari kia maumahara, mā ngā maimoatanga matatau o ēnei rā, he tokomaha ngā tāngata ka taea te whakahaere angitu i te mate me te ora i te oranga pai.
Karere Tangohia ki te Kāinga
- Ehara i te mea ko te hunga katoa he PBC e hiahia ana ki te whakawhitinga ate. He mate tino whanake haere tēnei i te nuinga o te wā.
- Me whakaaro noa ki te whakawhitinga ate ina kore e angitu te maimoatanga, mena ka kore e taea te mahi i te ate (ka ngoikore te ate), mena rānei ka puta mai ētahi atu raruraru nui.
- Ko te whakatau whakamutunga mō te hiahia, te kore rānei, ki te whakawhitinga wheua ka mahia e tō tākuta motuhake, i runga i ō whakamātautau toto, ō tohu, me tō hauora whānui.
- Ko te mea pai rawa atu ka taea e koe ko te whai i ngā tohutohu a tō tākuta, te tango i tō rongoā kia rite ki te whakahaunga, me te haere ki ngā wāhi rongoā.
- Kōrero mārire ki tō tākuta mō ngā pātai, ngā āwangawanga rānei kei a koe mō tō āhua.
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